Skip to main content
 

The Research and Training Institute’s 2019 Year in Review

Friday, December 20, 2019

To cap off a productive 2019, the RTI looks back at highlights from the past year. Many exciting things happened for the RTI in 2019 including the addition of new staff members to our wonderful team and settling into our new permanent home in Old City, Philadelphia. The team also remains committed to conducting psychosocial and behavioral research through survey development, scale validation, and patient-centered market research projects so that we can continue to inform the services and support that the Cancer Support Community provides to cancer patients, caregivers, and their families. Read on to see some of the milestones and highlights from the past year!

Predictors of Social Function and Feelings of Isolation Among Metastatic Breast Cancer Survivors

Wednesday, December 18, 2019

The Research & Training Institute recently presented findings from the Cancer Experience Registry at the San Antonio Breast Cancer Symposium based on data from 273 Metastatic Breast Cancer patients and survivors.

Advocating for Liver Cancer Patients

Monday, November 11, 2019

The Cancer Support Community wants to hear directly from liver cancer patients about their specific and unique cancer experiences so that we can enhance our educational programming, advocacy initiatives, and other patient support initiatives to aid those people living with liver cancer.

Taking a “Whole Patient” Approach to Treating Hematologic Malignancies

Wednesday, December 5, 2018

Our Research and Training Institute (RTI) took front stage in sunny San Diego this week at the American Society of Hematology (ASH) Annual Meeting. Three abstracts from the RTI were accepted to the conference, each representing a separate blood cancer specialty registry from the Cancer Experience Registry®.

Share Your Cancer Experience

Wednesday, January 24, 2018

Chef Hans Rueffert, a stomach cancer survivor who has appeared on The Food Network, has recorded a new 90-second video about the Cancer Experience Registry.

The Registry is free, confidential and open to anyone who has been diagnosed with cancer or provides care to someone with cancer.

Let’s Talk About Chronic Myeloid Leukemia

Friday, November 17, 2017

Recognizing the the unique needs of Chronic Myeloid Leukemia patients, the Cancer Support Community (CSC) education team utilized CML specific information from CSC’s Cancer Experience Registry to create the CML Discussion Tool.

Five Reasons to Join the Cancer Experience Registry

Wednesday, August 9, 2017

The Cancer Support Community's Research and Training Institute provides a unique and explorative opportunity for people to share their personal experiences with cancer through The Cancer Experience Registry. The Registry collects stories and creates a collection of patient voices to exchange information and resources. It helps connect people touched by cancer, and it uses information from participants to learn more about what quality of life means to patients. By being a part of the Registry, all cancer patients—at any point of their cancer journey—and caregivers can contribute to the cancer community.

New Research Presented by CSC at ASCO 2017

Thursday, June 8, 2017

The Cancer Support Community was honored to return to ASCO and we did not come empty-handed. Armed with three abstracts and one poster presentation, CSC’s Research and Training Institute (RTI) team was ready to share our research with the oncology community. Through the Cancer Experience Registry®, the RTI has collected data from over 11,000 cancer patients and caregivers—with every type of cancer represented.

Meeting the needs of caregivers (and patients) affected by lung cancer

Wednesday, January 4, 2017

Caregivers play a critical role in the treatment, support, and recovery of individuals with cancer, yet often times, their emotional and informational needs get overlooked. Caregivers have such a meaningful role in cancer care, and it is important to recognize and address their needs. These needs vary based on the health of the care-recipient, the physical and emotion needs of the recipient, the resources of and the demands on the caregiver, as well as the family or relationship dynamics.

Make Our Lung Cancer Community More Visible - Share Your Experience

Wednesday, November 30, 2016

Calling all lung cancer patients/survivors and care partners! The science is finally moving faster, providing more treatment options and hope for the future. Now we also need to help shape what the future looks like in other ways. Here in Lung Cancer Awareness Month, please take a few minutes to register for the Cancer Experience Registry and fill out the questionnaire.

Pages

Help Is Just One Call Away

The Cancer Support Community’s TOLL-FREE Cancer Support Helpline is for anyone affected by cancer.

Call 888-793-9355

Monday – Friday 9 a.m. – 9 p.m. ET

Saturday – Sunday 9 a.m. – 5 p.m. ET

Join MyLifeLine

Easily connect with your friends and family to organize your own personal community - privately and securely. And connect to others like you for support and sharing on our discussion boards.

Join Now

Authors