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Portrait of board member Clay Alspach
Read

Advocate Spotlight: Clay Alspach, JD

This month, as part of its Advocate Spotlight series, our Cancer Policy Institute is highlighting Clay Alspach, JD, a principal based in Washington, D.C. Clay recently joined CPI’s Advisory Board, which advocates to make the patient voice heard in policy and decision making. Read on to learn more about Clay and his cancer advocacy work.

Clay Alspach, JD

Submitted by jcoe on Thu, 02/10/2022 - 16:22

Clay Alspach is a principal based in Washington, D.C. Clay specializes in federal health care policy and advocacy related to the FDA, Medicare, Medicaid, private health insurance, digital health, public health, and pandemic preparedness.

Prior to joining Leavitt Partners, Clay served as Chief Health Counsel for Chairman Fred Upton of the U.S. House of Representatives Energy and Commerce Committee. During seven years with the committee, Clay spearheaded legislative initiatives that successfully reformed the SGR (MACRA), reauthorized FDA user fees (FDASIA), established a national system for drug supply chain security (Drug Quality and Security Act), strengthened the nation’s preparedness for chemical, biological, radiological, and nuclear threats, natural disasters, and emerging infectious diseases (Pandemic and All-Hazards Preparedness Reauthorization Act of 2013 (PAHPRA)), and advanced medical research and fostered a new era of medical innovations (21st Century Cures Act).

Prior to this service for the committee, Clay clerked for the Honorable Ronald L. Buckwalter of the U.S. District Court for the Eastern District of Pennsylvania and worked as a litigator in private law practice. He also worked as a legislative clerk at the committee from 1999 to 2000 under Chairman Thomas J. Bliley (R-VA). Clay received his bachelors of arts cum laude from the University of Richmond and holds a juris doctor from the University of Texas at Austin.

Portrait of board member Clay Alspach
Cancer Policy Institute Advisory Board
Alspach

Principal, Leavitt Partners

Two women friends laugh together beside a window while looking at their smartphone
Read

Bile Duct Cancer: Let’s Talk Risk Factors, Treatment, and Support

If you or a loved one has been diagnosed with bile duct cancer, there are educational and support resources available to help you cope. In recognition of Bile Duct Cancer Awareness Month, we highlight key details about the disease, including resources to help you navigate a bile duct cancer diagnosis. Read on to learn more.
A distressed elderly woman rests her face in her hands as she looks at some bills on her desk
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Protections from Surprise Medical Bills: What Patients Need to Know

On January 1, 2022, the No Surprises Act went into effect. This is a new law that protects patients from unexpected or “surprise” medical bills. Keep reading to learn about these new protections for patients.
WATCH

President Biden Hosts an Event at the White House to Reignite the Cancer Moonshot

White House Reignites Cancer Moonshot with Focus on Cancer Screening and Early Detection

Submitted by kagricola on Wed, 02/02/2022 - 14:44

The Cancer Support Community applauds the Biden-Harris Administration’s commitment to improving the experience of people and their families living with and surviving cancer.

 

WASHINGTON, D.C., February 02, 2022 — The Cancer Support Community (CSC), the world’s largest provider of psychosocial cancer support with a network that operates 196 locations, was present for today’s historic announcement at the White House where President Biden relaunched the Cancer Moonshot, with a call to action on cancer screening and early detection. He called on patient advocacy organizations, industry, foundations, academia, and healthcare providers to take on the mission of reducing the deadly impact of cancer and improving patient experiences in the diagnosis, treatment, and survival of cancer.

“The reignited Cancer Moonshot’s ambitious new goals — reduce cancer deaths by at least 50 percent over the next 25 years and improve the experience of people and their families living with and surviving cancer — could make significant strides towards ultimately ending the world of cancer as we know it today,” said Phylicia L. Woods, Executive Director of CSC’s Cancer Policy Institute, who attended the White House event alongside CSC patient advocate and breast cancer survivor, Denyse Phipps-Crank. “We applaud President Biden for his longstanding commitment to providing cancer patients and their families with hope for a brighter future.”

In early 2016, then-Vice President Biden announced the Cancer Moonshot as a means to increase research funding and accelerate cancer discoveries. Subsequently, CSC and its Network Partners were proud to host 30 Cancer Moonshot summits across the country, emphasizing the need to elevate the patient voice so that patients remain at the center of all conversations about care. “We are particularly heartened to see the inclusion of improving the patient experience as part of the Cancer Moonshot’s mission,” said Woods. “As an organization that provides $50 million annually in free emotional support and navigation services, we know first-hand the myriad of challenges patients, caregivers, and survivors face when coping with this devastating disease.”

Reflecting on the 9.5 million cancer screenings that were delayed or missed due to the COVID-19 pandemic, Woods said: “Cancer screenings save lives, and we are pleased to see the White House leading the way in encouraging people to get screened, with a special emphasis on equitable access to screening.”

CSC is confident that the reignited Cancer Moonshot will further accelerate innovative breakthroughs in cancer care and looks forward to working with President Biden and the Administration throughout this important endeavor.

 

About the Cancer Support Community

As the largest professionally led nonprofit network of cancer support worldwide, the Cancer Support Community (CSC), including its Gilda’s Club affiliates, is dedicated to ensuring that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community. CSC achieves its mission through three areas: direct service delivery, research, and advocacy. The organization’s Institute for Excellence in Psychosocial Care includes an international network of affiliates that offer the highest quality social and emotional support for people impacted by cancer, as well as a community of support available online and over the phone. The Research and Training Institute conducts cutting-edge psychosocial, behavioral, and survivorship research. CSC furthers its focus on patient advocacy through its Cancer Policy Institute, informing public policy in Washington, D.C., and across the nation. For more information, please call the toll-free Cancer Support Helpline at 888-793-9355.

Wed, 02/02/2022 - 14:44
WATCH

Lean Through

Read

Cáncer de pulmón de células pequeñas

Este folleto es para las personas afectadas por el carcinoma microcítico del pulmón. Le enseñara como diagnostican el carcinoma microcítico, cuales son las fases y como se trata.

Read

Preparación para la consulta con su médico

Esta hoja fue formada para las personas con carcinoma microcítico del pulmón. Utilice esta hoja para guiar conversaciones con su equipo de salud sobre sus tratamientos, los efectos de su calidad de vida, y para alinear sus opciones con sus metas personales sobre su diagnóstico.

WATCH

Advice for DLBCL Patients

Lisa and Dana, diffuse b-call (DLBCL) survivors, give their advice as patients working with their care teams, support from caregivers, and coping with uncertainty.

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