Publications & Presentations
The Cancer Support Community is a leader in research on the patient, survivor, and caregiver experience. Our work appears in posters and presentations shared at professional conferences, published articles in preeminent peer-reviewed journals, educational materials for patients and caregivers, and comprehensive research reports to help inform cancer care and patient advocacy.
Use the search filters below to discover our research findings on diverse topics related to patient and caregiver quality of life, including:
- Psychosocial well-being and symptom management
- Patient-provider communication
- Treatment options
- Patient advocacy
- Financial toxicity and other barriers to health equity
- Experiences and perspectives on precision medicine
Meaningful Change in the Ability to Do Activities With Cancer & Cachexia
A research team, including Cancer Support Community, surveyed 181 adults with cancer and cachexia to learn what changes in activity would be meaningful. These findings highlight how researchers can measure patient-centered changes and guide the development of new treatments.
Myelodysplastic syndromes (MDS) are particularly costly, with patients facing an estimated burden of nearly $130,000 in the first two years following diagnosis.
In blood cancers like lymphoma, patients often feel their cancer is invisible to others, and may have less contact with the healthcare team during periods of prolonged remission. Further, lymphoma patients experience levels of distress, anxiety, and depression that can impact participation in treatment or hinder treatment decision-making and health-related quality of life.
Cancer patients and survivors experience distress related to physical, psychological, social, and financial concerns. Individuals diagnosed with triple negative breast cancer(TNBC) may be at increased risk of distress due to the aggressive nature of the illness and high rates of recurrence.
Individuals with triple negative breast cancer (TNBC) are at increased risk for financial toxicity, which can negatively impact treatment adherence and health-related quality of life.
TNBC is aggressive in nature and treatment which can cause adverse symptoms and side effects affecting health-related quality of life (HRQOL). Palliative care (PC) is intended to improve HRQOL for patients with serious disease at any stage of their illness.