People's faces around the world

Publications & Presentations

The Cancer Support Community is a leader in research on the patient, survivor, and caregiver experience. Our work appears in posters and presentations shared at professional conferences, published articles in preeminent peer-reviewed journals, educational materials for patients and caregivers, and comprehensive research reports to help inform cancer care and patient advocacy.

Use the search filters below to discover our research findings on diverse topics related to patient and caregiver quality of life, including:

  • Psychosocial well-being and symptom management
  • Patient-provider communication
  • Treatment options
  • Patient advocacy
  • Financial toxicity and other barriers to health equity
  • Experiences and perspectives on precision medicine

cover for financial toxicity

The interplay of financial toxicity, healthcare team communication, and psychosocial well-being among rural cancer patients and survivors

Financial toxicity is a term that refers to the out-of-pocket costs, lost wages, and debt faced by cancer patients as well as the distress caused by financial strain. New research from Cancer Support Community’s Cancer Experience Registry examines the role of financial toxicity among cancer patients in rural settings and suggests that healthcare team communication may play a key role in helping patients manage the financial impacts of cancer on mental and social health.

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This study assessed the experiences and perspectives of Latinos living with cancer when accessing psychosocial support among a sample of Mexican-born, Spanish-speaking patients and survivors residing in the U.S.

Advancing the Science of Cancer in Latinos
2024

This study assessed the reasons behind low participation rates and evaluated how LGBTQ+ specific experiences differ from the general population can help develop resources and programs that address the disparities in CCT participation, advancing LGBTQ+ health equity.

Journal of Clinical Oncology
2023

Sleep disturbance and fatigue are prevalent among ovarian cancer patients and are associated with poor mental health and Health-related quality of life (HRQoL) outcomes. This study assessed  the factors that may contribute, what cancer patients perceive as contributing to their issues, and how they describe and manage these issues across their treatment trajectory.

Journal of Clinical Oncology
2023

CSC recognized that patients and caregivers undergoing CAR T-Cell Therapy benefit from specialized 1:1 support throughout their treatment course. The Cancer Support Helpline customized the already established navigation framework to support this specific population.

Journal of Advanced Practitioner in Oncology
2023

While many nutrition-related resources and guidelines focus on physical health outcomes, support around nutrition and eating behaviors can have critical implications for mental health and quality of life outcomes among breast cancer patients and survivors.

San Antonio Breast Cancer Symposium
2023

AML can have a considerable impact on social well-being, including personal and work domains. In this study, we aimed to determine the feasibility of creating a composite score for social toxicity and examine its prevalence of individuals diagnosed with AML.

American Society of Hematology
2023

MDS is a complex diagnosis that can pose challenges for shared decision-making between providers and patients. In this study, we aimed to identify informational gaps of individuals with an MDS diagnosis.

American Society of Hematology
2023