Blog Posts

June 3, 2019
Symptom Burden, Relationships, and Health Care Communication: Considerations for Lung Cancer Survivorship
From May 31st through June 4th, the Cancer Support Community will be in Chicago, IL at the American Society of Clinical Oncology’s Annual Conference. As part of this conference, our Research and Training Institute (RTI) released findings of a study on over 200 adult patients with a diagnosis of lung cancer.

March 26, 2019
Introducing VOICE™: A New Tool to Capture the Patient Perspective
On March 22nd, 2019 the Research and Training Institute (RTI) presented findings from two studies at the National Comprehensive Cancer Network (NCCN) Annual Conference in Orlando, FL. Below is a post from the research team about the significance of their findings from one study for people diagnosed with cancer, their families, and cancer care providers.

March 20, 2019
Patient Concerns and Quality of Life: First Findings from the Cancer Experience Registry®: Ovarian Cancer
On March 17th, 2019 the Research and Training Institute (RTI) presented findings of a study on more than 120 women with a diagnosis of ovarian cancer at the Society of Gynecologic Oncology’s 50th Annual Meeting on Women’s Cancer. Here is a post from the research team about the significance of their findings for the ovarian cancer community.

March 15, 2019
Melanoma, Stigma, and Mental Health
On March 6th, 2019 our Research and Training Institute (RTI) presented findings of a study on more than 40 adult patients with a diagnosis of melanoma at the Society of Behavioral Medicine’s 40th Annual Meeting and Scientific Sessions. Below is a post from the research team about the significance of their findings for the melanoma community.

March 5, 2019
Masculinity and Perceived Control: How Quality of Life Concerns Affect Psychosocial Distress for Prostate Cancer Patients
On February 14th, 2019 our Research and Training Institute (RTI) presented findings of a study on more than 200 men with a diagnosis of prostate cancer at the American Society of Clinical Oncology’s Genitourinary Cancers Symposium. Here is a post from the research team about the significance of their findings for the prostate cancer community.

December 12, 2018
Examining Sleep Disturbance and Quality of Life among Breast Cancer Survivors
On December 5th, 2018 we presented new research findings on a study of more than 600 women with breast cancer at the San Antonio Breast Cancer Symposium in San Antonio, TX. Below is a post about the significance of these findings for women diagnosed with breast cancer and for breast cancer care providers.

December 5, 2018
Taking a “Whole Patient” Approach to Treating Hematologic Malignancies
Our Research and Training Institute (RTI) took front stage in sunny San Diego this week at the American Society of Hematology (ASH) Annual Meeting. Three abstracts from the RTI were accepted to the conference, each representing a separate blood cancer specialty registry from the Cancer Experience Registry®.

September 28, 2018
Amplifying the Patient Voice in Cancer Care
In cancer care, goals should be informed by what the patient considers to be most important. This is why our team at the Research and Training Institute is developing a new tool that can be used to measure what really matters to patients- Valued Outcomes in the Cancer Experience (VOICE™).

March 26, 2018
Demystifying Distress Screening
Whether you are familiar with the phrase distress screening or are seeing it for the first time, the results we are sharing will show how important this tool is for patients diagnosed with cancer.