Policy Webinars & Videos
The Cancer Policy Institute produces a variety of videos and webinars to break down difficult legislative and regulatory issues and processes. Explore the topics below to learn more about a variety of complex issue facing patients today, as well as how you can use your story to elevate our collective voice and work toward solutions to these issues.
Storytelling for Advocates
Join CSC's Cancer Policy Institute to learn how you can use your personal story to effectively advocate and affect change. Our featured speaker, Heather Hall, is a national cancer advocate, speaker, and writer. A three-time cancer survivor, Heather…
Cancer Policy Institute Events
Utilization Management Webinar: Prior Authorization
CSC began its 2023 Utilization Management virtual roundtable series on May 1, 2023, with a discussion of the impact of prior authorization and how to educate advocates about how to improve prior authorization. Our panel of experts addressed how prior authorization is a decision made by health insurers, not a provider or other medical professional, and how such protocols burden providers administratively and delay access to critical care for vulnerable patient populations.
Utilization Management Webinar: Step Therapy
On August 17, we held a virtual roundtable discussion of step therapy in which we convened patients, advocates, caregivers, providers, industry, payers, and other stakeholders for a discussion on the impact of step therapy. The discussion provided tools for those impacted by step therapy to help navigate their individual circumstances and share resources on how all stakeholders can advocate for meaningful reform.
Utilization Management Webinar: Pharmacy Benefit Managers and Laboratory Benefit Managers
CSC’s Cancer Policy Institute hosted a webinar focused on the roles of Pharmacy Benefit Managers and Laboratory Benefit Managers with guest speakers Adam Borden from the American Clinical Laboratory Association, Greg Gierer from Better Medicare Alliance, and Rachel Klein from The Aids Institute.
Utilization Management Summit 2022
The Cancer Support Community hosted its 4th Annual Utilization Management (UM) Summit on December 1, 2022. This year’s Summit gathered patients, patient advocates, providers, industry, payers, and other stakeholders for a virtual summit. We were joined by Congressman Larry Bucshon, M.D., between the two panels to discuss the Improving Senior’s Timely Access to Care Act. Panel one allowed us to look back at the evolution and advocacy efforts in high deductible health plans, pharmacy benefit managers, and the use of QALYs in measuring value.
High-Deductible Health Plans and Patient Affordability to Care
The Cancer Policy Institute hosted a webinar to address the use of high-deductible health plans and their implications on patients’ access and affordability to care with guest speakers:
- Kollet Koulianos, MBA, Vice President of Payer Relations, National Hemophilia Foundation
- Cynthia Cox, Vice President, Kaiser Family Foundation
- Myra Simon, Principal, Avalere Health
Utilization Management Summit on Health Equity
The Cancer Support Community hosted it’s 3rd Annual Utilization Management (UM) Summit on November 16, 2021. This year’s Summit focused on health equity, and featured a keynote address by Dr. Karen Winkfield, Executive Director of the Meharry-Vanderbilt Alliance, and remarks from Dr. Danielle Carnival with the White House Office of Science and Technology Policy. The Summit also featured a focused panel discussion on how the use of UM tools like prior authorization and step therapy may exacerbate health inequities across the healthcare system with panelists:
Externally-Led Patient-Focused Drug Development Meeting on Cancer Cachexia
Join us for a virtual meeting to raise awareness of the impact of cancer cachexia – a condition that causes weakness, muscle loss, and drastic unintentional weight loss leading up to a cancer diagnosis or during treatment. This meeting will inform the U.S. Food and Drug Administration (FDA) about the patient and caregiver perspective on living with cancer cachexia.
From the White House to Congress: Ask Our Experts What’s at Stake for Patients
Join us to ask CSC experts questions about all the policies in the news. From Executive Orders to legislative proposals, they will break down what the new Biden-Harris Administration and Congress could mean for patients and caregivers.
Patient Access to Care
Grassroots Advocacy
Storytelling for Advocates
Join CSC's Cancer Policy Institute to learn how you can use your personal story to effectively advocate and affect change. Our featured speaker, Heather Hall, is a national cancer advocate, speaker, and writer. A three-time cancer survivor, Heather is focused on living life to the fullest. Diagnosed with osteosarcoma at 21, melanoma at 27 and breast cancer at 43, she is committed to sharing her story to help others facing this disease and working to make a positive difference in the fight against cancer.