Take Action Now! Help Us Improve the Lives of Those Impacted by Cancer!
Join the Grassroots Network Today
- Get up-to-date information on key issues that are important to patients with cancer and their loved ones.
- Be part of a network that interacts with Capitol Hill and other policy makers on issues important to cancer patients.
- Have your voice heard along side other voices of patients with cancer and their loved ones.
- Participate in research being conducted at the Cancer Support Community.
- And more!
Ask Your Members of Congress to Support PERA!
The Cancer Support Community (CSC) has joined with almost 20 organizations in support of the Patient Experience in Research Act (PERA; H.R. 2244) which was introduced by Reps. Diana DeGette (D-CO) and Leonard Lance (R-NJ) in the U.S. House of Representatives in May, 2017. This legislation will create a pilot study in which three clinical trials will incorporate a distress screening measure to evaluate, document, and follow-up on the social and emotional factors experienced by cancer patients. The overall goal of PERA is to measure the impact of the full patient experience in clinical trials.
The Institute of Medicine concluded in 2008 that comprehensive cancer care must include psychosocial care. In 2016, the American College of Surgeons Commission on Cancer adopted a standard that states that patients must undergo distress screening so that patients have their full range of needs addressed. Patients enrolled in clinical trials deserve the same level of care. Integrating distress screening and follow-up care in the clinical trial process can help identify early potential causes for trial abandonment, improve patient outcomes, leverage efficiency of clinical trials resources, and enhance trial completion timeline and compliance.
Take action today and send a letter to your Members of Congress explaining the important of PERA and asking them to co-sponsor it. It is important that we support the comprehensive range of needs facing cancer patients in all stages of treatment, including clinical trials.
Share Your Story: How Has Cancer Impacted Your Life?
Every single person impacted by cancer has a different story. You could be a cancer patient or survivor, a caregiver, a friend or family member. Perhaps cancer has impacted you physically, mentally, emotionally, financially, or spiritually. However cancer has impacted you, we want to hear your story. Please take a moment to tell us about your experiences. Your stories do make a difference in the effort to ensure that all those impacted by cancer have access to quality, timely, and affordable health care.
Any stories shared are confidential within the Cancer Support Community and will not be shared without your permission.