Blog

Place matters, especially when home must be redefined because the person with whom you made a home is no longer alive.

Each month, the Cancer Policy Institute profiles advocates who have been engaged in cancer advocacy. Read on to learn more about Ben, and how his cancer diagnosis led him to pursue a career in cancer advocacy.

If you are interested in learning more about policy, advocacy, and ways to get involved, sign up to be a part of the Grassroots Network!

CSC President Linda Bohannon sat down with actor and racecar driver Patrick Dempsey to discuss his work in cancer care, including The Dempsey Center, the importance of patient empowerment and more.

As we start a new year, the Cancer Support Community (CSC) is pleased to report on two exciting policy changes that promote the delivery of psychosocial care for cancer patients.

Grief comes in waves, in ebbs and flows, even for three-year old toddlers. That first year without Brett was a pendulum of conversation, reasoning, and tears. But there’s nothing easy or linear about parenting, let alone parenting grieving children. I learned not to expect too much from myself or from them.

When at last Brett died, I expected peace, not chaos all over again. I’d buried him prematurely in my dreams throughout his illness, bracing myself, I suppose, for the inevitable. Now that he was truly gone though, I was unprepared for the tidal wave of grief within me. The first few months after Brett died were a blur.

On December 18, 2019, the 5^th Circuit Court of Appeals struck down the Patient Protection and Affordable Care Act (ACA) individual mandate that all Americans have health insurance. The rest of the law will stay in place for now as it is sent back to the lower court that must now determine whether the other parts of the ACA can stand without the individual mandate.

While the ACA will remain the law of the land for now, it’s important for all people, including cancer patients, survivors, and their loved ones, to understand what this ruling means for them.

To cap off a productive 2019, the RTI looks back at highlights from the past year. Many exciting things happened for the RTI in 2019 including the addition of new staff members to our wonderful team and settling into our new permanent home in Old City, Philadelphia. The team also remains committed to conducting psychosocial and behavioral research through survey development, scale validation, and patient-centered market research projects so that we can continue to inform the services and support that the Cancer Support Community provides to cancer patients, caregivers, and their families. Read on to see some of the milestones and highlights from the past year!

The Research & Training Institute recently presented findings from the Cancer Experience Registry at the San Antonio Breast Cancer Symposium based on data from 273 Metastatic Breast Cancer patients and survivors.

In a remarkable week of award announcements, the Cancer Support Community received multiple accolades. MyLifeLine, its digital platform, and our publications, social media, and radio show were recognized for their outstanding quality.