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      Toll-free: 888-793-9355

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New Book by Cancer Support Community Offers Essential Guidance for Those Touched by Cancer

Submitted by kagricola on Tue, 06/29/2021 - 11:25
Your Cancer Road Map front cover

Your Cancer Road Map features a foreword by First Lady Jill Biden

 

WASHINGTON, D.C. — As heard on NBC News Radio and reported by multiple health outlets, Cancer Support Community’s (CSC) Your Cancer Road Map: Navigating Life with Resilience, by Executive Chair Kim Thiboldeaux, is now available on store shelves. The book, which is also available on all major online platforms, encapsulates CSC’s almost 40 years of experience serving people facing cancer and Thiboldeaux’s 20 years of advising individuals impacted by cancer.

Your Cancer Road Map also features a foreword by Dr. Biden, personal essays by journalist Joan Lunden and ESPN’s Holly Rowe, and endorsements from health, business, and entertainment leaders. Designed as a powerful companion for anyone with questions about cancer, the book includes workbook pages, checklists, recommended resources, and more.

“My hope is that this book will help people feel more confident as they face a myriad of decisions when experiencing a cancer diagnosis,” Thiboldeaux said. “Whether it is around getting the right genetic and genomic testing, understanding insurance, understanding finances, talking to kids about cancer, I want this book to help people know that they don't have to face cancer alone.”

Dr. Lidia Schapira, Director of the Cancer Survivorship Program at the Stanford Comprehensive Cancer Institute, hails Your Cancer Road Map as “[the] guide that every cancer patient needs to relieve the stress of diagnosis and provide guidance and companionship throughout the cancer journey.”

Proceeds from the sales of Your Cancer Road Map will support CSC, which provides $50 million in free support and navigation services each year to patients, caregivers, and others affected by cancer. The organization’s website highlights the evidenced-based care models that informed the book and provides instant access to the organization’s free resources.

As a nonprofit executive, thought leader, and author, Thiboldeaux continues to make her mark on the global stage by ensuring that the patient’s voice is at the center of every conversation about cancer. Her service includes appointments to the nation’s premier panels on cancer. For example, in 2019, Dr. Francis S. Collins, Director of the National Institutes of Health, appointed Thiboldeaux to the Novel and Exceptional Technology and Research Advisory Committee. In 2017, then-Vice President Joe Biden appointed her to serve on the Biden Cancer Initiative’s Board of Directors. Recently, Stand Up To Cancer appointed Thiboldeaux to its Health Equity Breakthrough Research Team. In 2019, the International Psycho-Oncology Society presented her with its President’s Community Award for Distinguished Contributions.

View more information about the book. 

 

About the Cancer Support Community

As the largest professionally led nonprofit network of cancer support worldwide, the Cancer Support Community (CSC), including its Gilda’s Club affiliates, is dedicated to ensuring that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community. CSC achieves its mission through three areas: direct service delivery, research, and advocacy. The organization includes an international network of Affiliates that offer the highest quality social and emotional support for people impacted by cancer, as well as a community of support available online and over the phone. The Research and Training Institute conducts cutting-edge psychosocial, behavioral, and survivorship research. CSC furthers its focus on patient advocacy through its Cancer Policy Institute, informing public policy in Washington, D.C. and across the nation. For more information, please call the toll-free Cancer Support Helpline at CSC-867-5309, or visit www.CancerSupportCommunity.org. So that no one faces cancer alone®

Tue, 06/29/2021 - 11:25
WATCH

Colorectal Cancer: What You Need to Know When Newly Diagnosed

Did you recently find out you or a loved one has colorectal cancer? Watch the Colorectal Cancer Alliance’s Stephanie Rouse and the Cancer Support Community’s Danelle Johnston talk about the top 10 things you should know about colorectal cancer diagnosis, treatment, communicating with your health care team, and much more.

WATCH

COVID, Lung Cancer, & Other Solid Tumors

The Cancer Support Community’s VP of Education & Outreach, Claire Saxton, MBA, talks with Dr. David Carbone, MD, PhD, about the effects of COVID-19 on lung cancer and other solid tumor patients. They discuss how COVID-19 has impacted people with lung cancer and other solid tumor cancers as well as common concerns people living with cancer have about the COVID-19 vaccine. Dr. Carbone is a professor of internal medicine and director of the James Thoracic Oncology Center at the Ohio State University Comprehensive Cancer Center.

Marcia Donziger, CSC Chief Culture Office, smiles at her office desk
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Giving Back & Moving Forward: Meet Cancer Survivor Marcia Donziger

In our special blog series on cancer survivorship, we get to know Marcia Donziger, whose journey as a stage 3 ovarian cancer survivor inspired her to create an online community for others impacted by cancer. "Don’t do cancer alone," she says. "Advocating for others — and just being there as a friend who listens — are my ways of coping and moving forward." Keep reading to learn more about Marcia's story.
WATCH

Beyond Band-Aids

portrait of tony burns
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Marking Pride Month: Meet Patient Advocate Tony Burns

To mark Pride Month, we talk with cancer survivor and patient advocate Tony Burns. In this Q&A, we learn about the native Washingtonian’s personal experience with cancer. Tony also talks with us about health inequities in the LGBTQ community and shares ways we can work to overcome them.
A new Frankly Speaking About Cancer book about clinical trials features photos of people from diverse race and ethnic backgrounds
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3 New Resources Focus on Diversity in Clinical Trials

The Cancer Support Community has added 3 new educational resources to the Frankly Speaking About Cancer: Clinical Trials library. The materials highlight the importance of diversity in clinical trials and provide information for patients to determine if a clinical trial is right for them.
An African American couple snuggles in front of a tree-lined backdrop
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Barriers and Opportunities: Health Equity in the COVID-19 Response

Over one year since COVID-19 was first declared a public health emergency, the pandemic continues to pose increased risks and burdens on cancer patients and survivors and has illuminated the longstanding disparities in our health care system. Read on to learn more about what can be done to improve health equity in the COVID-19 response.

Cancer Support Community Calls Supreme Court Decision a Victory for Patients

Submitted by kagricola on Thu, 06/17/2021 - 12:54

Washington, D.C. – Today, the U.S. Supreme Court, in a 7-2 decision, upheld the Affordable Care Act (ACA) in California v. Texas.  

The ACA is a critical safety net for the nearly 17 million cancer patients and survivors across the U.S., including protections for people with pre-existing conditions and eliminating patient cost-sharing for essential health benefits, such as critical cancer screening tests. A record 31 million people are currently receiving quality, comprehensive, and affordable health care under the ACA, through health insurance marketplaces and Medicaid expansion.  

The ACA became even more important during the COVID-19 pandemic and the subsequent public health emergency and economic downturn for millions of individuals and families nationwide. In the last 4 months alone, more than 1.2 million people have enrolled in health insurance at HealthCare.gov during the federal marketplace’s Special Enrollment Period. 

The Cancer Support Community (CSC), the largest professionally led non-profit network of cancer support worldwide, issued the following statement in response: 

“We applaud the Supreme Court justices who sided with patients and ruled that the plaintiffs lacked legal standing to challenge the ACA. For more than a decade, this law has been the foundation of significant progress in making health care more affordable and accessible for millions of Americans, especially those affected by cancer.  

The Court’s decision does not mark the conclusion of efforts to address health care challenges; it is a continuation of our quest to improve a health care system with longstanding inequities and other barriers that emotionally and financially impact the millions of people with cancer and other serious medical conditions.  

In light of today’s decision to keep the ACA as the law of the land, we look forward to working with lawmakers at all levels of government and allies to ensure that the patient experience is at the center of future policy advancements.” 

Thu, 06/17/2021 - 13:00
CSC's June Advocate Spotlight, Maria Brown, smiles while standing beside her bike outside
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June Advocate Spotlight: Maria Brown

Each month, the Cancer Policy Institute profiles advocates who have been engaged in cancer advocacy. Read on to learn more about Maria and her passion for ensuring that everyone impacted by cancer has access to affordable treatment.

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