Cancer Experience Registry

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Read August 13, 2020

Anxiety in the Cancer Experience

In some ways, anxiety is a crucial part of life. In my mom’s case, listening to the warning signals in her head pushed her to ask for multiple opinions, which eventually led to her cancer diagnosis. Anxiety can inspire us to seek out help and information. However, it is important to recognize when anxiety becomes unproductive or even harmful.
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Read July 30, 2020

Power to the Patient Voice

You hear the words, “You have cancer,” and suddenly, the world around you stops. You can see the doctor’s lips moving to form words that...
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Read December 20, 2019

The Research and Training Institute’s 2019 Year in Review

To cap off a productive 2019, the RTI looks back at highlights from the past year. Many exciting things happened for the RTI in 2019 including the addition of new staff members to our wonderful team and settling into our new permanent home in Old City, Philadelphia. The team also remains committed to conducting psychosocial and behavioral research through survey development, scale validation, and patient-centered market research projects so that we can continue to inform the services and support that the Cancer Support Community provides to cancer patients, caregivers, and their families. Read on to see some of the milestones and highlights from the past year!
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Read December 3, 2019

3 Essential CSC Resources for Caregivers

The Cancer Support Community (CSC) strives to transform the lives of individuals whose lives have been impacted by cancer. This includes caregivers who support patients at each stage of the cancer experience from diagnosis to post-treatment. One way for CSC to understand more about the needs of caregivers is to ask caregivers to share their unique stories through the Cancer Experience Registry® (CER), an online research initiative that seeks to further understand the wide-reaching impact of cancer.
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Read November 11, 2019

Advocating for Liver Cancer Patients

The Cancer Support Community wants to hear directly from liver cancer patients about their specific and unique cancer experiences so that we can enhance our educational programming, advocacy initiatives, and other patient support initiatives to aid those people living with liver cancer.
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Read March 15, 2019

Melanoma, Stigma, and Mental Health

On March 6th, 2019 our Research and Training Institute (RTI) presented findings of a study on more than 40 adult patients with a diagnosis of melanoma at the Society of Behavioral Medicine’s 40th Annual Meeting and Scientific Sessions. Below is a post from the research team about the significance of their findings for the melanoma community.
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Read January 25, 2019

The Intersection of Long-Term Symptom Management and Distress in Gastric Cancer

On January 17th, 2019 the Research and Training Institute (RTI) presented findings of a study on 72 adult patients with a diagnosis of stomach, esophageal, or GIST cancer at the American Society of Clinical Oncology’s Gastrointestinal Cancers Symposium. Below is a post from the research team about the significance of their findings for the gastric cancer community.
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Read December 5, 2018

Taking a “Whole Patient” Approach to Treating Hematologic Malignancies

Our Research and Training Institute (RTI) took front stage in sunny San Diego this week at the American Society of Hematology (ASH) Annual Meeting. Three abstracts from the RTI were accepted to the conference, each representing a separate blood cancer specialty registry from the Cancer Experience Registry®.