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What Cancer Patients, Survivors, and Caregivers Need to Know about the Coronavirus

Thursday, February 6, 2020

The Centers for Disease Control and Prevention (CDC) is closely monitoring an outbreak of respiratory illness caused by a novel (new) coronavirus (named 2019-nCoV) that was first detected in Wuhan City, China and which continues to expand, including some confirmed cases within the U.S. For many cancer patients and survivors with compromised immune systems, the reporting on this public health emergency may likely be source of anxiety. However, the CDC reports that the immediate risk of this new virus to the American public is believed to be low at this time.

CSC Opposes Changes to Medicaid that Could Negatively Impact Patient Access

Monday, February 3, 2020

The Cancer Support Community opposes the new Medicaid guidance announced by the Centers for Medicare & Medicaid Services (CMS) that allows states to convert a portion of their Medicaid program funding into a block grant program. Read on to learn more about CSC's position on this issue.

Conversations About Cancer: Debunking the "Right" and "Wrong" Words

Monday, January 27, 2020

How do you begin — how does anyone begin — to communicate in the face of certain and impending death? Do we have to? Did my dad want to? At the time, we all struggled with what to say to him, and everyone else struggled with what to say to us. But now, eight years after his passing, I finally understand that those “right words” that we were all searching for — they simply don’t exist. In fact, there are exactly zero words in the English language (or any language) that cure cancer, solve complex mental health issues, or bring people back from the dead.

Prior Authorization: What Patients Need to Know

Friday, January 24, 2020

One of the major themes dominating health care discussions today is that health care costs in the United States are proving unsustainable. Practices known as utilization management (UM) are one of the attempts the cost of health care has been addressed. The Cancer Policy Institute (CPI) at the Cancer Support Community (CSC) is releasing a series of blogs aimed at educating patients about different UM practices and techniques, how it impacts access to care, as well as advocacy opportunities to address those barriers to care.

Read this second blog in the series to learn more about Prior Authorization. Missed the first blog? Read it now!

Redefining Home

Friday, January 17, 2020

Place matters, especially when home must be redefined because the person with whom you made a home is no longer alive.

Advocate Spotlight: Ben White

Wednesday, January 15, 2020

Each month, the Cancer Policy Institute profiles advocates who have been engaged in cancer advocacy. Read on to learn more about Ben, and how his cancer diagnosis led him to pursue a career in cancer advocacy.

If you are interested in learning more about policy, advocacy, and ways to get involved, sign up to be a part of the Grassroots Network!

A Conversation with Patrick Dempsey on Cancer Care

Wednesday, January 15, 2020

CSC President Linda Bohannon sat down with actor and racecar driver Patrick Dempsey to discuss his work in cancer care, including The Dempsey Center, the importance of patient empowerment and more.

The New Year Brings Important Policy Changes That Benefit Patients

Monday, January 13, 2020

As we start a new year, the Cancer Support Community (CSC) is pleased to report on two exciting policy changes that promote the delivery of psychosocial care for cancer patients.

Parenting My Grieving Children

Friday, January 10, 2020

Grief comes in waves, in ebbs and flows, even for three-year old toddlers. That first year without Brett was a pendulum of conversation, reasoning, and tears. But there’s nothing easy or linear about parenting, let alone parenting grieving children. I learned not to expect too much from myself or from them.

The Reality of Grief

Friday, January 3, 2020

When at last Brett died, I expected peace, not chaos all over again. I’d buried him prematurely in my dreams throughout his illness, bracing myself, I suppose, for the inevitable. Now that he was truly gone though, I was unprepared for the tidal wave of grief within me. The first few months after Brett died were a blur.


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