Watch the recording of our virtual meeting to raise awareness of the impact of cancer cachexia, a condition that causes weakness, muscle loss, and drastic unintentional weight loss leading up to a cancer diagnosis or during treatment. This meeting, which took place in November 2021, also helped to inform the U.S. Food and Drug Administration (FDA) about the patient and caregiver perspective on living with cancer cachexia.

What Are Externally-Led Patient-Focused Drug Development Meetings? EL-PFDD meetings allow the FDA, pharmaceutical companies, and health care providers to hear directly from

“It is so easy to use .... It feels safe. It feels authentic; and I feel that they are using my story for the greater good.” 

“The Registry helped me a lot … I feel very safe, I open up."

“Their surveys go below the clinical data. They broaden the experience, and they get to the emotional, mental and spiritual aspects.”