Publications & Presentations
The Cancer Support Community is a leader in research on the patient, survivor, and caregiver experience. Our work appears in posters and presentations shared at professional conferences, published articles in preeminent peer-reviewed journals, educational materials for patients and caregivers, and comprehensive research reports to help inform cancer care and patient advocacy.
Use the search filters below to discover our research findings on diverse topics related to patient and caregiver quality of life, including:
- Psychosocial well-being and symptom management
- Patient-provider communication
- Treatment options
- Patient advocacy
- Financial toxicity and other barriers to health equity
- Experiences and perspectives on precision medicine
The interplay of financial toxicity, healthcare team communication, and psychosocial well-being among rural cancer patients and survivors
Financial toxicity is a term that refers to the out-of-pocket costs, lost wages, and debt faced by cancer patients as well as the distress caused by financial strain. New research from Cancer Support Community’s Cancer Experience Registry examines the role of financial toxicity among cancer patients in rural settings and suggests that healthcare team communication may play a key role in helping patients manage the financial impacts of cancer on mental and social health.
CancerSupportSource (CSS), a distress screening and referral program, identifies unmet needs of people with cancer and links them to resources and support. We developed and validated a Spanish-language version (CSS-Spanish) to better serve Hispanic and Latino communities and promote health equity.
The purpose of this study was to describe the type and prevalence of survivorship concerns reported by individuals with metastatic cancer, and their associations with cancer diagnosis, treatment, and socio-demographic variables.
This study describes financial toxicity (FT) reported by people with metastatic cancer, characteristics associated with FT, and associations between FT and compensatory strategies to offset costs.
This study assessed the experiences and perspectives of Latinos living with cancer when accessing psychosocial support among a sample of Mexican-born, Spanish-speaking patients and survivors residing in the U.S.
This program overcomes barriers to access, including practical, financial, and emotional support needs. Patients and caregivers also received assistance preparing for treatment and coping with symptom burden. For patients who had not yet been approved for therapy, navigators helped find necessary resources and connected them with the treatment team to provide continuity and an extra layer of support. During treatment, navigators checked in on caregivers and assessed additional support needs.
CancerSupportSource (CSS) is a distress screening tool used to identify unmet needs among people with cancer. We developed and validated a version of CSS for caregivers of people with cancer, CancerSupportSource-Caregiver, which identifies concerns among caregivers, related to their own needs and the needs of those for whom they provide care.
This study assessed the reasons behind low participation rates and evaluated how LGBTQ+ specific experiences differ from the general population can help develop resources and programs that address the disparities in CCT participation, advancing LGBTQ+ health equity.
Sleep disturbance and fatigue are prevalent among ovarian cancer patients and are associated with poor mental health and Health-related quality of life (HRQoL) outcomes. This study assessed the factors that may contribute, what cancer patients perceive as contributing to their issues, and how they describe and manage these issues across their treatment trajectory.