Blog

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Read November 22, 2019

Out of Options

Six years into her husband's cancer diagnosis, Nancy Sharp felt cancer's toll on their marriage and children. Like many caregivers, she learned to cope and adapt, even as Brett's brain tumor progressed and treatment options failed.
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Read November 15, 2019

Caregiver’s Remorse

Nancy Sharp was a new mother wanting to go on her first family vacation with her husband and twins, but even that isn't so simple when you're a cancer caregiver.
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Read November 15, 2019

Advocate Spotlight Update: Miranda Johnson

Each month, the Cancer Policy Institute profiles advocates who have been engaged in cancer advocacy. This month we caught up with Miranda Johnson, one of the very first CPI Advocate Spotlights and a longtime CSC advocate!
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Read November 11, 2019

Advocating for Liver Cancer Patients

The Cancer Support Community wants to hear directly from liver cancer patients about their specific and unique cancer experiences so that we can enhance our educational programming, advocacy initiatives, and other patient support initiatives to aid those people living with liver cancer.
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Read November 4, 2019

5 Things You Need to Know About 2020 Open Enrollment

The open enrollment period to purchase health insurance coverage for 2020 is here! Now is the time to make sure that you and your loved ones have access to comprehensive, quality, and affordable coverage through the Health Insurance Marketplace.
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Read October 25, 2019

Living with Cautious Optimism

When your loved on is diagnosed with cancer, and life seems to throw you one bad turn after the next, hope can seem elusive. Cautious optimism taught me how to hope again and to navigate the bumps of life which are always more jarring after a cancer diagnosis.
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Read October 18, 2019

Caregivers: Don't Go it Alone

When a loved one is diagnosed with cancer, how do caregivers live? Seeking that elusive answer nearly leveled Nancy Sharp in the early months of her husband Brett’s brain tumor diagnosis.
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Read October 17, 2019

The Belmont Report: What is it and how does it relate to today’s clinical trials?

The quest to discover effective treatments and cures for diseases and conditions is a worthwhile and compelling goal. Scientific research is responsible for innovative breakthroughs that improve quality of life, extend survival, and even prove life-saving. But alongside the potential benefits of scientific research are the potential risks to the people who participate in the journey that makes breakthroughs possible. The Belmont Report identifies basic ethical principles for conducting research that involve human subjects and sets forth guidelines to assure these principles are followed throughout the research process. The Belmont Report is the result of over four years of meetings that began in 1976 and were conducted by the National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research (Commission). With the Food and Drug Reauthorization Act of 2017’s recent amendment of the term patient experience data to now include both “physical and psychosocial impacts of a disease or condition, or related therapy or clinical investigation,” it is a particularly relevant and important time to revisit the ethical principles established in the Belmont Report.