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      Mother on phone

      Cancer Support Helpline

      Mon - Thu 11 a.m. - 8 p.m. ET  
      Fri 11 a.m. - 6 p.m. ET

      Call: 888.793.9355

    • Support
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WATCH

High-Deductible Health Plans and Patient Affordability to Care

The Cancer Policy Institute hosted a webinar to address the use of high-deductible health plans and their implications on patients’ access and affordability to care with guest speakers:

  • Kollet Koulianos, MBA, Vice President of Payer Relations, National Hemophilia Foundation
  • Cynthia Cox, Vice President, Kaiser Family Foundation
  • Myra Simon, Principal, Avalere Health
Read

High-Deductible Health Plans: What Patients Need to Know

High-deductible health plans (HDHPs) are an increasingly popular type of health plan, especially for employer-sponsored plans. This blog explains how these health plans work and certain risks they can pose for enrollees — particularly for those with a chronic health condition or serious illness, such as cancer.
Denyse smiles in a black dress and gold necklace
Read

Advocate Spotlight: Denyse Phipps Crank

CSC patient advocate Denyse Phipps Crank talks about her personal experience with cancer and what it was like to attend President Biden's historic announcement at the White House to relaunch the Cancer Moonshot initiative.
Wig designer and cancer hair loss consultant Amy Gibson wears a wig of long and wavy golden-brown hair
Read

How to Choose a Wig You’ll Love After Cancer Hair Loss

Wig designer and cancer hair loss consultant Amy Gibson works with women who are facing temporary hair loss from breast cancer treatment. One of the first things Amy asks is, “Did you like your hair?” Women often respond, “It was okay,” or “I did, but I’ve just never gotten the color right.” “Well, this is the time we can get it right and make you rock!” says Amy. Keep reading for some tips from Amy on finding and selecting a wig that fits your tastes and feels comfortable, too.
WATCH

Racial Caucuses and Affinity Groups

A headshot of CSC's new CEO Debbie Weir shows her smiling and wearing a purple blouse and black blazer with a cancer awareness ribbon lapel pin
Read

CSC’s New CEO Debbie Weir Will Help Lift the Voices of People Impacted by Cancer

Debbie Weir has spent her career lifting the voices of people impacted by life-changing events and expanding the visibility of those causes. Now, Debbie is bringing her vision, passion, and business acumen to the Cancer Support Community as its new CEO. Read on to learn more about Debbie.

Cancer Support Community Names Debbie Weir as New CEO

Submitted by kagricola on Wed, 03/02/2022 - 17:09

Former Mothers Against Drunk Driving (MADD) and Everytown for Gun Safety leader will be the first social worker to lead the international non-profit

WASHINGTON, D.C., March 3, 2022 — The Cancer Support Community (CSC), the world’s largest provider of cancer support with a network of 196 locations across the United States and Canada, announced today that Debbie Weir will serve as its next Chief Executive Officer, starting March 7, 2022.  Weir has spent her career lifting the voices of people impacted by life-changing events, expanding the visibility of those causes, and leading advocacy efforts that make positive change.

A social worker by training, Weir brings more than 30 years of proven success in nonprofit management.  Most recently, she served as Chief Mission Officer at Everytown for Gun Safety. Prior to that, Weir spent 15 years at Mothers Against Drunk Driving in roles of increasing responsibility, culminating in her serving as MADD’s National CEO from 2012 to 2017. Prior to her work at MADD, Debbie built and directed St. Paul’s Hospice program in Dallas, after leading the Social Services Department at St. Joseph Hospital in Fort Worth for four years.

“I’m so excited to join CSC,” said Debbie Weir. “Patients and families living with cancer deserve psychosocial support and education to navigate their journeys. I started my career as a medical social worker and, to my core, I am passionate to lead an organization that provides direct support and services. When I look at all the work I’ve done, there’s so much of what CSC is doing in it that I believe I can seamlessly bring my skills and leadership to help grow the mission and reach even more people.”

Weir brings to CSC relevant experience and a vision to expand its impact to new and more diverse communities. Having lost her father to suicide after a lengthy, debilitating cancer diagnosis and treatment, caring for her mom who is a breast cancer survivor, and recently serving for months as her brother’s primary caregiver until his own death from cancer, Weir understands in an extremely personal way the impact of a cancer diagnosis and the critical importance of CSC’s mission to serve patients and their loved ones. On the professional side, Weir arrives with an extensive and proven track record of operational excellence and business acumen — working to build large, complex, mission-driven organizations ­— and vast experience leading advocacy efforts and grass roots engagement initiatives executed on a national, state, and local level. Weir describes health equity and DEI (diversity, equity and inclusion) as moral imperatives to be a voice and resource for people who historically have lacked access to comprehensive healthcare and services. 

“Today, there are nearly 17 million cancer survivors in the United States, plus many more friends and family who provide them informal care,” remarked Lauren Barnes, chair of CSC’s board of directors. “As we look forward to serving even more impacted individuals, it is clear to me that Debbie Weir is the exact right person to lead CSC at this time. I am deeply impressed with her success both building and leading national networks comprised of hundreds of chapters, thousands of volunteers and millions of members and supporters. Likewise, her ability to galvanize advocates, stakeholders, and supporters around mission priorities is masterful.”

“Whether impacted by traumatic tragedies due drunk driving, gun violence, or a cancer diagnosis, people experiencing life-altering events require strong advocates who provide support, education, and community,” said Ken Scalet, Interim CEO and longtime board member. “Debbie Weir’s demonstrated success as an action-oriented executive, tireless advocate, and inclusive collaborator make her an ideal leader to grow CSC and improve the patient experience for this generation of patients, caregivers, and survivors, and the next. As we mark our 40th anniversary, I’m excited and optimistic for our future under Debbie’s leadership.”

Both Barnes and Scalet are confident that Weir’s approach aligns with the incredible commitment of the professionals who deliver the gold standard of care at CSC and Gilda’s Club centers and through hospitals and other healthcare partnerships.

Weir joins a strong and seasoned leadership team at CSC, including its Chief Experience Officer Sally Werner and its Chief Operating Officer Jeff Travers. Werner is an oncology nurse by training with a master’s degree in health administration. She is a recognized leader and patient advocate with over 25 years of experience with nonprofit and for-profit hospitals, as well as community-based organizations. She has overseen all aspects of cancer care, including inpatient and outpatient oncology units, cancer research, cancer registry, supportive services, radiation oncology, infusion centers, and centers for breast health. Travers has an MBA and more than 30 years of non-profit management experience in healthcare and education. He has served as CSC’s operations and finance lead since 2016. His broad experience includes strategic planning, fundraising, communication, real estate development, and program management.

Weir expects to initially spend a great deal of time listening to and learning from CSC’s community, from the licensed healthcare professionals that work directly with patients and caregivers, to its educators, researchers, and advocates as well as its Network Partners located across the country and abroad. She will also connect with CSC’s various stakeholders, including supporters and partners in the cancer, health equity, and policy arenas.

“I am authentically passionate about CSC’s mission. I can’t wait to lead and work with others so more people will know the tremendous impact of this organization that provides support in a way nobody else is quite doing,” said Weir. 

Weir holds a Master’s Degree in Social Work from Norfolk State University and Bachelor of Science in Social Work from Longwood College. Her volunteer work includes serving on the National Board of Directors of the One Love Foundation and Safe Kids Worldwide. Weir also serves as a volunteer on MADD’s National Helpline.

 

About the Cancer Support Community

The Cancer Support Community (CSC) is a global nonprofit network of 196 locations, including CSC and Gilda's Club centers, hospital and clinics, and satellite locations that deliver $50 million in free support services to patients and families. In addition, CSC administers a toll-free helpline and produces award-winning educational resources that, together with the locations, reach more than one million people each year. Formed in 2009 by the merger of The Wellness Community and Gilda’s Club, CSC conducts cutting-edge research on the emotional, psychological, and financial journey of cancer patients. CSC also advocates at all levels of government for policies to help individuals whose lives have been disrupted by cancer. In January 2018, CSC welcomed Denver-based nonprofit MyLifeLine, a digital community that includes nearly 40,000 patients, caregivers, and their supporters that will enable CSC to scale its digital services in an innovative, groundbreaking way.

Thu, 03/03/2022 - 17:09

Cancer Support Community Launches New Study Focused on Bladder Cancer

Submitted by kburwell@cance… on Thu, 02/17/2022 - 16:41

The study will examine unmet needs, quality of life, and other issues impacting patients and caregivers

 

PHILADELPHIA, PA (February 10, 2022) – The Cancer Support Community (CSC), the world's largest provider of cancer support with a network of 196 locations across the United States and Canada, has recently expanded its innovative, flagship research study, the Cancer Experience Registry (CER). The online survey for patients and caregivers now includes questions specifically designed to capture the experience of those diagnosed with bladder cancer.

Bladder cancer is the fifth most common form of cancer overall and the fourth most common among men. An estimated 83,730 people were diagnosed with bladder cancer in 2021 alone.

“There is no one size fits all in terms of treatment,” said Karen Godfrey, bladder cancer survivor and patient advocate. “Self-advocacy, sharing of experiences, and demanding better treatment options are all vitally important.”

“A lot of treatment options for bladder cancer, such as cystectomy, urostomy, and ostomy, are unfamiliar to many people and can be frightening. There’s also some stigma associated with this diagnosis, so patients can be reluctant to talk about it,” said Heather Badt, Director of CSC’s Research and Training Institute. “We want to give a platform to everyone who has been touched by bladder cancer to shed light on the particular challenges that come with this diagnosis.” 

The CER asks people living with cancer to tell CSC bout their physical health, social well-being, work, stress, as well as treatment decision-making, the financial impact, and more. Results from the CER are used by health care workers, researchers, and policymakers to enact change and create better outcomes for this generation of patients, caregivers, and survivors, and the next.

Badt added, “No one should feel like they are facing cancer alone. By participating in the CER’s bladder cancer registry, you are joining a community of people united in improving the experience of people touched by this cancer.”

First launched in 2013, the CER has engaged nearly 19,000 patients, survivors, and caregivers. With the addition of bladder cancer specific questions, the CER now includes tailored questions for 14 specific cancer diagnoses. The CER remains open to all people living with cancer and to friends or family who have provided care. Learn more about the survey. 

CSC is grateful for the support of the Bladder Cancer Advocacy Network (BCAN) on this project.

 

About the Cancer Support Community

The Cancer Support Community (CSC) is a global nonprofit network of 196 locations, including CSC and Gilda's Club centers, hospital and clinics, and satellite locations that deliver $50 million in free support services to patients and families. In addition, CSC administers a toll-free helpline and produces award-winning educational resources that, together with the locations, reach more than one million people each year. Formed in 2009 by the merger of The Wellness Community and Gilda’s Club, CSC conducts cutting-edge research on the emotional, psychological, and financial journey of cancer patients. CSC also advocates at all levels of government for policies to help individuals whose lives have been disrupted by cancer. In January 2018, CSC welcomed Denver-based nonprofit MyLifeLine, a digital community that includes nearly 40,000 patients, caregivers, and their supporters that will enable CSC to scale its digital services in an innovative, groundbreaking way. 

Thu, 02/10/2022 - 16:41
Read

Coping With Head & Neck Cancer for Long-Term Survivors

Offers tips for head and neck cancer survivors and their caregivers, including how to manage long-term side effects of cancer and its treatment.

WATCH

Help! My Cape is WAY too Tight

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