June 11, 2020
We are once again honored to interview Dr. Alice B. Kornblith, PhD about her plans for a new book and why caregivers’ stories need to be heard.
December 18, 2019
The Research & Training Institute recently presented findings from the Cancer Experience Registry at the San Antonio Breast Cancer Symposium based on data from 273 Metastatic Breast Cancer patients and survivors.
December 16, 2019
The Cancer Support Community shares important information about the relationship between psychosocial distress and unmet needs, as well as some suggestions about how best to provide AML patients and survivors with supportive care.
June 3, 2019
Symptom Burden, Relationships, and Health Care Communication: Considerations for Lung Cancer Survivorship
From May 31st through June 4th, the Cancer Support Community will be in Chicago, IL at the American Society of Clinical Oncology’s Annual Conference. As part of this conference, our Research and Training Institute (RTI) released findings of a study on over 200 adult patients with a diagnosis of lung cancer.
March 20, 2019
Patient Concerns and Quality of Life: First Findings from the Cancer Experience Registry®: Ovarian Cancer
On March 17th, 2019 the Research and Training Institute (RTI) presented findings of a study on more than 120 women with a diagnosis of ovarian cancer at the Society of Gynecologic Oncology’s 50th Annual Meeting on Women’s Cancer. Here is a post from the research team about the significance of their findings for the ovarian cancer community.
March 15, 2019
On March 6th, 2019 our Research and Training Institute (RTI) presented findings of a study on more than 40 adult patients with a diagnosis of melanoma at the Society of Behavioral Medicine’s 40th Annual Meeting and Scientific Sessions. Below is a post from the research team about the significance of their findings for the melanoma community.
February 28, 2019
We are excited to share that we have authored a book chapter on caregiving published by Oxford University Press. The chapter is included in a new book, entitled ‘Cancer Caregivers,’ that is dedicated to the science of cancer caregiving and the support that is available to caregivers in their community.
January 25, 2019
On January 17th, 2019 the Research and Training Institute (RTI) presented findings of a study on 72 adult patients with a diagnosis of stomach, esophageal, or GIST cancer at the American Society of Clinical Oncology’s Gastrointestinal Cancers Symposium. Below is a post from the research team about the significance of their findings for the gastric cancer community.
December 12, 2018
On December 5th, 2018 we presented new research findings on a study of more than 600 women with breast cancer at the San Antonio Breast Cancer Symposium in San Antonio, TX. Below is a post about the significance of these findings for women diagnosed with breast cancer and for breast cancer care providers.
December 5, 2018
Our Research and Training Institute (RTI) took front stage in sunny San Diego this week at the American Society of Hematology (ASH) Annual Meeting. Three abstracts from the RTI were accepted to the conference, each representing a separate blood cancer specialty registry from the Cancer Experience Registry®.
October 5, 2018
While clear advances have certainly been made in treatment and survival, there remains a critical need to better understand the quality of life implications of survivorship. We applaud the multidisciplinary approach of cancer care, and also advocate strongly for an even more comprehensive view of treating patients, above and beyond the treatment of their disease.
September 28, 2018
In cancer care, goals should be informed by what the patient considers to be most important. This is why our team at the Research and Training Institute is developing a new tool that can be used to measure what really matters to patients- Valued Outcomes in the Cancer Experience (VOICE™).