Publications & Presentations
The Cancer Support Community is a leader in research on the patient, survivor, and caregiver experience. Our work appears in posters and presentations shared at professional conferences, published articles in preeminent peer-reviewed journals, educational materials for patients and caregivers, and comprehensive research reports to help inform cancer care and patient advocacy.
Use the search filters below to discover our research findings on diverse topics related to patient and caregiver quality of life, including:
- Psychosocial well-being and symptom management
- Patient-provider communication
- Treatment options
- Patient advocacy
- Financial toxicity and other barriers to health equity
- Experiences and perspectives on precision medicine
The interplay of financial toxicity, healthcare team communication, and psychosocial well-being among rural cancer patients and survivors
Financial toxicity is a term that refers to the out-of-pocket costs, lost wages, and debt faced by cancer patients as well as the distress caused by financial strain. New research from Cancer Support Community’s Cancer Experience Registry examines the role of financial toxicity among cancer patients in rural settings and suggests that healthcare team communication may play a key role in helping patients manage the financial impacts of cancer on mental and social health.
Cancer patients and survivors experience distress related to physical, psychological, social, and financial concerns. Individuals diagnosed with triple negative breast cancer(TNBC) may be at increased risk of distress due to the aggressive nature of the illness and high rates of recurrence.
Individuals with triple negative breast cancer (TNBC) are at increased risk for financial toxicity, which can negatively impact treatment adherence and health-related quality of life.
TNBC is aggressive in nature and treatment which can cause adverse symptoms and side effects affecting health-related quality of life (HRQOL). Palliative care (PC) is intended to improve HRQOL for patients with serious disease at any stage of their illness.
Biomarker testing (BT) in oncology is rapidly becoming the standard of care across cancer types. There is an established relationship between BT and subsequent prognosis, as well as patient-reported outcomes; thus, the barriers and facilitators for BT are essential to understand. This study investigated the utilization of BT among people diagnosed with cancer and the most frequently experienced BT problems, as well as the person and systems-level factors associated with BT problems.