Research & Training Institute
About the Research & Training Institute
Since its inception, the Research & Training Institute (RTI) has become a leading expert in the cancer patient and caregiver experience. The RTI conducts novel psychosocial, behavioral, and survivorship research to advance scientific knowledge, inform policy initiatives, and support development of supportive care programming and education.
As the demand for patient-centered care grows stronger, there is a related need for research that sheds light on the patient experience. The RTI aims to contribute to the growing body of social, emotional, and behavioral cancer research by focusing on inclusivity, access, and advocacy. Patients and caregivers involved in our research come from communities across the United States and beyond representing diverse perspectives on what it means to live with and beyond cancer.
Key research areas include:
- Cancer patient, survivor, and caregiver needs, priorities, and well-being including areas such as: access to care, cost of care, treatment decision making, adherence, adverse effects management, and clinical trials. Join the Registry Now
- Social and emotional experiences of cancer caregivers
- The impact of distress screening and social and emotional support
- Doctor-patient communications
- Patient Insights Research: documenting real-life experiences
2020 Cancer Experience Registry Report
The 2020 Cancer Experience Registry Report describes general findings among patients with any cancer type, findings among patients living with specific cancers, and findings among caregivers.
The RTI draws on the expertise of the RTI Advisory Board, several project-specific advisory Councils as well as a broad range of strategic partnerships with other organizations, academics, and individuals representing the cancer community. The RTI Advisory Board includes members representative of patients, caregivers, health care providers, academic researchers, and others who enable the Institute to capture the full patient experience. Together, we contribute key findings from the patient experience to push the trends in cancer care toward a patient-centered model of care.