Cancer Support Community's Blog
Read real stories from people in CSC's community who understand what you are facing and want you to know you're not alone.
Our blog covers a wide range of topics to help support, inspire, and inform members of our community, including those who have been personally impacted by cancer. Use the search filters below to find blog posts on topics that are important to you, from wellness tips, advocacy & policy news, and cancer research findings to stories and insights shared by patients, survivors, and caregivers.
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Parenting With Cancer: What Do We Tell the Kids?
A couple learned they each had cancer, a week apart. Telling their kids was one of the hardest parts.
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Family, Hope & Cancer Support Fuels First-time Marathoner
Running the NYC Marathon was on Kayla's bucket list. Then cancer came to her family.
Advocate Spotlight: Becky Franks
Each month, the Cancer Policy Institute profiles advocates who have been engaged in advocacy in their home state, their community, with elected officials, and more. Read on to learn more about our featured advocate for January, 2019, and her incredible advocacy resume. If you are interested in learning more about policy, advocacy, and ways to get involved, sign up to be a part of the Grassroots Network!
Taking a “Whole Patient” Approach to Treating Hematologic Malignancies
Our Research and Training Institute (RTI) took front stage in sunny San Diego this week at the American Society of Hematology (ASH) Annual Meeting. Three abstracts from the RTI were accepted to the conference, each representing a separate blood cancer specialty registry from the Cancer Experience Registry ®.
Advocate Spotlight: Shannon La Cava
Each month, the Cancer Policy Insitute profiles advocates who have been engaged in advocacy in their home state, their community, with elected officials, and more. Read on to learn more about our featured advocate for the month of December and her recent dive into advocacy. If you are interested in learning more about policy, advocacy, and ways to get involved, sign up to be a part of the Grassroots Network!
Advocate Spotlight: Yovana Portillo, Phoenix, Arizona
Each month, the Cancer Policy Insitute profiles advocates who have been engaged in advocacy in their home state, their community, with elected officials, and more. Read on to learn more about our featured advocate for the month of October and her passion to advocate for and destigmatize lung cancer. If you are interested in learning more about policy, advocacy, and ways to get involved, sign up to be a part of the Grassroots Network!
Increasing Breast Cancer Awareness Among Asian-American Women
Like many women in communities of color, Asian-Americans face disproportionate health outcomes. Many Asian-American women lack important education about breast cancer symptoms, which can lead to later diagnoses and worse health outcomes.
Advocate Spotlight: Michael Holtz, Knoxville, Tennessee
Each month, the Cancer Policy Insitute profiles advocates who have been engaged in advocacy in their home state, their community, with elected officials, and more. Read on to learn more about our featured advocate for the month of September and his passion to advocate for education, patient support, and policy change. If you are interested in learning more about policy, advocacy, and ways to get involved, sign up to be a part of the Grassroots Network!
Being Your Own Best Advocate: Advice from Olympic gymnast and cancer survivor, Shannon Miller
Shannon Miller is a 7-time Olympic medalist in gymnastics. She’s also a mother, an author, a dedicated health and wellness advocate - and an ovarian cancer survivor. An unexpected cancer diagnosis, and the treatment journey that followed, forced her to discover a new normal and has further fueled her passion of empowering and educating women around health and wellness. She’s partnered with TESARO and Our Way Forward to encourage patients, their loved ones and healthcare providers talk about ovarian cancer. Learn more, and read other blog perspectives at https://www.ourwayforward.com/.
Advocate Spotlight: Mirchelle Louis, Dallas, Texas
Each month, the Cancer Policy Insitute will be profiling advocates who have been engaged in advocacy in their home state, their community, with elected officials, and more. Read on to learn more about our featured advocate for the month of August and her passion for defending and increasing access to health care for all . If you are interested in learning more about policy, advocacy, and ways to get involved, sign up to be a part of the Grassroots Network!
Why We Need Greater Education Around Sarcoma
What is sarcoma and why is it sometimes called the “forgotten cancer?"
Administration’s New Rule Could Put Patients’ Health Coverage at Risk
Back in January, the Trump Administration proposed a new rule that would expand the availability of Association Health Plans (AHPs) that are exempt from regulations like the 10 essential health benefits (EHBs) set by the Patient Protection and Affordable Care Act (ACA or Obamacare). This week, the Trump Administration released a finalized policy to allow loosely affiliated business to band together as AHPs and offer plans that are not held to many important ACA consumer protections.