Cancer Experience Registry

Read November 16, 2021

Inspire Change by Sharing Your Cancer Experience

Meet 3 cancer survivors who participated in our Cancer Experience Registry to share valuable insights about their cancer journeys, and learn how you can too. The insights of our survey participants help us create better outcomes for patients and caregivers today and for future generations. Read our blog to learn more.
Mom and daughter hugging and smiling
Read August 13, 2020

Anxiety in the Cancer Experience

In some ways, anxiety is a crucial part of life. In my mom’s case, listening to the warning signals in her head pushed her to ask for multiple opinions, which eventually led to her cancer diagnosis. Anxiety can inspire us to seek out help and information. However, it is important to recognize when anxiety becomes unproductive or even harmful.
black woman in yellow typing on her computer
Read July 30, 2020

Power to the Patient Voice

You hear the words, “You have cancer,” and suddenly, the world around you stops. You can see the doctor’s lips moving to form words that...
year-end.jpg
Read December 20, 2019

The Research and Training Institute’s 2019 Year in Review

To cap off a productive 2019, the RTI looks back at highlights from the past year. Many exciting things happened for the RTI in 2019 including the addition of new staff members to our wonderful team and settling into our new permanent home in Old City, Philadelphia. The team also remains committed to conducting psychosocial and behavioral research through survey development, scale validation, and patient-centered market research projects so that we can continue to inform the services and support that the Cancer Support Community provides to cancer patients, caregivers, and their families. Read on to see some of the milestones and highlights from the past year!
ewc-csc_southjersey102019_001197-compressed_small.jpg
Read December 3, 2019

3 Essential CSC Resources for Caregivers

The Cancer Support Community (CSC) strives to transform the lives of individuals whose lives have been impacted by cancer. This includes caregivers who support patients at each stage of the cancer experience from diagnosis to post-treatment. One way for CSC to understand more about the needs of caregivers is to ask caregivers to share their unique stories through the Cancer Experience Registry® (CER), an online research initiative that seeks to further understand the wide-reaching impact of cancer.
liver_cancer_registry.jpg
Read November 11, 2019

Advocating for Liver Cancer Patients

The Cancer Support Community wants to hear directly from liver cancer patients about their specific and unique cancer experiences so that we can enhance our educational programming, advocacy initiatives, and other patient support initiatives to aid those people living with liver cancer.
melanoma_patient_kim_b.jpg
Read March 15, 2019

Melanoma, Stigma, and Mental Health

On March 6th, 2019 our Research and Training Institute (RTI) presented findings of a study on more than 40 adult patients with a diagnosis of melanoma at the Society of Behavioral Medicine’s 40th Annual Meeting and Scientific Sessions. Below is a post from the research team about the significance of their findings for the melanoma community.