Publications & Presentations
The Cancer Support Community is a leader in research on the patient, survivor, and caregiver experience. Our work appears in posters and presentations shared at professional conferences, published articles in preeminent peer-reviewed journals, educational materials for patients and caregivers, and comprehensive research reports to help inform cancer care and patient advocacy.
Use the search filters below to discover our research findings on diverse topics related to patient and caregiver quality of life, including:
- Psychosocial well-being and symptom management
- Patient-provider communication
- Treatment options
- Patient advocacy
- Financial toxicity and other barriers to health equity
- Experiences and perspectives on precision medicine
The Power of Sharing: Insights from People Living with NSCLC
A research team, including Cancer Support Community, interviewed adults living with non-small cell lung cancer (NSCLC) to better understand their experiences and support needs. Findings highlighted the importance of personalized support for treatment decision-making, symptom management, and emotional well-being, helping inform future programs and resources for patients, survivors, and caregivers.
Nutrition influences cancer outcomes, yet access to registered dietitian nutritionists (RDNs) remains inconsistent. Patient-centered data can reveal gaps in care, unmet needs, and disparities, providing real-world insight into oncology nutrition services.
The aim of this study was to characterize the variation in CAR T authorized treatment centers’ (ATCs) policies regarding symptom monitoring, CAR T delivery, and caregiver requirements.
This study characterized the variation in ATCs policies and procedures around caregiving to improve navigation and support for patients and caregivers.
This study explores the relationship between loneliness, depression, and other psychosocial factors among older adults with cancer, highlighting potential areas for psychological support and intervention.
This presentation presents the results of a secondary survey analysis which aimed to assess the influence of age and time since diagnosis on cancer survivors’ definition and prioritization of tolerability-related concepts.
This presentation examines how travel time to cancer care is associated with barriers and delays to care, transportation-related distress, and financial toxicity.
This presentation illustrates cancer survivors’ experiences with professional nutrition care since diagnosis, including sources of care, met and unmet needs, timing of need, and priority nutrition concerns, and how these experiences vary by sociodemographic and clinical characteristics.
Patient-centered research study examining how sleep problems and fatigue impact quality of life in people with ovarian cancer.
This poster explores how Cancer Support Community incorporated patient and caregiver perspectives into Medicare drug price negotiation policy discussions.
This poster presents findings assessing the psychosocial well-being and patient-reported barriers to endometrial cancer care using data from the Cancer Experience Registry.