Blog

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Read July 30, 2020

Power to the Patient Voice

You hear the words, “You have cancer,” and suddenly, the world around you stops. You can see the doctor’s lips moving to form words that...
Kim Praitano
Read July 13, 2020

Advocate Spotlight: Kim Praitano

Each month, the Cancer Policy Institute profiles advocates who have been engaged in cancer advocacy. Read on to learn more about Kim Praitano, President & CEO of Gilda’s Club South Florida, and her passion for psychosocial support in cancer care. If you are interested in learning more about policy, advocacy, and ways to get involved, sign up to be a part of the Grassroots Network!
Read July 8, 2020

A Step Toward Increasing Patients’ Voices in Clinical Trials

The Cancer Support Community (CSC) welcomes the FDA’s new pilot program, Project Patient Voice, as a thoughtful first step toward the development of a comprehensive and consistent method of sharing patient experience data (PED) collected in clinical trials with patients and providers to help inform treatment decisions.
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Read July 7, 2020

2020 Census and its Impact on the Cancer Community

Every ten years, the U.S. Census Bureau conducts a census to count every living person in the U.S. and U.S. territories. The results of the census inform decision making and affect the support and amount of money your community will receive in federal funding.
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Read June 29, 2020

The Affordable Care Act: An Update

The ACA has provided health insurance coverage to millions of Americans through the establishment of individual marketplaces and the expansion of Medicaid. It also has protected Americans with pre-existing conditions and allowed young adults to stay on their parent's insurance until the age of 26. Read on to learn about the impact the law has had on the cancer community as well as the current threat to the ACA.
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Read June 29, 2020

What is the Federal Government Doing to Help People Impacted by Coronavirus?

If you are a person impacted by the novel coronavirus (COVID-19), are living with cancer, or are immunocompromised, one important way to maintain some sense of control in what might be an anxiety-provoking time is to understand what is being done from a policy perspective to help respond to the pandemic, and how these changes have the potential to actually impact you and your community.
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Read June 25, 2020

Pride Month: Addressing and Overcoming Health Disparities for LGBTQ+ Cancer Patients

Every June, pride month is celebrated with parades and marches across the country to celebrate diversity, promote dignity and equal rights, and increase visibility. While the COVID-19 pandemic may have put parades and marches on hold for this year, it is more important than ever to celebrate and support community while also acknowledging that there is much work needed in overcoming health disparities in the LGBTQ+ community.
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Read June 25, 2020

What Cancer Patients, Survivors and Caregivers Need to Know about the Coronavirus

For many cancer patients and survivors with compromised immune systems, the reporting on this public health emergency may likely be source of anxiety. At a time when information is coming at us at a rapid pace, we are putting resources for you here, in one place. Read on to view a list of the resources we have and the actions CSC are taking to provide support to individuals affected by cancer.
Read June 15, 2020

Addressing and Overcoming Health Inequities

We are facing extremely challenging times in our country due to the many layers of crisis and strife affecting our families, our communities and our nation. The tragic deaths of George Floyd, Ahmaud Arbery, and Breonna Taylor, as well as COVID-19 disproportionately affecting racial and ethnic minorities, lay bare the racial inequities in our society and magnify very real systemic and institutional injustices. The Cancer Support Community (CSC) will continue to advocate for health care policies that break down inequities and enable all individuals to have access to affordable medical care and support.
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Read June 12, 2020

Advocate Spotlight: Rachel Gerstenfeld

Each month, the Cancer Policy Institute profiles advocates who have been engaged in cancer advocacy. Read on to learn more about Rachel, a graduate student at the University of Maryland getting a Master of Public Health degree with a concentration in Health Policy. If you are interested in learning more about policy, advocacy, and ways to get involved, sign up to be a part of the Grassroots Network!