Publications & Presentations
The Cancer Support Community is a leader in research on the patient, survivor, and caregiver experience. Our work appears in posters and presentations shared at professional conferences, published articles in preeminent peer-reviewed journals, educational materials for patients and caregivers, and comprehensive research reports to help inform cancer care and patient advocacy.
Use the search filters below to discover our research findings on diverse topics related to patient and caregiver quality of life, including:
- Psychosocial well-being and symptom management
- Patient-provider communication
- Treatment options
- Patient advocacy
- Financial toxicity and other barriers to health equity
- Experiences and perspectives on precision medicine
Meaningful Change in the Ability to Do Activities With Cancer & Cachexia
A research team, including Cancer Support Community, surveyed 181 adults with cancer and cachexia to learn what changes in activity would be meaningful. These findings highlight how researchers can measure patient-centered changes and guide the development of new treatments.
This presentation examines how travel time to cancer care is associated with barriers and delays to care, transportation-related distress, and financial toxicity.
This presentation illustrates cancer survivors’ experiences with professional nutrition care since diagnosis, including sources of care, met and unmet needs, timing of need, and priority nutrition concerns, and how these experiences vary by sociodemographic and clinical characteristics.
Patient-centered research study examining how sleep problems and fatigue impact quality of life in people with ovarian cancer.
This poster explores how Cancer Support Community incorporated patient and caregiver perspectives into Medicare drug price negotiation policy discussions.
This poster presents findings assessing the psychosocial well-being and patient-reported barriers to endometrial cancer care using data from the Cancer Experience Registry.
Findings from the Cancer Experience Registry exploring patients’ perceptions of AI integration in healthcare, with a focus on age-related differences, presented during the APOS 2026 symposia “Considerations and Innovations in Aging-Friendly Cancer Care: Updates From the APOS Cancer and Aging SIG.
This poster presents findings a study conducted by CSC to explore the experiences of symptom burden, distress, and quality of life (QoL) among individuals with metastatic and non-metastatic NSCLC.
This program aims to assess the acceptability and effectiveness of the Peer Clinical Trials Support Program in increasing clinical trial knowledge, patient-provider communication about clinical trials self-efficacy in care decision-making the likelihood of enrolling in a clinical trial.
This exploratory qualitative study examined patient and caregiver experiences accessing CAR T, with a focus on logistical and financial barriers. Interviews with providers, navigators, and policy experts plus a focus group with CAR T patients/caregivers explored care coordination, travel burden, and psychosocial impacts.
This study analyzes barriers to mental health care among distressed cancer patients in the Cancer Experience Registry. Attitudinal beliefs and accessibility barriers were key predictors of unmet need, while stigma and financial barriers were not significant. Findings support interventions that normalize and integrate mental health care within oncology services.