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How Can You Be a Cancer Patient Advocate?

Wednesday, July 26, 2017

Health care policy is often disconnected from patients, especially cancer patients. Medicare and Medicaid policy can impact a family’s ability to afford chemotherapy and have an impact not only on the cancer patient but on the entire family. If the price of cancer medications is so high that people can’t afford to put food on the table, then health care policy is not working for patients.

A Night with Marin Mazzie and Jason Danieley

Monday, June 12, 2017

On May 31st, I had the absolute pleasure of watching Marin Mazzie sing these words during “Broadway & Beyond,” a night of powerhouse musical performances by Mazzie and her husband Jason Danieley.

What Can a Little Cancer Support Lead To?

Wednesday, April 5, 2017

When I was 46-year-old, as a single father of my son Joel, who is 13, I tried to go to a Boy Scout camp that required a medical release form. But my doctor insisted on doing a physical before signing it. Because of this, a life-saving PSA test was given. A PSA of 19 led to a biopsy, which discovered a Gleason score of 9, and I had to tell my son that I had prostate cancer.

Understanding Clinical Trials

Thursday, December 8, 2016

Clinical trials can offer cancer patients access to the most innovative treatments, high levels of care and hope for a better future. Yet, fewer than 5% of adults with cancer participate in clinical trials. One year ago, the Cancer Support Community (CSC) created an online survey focused on cancer clinical trials with the goal of using the information to design an educational program. Results from this survey highlighting the experiences, beliefs, and preferences of cancer patients as they relate to clinical trials were published in a report that is now available to the public.

Act Now: Making a Difference in Cancer Policy

Wednesday, November 9, 2016

This month, we’re continuing our Many Faces of Advocacy campaign by highlighting policy advocacy. Policy advocacy is probably what you first think of when you hear the word “advocacy.” A cancer policy advocate pushes for changes in government that will improve the lives of people affected by cancer. This can come in many forms, from writing a letter to your congressional representatives to spreading the word about important legislation using social media.

Community Advocacy for You

Wednesday, October 26, 2016

Getting involved in your community is one of the most rewarding ways to help people impacted by cancer. That’s why this past month, we’ve been talking about the different possibilities for becoming a community advocate. Let’s recap what we’ve discussed and what we can all do going forward to make sure that no one in our communities faces cancer alone.

Who Gets to Define Value?

Monday, July 11, 2016

Today's blog post is by Kim Thiboldeaux, CEO of the Cancer Support Community. This blog post was also featured this month in the Huffington Post here, and you can read more of Kim’s Huffington Post blog posts here.

A Q&A with Award-Winning Photographer Rick Guidotti

Wednesday, June 29, 2016

This week’s blog post is a Q&A with award-winning photographer Rick Guidotti of Positive Exposure. He recently partnered with Baxalta (now part of Shire) to launch an exhibit featuring the perspectives of people impacted by various types of rare cancer including those who have been diagnosed, their family and friends, advocacy organizations, and healthcare providers.

Highlights from the 2016 Annual ASCO Meeting

Thursday, June 9, 2016

Every year, more than 30,000 oncology professionals from all over the world, including Cancer Support Community leaders come together at the annual meeting of the American Society of Clinical Oncology (ASCO) in Chicago to discuss new innovations and confront current challenges in the field of oncology. A highlight of this year's meeting was a panel discussion featuring CSC CEO Kim Thiboldeaux.

My Experience with Interactive Cancer Care

Thursday, October 15, 2015

In 1998 at 24 years old, I was diagnosed with a brain tumor. Since then, I’ve had three awake brain surgeries, radiation, chemotherapy and clinical trials.

Through my healing journey, as I searched to acquire support, I found I was only scratching the surface in my new cancer world. As I explored to find new resources—in time—clarity emerged. I could not just focus on the disease and instead had to include the whole person.

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