Cancer Experience Registry

Read July 5, 2023

CSC Publishes New Research Insights Report

Cancer Support Community’s Research & Training Institute is working to elevate the voices of patients, survivors, and caregivers through expansive studies on the psychosocial impact of cancer. Learn about our research approaches, recent initiatives, and what we've learned.
A woman's hands comfortingly hold the hands of a friend
Read December 13, 2022

Coping With Triple Negative Breast Cancer? 3 Areas Where You May Need Extra Support

Findings from our cancer experience survey show that people with triple negative breast cancer can face significant distress due to financial toxicity and challenging symptoms and side effects. Keep reading for 3 key takeaways to know if you or a loved one is facing a TNBC diagnosis, and resources that can help.
man's hands typing on keyboard
Read November 16, 2021

Inspire Change by Sharing Your Cancer Experience

Meet 3 cancer survivors who participated in our Cancer Experience Registry to share valuable insights about their cancer journeys, and learn how you can too. The insights of our survey participants help us create better outcomes for patients and caregivers today and for future generations. Read our blog to learn more.
Mom and daughter hugging and smiling
Read August 13, 2020

Anxiety in the Cancer Experience

In some ways, anxiety is a crucial part of life. In my mom’s case, listening to the warning signals in her head pushed her to ask for multiple opinions, which eventually led to her cancer diagnosis. Anxiety can inspire us to seek out help and information. However, it is important to recognize when anxiety becomes unproductive or even harmful.
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Read March 15, 2019

Melanoma, Stigma, and Mental Health

On March 6th, 2019 our Research and Training Institute (RTI) presented findings of a study on more than 40 adult patients with a diagnosis of melanoma at the Society of Behavioral Medicine’s 40th Annual Meeting and Scientific Sessions. Below is a post from the research team about the significance of their findings for the melanoma community.
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Read December 5, 2018

Taking a “Whole Patient” Approach to Treating Hematologic Malignancies

Our Research and Training Institute (RTI) took front stage in sunny San Diego this week at the American Society of Hematology (ASH) Annual Meeting. Three abstracts from the RTI were accepted to the conference, each representing a separate blood cancer specialty registry from the Cancer Experience Registry ®.
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Read January 24, 2018

Share Your Cancer Experience

Chef Hans Rueffert, a stomach cancer survivor who has appeared on The Food Network, has recorded a new 90-second video about the Cancer Experience Registry. The Registry is free, confidential and open to anyone who has been diagnosed with cancer or provides care to someone with cancer.
white woman with short hair smiling
Read May 11, 2016

Hope: What Motivates Us to Go Forward

"By definition," Lillie Shockney says, "hope is something in the future, something that motivates us to go forward in some manner. When someone is facing cancer, it's important from the outset to learn what that person's life goals and hopes are and to think about whether these hopes can be fulfilled. Are they realistic? Sometimes, you have to step back and take a different path."