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Five Reasons to Join the Cancer Experience Registry

Wednesday, August 9, 2017

The Cancer Support Community's Research and Training Institute provides a unique and explorative opportunity for people to share their personal experiences with cancer through The Cancer Experience Registry. The Registry collects stories and creates a collection of patient voices to exchange information and resources. It helps connect people touched by cancer, and it uses information from participants to learn more about what quality of life means to patients. By being a part of the Registry, all cancer patients—at any point of their cancer journey—and caregivers can contribute to the cancer community.

Health Care Reform Roundup: What You Need to Know

Monday, August 7, 2017

The last few weeks have been a whirlwind as it seems that every day there was a new bill or amendment that further threatened access to health care. Although the U.S. House of Representatives passed their legislation to repeal and replace the Affordable Care Act (otherwise known as the ACA or “Obamacare”) in May, by the end of July, Senate Republicans had tried and failed at every turn to pass their own companion legislation. Although, their efforts were unsuccessful this time, there is still a great risk to our health care system. In this brief break from debate, we want to provide you with a brief summary of action so far and an analysis of the risks still to come.

Understanding Immunotherapy

Wednesday, August 2, 2017

Are you on an immunotherapy? It seems like a simple question, but there is actually a lot of confusion about what immunotherapy is and how it works.

Finding Cancer Support After a Lung Cancer Diagnosis

Tuesday, August 1, 2017

On World Lung Cancer Day, Yasmine Yaiche discusses her uncle's cancer journey, and talks about how the Cancer Support Community helped her family.

How Can You Be a Cancer Patient Advocate?

Wednesday, July 26, 2017

Health care policy is often disconnected from patients, especially cancer patients. Medicare and Medicaid policy can impact a family’s ability to afford chemotherapy and have an impact not only on the cancer patient but on the entire family. If the price of cancer medications is so high that people can’t afford to put food on the table, then health care policy is not working for patients.

Insight into the Patient Experience

Friday, July 21, 2017

Earlier this week, the Research and Training Institute at the Cancer Support Community hosted Insight into the Patient Experience, a special program commemorating the release of its second Registry Report based on the findings of the Cancer Experience Registry.

Promoting Better Care for Cancer-Related Problems with Sexuality or Fertility

Wednesday, July 19, 2017

Will2Love’s Bring it up! Cancer, Sex, and Fertility campaign has two goals: to increase the number of discussions patients and professionals have about sexuality and fertility in cancer care and to provide practical tips and tools that enable patients to get the help they need to better manage their problems.

Social Security Disability Benefits and Cancer

Wednesday, July 12, 2017

If you have been diagnosed with cancer, you may be wondering if you’ll qualify for Social Security disability benefits. Unfortunately, the answer may not be a simple yes or no. The Social Security Administration (SSA) has different eligibility criteria for each applicant.

What Patients Say, What Doctors Hear

Wednesday, July 5, 2017

Danielle Ofri is an internist at Bellevue Hospital, an associate professor of medicine at NYU, and editor in chief of the Bellevue Literary Review. Her latest book is What Patients Say, What Doctors Hear. Doctor-patient communication is a two-way highway of information, with each person endeavoring to convey information to the other. But there can be numerous roadblocks and detours, as anyone who has been party to our medical system can attest.

Blog: Cancer Moonshot One Year Later

Wednesday, June 28, 2017

This week the Cancer Support Community, along with six other leading cancer organizations, hosted the Cancer Moonshot: One Year Later, an event continuing the momentum of the Cancer Moonshot Initiative. The initiative works to increase research funding and accelerate cancer discoveries. Researchers, oncologists, care providers, philanthropists, data and tech experts, advocates, patients and survivors all work together toward the Moonshot goal: to make a decade’s worth of advances in cancer prevention, diagnosis, treatment, and care in just five years.

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