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Patient Focused Drug Development

Thursday, May 24, 2018

Starting in 2012 the Food and Drug Administration (FDA) began to integrate the patient perspective into the drug development process through their Patient-Focused Drug Development (PFDD) initiative. The patient advocacy community can and should partner with the FDA to ensure that they are measuring the full patient experience in clinical trials to include the physical, social, and emotional impacts of a therapy, and CSC has been working closely with the FDA, and other researchers, to explore ways to do so in a more meaningful way.

New Health Care Options May Not Protect Patients

Wednesday, February 28, 2018

The Trump Administration has proposed several rules outlining new health insurance options that would provide lower cost insurance coverage to consumers. However, the Cancer Support Community (CSC) believes that these plans may not comply with the Affordable Care Act (ACA or Obamacare).

A National Day of Action in the Fight to #SaveCHIP

Wednesday, January 10, 2018

Leading children’s health, medical, and advocacy organizations around the country have designated today, January 10, 2018, as a National Day of Action to #SaveCHIP. Today, take a moment to call or email your federal legislators and ask them to extend current CHIP funding NOW.

Strengthened by Action: Join the Grassroots Network

Wednesday, October 25, 2017

For our 35th anniversary year, as part of our Fall Cancer Awareness campaign, the Cancer Support Community would like to highlight how you can make a difference through advocacy so that you and your loved ones can be “strengthened by action!”

Last Ditch Repeal Efforts Will Harm Cancer Patients

Wednesday, September 20, 2017

Just when we started to hope that the debate over the repeal and replacement of the Affordable Care Act (ACA) was at an end, a new plan to repeal and replace the law has been introduced. Senators Lindsey Graham (R-SC) and Bill Cassidy (R-LA) have introduced a bill that would be devastating to individuals living with chronic illness including those who have been impacted by cancer.

Health Care Reform: What's Next

Wednesday, September 6, 2017

Efforts to repeal and replace the Affordable Care Act (ACA or “Obamacare) have been unsuccessful thus far. Although the House passed the “American Health Care Act” in May, the Senate did not pass their companion bill, the “Better Care Reconciliation Act.” However, efforts to repeal and replace the ACA are far from over, and CSC is concerned that several mechanisms may undermine the ability of individuals to access comprehensive, high-quality, timely, and affordable health care coverage.

FDA Reauthorization Bill a Win for Psychosocial Care

Tuesday, August 29, 2017

On August 17, 2017, the Food and Drug Administration Reauthorization Act of 2017 (FDARA) became law. FDARA is primarily responsible for funding the Food and Drug Administration (FDA) so that the agency can review and approve drugs and devices in a timely manner. It also contains provisions that provide guidance for manufacturers on how they conduct research on the drugs and devices they are developing.

Health Care Reform Roundup: What You Need to Know

Monday, August 7, 2017

The last few weeks have been a whirlwind as it seems that every day there was a new bill or amendment that further threatened access to health care. Although the U.S. House of Representatives passed their legislation to repeal and replace the Affordable Care Act (otherwise known as the ACA or “Obamacare”) in May, by the end of July, Senate Republicans had tried and failed at every turn to pass their own companion legislation. Although, their efforts were unsuccessful this time, there is still a great risk to our health care system. In this brief break from debate, we want to provide you with a brief summary of action so far and an analysis of the risks still to come.

Challenges for Cancer Patients: Costs, Delays, and Conversations

Thursday, March 9, 2017

The Cancer Support Community did a study in late 2016 to explore this question and found that people with cancer face challenges with costs and delays in health care. The study asked participants about their access to insurance, services, and providers, and direct and indirect costs of treatment. By surveying over 1,200 participants who currently have, or have had cancer, we found that a significant number of cancer patients have to skip out on some health care services or prescriptions due to high out-of-pocket costs. Also, cost of treatment is not always discussed between doctors and patients, so many cancer patients go into treatment without knowing what they will have to pay for their care.

Where the Candidates Stand on Cancer

Wednesday, November 2, 2016

With Election Day coming in less than a week, we’re taking the opportunity here at the Cancer Support Community to highlight where the presidential candidates stand on the cancer and health issues that matter to us. This is not meant to imply an endorsement or preference for any candidate but instead is an inexhaustive compilation of the candidates’ own words and actions on a topic which affects all Americans. We hope this stimulates discussion about the nonpartisan goal of improving cancer and health care policies nationally as well as at the local level.

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