The Cancer Experience Registry (CER) is an online research study that uncovers the emotional, physical, practical, and financial impact of cancer.
By gathering the important insights of those affected by cancer through the CER survey, we can create better outcomes for patients, survivors, and caregivers today, and for future generations.
The survey will take about 35 minutes to complete.
Google Chrome is recommended.
Frequently Asked Questions
|What is the benefit of taking the survey?
By generously giving your time for this important research, your contributions help deliver better outcomes for those impacted by cancer, now and in the future.
|Who can take the survey?
|The CER is open to any adult who has been diagnosed with cancer at any point in their life or has been a family or informal caregiver to someone with cancer. Participants must live in the United State, a U.S. territory, or Canada and be able to read and understand English.
|How long is the survey?
|The survey will take about 35 minutes to complete. Your results will be saved as you go, so you are able to start and stop as you need.
|What happens when I’ve finished the survey?
|Once you complete the survey, you become part of a registry of patients and caregivers with the opportunity to complete follow-up surveys that track changes over time, or additional surveys that ask about emerging topics in cancer care.
|What happens to the results?
Your insights, along with the insights of other patients and caregivers, are shared with the broader cancer community to make positive changes. For example, this information helps to:
|If I stop the survey before I complete it, how do I get back in?
|You can start and stop the survey at any point. Simply use the unique link emailed to you to pick up where you left off. You cannot re-enter the survey through the survey home page.
|What about my privacy?
|The survey is an Institutional Review Board (IRB) approved research study, which means that the confidentiality, rights, and welfare of participants are protected.
|Is there a cost to take part?
|No, there is no cost to take part in this research.
|Why isn’t my survey loading?
|If you see a spinning circle while trying to take the survey, you may need to open the survey using a different web browser. Google Chrome works best to take the survey. Download Google Chrome
Hear from People Like You
Lynn Caregiver Registry Participant
“The Registry helped me a lot … I feel very safe, I open up."
New CER Findings
This data report provides an up-to-date look at the emotional, physical, practical, and financial impact of cancer on patients, survivors, and caregivers participating in the Cancer Experience Registry (CER) from October 2021 through March 2023.
Read the 2020 Index Report
The CER Report describes general findings among patients with any cancer type, findings among patients living with specific cancers, and findings among caregivers.
Explore Our Research
We disseminate research findings through peer-reviewed scientific publications and conference presentations, key reports, and book chapters.