Marni Amsellem

Author Marni Amsellem, PhD. Marni is a research consultant for the Cancer Support Community.

Blog Posts

Virginia
Read January 4, 2017

Meeting the needs of caregivers (and patients) affected by lung cancer

Caregivers play a critical role in the treatment, support, and recovery of individuals with cancer, yet often times, their emotional and informational needs get overlooked. Caregivers have such a meaningful role in cancer care, and it is important to recognize and address their needs. These needs vary based on the health of the care-recipient, the physical and emotion needs of the recipient, the resources of and the demands on the caregiver, as well as the family or relationship dynamics.
Darlene, living with breast cancer
Read December 8, 2016

Understanding Clinical Trials

Clinical trials can offer cancer patients access to the most innovative treatments, high levels of care and hope for a better future. Yet, fewer than 5% of adults with cancer participate in clinical trials. One year ago, the Cancer Support Community (CSC) created an online survey focused on cancer clinical trials with the goal of using the information to design an educational program. Results from this survey highlighting the experiences, beliefs, and preferences of cancer patients as they relate to clinical trials were published in a report that is now available to the public.
Colleen and Frank Middleton
Read December 14, 2016

Experiences of Melanoma Patients and Caregivers

The Cancer Support Community constantly strives to better understand the experiences of patients and caregivers to best meet their needs. Often we conduct in-depth surveys on specific concerns or cancer diagnoses when we are considering adding or modifying programs. This past spring, we conducted such a survey of individuals (both patients and caregivers) affected by melanoma. We, along with partner organizations, conducted an online survey of 140 individuals diagnosed with melanoma and 64 caregivers assessing experiences, beliefs, attitudes, preferences for information and support.
older woman with short gray hair smiling into distance
Read October 19, 2016

Meeting the Unique Needs of People with Metastatic Breast Cancer

For Breast Cancer Awareness Month, it is important to give particular awareness to the unique experiences and needs of people with metastatic breast cancer (MBC). These are individuals diagnosed with Stage IV breast cancer, meaning the cancer has spread to more distant parts of their bodies. Metastatic breast cancer has become a disease that often can be managed for a longer period of time through various treatments.