Publications & Presentations

The Cancer Support Community is a leader in research on the patient, survivor, and caregiver experience. Our work appears in posters and presentations shared at professional conferences, published articles in preeminent peer-reviewed journals, educational materials for patients and caregivers, and comprehensive research reports to help inform cancer care and patient advocacy.

People's faces around the world

Use the search filters below to discover our research findings on diverse topics related to patient and caregiver quality of life, including:

  • Psychosocial well-being and symptom management
  • Patient-provider communication
  • Treatment options
  • Patient advocacy
  • Financial toxicity and other barriers to health equity
  • Experiences and perspectives on precision medicine
cover for financial toxicity

The interplay of financial toxicity, healthcare team communication, and psychosocial well-being among rural cancer patients and survivors

Financial toxicity is a term that refers to the out-of-pocket costs, lost wages, and debt faced by cancer patients as well as the distress caused by financial strain. New research from Cancer Support Community’s Cancer Experience Registry examines the role of financial toxicity among cancer patients in rural settings and suggests that healthcare team communication may play a key role in helping patients manage the financial impacts of cancer on mental and social health.

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Cancer SupportSource-Spanish (CSS-Spanish) is a psychometrically robust measure of psychosocial distress among Hispanic and Latino individuals with cancer CSS-Spanish was created using gold-standard methods for translation and an iterative processof testing that included feedback from Spanish-speaking Hispanic and Latino individuals living with cancer and a project advisory board  

National Hispanic Medical Association Annual Conference
2023

The COVID-19 pandemic presents a unique, amplified threat to those living with a cancer diagnosis, but personal factors may play a role in how this affects well-being. This cross-sectional study (1) describes the impacts of COVID-19 on cancer patients’ lives, and (2) explores the extent to which specific impacts of COVID-19 and noted protective factors, hope and resilience, predict two crucial patient-reported outcomes, depression and anxiety, after controlling for relevant sociodemographic and clinical factors.

Journal of Patient-Reported Outcomes
2023

This study aims to characterize patient experiences with biomarker testing, including history of biomarker testing, related communication and education, self-perceived familiarity and informational needs.

2023

COVID-19 continues to have long-lasting effects on healthcare experiences and health-related quality of life, especially for individuals who are more reliant on frequent medical services, such as those living with a cancer diagnosis. 

National Comprehensive Cancer Network Annual Conference
2023

Compared to CRC patients diagnosed at an older age, young adult colorectal cancer patients tend to present with advanced tumors, are more likely to receive more aggressive treatments, live with disease and treatment-associated symptoms for longer periods of time, and face the stress of experiencing a life-threatening illness and the financial burden of treatment at a young age.

National Comprehensive Cancer Network Annual Conference
2023

The COVID-19 pandemic continues to have substantial, long-lasting impact on individuals, especially those who are already at-risk due to existing physical and mental conditions.

APOS
2023

As many as one-quarter of people living with cancer are also living with depression, and about 20 percent with anxiety. Even when patients are screened for distress and referred to care, many patients do not access this treatment or support.

APOS
2023

As many as one-quarter of people living with cancer are also living with depression, and about 20 percent with anxiety. Even when patients are screened for distress and referred to care, many patients do not access this treatment or support.

APOS
2023

Older adults living with metastatic cancer experience diverse psychosocial concerns. While symptom burden had expected associations with anxiety and depression risk, concerns about body and healthy lifestyle, relationships and intimacy, and health care team communication were notable significant predictors of anxiety and depression risk, respectively. 

APOS
2023

This report is an exploration of the continued need for caregiver support and research, and aims to understand the emotional, physical, practical, and financial impact of cancer and identify unmet needs among patients, survivors, and caregivers.

APOS
2023