June 1, 2023
Peer Support for Black Cancer Patients Opens Doors to Clinical Trials Diversity
Black and African American cancer patients represent only 5% of clinical trial participants. Here’s how our Peer Clinical Trials Support Program is working to change that by increasing clinical trial awareness and knowledge among Black and African American cancer patients like Cae.
May 18, 2023
What To Know About Prior Authorization & How It Impacts You
As you make decisions about your cancer treatment, it can be helpful to understand what prior authorization is and how it can impact your care. Sometimes, prior authorization programs can be barriers to getting needed treatments. Keep reading to learn more, including what to do if your health insurance company denies a prior authorization request from your healthcare provider.
May 11, 2023
6 Strategies to Ease Your Worries About Cancer Recurrence
Fear of cancer recurrence can affect every aspect of your life. Being aware of possible triggers and having coping tools ready can help you manage these feelings and other worries about the future. While no single strategy is guaranteed to make fears of recurrence go away completely, here are 6 coping methods that may help ease your distress.
May 4, 2023
How to Improve Your Sleep Health After a Cancer Diagnosis
People living with cancer frequently report having problems getting the right amount of sleep. Here’s how to approach common sleep disturbances so that you can get a good night’s rest.
April 27, 2023
How to Use Storytelling to Inspire Action & Drive Change
Storytelling is an opportunity to connect with others, especially those who may not understand your experience or point of view. Because of this, storytelling can be an excellent tool in an advocate’s toolbox. Our blog explains how you can leverage storytelling in cancer advocacy — and shares tips for telling your own story.
April 21, 2023
Testicular Cancer Diagnosis? Start Here.
If you are facing a testicular cancer diagnosis, 3 key steps can help you gain control of your journey. Keep reading to discover more, and hear from a testicular cancer survivor about his own experience navigating his diagnosis and treatment.
April 11, 2023
Don’t Go It Alone: Find Support as an AYA With Cancer
Young people face unique challenges in their cancer experience. As an AYA, having access to social and emotional support is critical. Keep reading to learn about common challenges AYAs may face, and discover support resources that can help.
March 22, 2023
5 Ways Oncology Social Workers Can Help After a Cancer Diagnosis
Receiving a cancer diagnosis can feel like you’ve landed in uncharted territory with no map or GPS to guide you. That’s where oncology social workers can help. These compassionate professionals can help patients and their families cope with and navigate cancer. They can even help patients find solutions to unexpected challenges. Some might surprise you. Keep reading to discover 5 ways oncology social workers can help throughout the entire cancer experience.
March 14, 2023
5 Women Who Helped Shape Cancer Care
Over the past few centuries, women have made significant contributions to advancing cancer care and cancer support. That includes women working in STEM fields like oncology, and in non-STEM fields too. We present 5 women who helped make a difference for patients and families impacted by cancer, each in their unique way.
March 7, 2023
What Is the Link Between Obesity and Colorectal Cancer?
Obesity can put people at risk for adverse conditions like diabetes, hypertension, and cardiovascular disease. It has also been linked to the development of certain cancers, including colorectal cancer. Keep reading to learn about the possible connections between obesity and colorectal cancer, and discover ways people can reduce their risk of developing either condition.
February 28, 2023
Value of Distress Screening for Healthcare Utilization and Spending
Distress screening identifies people at risk for mental health concerns like anxiety or depression. For cancer patients, who are at higher risk than the general population for both anxiety and depression, it is especially critical to screen for these concerns. Keep reading to learn how our distress screening program can foster better outcomes for people with cancer and lower healthcare utilization and spending.
February 23, 2023
10 Things You Should Do If You Are Diagnosed With Cancer
For many people, facing a cancer diagnosis is like nothing they have faced before. It can be overwhelming. Fortunately, as you start this new journey, there are steps you can take to gain control. Here are 10 things you should do if you or a loved one has been diagnosed with cancer.
January 31, 2023
There's Nothing Like a Home-cooked Meal, Especially One to Help a Friend
If your friend has been diagnosed with cancer, you may be wondering how you can best support them. One great place to start is by asking if they’d like help with meals. Organizing healthy, home-cooked meals for your friend can be a perfect way to show your support and love as they navigate their diagnosis. Keep reading for 7 tips to help you get started.
January 25, 2023
Doctor Priorities vs. Patient Priorities: How to Strike a Balance
A doctor's No. 1 priority is treating their patient's illness or disease. But for some patients, their No. 1 priority might not be their disease. So, what happens when your priorities and your doctor's priorities don't align? Keep reading for tips on striking a balance that works for you.
January 10, 2023
10 Coping Strategies to Improve Your Quality of Life
There is no right way or wrong way to cope with cancer, but there are actions you can take to help you gain control during your cancer journey. We share 10 steps you can take to cope with your diagnosis and improve your quality of life while navigating treatment and survivorship.
December 20, 2022
HIV and Cancer: One Man Shares His Experience Navigating Both Diagnoses
"One day, I was advocating for a patient of mine and realized that I hadn’t been doing a good job of advocating for myself," shares Tony Christon-Walker, a longtime community advocate and activist. In our Q&A with Tony, he discusses his experience as a cancer survivor living with HIV. He also reflects on the importance of self-advocacy as a patient and facing – and defeating – stigma. Keep reading for more insights from Tony.
December 15, 2022
Not Just a Cost-Containment Tool: Utilization Management Should Benefit Patients
Utilization management (or UM for short) is a set of techniques used to reduce healthcare costs, and they can directly impact patient care. We recently gathered stakeholders together for a virtual forum to discuss the role UM plays in our healthcare system. The conversation focused on what patients, caregivers, and advocates can do to create a more patient-centered system. Keep reading for key takeaways and actions you can take to help ensure UM practices are used appropriately to benefit patients.
November 29, 2022
How One Woman Navigated a Mesothelioma Diagnosis and Found Her New Normal
Just a few months after giving birth to her first child, Tamron Little learned she had peritoneal mesothelioma. Tamron’s love for her infant son gave her hope, and her husband was a steady source of comfort and support. Today, 15 years after her diagnosis, Tamron shares her story.
November 23, 2022
Giving Thanks Can Boost Our Health & Happiness
Studies show that practicing gratitude regularly can help us feel better — mind, body, and soul. It can be a meaningful form of personal expression, too. Our blog highlights some benefits of giving thanks. Plus, CSC staff members share their favorite ways to express gratitude during the holidays and year-round.
November 3, 2022
Spotlight on Mental Health: Let’s Talk About Cancer Support and Why It’s Critical
Nearly 1 in 5 U.S. adults lives with a mental illness. Factor in the stress of a cancer diagnosis, and the numbers become even more concerning. To help address these urgent concerns, we’ve been busy expanding our support programs and services with new, innovative offerings. We share more in this blog, which kicks off a new series on mental health and cancer.
October 25, 2022
Regular People Doing Extraordinary Things: Cancer Caregivers Need Support
The demands of caregiving can be hard physically, financially, and emotionally. All these factors put caregivers at risk for substantial distress that can impact their quality of life and physical and mental health. To help address caregivers’ needs, CSC created a web-based distress screening, referral, and support program for family caregivers and anyone who is a care partner for someone living with cancer. “The number-one feedback we get is that there’s no other program out there like this right now,” says CSC’s Vice President of Research Alexandra Zaleta, Ph.D. Read on to learn more.
October 14, 2022
Here’s What Patients Need to Know About Laboratory Benefit Managers and Pharmacy Benefit Managers
Have you ever arrived at a laboratory or pharmacy with your doctor's order for lab work or a prescription, only to be denied the test or your prescribed medication? Each insurance plan has different benefits and coverage guidelines. Benefit managers determine these guidelines. Keep reading to learn how laboratory and pharmacy benefit managers can impact your insurance benefits and coverage.
September 15, 2022
Advocate Spotlight: Michael Kolodziej, M.D.
As part of our Advocate Spotlight series, we are highlighting Michael Kolodziej, M.D., who is passionate about ensuring that cancer patients receive the best possible care. “If we keep the patient as our North Star, we will succeed," he says. Read on to learn about Dr. Kolodziej, his background in cancer care, and how cancer advocacy has played a role throughout his career.
September 13, 2022
Talking, Sharing, Laughing & Loving: How One Woman Is Navigating Thyroid Cancer
When Katie Phillips was diagnosed with a rare type of thyroid cancer, she went through a period of shock and despair. She began keeping an audio diary about her experiences with the help of her friend Clair. The recordings are now available as a podcast, "Talking With Cancer," that's entering its second season. Keep reading to learn more about Katie's diagnosis, the podcast, and why laughter can sometimes be the best medicine.
September 9, 2022
White House Cancer Moonshot Coordinator Shares Progress & Priorities
From the very beginning, CSC has been a dedicated partner and go-to resource for the Cancer Moonshot, the White House initiative to drive urgent progress against cancer. Cancer Moonshot Coordinator Danielle Carnival, Ph.D., recognized CSC’s contributions during a recent conference for our network partner leaders. We share highlights from Dr. Carnival’s presentation, including a call to action that you, your friends, and loved ones may be able to answer.
August 11, 2022
3 Fascinating Facts About Mesothelial Cells — and What You Need to Know About Mesothelioma
If your first thought now is “Wait, what are mesothelial cells?” you’re not alone. Keep reading to learn what they are and what they do. We also share ways to protect yourself and your loved ones from exposures linked to mesothelioma, a rare, fast-growing cancer that starts in mesothelial cells.
July 14, 2022
Cancer Champions on Capitol Hill: Sen. Dick Durbin
This month, we recognize Sen. Dick Durbin of Illinois as a cancer champion for his work in advocating for increased investments in cancer research. Sen. Durbin lost his father to lung cancer at a young age. Watch a short video to hear about his story and his hopes for a future where cancer does not take the lives of loved ones.
June 30, 2022
How to File a Health Insurance Appeal for a Denied Claim: What Patients Need to Know
If your insurance provider denies a claim for medical services you’ve received, you have the right to file an appeal. The process of filing an appeal can seem daunting. But it is both your right and in your best interest to appeal a denied claim that you and your healthcare team deem important for your health. Keep reading for step-by-step guidance and tools to help you through the process.
June 23, 2022
El cáncer cambia la vida: crea tu comunidad de apoyo en línea hoy mismo
MyLifeLine, la comunidad de apoyo digital gratuita de CSC para las personas afectadas por el cáncer, existe para conectar a los pacientes oncológicos con amigos y familiares para reducir el estrés, la ansiedad y el aislamiento. Además, constituye un espacio seguro para crear conexiones genuinas con otras personas afectadas por el cáncer.
June 16, 2022
CSC’s New Peer Support Program Aims to Reduce Disparities in Cancer Clinical Trials
"I said to myself: This is something that I can do," notes Brenda, a Peer Specialist in our new peer support program. The program is a free, over-the-phone service that helps Black or African American cancer patients learn more about clinical trials by matching them with a peer. Keep reading to learn how Brenda is working with our program to help open doors to clinical trials.
June 14, 2022
Cancer Champions on Capitol Hill: Rep. Tom Cole
Each month we've been spotlighting a member of Congress who supports legislation and initiatives that make a difference in the lives of people impacted by cancer. This month, we recognize Rep. Tom Cole of the 4th Congressional District of Oklahoma.
June 1, 2022
Brain Cancer: Let’s Talk Awareness, Survivorship, and Support
Kristin was diagnosed with stage 3 brain cancer at age 29. After undergoing surgery and treatment, “I started feeling more grateful for even an hour of being alive, thankful for the ‘time,'" she shares. "I wanted more time to just be around, to enjoy things." Read on to learn more about Kristen’s story and our free support resources for people who have been impacted by brain cancer.
May 13, 2022
Cancer Champions on Capitol Hill: Rep. Jim McGovern
Each month we are spotlighting a member of Congress who supports legislation and initiatives that make a difference in the lives of people impacted by cancer. This month, we recognize Rep. Jim McGovern of the 2nd Congressional District of Massachusetts.
April 21, 2022
Personalized Cancer Support Resources at Your Fingertips
If you or a loved one is affected by cancer, it is natural to feel overwhelmed. We know this can be a difficult time. So, we’ve introduced a way for you to easily access the cancer support resources you need, anytime, anywhere. Keep reading to learn about Launchpad, our online tool that allows you to create a personalized dashboard with guides, videos, tips, and other educational resources.
April 14, 2022
Cancer Champions on Capitol Hill: Senator Susan Collins
Each month we are spotlighting a member of Congress who supports legislation and initiatives that make a difference in the lives of people impacted by cancer. This month, we recognize Sen. Susan Collins of Maine as a cancer champion.
March 23, 2022
Thank You to Oncology Social Workers
Oncology social workers are trained in helping cancer patients and their families cope with a cancer diagnosis. Here at CSC, that’s a big deal, because we believe that no one should have to go through cancer alone. National Social Work Month is a great time to say thank you to these special individuals and also highlight the ways they can help people navigate a cancer diagnosis. Read on to learn more.
March 10, 2022
Advocate Spotlight: Denyse Phipps Crank
CSC patient advocate Denyse Phipps Crank talks about her personal experience with cancer and what it was like to attend President Biden's historic announcement at the White House to relaunch the Cancer Moonshot initiative.
March 5, 2022
How to Choose a Wig You’ll Love After Cancer Hair Loss
Wig designer and cancer hair loss consultant Amy Gibson works with women who are facing temporary hair loss from breast cancer treatment. One of the first things Amy asks is, “Did you like your hair?” Women often respond, “It was okay,” or “I did, but I’ve just never gotten the color right.” “Well, this is the time we can get it right and make you rock!” says Amy. Keep reading for some tips from Amy on finding and selecting a wig that fits your tastes and feels comfortable, too.
March 3, 2022
CSC’s New CEO Debbie Weir Will Help Lift the Voices of People Impacted by Cancer
Debbie Weir has spent her career lifting the voices of people impacted by life-changing events and expanding the visibility of those causes. Now, Debbie is bringing her vision, passion, and business acumen to the Cancer Support Community as its new CEO. Read on to learn more about Debbie.
February 24, 2022
Cancer Prevention: 5 Tips to Help Reduce Your Risk
While healthy lifestyle choices can’t guarantee the prevention of cancer, they can lower the risk of getting cancer. February is National Cancer Prevention Awareness Month, a great time to make sure you and your loved ones are taking steps to maintain good health now and year-round.
March 1, 2022
Build Your Online Support Community
CSC’s free digital support community for people impacted by cancer — MyLifeLine.org — exists to connect cancer patients with friends and family to reduce stress, anxiety, and isolation. Keep reading to learn more.
February 14, 2022
Advocate Spotlight: Clay Alspach, JD
This month, as part of its Advocate Spotlight series, our Cancer Policy Institute is highlighting Clay Alspach, JD, a principal based in Washington, D.C. Clay recently joined CPI’s Advisory Board, which advocates to make the patient voice heard in policy and decision making. Read on to learn more about Clay and his cancer advocacy work.
February 10, 2022
Bile Duct Cancer: Let’s Talk Risk Factors, Treatment, and Support
If you or a loved one has been diagnosed with bile duct cancer, there are educational and support resources available to help you cope. In recognition of Bile Duct Cancer Awareness Month, we highlight key details about the disease, including resources to help you navigate a bile duct cancer diagnosis. Read on to learn more.
January 31, 2022
Take Action for World Cancer Day
Despite innovation and advancements in cancer diagnosis, prevention, and treatments, disparities persist across the cancer care continuum, from screening to survivorship. The Cancer Support Community is marking World Cancer Day 2022 with 3 simple activities you can do now to help close the gap in cancer care.
January 2, 2023
5 New Year’s Resolutions to Stay Strong & Carry On
As we ring in 2023, we'd like to share a few possible New Year’s resolutions for everyone affected by cancer. They might not all apply to you, but we hope they'll offer a reminder that you are not alone on your journey.
December 22, 2021
3 Key Questions About Biomarker Testing for Cancer
Biomarker testing can help ensure you get the most effective treatment for your subtype of cancer. If you are hearing about biomarkers for the first time, you may wonder what to do next. We answer 3 key questions about biomarker testing to help you plan your next steps.
December 2, 2021
CSC Wins 13 Awards for Excellence in Online Resources
In November, CSC was recognized with an outstanding 13 honors at the Fall 2021 Digital Health Awards. Read on for the award highlights.
November 21, 2022
Stomach Cancer: Let’s Talk Risk Factors, Treatment, and Support
Stomach cancer is much less common and much more treatable today thanks to improvements in public health, screening, and treatments. In recognition of Stomach Cancer Awareness Month, we share key things to know about the disease, including treatment options and support to help you navigate a stomach cancer diagnosis.
November 20, 2021
CSC’s Precision Medicine Plain Language Lexicon Aims to Reduce Confusion
As precision medicine testing and treatment options evolve, the complexity of what cancer patients and caregivers need to understand has grown. CSC recently updated our precision medicine education program to make precision medicine concepts more easily understandable for all people affected by cancer. Read on to learn more.
November 18, 2021
Pancreatic Cancer: Let’s Talk Survivorship, Risk Factors, and Support
The signs and symptoms of pancreatic cancer often don’t appear until it is advanced. As a result, it is seldom caught early. In recognition of Pancreatic Cancer Awareness Month, we share key things to know about the disease, including resources and support to help you navigate a pancreatic cancer diagnosis.
November 16, 2021
Inspire Change by Sharing Your Cancer Experience
Meet 3 cancer survivors who participated in our Cancer Experience Registry to share valuable insights about their cancer journeys, and learn how you can too. The insights of our survey participants help us create better outcomes for patients and caregivers today and for future generations. Read our blog to learn more.
November 12, 2021
Celebrating Native American Heritage Month
November is National Native American Heritage Month — a time to celebrate and honor the rich and diverse cultures, traditions, contributions, and histories of American Indian and Alaska Native people. It is equally important to discuss ongoing disparities that Native American people face in accessing needed cancer care. Read our blog to learn about CSC's efforts to bring cancer treatment facilities to tribal lands in the United States.
November 14, 2022
Lung Cancer Awareness: Let’s Talk Risk Factors, Survivorship, and Support
In the United States, lung cancer is the second most common cancer in both men and women. Read on as we share key things to know about the disease in recognition of Lung Cancer Awareness Month, including resources and support to help you navigate a lung cancer diagnosis.
October 28, 2021
Examining the Social and Emotional Impact of COVID-19 on the Cancer Community
Cancer patients and survivors continue to experience mental health stressors like anxiety and depression during the COVID-19 pandemic. Read on to learn more about the social and emotional impact of the pandemic on the cancer community and the ways organizations like Cancer Support Community are responding to these needs.
October 18, 2022
Liver Cancer Awareness: Let’s Talk Survivorship, Resources, & Support
Liver cancer is sometimes called the “silent disease.” It typically doesn’t cause signs or symptoms in its early stages. As a result, liver cancer is often diagnosed at a later stage. Read on as we share key things to know about the disease in recognition of Liver Cancer Awareness Month.
October 19, 2021
A Laryngeal Cancer Survivor Navigates His Journey With Grace, Wit, and Love
"My cancer is real. I can deal with real," shares Terry, a laryngeal cancer survivor, in the next edition of our Survivorship series. In this Q&A, Terry discusses initial challenges with his laryngectomy surgery, ways he provides support to others with head and neck cancer, and the many passions that bring him joy.
October 11, 2021
October Advocate Spotlight: Aaryn Kopp
This month’s featured cancer advocate is Aaryn Kopp. She shares advice for others who are interested in becoming an advocate: “Small steps can lead to big things.” Read on to learn more about Aaryn and her goal to leverage her skills to help those most in need.
October 9, 2021
Learning to Cope With Cancer-related Hair Loss
Temporary hair loss is a common side effect of chemotherapy. For women who are undergoing breast cancer treatment, it can be an upsetting experience. Read on for some tips from wig designer and cancer hair loss consultant Amy Gibson to help you through the process.
October 6, 2022
Breast Cancer Awareness: Let’s Talk Screening, Survivorship & Support
In the United States, mammography has helped reduce breast cancer mortality by nearly 40% since 1990. Many women have shared their own stories about the key role routine screening played in their breast cancer diagnosis, leading to timely treatment. To mark Breast Cancer Awareness Month, we share a few of those stories here. If you are living with breast cancer or are a caregiver to someone with breast cancer, we also share resources that can help ease the burden of your journey.
September 28, 2021
Running the Distance: CSC Supporters Take on the 2021 TCS New York City Marathon
On Sunday, November 7, 5 of our own supporters will run in the 2021 TCS New York City Marathon with a goal to raise a minimum of $12,500 for CSC. Hear from one of the supporters, Michelle Cabot, and why she chose to run for people impacted by cancer.
September 7, 2022
Prostate Cancer Awareness Month: Let’s Talk Risk Factors, Testing, and Support
Prostate cancer is the second most common type of cancer among men. Men may find it a difficult topic to discuss with their healthcare providers and even with family and friends, but it’s an important conversation to have. There’s no better time than now, during Prostate Cancer Awareness Month, to share facts about the disease.
September 17, 2021
Ovarian Cancer Awareness Month: Let’s Talk Risk Factors, Symptoms, and Support
This month is Ovarian Cancer Awareness Month, a fitting time to highlight resources available for women impacted by the disease. It’s also a good time to explain risk factors for ovarian cancer and signs and symptoms to watch for. Read on for more details.
September 13, 2021
September Advocate Spotlight: Kerri Susko
This month’s featured cancer advocate is Kerri Susko, LISW-CP, OSW-C. Kerri is the Director of CSC at Prisma Health Cancer Institute. For other aspiring cancer advocates, she offers this advice: “The smallest step is a step toward change.” Read on to learn more about Kerri and how she's making an impact in the cancer community.
September 7, 2021
Lymphoma Awareness Month: Let’s Talk Types, Symptoms, and Support
Lymphoma is a type of blood cancer that develops in the lymph nodes and tissues of the lymphatic system. Read on as we share some key things to know about lymphoma in recognition of Blood Cancer Awareness Month.
September 4, 2021
A Childhood Leukemia Survivor Discusses Survivorship Care and the Power of Positive Thinking
Meet Alyssa, a 2-time pediatric cancer survivor who was diagnosed with leukemia at age 3. She experienced a relapse at age 9, and now in her early 30s, she shares her experiences with late effects of her cancer treatments. Of her cancer journey, she says, “It doesn’t define who I am, but it has made me who I am.” Read on to learn more about Alyssa.
August 31, 2021
Leukemia Awareness Month: Let’s Talk Types, Symptoms, and Support
Leukemia, a cancer of the blood cells, can occur at any age. Read on as we share key things to know about leukemia in recognition of Blood Cancer Awareness Month, including free educational and support resources.
August 17, 2021
A Cancer Advocate Speaks Out About Bladder Cancer and Survivorship
Liz Hiles spent months trying to get answers from medical providers about her unexplained urinary pain. When she was finally diagnosed with bladder cancer, surgery results revealed she had stage 3B cancer. Read on to learn more about Liz’s survivorship story and her work to dispel stereotypes around bladder cancer.
August 12, 2021
August Advocate Spotlight: Rob Tufel
Each month, the Cancer Policy Institute profiles advocates who have been engaged in cancer advocacy. This month we spotlight Rob Tufel, MSW, MPH. Rob is CEO at the Cancer Support Community San Francisco Bay Area and has worked in cancer advocacy for more than 25 years. Read on to learn more about Rob and his advocacy work.
June 8, 2022
Support for LGBTQ+ Cancer Survivors
Cancer survivors in the LGBTQ+ community face unique challenges, and finding social connection and support is essential. Many of our CSC and Gilda's Club network partners offer support programming and activities specifically for LGBTQ+ cancer survivors. Keep reading to learn more.
July 20, 2021
Strength in Survivorship: Cancer Survivor Evelina Shares Her Story
Our survivorship series continues with a Q&A with Evelina, a breast cancer survivor who has been sharing her experience — both the gifts and the challenges — with others. “One of the toughest challenges I faced throughout my journey was losing my father right in the midst of treatment,” she says. Read on to learn more about Evelina’s story.
July 15, 2021
July Advocate Spotlight: Dr. Stephen B. Edge
Each month, the Cancer Policy Institute profiles advocates who have been engaged in cancer advocacy. Read on to learn more about Dr. Stephen B. Edge's work as a surgical oncologist and his passion for assuring that every person with cancer gets quality care.
July 13, 2021
The Role of Telehealth and Tele-Mental Health Services in Advancing Health Equity
As the use of telehealth and tele-mental health services continued to grow during the COVID-19 pandemic, disparities in access and usage also were exposed. Read on to learn more about the role of telehealth in supporting health equity.
July 9, 2021
Bone Cancer Awareness Month
Daniel Jacobs is a 2-time middleweight world champion. This boxing pro is also a cancer survivor. July is Sarcoma and Bone Cancer Awareness Month, so recognizing Daniel’s story now seems fitting. It’s also an opportune time to talk about bone cancer, risk factors, and treatment options. Read on for more details.
July 2, 2021
Living on Purpose: Cancer Survivor Amber Havekost Shares Her Journey
Amber Havekost wears many hats in life — mother, wife, survivorship coach, avid writer. She is also a breast cancer survivor. In a Q&A with the Cancer Support Community, Amber shares her survivorship story with us. “As deep as my pain goes, so does my gratitude," she notes, "not one replacing the other, but both existing together.” Read on for more words of wisdom and inspiration from Amber.
June 26, 2021
Giving Back & Moving Forward: Meet Cancer Survivor Marcia Donziger
In our special blog series on cancer survivorship, we get to know Marcia Donziger, whose journey as a stage 3 ovarian cancer survivor inspired her to create an online community for others impacted by cancer. "Don’t do cancer alone," she says. "Advocating for others — and just being there as a friend who listens — are my ways of coping and moving forward." Keep reading to learn more about Marcia's story.
June 23, 2021
Marking Pride Month: Meet Patient Advocate Tony Burns
To mark Pride Month, we talk with cancer survivor and patient advocate Tony Burns. In this Q&A, we learn about the native Washingtonian’s personal experience with cancer. Tony also talks with us about health inequities in the LGBTQ community and shares ways we can work to overcome them.
June 18, 2021
3 New Resources Focus on Diversity in Clinical Trials
The Cancer Support Community has added 3 new educational resources to the Frankly Speaking About Cancer: Clinical Trials library. The materials highlight the importance of diversity in clinical trials and provide information for patients to determine if a clinical trial is right for them.
June 21, 2021
Barriers and Opportunities: Health Equity in the COVID-19 Response
Over one year since COVID-19 was first declared a public health emergency, the pandemic continues to pose increased risks and burdens on cancer patients and survivors and has illuminated the longstanding disparities in our health care system. Read on to learn more about what can be done to improve health equity in the COVID-19 response.
June 17, 2021
CSC Wins 8 Digital Health Awards
On June 4, the Cancer Support Community brought home an impressive 8 awards from the Spring 2021 Digital Health Awards. Building on past wins, these honors are a testament to our team’s quest to produce the gold standard in patient resources.
June 15, 2021
3 Considerations for Cancer Immunotherapy Awareness Month
June is Cancer Immunotherapy Awareness Month, a national campaign to educate the public about cancer immunotherapy. As we recognize this important campaign, we share some key highlights about this type of cancer treatment.
June 12, 2021
5 Ways to Support Cancer Survivors
At the Cancer Support Community, we believe that community is stronger than cancer. Whether you have personally been affected by cancer or simply want to help others on their survivorship journeys, your support can make a positive difference. Here, we share 5 ways you can take action to help improve life for people impacted by cancer.
June 10, 2021
June Advocate Spotlight: Maria Brown
Each month, the Cancer Policy Institute profiles advocates who have been engaged in cancer advocacy. Read on to learn more about Maria and her passion for ensuring that everyone impacted by cancer has access to affordable treatment.
June 3, 2022
3 Tips to Remember for National Cancer Survivors Day
National Cancer Survivors Day is a time to recognize cancer survivors, inspire those who have recently been diagnosed, and raise awareness about the challenges of survivorship. We’ve gathered 3 top tips for navigating survivorship along with words of inspiration from cancer survivors.
June 1, 2021
Cancer Survivor Judy Pearson Chronicles the Survivorship Movement
As part of our special blog series on cancer survivorship, we are featuring this Q&A with cancer survivor, author, and survivorship advocate Judith L. Pearson. Read on to learn more about Judy’s story, her new book, and a grassroots movement that continues to improve life for countless cancer survivors today.
May 19, 2021
New Guidelines Recommend Colorectal Cancer Screening Start at Age 45
The U.S. Preventive Services Task Force (USPSTF) recently expanded recommendations for colorectal cancer screening. The task force now recommends that people at average risk for colorectal cancer begin screening at 45 years old—5 years earlier than previously recommended. Read part 3 in our 3-part blog series focused on colorectal cancer.
May 3, 2022
Bladder Cancer Awareness Month: Let’s Talk Risk Factors, Symptoms, and Support
May is Bladder Cancer Awareness Month. Read on to learn about bladder cancer, including support resources to help you or a loved one cope with the disease.
May 17, 2021
May Advocate Spotlight: Lisa Simms Booth
Each month, the Cancer Policy Institute profiles advocates who have been engaged in health advocacy. Read on to learn more about Lisa, Executive Director of Smith Center for Healing and the Arts, and her work in cancer advocacy.
May 3, 2021
The COVID-19 and Cancer Coalition Tackles Vaccines
Access to COVID-19 vaccines is top of mind for many people, especially those impacted by cancer. Read on to learn more about the status of these vaccines and important findings regarding COVID-19's impact on people with cancer.
April 7, 2022
6 Ways the Cancer Support Community Serves Non-English-Speaking Patients
The Cancer Support Community is committed to supporting efforts that advance health equity for all. In recognition of National Minority Health Month, we share 6 ways we are working to conquer language barriers in cancer care.
April 15, 2021
Esophageal Cancer Awareness Month: Let’s Talk Risk Factors, Treatment, and Support
April is Esophageal Cancer Awareness Month. The American Cancer Society estimates that more than 19,000 esophageal cancer cases will be diagnosed in the United States in 2021. Read on for important details about risk factors and resources to help you or your loved one to help you cope with the disease.
April 21, 2021
The Cancer Support Community Is Here for You
Cancer didn’t stop because of the pandemic, and neither did the Cancer Support Community. Our experienced Helpline staff is here to provide personalized support when and where it is needed most, because community is stronger than cancer.
April 9, 2021
Spotlight on Health Equity
Each month, the Cancer Policy Institute profiles advocates who have been engaged in health advocacy. This month, for National Minority Health Month, we are spotlighting health equity in cancer care. Read on to learn more about this important topic from Eucharia Borden, CSC’s Senior Director of Health Equity and Clinical Services.
April 19, 2022
Head and Neck Cancer Awareness Month: Let’s Talk Risk Factors, Nutrition, and Support
In recognition of Head & Neck Cancer Awareness Month, we share key information about the disease, including nutrition and support resources for head and neck cancer patients and their caregivers.
March 20, 2021
Kidney Cancer Awareness Month: Let’s Talk Risk Factors, Testing, and Support
March is Kidney Cancer Awareness Month. We share key information about the disease, including risk factors, testing procedures, and support resources.
March 19, 2021
Medical Experts Expand Lung Cancer Screening Recommendations
The U.S. Preventive Services Task Force recently expanded recommendations for lung cancer screening. The group now recommends that adults with a long history of smoking should begin getting annual low-dose CT scans at age 50—5 years earlier than previously recommended. This update will make an estimated 15 million people eligible for lung cancer screening.
March 18, 2022
Colorectal Cancer Awareness Month: Let’s Talk Screening
March is National Colorectal Cancer Awareness Month, dedicated to encouraging patients, survivors, and caregivers to share their stories, advocate for colorectal cancer prevention, and inform others about the importance of early detection.
March 17, 2021
Access to Medications Under Medicare’s 6 "Protected Classes" Policy Remains the Same
On March 16, the Centers for Medicare & Medicaid Services announced that it would not move forward with proposed policy changes that would allow health plans to reduce their coverage of drugs in Medicare’s 6 “protected classes.” The Cancer Support Community applauds this decision, as this policy change would have had negative consequences for patients, including those impacted by cancer.
March 11, 2021
Colorectal Cancer Awareness Month: Let’s Talk Risk Factors
March is National Colorectal Cancer Awareness Month, dedicated to encouraging patients, survivors, and caregivers to share their stories, advocate for colorectal cancer prevention, and inform others about the importance of early detection. Read part 1 in our 3-part blog series, focused on knowing your risk.
March 10, 2021
March Advocate Spotlight: Gus Robertson
Each month, the Cancer Policy Institute profiles advocates who have been engaged in health advocacy. Read on to learn more about Gus and his work in cancer advocacy.
March 1, 2021
Multiple Myeloma Awareness Month: Let’s Talk Signs, Symptoms, and Support
As we head into March, we’d like to take this opportunity to highlight Multiple Myeloma Awareness Month. We share the signs and symptoms of multiple myeloma, along with resources that can help if you are living with multiple myeloma or are a caregiver to someone with multiple myeloma.
February 25, 2021
New Treatment Options for Relapsed or Refractory Diffuse Large B-Cell Lymphoma
If you or someone you love is facing a diffuse large B-cell lymphoma (DLBCL) diagnosis, and the lymphoma has either relapsed or has not responded to initial treatment, read on to learn about new treatment options that can help.
February 10, 2021
February Advocate Spotlight: Phylicia Woods, JD, MSW
Each month, the Cancer Policy Institute profiles advocates who have been engaged in health advocacy. Read on to learn more about Phylicia, CSC’s new Executive Director of the Cancer Policy Institute.
January 29, 2021
President Biden Signs Executive Order Strengthening Patient Access to Quality, Affordable Health Care
President Biden signed an executive order aimed at expanding health coverage options and reexamining policies that create barriers to patient access to care. Read on to learn more about the executive order.
January 29, 2021
The Washington Post and Other Top Media Outlets Feature CSC on Cancer Patients’ Needs During Meeting with First Lady
On just the second full day of the new Biden-Harris administration, First Lady Dr. Jill Biden called upon the Cancer Support Community to tell the story of people living with cancer during COVID-19.
January 12, 2021
January Advocate Spotlight: Liz Hiles
Each month, the Cancer Policy Institute profiles advocates who have been engaged in cancer advocacy. Read on to learn more about Liz and the issues that she is most passionate about, including bladder cancer and ostomy awareness and education.
January 17, 2023
5 Ways to Manage Stress After a Cervical Cancer Diagnosis
It can be overwhelming to receive a cervical cancer diagnosis. It can also be stressful to think about all the next steps to take. First, take a deep breath. Know that there are resources to turn to for information, guidance, and support. We share 5 tips to help you manage stress and take control of your journey after a cervical cancer diagnosis.
December 14, 2020
December Advocate Spotlight: Danelle Johnston
Each month, the Cancer Policy Institute profiles advocates who have been engaged in health advocacy. Read on to learn more about Danelle, CSC’s new Senior Vice President of Mission Delivery.
December 10, 2020
CSC Receives 14 Honors at Fall Digital Health Awards
The Cancer Support Community took home 14 awards in the Fall 2020 Digital Health Awards—a testament to the outstanding resources CSC is committed to providing for cancer patients and their loved ones.
November 16, 2020
November Advocate Spotlight: Adam R. Borden, MHA
Each month, the Cancer Policy Institute profiles advocates who have been engaged in health advocacy. Read on to learn more about Adam and his passion for early and equitable cancer detection. If you are interested in learning more about policy, advocacy, and ways to get involved, sign up to be a part of the Grassroots Network!
November 13, 2020
The Biden-Harris Transition and Cancer Patients
The Cancer Support Community (CSC) looks forward to working with the Biden-Harris Administration in a collaborative and transparent manner to put patients first. As such, CSC has created and shared with the Biden-Harris Administration a transition document that asks the incoming administration to consider a variety of recommendations and guiding principles in order to advance innovation, collaboration, and urgency in the fight against cancer, and protect and promote access to affordable and comprehensive health and cancer care.
September 19, 2020
Supreme Court Justice Ruth Bader Ginsburg, a cancer survivor and pioneer for women, dies at 87.
On September 18, 2020, it was announced that Supreme Court Justice Ruth Bader Ginsburg died after five bouts with cancer (including colon, lung, and most recently metastatic pancreatic cancer).
September 17, 2020
New Medicare Drug Rule Potential Impact on Cancer Patients
The White House recently released the Executive Order on Lowering Drug Prices by Putting America First. This Executive Order would create demonstration projects across the country through the Centers for Medicare and Medicaid Innovation at the Department of Health and Human Services to test a requirement that Medicare pay the same price for prescription drugs as other countries. This includes all drugs, both Medicare Part B and Part D. CSC strongly supports, and has long advocated for, policies that improve access and affordability for cancer patients. Patients should have the right to determine the most appropriate therapies by engaging in a shared decision-making process with their providers.
August 19, 2020
2019 Annual Report
At the Cancer Support Community, we strive to provide the gold standard in patient care, and that priority comes with a commitment to innovation. As...
August 17, 2020
Advocate Spotlight: Kara Downey, MSW
Each month, the Cancer Policy Institute profiles advocates who have been engaged in health advocacy. Read on to learn more about Kara Downey, CSC’s new Program Manager, and her passion for addressing health disparities. If you are interested in learning more about policy, advocacy, and ways to get involved, sign up to be a part of the Grassroots Network.
June 12, 2020
Advocate Spotlight: Rachel Gerstenfeld
Each month, the Cancer Policy Institute profiles advocates who have been engaged in cancer advocacy. Read on to learn more about Rachel, a graduate student at the University of Maryland getting a Master of Public Health degree with a concentration in Health Policy. If you are interested in learning more about policy, advocacy, and ways to get involved, sign up to be a part of the Grassroots Network!
June 11, 2020
Cancer Support Community Has First-Time Wins and Continued Success at the Digital Health Awards
Cancer Support Community (CSC) earned 10 Digital Health Awards last Friday at the spring 2020 event organized by the Health Information Resource Center (HIRC)-- two of the awards were first-time wins for us.
June 4, 2020
Statement of Affirmation in Support of Inclusion and Equality
At the Cancer Support Community, we recognize that we are facing extremely challenging times in our country due to the many layers of crisis and strife affecting our families, our communities and our nation. Both COVID-19 and the tragic deaths of George Floyd, Ahmaud Arbery, and Breonna Taylor lay bare the racial inequities in our society and magnify very real systemic and institutional injustices.
June 3, 2020
CSC Counters COVID-19
Thanks to the generous support of individuals and corporate partners, the Cancer Support Community (CSC) has taken swift action to adapt and increase the availability of its free patient-focused support and navigation services during this unprecedented global public health challenge.
May 14, 2020
Helpline Hero Spotlight: Terri Bauer
This special series introduces you to our Helpline counselors and specialists, our frontline workers who are tirelessly assisting cancer patients and caregivers. They provide emotional support and navigation on finances, nutrition, referrals as well as challenges presented by COVID-19, including relief grants for financially distressed patients. In this entry meet Cancer Support Helpline Counselor Terri Bauer, MSW, LCSW, OSW-C.
May 11, 2020
Advocate Spotlight: Courtney Lozano
Each month, the Cancer Policy Institute profiles advocates who have been engaged in cancer advocacy. Read on to learn more about Courtney and her advice for people impacted by cancer during this anxiety provoking time. If you are interested in learning more about policy, advocacy, and ways to get involved, sign up to be a part of the Grassroots Network!
April 22, 2020
CSC’s Distress Screening Tool Shown to Benefit Patients and Caregivers
CSC’s Distress Screening Tool Shown to Benefit Patients and Caregivers The Cancer Support Community (CSC) recently spoke with Dr. William Dahut, Scientific Director for Clinical Research at the National Cancer Institute’s Center for Cancer Research, during our weekly radio show Frankly Speaking About Cancer. During the discussion, Dr. Dahut said, “Even though a lot of our time is focused on this horrible pandemic, I think it’s important that your listeners understand that we are still doing everything we can to improve the outcome for cancer patients.” We at CSC agree wholeheartedly with this statement and are likewise committed. Our team at The Research and Training Institute (RTI) recently presented findings on the benefits of using two versions of our CancerSupportSource®(CSS®) distress screening tool—one for caregivers and one for patients—at two major conferences to further this effort.
April 13, 2020
Advocate Spotlight: Avery Smith
Each month, the Cancer Policy Institute profiles advocates who have been engaged in cancer advocacy. Read on to learn more about Avery and her advice for others who are interested in becoming an advocate. If you are interested in learning more about policy, advocacy, and ways to get involved, sign up to be a part of the Grassroots Network!
March 27, 2020
An Inspirational Message from Dr. Jill Biden
In response to the COVID-19 outbreak, we have have taken swift action to ensure patients and caregivers have access to our support and navigation services through digital channels and our toll-free Helpline. We are also fortunate to have many friends in the entertainment, sports, and advocacy sectors who have graciously agreed to send messages of hope to people affected by cancer. We are honored that Dr. Jill Biden, a longtime friend of our organization and passionate advocate for patients and families, delivered the first in what will be a series of messages, songs, and other expressions of inspiration.
March 26, 2020
How to Stay Socially Active While Social Distancing
The spread of the Novel Coronavirus has brought the strategy of social distancing to prevent disease transmission to forefront of the world’s spotlight. To those facing cancer however, the idea of social distancing has always been an important aspect of cancer care, as many patients experience weakened immune systems as a result of their cancer treatment. While it’s vitally important to practice safe social distancing to prevent the spread of COVID-19, it’s also important that we continue to take care of our own physical and mental health during these trying times. An essential part of maintaining a healthy lifestyle is to practice healthy social and emotional interaction. With all the technology available to us today, safe social distancing doesn’t mean we have to stay socially isolated.
March 11, 2020
Advocate Spotlight: Lauren Barnes
Each month, the Cancer Policy Institute profiles advocates who have been engaged in cancer advocacy. Read on to learn more about Lauren and her passion for ensuring that patients are able to afford and easily get the best treatment for their disease. If you are interested in learning more about policy, advocacy, and ways to get involved, sign up to be a part of the Grassroots Network!
March 3, 2020
Speaking up on Advocacy Day 2020: Meet Kelly Hendershot
On March 4th, 2020, the Cancer Support Community will bring together a group of dedicated and passionate advocates from around the country to meet with their elected officials and staff on Capitol Hill for Advocacy Day. One advocate is Kelly Hendershot a caregiver to her husband who died of brain cancer at the age of 30 and the Program Director of Gilda’s Club Quad Cities. She is traveling all the way from Iowa to be part of this day of action to help ensure that the patient remains at the center of all policies and regulations related to health care. We had the chance to catch up with Kelly before she started her journey to Washington, DC
January 15, 2020
Advocate Spotlight: Ben White
Each month, the Cancer Policy Institute profiles advocates who have been engaged in cancer advocacy. Read on to learn more about Ben, and how his cancer diagnosis led him to pursue a career in cancer advocacy. If you are interested in learning more about policy, advocacy, and ways to get involved, sign up to be a part of the Grassroots Network!
January 15, 2020
A Conversation with Patrick Dempsey on Cancer Care
CSC President Linda Bohannon sat down with actor and racecar driver Patrick Dempsey to discuss his work in cancer care, including The Dempsey Center, the importance of patient empowerment and more.
December 20, 2019
The Research and Training Institute’s 2019 Year in Review
To cap off a productive 2019, the RTI looks back at highlights from the past year. Many exciting things happened for the RTI in 2019 including the addition of new staff members to our wonderful team and settling into our new permanent home in Old City, Philadelphia. The team also remains committed to conducting psychosocial and behavioral research through survey development, scale validation, and patient-centered market research projects so that we can continue to inform the services and support that the Cancer Support Community provides to cancer patients, caregivers, and their families. Read on to see some of the milestones and highlights from the past year!
December 17, 2019
CSC’s Patient Resources Earn Record Number of Awards
In a remarkable week of award announcements, the Cancer Support Community received multiple accolades. MyLifeLine, its digital platform, and our publications, social media, and radio show were recognized for their outstanding quality.
September 16, 2019
Wall Street Journal Story on Cancer Survivors Features CSC Patient’s Story
Today’s Wall Street Journal includes an in-depth story from Laura Landro examining the unique challenges facing cancer survivors. The article’s subheadline sums it up in one clear sentence: “As more patients are treated successfully, doctors and researchers are focusing more on helping people navigate the difficult, often lonely years after treatment.”
May 23, 2019
Tribal and Health Leaders Mark Major Advancement in Cancer Care for American Indians
Leaders of the Navajo Nation, the Tuba City Regional Health Care Corporation (TCRHCC), and the Cancer Support Community (CSC) joined Dr. Jill Biden on the Navajo Nation in marking a milestone moment: the opening of the first full-time cancer care center on an American Indian Reservation.
May 7, 2019
Thank you for supporting Jockeys, Juleps & Jazz
On May 4 in Denver, Colorado, the Cancer Support Community hosted 250 guests at our Kentucky Derby “Jockeys, Juleps & Jazz” event, an annual celebration at the Four Seasons Hotel to raise funds for our digital community platform, MyLifeLine. The festivities included a live jazz band, free-flowing mint juleps, silent & live auctions and live streaming of the fastest 2 minutes in sports on the big screens.
April 17, 2019
Thank you for serving as our Anchors of Hope
Last night in New York City, a beautiful evening at the Lighthouse in Chelsea Piers served as the backdrop of a moving and memorable Spring Celebration. The inspiring program brought to life our theme: Anchor of Hope. The anchor symbolizes the hope and safe harbor supporters like you enable us to offer patients and their loved ones at every stage of their cancer experience.
July 3, 2018
Why We Need Greater Education Around Sarcoma
What is sarcoma and why is it sometimes called the “forgotten cancer?"
May 3, 2018
How Northwest Medical Specialties Helps Ensure No One Faces Cancer Alone
In January, with the generous financial support of the Barbara Bradley Baekgaard Family Foundation, Northwest Medical Specialties became a CSC health care partner. With six locations in Washington State, Northwest Medical Specialties is committed to providing world-class, holistic care to everyone who walks through their doors. The CSC Program Director at Northwest Medical Specialties is a social worker named Abra Kelson. We asked Abra a few questions about her experiences launching the CSC at Northwest Medical Specialties and how her programming will impact patients and caregivers in her community.
April 25, 2018
How Costly is Depression for Cancer Patients?
A recent study conducted by Mausbach et al. entitled “Healthcare Costs of Depression in Patients Diagnosed with Cancer” found that cancer patients with depression had total annual health care charges that were 113 percent higher than non-depressed cancer patients. For example, patients with depression had estimated average charges of $235,337 in comparison to the average charges of non-depressed patients, which totaled to $110,650.
June 12, 2017
A Night with Marin Mazzie and Jason Danieley
On May 31st, I had the absolute pleasure of watching Marin Mazzie sing these words during “Broadway & Beyond,” a night of powerhouse musical performances by Mazzie and her husband Jason Danieley.
March 1, 2017
This Moment in Cancer: How Researchers Are Putting The Body's Own Army To Work To Fight Cancer
This week we are excited to present an excerpt from This Moment in Cancer, a health blog at 90.9 WBUR—Boston’s NPR News Station. In the post by Karen Weintraub, “How Researchers Are Putting The Body's Own Army To Work To Fight Cancer,” chemotherapy as a cancer treatment option is discussed: Radiation, chemotherapy and surgery are great at shrinking or cutting out tumors. But these approaches can miss cancer cells that then seed new tumors. That’s why researchers are increasingly pinning their hopes on a new treatment strategy
February 8, 2017
The Treatment Options of Today
One of the most exciting developing treatment options for cancer patients is immunotherapy. Because cancer cells are generated from our own cells, our immune system often has trouble discerning them from healthy cells. Immuno-oncology addresses this problem head-on, either by boosting the immune system generally to help it fight off cancer cells or by enabling the immune system to better distinguish cancer cells from healthy cells.
February 1, 2017
National Cancer Prevention Month
There are many factors which can cause cancer, not all of which are fully understood. Despite this uncertainty, we are aware of some ways to decrease the risk of developing certain types of cancer. This February, as we recognize National Cancer Prevention Month, we’d like to share this knowledge about how to decrease the number of people diagnosed with cancer each year.
December 7, 2016
Serving Our Veterans
On this December 7th, we at the Cancer Support Community join with all Americans in thanking World War II veterans and all veterans for their service to our country as we renew our commitment to ensure that no one faces cancer alone.
December 21, 2016
Cousins for Carol
At the Cancer Support Community, we interact with many people who are looking to get involved but don’t know how. Volunteering with our affiliates is a great option and our most common answer, but there are a multitude of ways to help. This week, we’re highlighting Cousins for Carol, an organization founded to help people in the Philadelphia area who are affected by cancer. We asked Maria, one of Cousins for Carol’s founders, to tell us their story.
November 23, 2016
The Season of Giving
This Tuesday, November 29, as we transition from Thanksgiving break into the holiday season, we are celebrating another holiday: Giving Tuesday. Created in 2012 by the United Nations Foundation, Giving Tuesday is a new tradition that focuses on the ways we can all give back. At the Cancer Support Community, we’d like to take the opportunity created by Giving Tuesday to highlight some of the ways you can help us provide the best services possible to people affected by cancer.
November 9, 2016
Act Now: Making a Difference in Cancer Policy
This month, we’re continuing our Many Faces of Advocacy campaign by highlighting policy advocacy. Policy advocacy is probably what you first think of when you hear the word “advocacy.” A cancer policy advocate pushes for changes in government that will improve the lives of people affected by cancer. This can come in many forms, from writing a letter to your congressional representatives to spreading the word about important legislation using social media.
October 26, 2016
Community Advocacy for You
Getting involved in your community is one of the most rewarding ways to help people impacted by cancer. That’s why this past month, we’ve been talking about the different possibilities for becoming a community advocate. Let’s recap what we’ve discussed and what we can all do going forward to make sure that no one in our communities faces cancer alone.
November 2, 2016
Where the Candidates Stand on Cancer
With Election Day coming in less than a week, we’re taking the opportunity here at the Cancer Support Community to highlight where the presidential candidates stand on the cancer and health issues that matter to us. This is not meant to imply an endorsement or preference for any candidate but instead is an inexhaustive compilation of the candidates’ own words and actions on a topic which affects all Americans. We hope this stimulates discussion about the nonpartisan goal of improving cancer and health care policies nationally as well as at the local level.
September 14, 2016
The Power of Information: Self-Advocacy for Cancer Patients
We’re continuing our month-long spotlight on self-advocacy this week with a look at the most potent tool at a cancer patient’s disposal: information. No matter where you are in your cancer journey, self-advocating begins with seeking information and harnessing as much knowledge as you can.
August 31, 2016
The Many Faces of Advocacy
Each year, as summer turns into fall, the cancer community begins a period of awareness, as many cancer awareness months and observances occur in September, October and November. Here at the Cancer Support Community, we wanted to use this opportunity to bring awareness to the importance of advocacy for everyone touched by cancer. That’s why we’re launching our Many Faces of Advocacy campaign. Over the next three months, we will try to demystify advocacy and explain all the different ways anyone can be a cancer advocate.
July 20, 2016
Cancer Clinical Trials: The Search for Hope
This week's blog post features the story of two patients, Elisa and Bill. Elisa and Bill represent the people facing cancer who actively seek information about the treatments available for their cancer, who work as partners with their doctors and health care teams to make the best decisions about their care. They both made choices that involved dislocation, uncertainty and loss. They made these choices because the clinical trial represented something more important. They chose hope--hope for longer, better lives.
July 13, 2016
Creating Hope Through Clinical Trials: A Q&A with Dr. Patricia Robinson
This week's blog post is an excerpt from last month's Cancer Experience Registry newsletter. This excerpt is from a Q&A with Dr. Patricia Robinson, Associate Professor of Hematology/Oncology at Loyola University Hospital, on the importance of cancer clinical trials.
July 11, 2016
Who Gets to Define Value?
Today's blog post is by Kim Thiboldeaux, CEO of the Cancer Support Community. This blog post was also featured this month in the Huffington Post here, and you can read more of Kim’s Huffington Post blog posts here.
July 6, 2016
CSC at the Cancer Moonshot Summit
Last Wednesday, Vice President Joe Biden hosted summits across the country and in Washington, D.C. to share progress about the Cancer Moonshot Initiative. Of the 100 summits hosted across the United States, 30 of them were hosted by Cancer Support Community Affiliate locations. To see photos from their Moonshot Summits, check out our Facebook album. At the summit in Washington, D.C., our own Kim Thiboldeaux had the honor of speaking just after Vice President Biden. In case you missed it, below is a portion of Kim's speech.
June 29, 2016
A Q&A with Award-Winning Photographer Rick Guidotti
This week’s blog post is a Q&A with award-winning photographer Rick Guidotti of Positive Exposure. He recently partnered with Baxalta (now part of Shire) to launch an exhibit featuring the perspectives of people impacted by various types of rare cancer including those who have been diagnosed, their family and friends, advocacy organizations, and healthcare providers.
June 22, 2016
Cancer Clinical Trials: Getting Beyond the Myths
Right now, we are in an era of remarkable progress in understanding why and how cancers start and grow. Researchers are developing many new ways to treat cancers. In the last 10 years, targeted therapies and immunotherapy have opened the doors to real hope for longer, better lives--even cures--for people whose cancers could not be treated successfully.
June 15, 2016
Cancer and Aging: The Connection Between Two Life-Changing Events
This week's blog post is an excerpt from last month's Cancer Experience Registry newsletter. This excerpt is from an interview with Jimmie Holland, MD, Wayne E. Chapmen Chair of Psychiatric Oncology at Memorial Sloan Kettering Cancer Center, and Dayle Friedman, Rabbi, Spiritual Consultant and Trainer at Growing Older: Wisdom + Spirit Beyond Midlife. This newsletter focused on the topic of cancer and aging.
June 9, 2016
Highlights from the 2016 Annual ASCO Meeting
Every year, more than 30,000 oncology professionals from all over the world, including Cancer Support Community leaders come together at the annual meeting of the American Society of Clinical Oncology (ASCO) in Chicago to discuss new innovations and confront current challenges in the field of oncology. A highlight of this year's meeting was a panel discussion featuring CSC CEO Kim Thiboldeaux.
June 3, 2016
Q&A with World Champion Boxer, Daniel Jacobs
Today's blog post is a Q&A with Daniel Jacobs, a cancer survivor and the WBA Middleweight World Champion.
May 11, 2016
Hope: What Motivates Us to Go Forward
"By definition," Lillie Shockney says, "hope is something in the future, something that motivates us to go forward in some manner. When someone is facing cancer, it's important from the outset to learn what that person's life goals and hopes are and to think about whether these hopes can be fulfilled. Are they realistic? Sometimes, you have to step back and take a different path."
April 20, 2016
Be Here Now: A Q&A with Director Lilibet Foster
This week's blog post is a Q&A with Academy Award nominee Lilibet Foster. Lilibet is the director of the documentary film Be Here Now (The Andy Whitfield Story), released this Spring. Be Here Now follows the story of actor Andy Whitfield, his wife Vashti and their family as they embrace life rather than fear after Andy is diagnosed with cancer. Watch the trailer here, and learn more about how you can screen the film in your community here.
April 8, 2016
A Q&A with Broadway's Marin Mazzie & Jason Danieley: Part 3
This week’s blog post is part 3 in a Q&A series with Marin Mazzie and Jason Danieley. Marin and Jason will be honored with the Founders Award for Empowerment at CSC’s Spring Celebration next Thursday.
April 7, 2016
A Q&A with Broadway's Marin Mazzie & Jason Danieley: Part 2
This week’s blog post is part 2 in a Q&A series with Marin Mazzie and Jason Danieley. Marin and Jason will be honored with the Founders Award for Empowerment at CSC’s Spring Celebration next Thursday.
April 6, 2016
A Q&A with Broadway's Marin Mazzie and Jason Danieley: Part 1
This week’s blog post is part 1 in a Q&A series with Broadway stars and couple Marin Mazzie and Jason Danieley. Marin and Jason will be honored with the Founders Award for Empowerment at CSC’s Spring Celebration next Thursday.
March 30, 2016
Exploring Health Disparities in Cancer-Related Distress
Anyone who faces a cancer diagnosis is at risk for experiencing an elevated risk of distress. A study by the Cancer Experience Registry of the Cancer Support Community provides convincing evidence that culture can have a powerful impact on the type and degree of that distress.
March 3, 2016
The Caregiver's Perspective
This week’s blog post is from the Cancer Experience Registry February newsletter. This newsletter focused on the cancer experience from the caregiver’s perspective.
January 6, 2016
When it’s Time for a Second Opinion
Hearing you have cancer can be shocking. And it’s perfectly reasonable to want to take action and begin treatment right away. However, taking your time can have several advantages, including having the opportunity to evaluate options and seek other opinions.