Findings from our cancer experience survey show that people with triple negative breast cancer can face significant distress due to financial toxicity and challenging symptoms and side effects. Keep reading for 3 key takeaways to know if you or a loved one is facing a TNBC diagnosis, and resources that can help.
Cancer Experience Registry
Meet 3 cancer survivors who participated in our Cancer Experience Registry to share valuable insights about their cancer journeys, and learn how you can too. The insights of our survey participants help us create better outcomes for patients and caregivers today and for future generations. Read our blog to learn more.
The last few months have seen many discussions about health care, financial burden, and the intersection between the two. The COVID-19 pandemic has left many...
My uncle, a former Massachusetts physical education teacher and football coach, had a tough exterior and an authoritative air – personality features that served him...
In some ways, anxiety is a crucial part of life. In my mom’s case, listening to the warning signals in her head pushed her to ask for multiple opinions, which eventually led to her cancer diagnosis. Anxiety can inspire us to seek out help and information. However, it is important to recognize when anxiety becomes unproductive or even harmful.
You hear the words, “You have cancer,” and suddenly, the world around you stops. You can see the doctor’s lips moving to form words that...
To cap off a productive 2019, the RTI looks back at highlights from the past year. Many exciting things happened for the RTI in 2019 including the addition of new staff members to our wonderful team and settling into our new permanent home in Old City, Philadelphia. The team also remains committed to conducting psychosocial and behavioral research through survey development, scale validation, and patient-centered market research projects so that we can continue to inform the services and support that the Cancer Support Community provides to cancer patients, caregivers, and their families. Read on to see some of the milestones and highlights from the past year!
The Cancer Support Community (CSC) strives to transform the lives of individuals whose lives have been impacted by cancer. This includes caregivers who support patients at each stage of the cancer experience from diagnosis to post-treatment. One way for CSC to understand more about the needs of caregivers is to ask caregivers to share their unique stories through the Cancer Experience Registry® (CER), an online research initiative that seeks to further understand the wide-reaching impact of cancer.
The Cancer Support Community wants to hear directly from liver cancer patients about their specific and unique cancer experiences so that we can enhance our educational programming, advocacy initiatives, and other patient support initiatives to aid those people living with liver cancer.
Patient Concerns and Quality of Life: First Findings from the Cancer Experience Registry®: Ovarian Cancer
On March 17th, 2019 the Research and Training Institute (RTI) presented findings of a study on more than 120 women with a diagnosis of ovarian cancer at the Society of Gynecologic Oncology’s 50th Annual Meeting on Women’s Cancer. Here is a post from the research team about the significance of their findings for the ovarian cancer community.