Cancer Support Community's Blog

The Research & Training Institute recently presented findings from the Cancer Experience Registry at the San Antonio Breast Cancer Symposium based on data from 273 Metastatic Breast Cancer patients and survivors.

The Cancer Support Community shares important information about the relationship between psychosocial distress and unmet needs, as well as some suggestions about how best to provide AML patients and survivors with supportive care.

The toll of Brett's cancer on his body made home hospice no longer a viable option. After his most recent seizure, he was admitted into hospice. Going into hospice was almost a relief. I lived with premature anticipatory grief for years knowing Brett's cancer was incurable.

Being Brett’s wife and caregiver was a complicated role, and it strained my nerves. It was hard to simply rest my head on his shoulder the way I used to, or to express my own need for emotional intimacy and comfort when the gravity of his illness loomed large. I bounced back quickly from hurt feelings because there was no choice but to be present when we our time together as a family was diminishing. Every moment mattered.

One of the major themes dominating health care discussions today is the fact that healthcare costs in the United States are proving unsustainable. Practices known as utilization management (UM) are one of the major ways the high cost of health care has been addressed. The Cancer Policy Institute at the CSC will be releasing a series of blogs aimed at educating patients about different UM practices and techniques. The upcoming blogs will contain information that patients need to know, including how that particular technique impacts access to care, as well as advocacy opportunities to address those barriers to care. Read this first blog in the series to learn more about UM, the different practices and techniques, and how CSC is fostering conversations about UM.

Six years into her husband's cancer diagnosis, Nancy Sharp felt cancer's toll on their marriage and children. Like many caregivers, she learned to cope and adapt, even as Brett's brain tumor progressed and treatment options failed.

Nancy Sharp was a new mother wanting to go on her first family vacation with her husband and twins, but even that isn't so simple when you're a cancer caregiver.

For cancer caregivers, life is lived even down to the nanosecond. Time for me has become less a measurement of the day than the minutes.

Cancer caregivers must learn to embrace the gray of life.

When your loved on is diagnosed with cancer, and life seems to throw you one bad turn after the next, hope can seem elusive. Cautious optimism taught me how to hope again and to navigate the bumps of life which are always more jarring after a cancer diagnosis.