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Hope: What Motivates Us to Go Forward

Wednesday, May 11, 2016

"By definition," Lillie Shockney says, "hope is something in the future, something that motivates us to go forward in some manner. When someone is facing cancer, it's important from the outset to learn what that person's life goals and hopes are and to think about whether these hopes can be fulfilled. Are they realistic? Sometimes, you have to step back and take a different path."

Working to Understand the Full Impact of Stomach Cancer

Thursday, February 4, 2016

The Advisory Board grew silent as one of the caregivers told his story. It was the first meeting of the group the Cancer Support Community brought together to plan the new Stomach Cancer program for the Cancer Experience Registry.

He was young, nice looking, straight forward--but the pain and futility of his beautiful wife’s illness and death from stomach cancer was clear as he spoke. The doctors in the group listened and stressed the urgent need for new therapies to improve the prognosis, but we all came away from that meeting with a deeply increased understanding of the importance of connecting to the community of people impacted by stomach cancer (also known as gastric cancer) -- and giving them a voice.

Giving Back By Sharing Your Voice Through the Cancer Experience Registry

Thursday, July 11, 2013

If sharing your cancer journey could enhance the lives of others, would you help?

I keep hearing that people who have been diagnosed with cancer want to give back. They want to “pay it forward” so that the next person who is diagnosed with their disease will have a better experience than they had. I always think to myself – how selfless! We want to give back to you, too.

There seems to be so much survey research these days. An organization asks you to answer a questionnaire and then you never hear about it again. We wanted the Cancer Experience Registry to be so much more than a survey, so we created something we call Explore Responses where you can do just that – explore the responses of other people who have been diagnosed with cancer.

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