Cancer Support Community

Blog Posts

Read June 23, 2022

El cáncer cambia la vida: crea tu comunidad de apoyo en línea hoy mismo

MyLifeLine, la comunidad de apoyo digital gratuita de CSC para las personas afectadas por el cáncer, existe para conectar a los pacientes oncológicos con amigos y familiares para reducir el estrés, la ansiedad y el aislamiento. Además, constituye un espacio seguro para crear conexiones genuinas con otras personas afectadas por el cáncer.
Two women sitting down and talking
Read June 16, 2022

CSC’s New Peer Support Program Aims to Reduce Disparities in Cancer Clinical Trials

"I said to myself: This is something that I can do," notes Brenda, a Peer Specialist in our new peer support program. The program is a free, over-the-phone service that helps Black or African American cancer patients learn more about clinical trials by matching them with a peer. Keep reading to learn how Brenda is working with our program to help open doors to clinical trials.
Read June 14, 2022

Cancer Champions on Capitol Hill: Rep. Tom Cole

Each month we've been spotlighting a member of Congress who supports legislation and initiatives that make a difference in the lives of people impacted by cancer. This month, we recognize Rep. Tom Cole of the 4th Congressional District of Oklahoma.
A young man smiles and looks peaceful while hugging his friend
Read June 1, 2022

Brain Cancer: Let’s Talk Awareness, Survivorship, and Support

Kristin was diagnosed with stage 3 brain cancer at age 29. After undergoing surgery and treatment, “I started feeling more grateful for even an hour of being alive, thankful for the ‘time,'" she shares. "I wanted more time to just be around, to enjoy things." Read on to learn more about Kristen’s story and our free support resources for people who have been impacted by brain cancer.
Read May 13, 2022

Cancer Champions on Capitol Hill: Rep. Jim McGovern

Each month we are spotlighting a member of Congress who supports legislation and initiatives that make a difference in the lives of people impacted by cancer. This month, we recognize Rep. Jim McGovern of the 2nd Congressional District of Massachusetts.
Read April 21, 2022

Personalized Cancer Support Resources at Your Fingertips

If you or a loved one is affected by cancer, it is natural to feel overwhelmed. We know this can be a difficult time. So, we’ve introduced a way for you to easily access the cancer support resources you need, anytime, anywhere. Keep reading to learn about Launchpad, our online tool that allows you to create a personalized dashboard with guides, videos, tips, and other educational resources.
Read April 14, 2022

Cancer Champions on Capitol Hill: Senator Susan Collins

Each month we are spotlighting a member of Congress who supports legislation and initiatives that make a difference in the lives of people impacted by cancer. This month, we recognize Sen. Susan Collins of Maine as a cancer champion.
A word cloud displays the many adjectives people shared with CSC when describing their oncology social worker, including caring, dedicated, compassionate, and knowledgeable.
Read March 23, 2022

Thank You to Oncology Social Workers

Oncology social workers are trained in helping cancer patients and their families cope with a cancer diagnosis. Here at CSC, that’s a big deal, because we believe that no one should have to go through cancer alone. National Social Work Month is a great time to say thank you to these special individuals and also highlight the ways they can help people navigate a cancer diagnosis. Read on to learn more.
Denyse smiles in a black dress and gold necklace
Read March 10, 2022

Advocate Spotlight: Denyse Phipps Crank

Next up in our Advocate Spotlight series, we highlight CSC patient advocate and cancer survivor Denyse Phipps Crank. In our Q&A with Denyse, she talks about her personal experience with cancer. She also describes what it was like to attend President Biden's historic announcement at the White House on Feb. 2, when he relaunched the Cancer Moonshot initiative with a call to action on cancer screening and early detection. Read on to learn more about Denyse.
Wig designer and cancer hair loss consultant Amy Gibson wears a wig of long and wavy golden-brown hair
Read March 5, 2022

How to Choose a Wig You’ll Love After Cancer Hair Loss

Wig designer and cancer hair loss consultant Amy Gibson works with women who are facing temporary hair loss from breast cancer treatment. One of the first things Amy asks is, “Did you like your hair?” Women often respond, “It was okay,” or “I did, but I’ve just never gotten the color right.” “Well, this is the time we can get it right and make you rock!” says Amy. Keep reading for some tips from Amy on finding and selecting a wig that fits your tastes and feels comfortable, too.
A group of men and women practice yoga on their mats in an exercise studio
Read February 24, 2022

Cancer Prevention: 5 Tips to Help Reduce Your Risk

While healthy lifestyle choices can’t guarantee the prevention of cancer, they can lower the risk of getting cancer. February is National Cancer Prevention Awareness Month, a great time to make sure you and your loved ones are taking steps to maintain good health now and year-round.
A happy couple sits together on their sunlit living room couch looking at their laptop
Read March 1, 2022

Build Your Online Support Community

CSC’s free digital support community for people impacted by cancer — MyLifeLine.org — exists to connect cancer patients with friends and family to reduce stress, anxiety, and isolation. Keep reading to learn more.
Portrait of board member Clay Alspach
Read February 14, 2022

Advocate Spotlight: Clay Alspach, JD

This month, as part of its Advocate Spotlight series, our Cancer Policy Institute is highlighting Clay Alspach, JD, a principal based in Washington, D.C. Clay recently joined CPI’s Advisory Board, which advocates to make the patient voice heard in policy and decision making. Read on to learn more about Clay and his cancer advocacy work.
Two women friends laugh together beside a window while looking at their smartphone
Read February 10, 2022

Bile Duct Cancer: Let’s Talk Risk Factors, Treatment, and Support

If you or a loved one has been diagnosed with bile duct cancer, there are educational and support resources available to help you cope. In recognition of Bile Duct Cancer Awareness Month, we highlight key details about the disease, including resources to help you navigate a bile duct cancer diagnosis. Read on to learn more.
A group of people reflecting diverse ages and races stands in a circle, clasps one another's hands in unity and raises them to the sky
Read January 31, 2022

Take Action for World Cancer Day

Despite innovation and advancements in cancer diagnosis, prevention, and treatments, disparities persist across the cancer care continuum, from screening to survivorship. The Cancer Support Community is marking World Cancer Day 2022 with 3 simple activities you can do now to help close the gap in cancer care.
woman walking on path in sunlight
Read January 2, 2022

5 New Year’s Resolutions to Stay Strong & Carry On

As we ring in 2022, we'd like to share a few possible New Year’s resolutions for everyone affected by cancer. They might not all apply to you, but we hope they'll offer a reminder that you are not alone on your journey.
A female lab technician wearing a white coat and cap peers into a microscope positioned on a reflective tabletop
Read December 22, 2021

3 Key Questions About Biomarker Testing for Cancer

Biomarker testing can help ensure you get the most effective treatment for your subtype of cancer. If you are hearing about biomarkers for the first time, you may wonder what to do next. We answer 3 key questions about biomarker testing to help you plan your next steps.
Friends stand side by side with their arms around one another, looking out at a blue sky
Read November 30, 2021

Stomach Cancer: Let’s Talk Risk Factors, Treatment, and Support

Stomach cancer is much less common and much more treatable today thanks to improvements in public health, screening, and treatments. In recognition of Stomach Cancer Awareness Month, we share key things to know about the disease, including treatment options and support to help you navigate a stomach cancer diagnosis.
A doctor in a white coat holds a clipboard while talking with a patient
Read November 20, 2021

CSC’s Precision Medicine Plain Language Lexicon Aims to Reduce Confusion

As precision medicine testing and treatment options evolve, the complexity of what cancer patients and caregivers need to understand has grown. CSC recently updated our precision medicine education program to make precision medicine concepts more easily understandable for all people affected by cancer. Read on to learn more.
An elderly woman wearing a white blouse and a sun hat smiles in front of a bright pink wall
Read November 18, 2021

Pancreatic Cancer: Let’s Talk Survivorship, Risk Factors, and Support

The signs and symptoms of pancreatic cancer often don’t appear until it is advanced. As a result, it is seldom caught early. In recognition of Pancreatic Cancer Awareness Month, we share key things to know about the disease, including resources and support to help you navigate a pancreatic cancer diagnosis.
Read November 16, 2021

Inspire Change by Sharing Your Cancer Experience

Meet 3 cancer survivors who participated in our Cancer Experience Registry to share valuable insights about their cancer journeys, and learn how you can too. The insights of our survey participants help us create better outcomes for patients and caregivers today and for future generations. Read our blog to learn more.
Red sandstone buttes under a blue sky in Monument Valley on the Navajo Nation
Read November 12, 2021

Celebrating Native American Heritage Month

November is National Native American Heritage Month — a time to celebrate and honor the rich and diverse cultures, traditions, contributions, and histories of American Indian and Alaska Native people. It is equally important to discuss ongoing disparities that Native American people face in accessing needed cancer care. Read our blog to learn about CSC's efforts to bring cancer treatment facilities to tribal lands in the United States.
An elderly couple laughs and snuggles together outside
Read November 3, 2021

Lung Cancer: Let’s Talk Survivorship, Risk Factors, and Support

In the United States, lung cancer is the second most common cancer in both men and women. Read on as we share key things to know about the disease in recognition of Lung Cancer Awareness Month, including resources and support to help you navigate a lung cancer diagnosis.
Hands fold over another pair of hands in a comforting manner
Read October 28, 2021

Examining the Social and Emotional Impact of COVID-19 on the Cancer Community

Cancer patients and survivors continue to experience mental health stressors like anxiety and depression during the COVID-19 pandemic. Read on to learn more about the social and emotional impact of the pandemic on the cancer community and the ways organizations like Cancer Support Community are responding to these needs.
A husband and wife wearing winter coats smile and snuggle outside
Read October 22, 2021

Liver Cancer: Let’s Talk Survivorship, Risk Factors, and Support

Liver cancer is sometimes called the “silent disease.” It typically doesn’t cause signs or symptoms in its early stages. As a result, liver cancer is often diagnosed at a later stage. Read on as we share key things to know about the disease in recognition of Liver Cancer Awareness Month.
Terry smiles while playing the guitar in a bright-lit room
Read October 19, 2021

A Laryngeal Cancer Survivor Navigates His Journey With Grace, Wit, and Love

"My cancer is real. I can deal with real," shares Terry, a laryngeal cancer survivor, in the next edition of our Survivorship series. In this Q&A, Terry discusses initial challenges with his laryngectomy surgery, ways he provides support to others with head and neck cancer, and the many passions that bring him joy.
Aaryn Kopp smiles while standing near a lake
Read October 11, 2021

October Advocate Spotlight: Aaryn Kopp

This month’s featured cancer advocate is Aaryn Kopp. She shares advice for others who are interested in becoming an advocate: “Small steps can lead to big things.” Read on to learn more about Aaryn and her goal to leverage her skills to help those most in need.
A store window features women mannequin heads with different wig styles
Read October 9, 2021

Learning to Cope With Cancer-related Hair Loss

Temporary hair loss is a common side effect of chemotherapy. For women who are undergoing breast cancer treatment, it can be an upsetting experience. Read on for some tips from wig designer and cancer hair loss consultant Amy Gibson to help you through the process.
A man hugs his wife outdoors in a tree-lined yard
Read September 24, 2021

Prostate Cancer Awareness Month: Let’s Talk Risk Factors, Testing, and Support

Prostate cancer is the second most common type of cancer among men. Men may find it a difficult topic to discuss with their health care providers and even with family and friends, but it’s an important conversation to have. There’s no better time than now, during Prostate Cancer Awareness Month, to share facts about the disease.
Kerri Susko wears a black business suit and smiles from a wooden bridge beside trees
Read September 13, 2021

September Advocate Spotlight: Kerri Susko

This month’s featured cancer advocate is Kerri Susko, LISW-CP, OSW-C. Kerri is the Director of CSC at Prisma Health Cancer Institute. For other aspiring cancer advocates, she offers this advice: “The smallest step is a step toward change.” Read on to learn more about Kerri and how she's making an impact in the cancer community.
Alyssa smiles from inside her car
Read September 4, 2021

A Childhood Leukemia Survivor Discusses Survivorship Care and the Power of Positive Thinking

Meet Alyssa, a 2-time pediatric cancer survivor who was diagnosed with leukemia at age 3. She experienced a relapse at age 9, and now in her early 30s, she shares her experiences with late effects of her cancer treatments. Of her cancer journey, she says, “It doesn’t define who I am, but it has made me who I am.” Read on to learn more about Alyssa.
Liz Hiles
Read August 17, 2021

A Cancer Advocate Speaks Out About Bladder Cancer and Survivorship

Liz Hiles spent months trying to get answers from medical providers about her unexplained urinary pain. When she was finally diagnosed with bladder cancer, surgery results revealed she had stage 3B cancer. Read on to learn more about Liz’s survivorship story and her work to dispel stereotypes around bladder cancer.
Read August 12, 2021

August Advocate Spotlight: Rob Tufel

Each month, the Cancer Policy Institute profiles advocates who have been engaged in cancer advocacy. This month we spotlight Rob Tufel, MSW, MPH. Rob is CEO at the Cancer Support Community San Francisco Bay Area and has worked in cancer advocacy for more than 25 years. Read on to learn more about Rob and his advocacy work.
People of diverse races and genders rest their hands beside one another on a wooden table
Read June 8, 2022

Support for LGBTQ+ Cancer Survivors

Cancer survivors in the LGBTQ+ community face unique challenges, and finding social connection and support is essential. Many of our CSC and Gilda's Club network partners offer support programming and activities specifically for LGBTQ+ cancer survivors. Keep reading to learn more.
Evelina, a breast cancer survivor, smiles wide on a city sidewalk
Read July 20, 2021

Strength in Survivorship: Cancer Survivor Evelina Shares Her Story

Our survivorship series continues with a Q&A with Evelina, a breast cancer survivor who has been sharing her experience — both the gifts and the challenges — with others. “One of the toughest challenges I faced throughout my journey was losing my father right in the midst of treatment,” she says. Read on to learn more about Evelina’s story.
Dr. Stephen Edge wears a suit and tie and smiles beside a window within a modern building
Read July 15, 2021

July Advocate Spotlight: Dr. Stephen B. Edge

Each month, the Cancer Policy Institute profiles advocates who have been engaged in cancer advocacy. Read on to learn more about Dr. Stephen B. Edge's work as a surgical oncologist and his passion for assuring that every person with cancer gets quality care.
Middleweight boxing champion Daniel Jacobs interacts with a group of children
Read July 9, 2021

Bone Cancer Awareness Month

Daniel Jacobs is a 2-time middleweight world champion. This boxing pro is also a cancer survivor. July is Sarcoma and Bone Cancer Awareness Month, so recognizing Daniel’s story now seems fitting. It’s also an opportune time to talk about bone cancer, risk factors, and treatment options. Read on for more details.
Amber smiles from inside her home with bright purple hair.
Read July 2, 2021

Living on Purpose: Cancer Survivor Amber Havekost Shares Her Journey

Amber Havekost wears many hats in life — mother, wife, survivorship coach, avid writer. She is also a breast cancer survivor. In a Q&A with the Cancer Support Community, Amber shares her survivorship story with us. “As deep as my pain goes, so does my gratitude," she notes, "not one replacing the other, but both existing together.” Read on for more words of wisdom and inspiration from Amber.
Marcia Donziger, CSC Chief Culture Office, smiles at her office desk
Read June 26, 2021

Giving Back & Moving Forward: Meet Cancer Survivor Marcia Donziger

Next up in our special blog series on cancer survivorship, we get to know Marcia Donziger, Chief Culture Officer at the Cancer Support Community. In this Q&A, we learn more about Marcia’s journey as a stage 3 ovarian cancer survivor and find out what cancer survivorship means to her.
portrait of tony burns
Read June 23, 2021

Marking Pride Month: Meet Patient Advocate Tony Burns

To mark Pride Month, we talk with cancer survivor and patient advocate Tony Burns. In this Q&A, we learn about the native Washingtonian’s personal experience with cancer. Tony also talks with us about health inequities in the LGBTQ community and shares ways we can work to overcome them.
A new Frankly Speaking About Cancer book about clinical trials features photos of people from diverse race and ethnic backgrounds
Read June 18, 2021

3 New Resources Focus on Diversity in Clinical Trials

The Cancer Support Community has added 3 new educational resources to the Frankly Speaking About Cancer: Clinical Trials library. The materials highlight the importance of diversity in clinical trials and provide information for patients to determine if a clinical trial is right for them.
An African American couple snuggles in front of a tree-lined backdrop
Read June 21, 2021

Barriers and Opportunities: Health Equity in the COVID-19 Response

Over one year since COVID-19 was first declared a public health emergency, the pandemic continues to pose increased risks and burdens on cancer patients and survivors and has illuminated the longstanding disparities in our health care system. Read on to learn more about what can be done to improve health equity in the COVID-19 response.
A blue, white, and red badge designates the Digital Health Awards' Spring 2021 Winner
Read June 17, 2021

CSC Wins 8 Digital Health Awards

On June 4, the Cancer Support Community brought home an impressive 8 awards from the Spring 2021 Digital Health Awards. Building on past wins, these honors are a testament to our team’s quest to produce the gold standard in patient resources.
Doctor and patient having a conversation
Read June 15, 2021

3 Considerations for Cancer Immunotherapy Awareness Month

June is Cancer Immunotherapy Awareness Month, a national campaign to educate the public about cancer immunotherapy. As we recognize this important campaign, we share some key highlights about this type of cancer treatment.
A women's silhouette shines against a sunny horizon as she raises her arms triumphantly in the air
Read June 12, 2021

5 Ways to Support Cancer Survivors

At the Cancer Support Community, we believe that community is stronger than cancer. Whether you have personally been affected by cancer or simply want to help others on their survivorship journeys, your support can make a positive difference. Here, we share 5 ways you can take action to help improve life for people impacted by cancer.
CSC's June Advocate Spotlight, Maria Brown, smiles while standing beside her bike outside
Read June 10, 2021

June Advocate Spotlight: Maria Brown

Each month, the Cancer Policy Institute profiles advocates who have been engaged in cancer advocacy. Read on to learn more about Maria and her passion for ensuring that everyone impacted by cancer has access to affordable treatment.
A woman sitting on a rock extends her arms out as if embracing the setting sun in an orange-lit sky
Read June 3, 2022

3 Tips to Remember for National Cancer Survivors Day

National Cancer Survivors Day is a time to recognize cancer survivors, inspire those who have recently been diagnosed, and raise awareness about the challenges of survivorship. We’ve gathered 3 top tips for navigating survivorship along with words of inspiration from cancer survivors.
Cancer survivor, author, and survivorship advocate Judy Pearson smiles with her chin resting on her hand
Read June 1, 2021

Cancer Survivor Judy Pearson Chronicles the Survivorship Movement

As part of our special blog series on cancer survivorship, we are featuring this Q&A with cancer survivor, author, and survivorship advocate Judith L. Pearson. Read on to learn more about Judy’s story, her new book, and a grassroots movement that continues to improve life for countless cancer survivors today.
A man lies in the grass at a park and smiles with friends
Read May 19, 2021

New Guidelines Recommend Colorectal Cancer Screening Start at Age 45

The U.S. Preventive Services Task Force (USPSTF) recently expanded recommendations for colorectal cancer screening. The task force now recommends that people at average risk for colorectal cancer begin screening at 45 years old—5 years earlier than previously recommended. Read part 3 in our 3-part blog series focused on colorectal cancer.
Lisa Simms Booth shares her story in our May 2021 Advocate Spotlight blog
Read May 17, 2021

May Advocate Spotlight: Lisa Simms Booth

Each month, the Cancer Policy Institute profiles advocates who have been engaged in health advocacy. Read on to learn more about Lisa, Executive Director of Smith Center for Healing and the Arts, and her work in cancer advocacy.
A young woman wears a white hat and carries a blue umbrella to shield her face from the sun
Read May 17, 2022

Skin Cancer: Let’s Talk Awareness, Survivorship, & Support

Skin cancer is the most common type of cancer in the United States, accounting for roughly half of all cancer cases. The good news is that, when detected early, skin cancer is highly treatable. People can also minimize their risk of developing skin cancer by following a few simple actions. Keep reading to learn more.
A medical worker wearing a mask examines the arm of a patient who is also wearing a mask
Read May 3, 2021

The COVID-19 and Cancer Coalition Tackles Vaccines

Access to COVID-19 vaccines is top of mind for many people, especially those impacted by cancer. Read on to learn more about the status of these vaccines and important findings regarding COVID-19's impact on people with cancer.
A girl gently holds a Monarch butterfly in her hands.
Read April 21, 2021

The Cancer Support Community Is Here for You

Cancer didn’t stop because of the pandemic, and neither did the Cancer Support Community. Our experienced Helpline staff is here to provide personalized support when and where it is needed most, because community is stronger than cancer.
Different people forming the shape of the united states
Read April 9, 2021

Spotlight on Health Equity

Each month, the Cancer Policy Institute profiles advocates who have been engaged in health advocacy. This month, for National Minority Health Month, we are spotlighting health equity in cancer care. Read on to learn more about this important topic from Eucharia Borden, CSC’s Senior Director of Health Equity and Clinical Services.
A young father holds his two children in his arms in a field of flowers
Read March 19, 2021

Medical Experts Expand Lung Cancer Screening Recommendations

The U.S. Preventive Services Task Force recently expanded recommendations for lung cancer screening. The group now recommends that adults with a long history of smoking should begin getting annual low-dose CT scans at age 50—5 years earlier than previously recommended. This update will make an estimated 15 million people eligible for lung cancer screening.
doctor with arms folded across his chest
Read March 18, 2022

Colorectal Cancer Awareness Month: Let’s Talk Screening

March is National Colorectal Cancer Awareness Month, dedicated to encouraging patients, survivors, and caregivers to share their stories, advocate for colorectal cancer prevention, and inform others about the importance of early detection.
Read March 17, 2021

Access to Medications Under Medicare’s 6 "Protected Classes" Policy Remains the Same

On March 16, the Centers for Medicare & Medicaid Services announced that it would not move forward with proposed policy changes that would allow health plans to reduce their coverage of drugs in Medicare’s 6 “protected classes.” The Cancer Support Community applauds this decision, as this policy change would have had negative consequences for patients, including those impacted by cancer.
A husband and wife clasp hands to comfort each another
Read March 11, 2021

Colorectal Cancer Awareness Month: Let’s Talk Risk Factors

March is National Colorectal Cancer Awareness Month, dedicated to encouraging patients, survivors, and caregivers to share their stories, advocate for colorectal cancer prevention, and inform others about the importance of early detection. Read part 1 in our 3-part blog series, focused on knowing your risk.
Gus Robertson smiles in front of the U.S. Capitol.
Read March 10, 2021

March Advocate Spotlight: Gus Robertson

Each month, the Cancer Policy Institute profiles advocates who have been engaged in health advocacy. Read on to learn more about Gus and his work in cancer advocacy.
February's Advocate Spotlight features Phylicia Woods, CSC's Executive Director of the Cancer Policy Institute
Read February 10, 2021

February Advocate Spotlight: Phylicia Woods, JD, MSW

Each month, the Cancer Policy Institute profiles advocates who have been engaged in health advocacy. Read on to learn more about Phylicia, CSC’s new Executive Director of the Cancer Policy Institute.
Liz Hiles
Read January 12, 2021

January Advocate Spotlight: Liz Hiles

Each month, the Cancer Policy Institute profiles advocates who have been engaged in cancer advocacy. Read on to learn more about Liz and the issues that she is most passionate about, including bladder cancer and ostomy awareness and education.
Danelle Johnston
Read December 14, 2020

December Advocate Spotlight: Danelle Johnston

Each month, the Cancer Policy Institute profiles advocates who have been engaged in health advocacy. Read on to learn more about Danelle, CSC’s new Senior Vice President of Mission Delivery.
CSC Digital Health Awards Winner fall 2020
Read December 10, 2020

CSC Receives 14 Honors at Fall Digital Health Awards

The Cancer Support Community took home 14 awards in the Fall 2020 Digital Health Awards—a testament to the outstanding resources CSC is committed to providing for cancer patients and their loved ones.
Adam Borden
Read November 16, 2020

November Advocate Spotlight: Adam R. Borden, MHA

Each month, the Cancer Policy Institute profiles advocates who have been engaged in health advocacy. Read on to learn more about Adam and his passion for early and equitable cancer detection. If you are interested in learning more about policy, advocacy, and ways to get involved, sign up to be a part of the Grassroots Network!
Read November 13, 2020

The Biden-Harris Transition and Cancer Patients

The Cancer Support Community (CSC) looks forward to working with the Biden-Harris Administration in a collaborative and transparent manner to put patients first. As such, CSC has created and shared with the Biden-Harris Administration a transition document that asks the incoming administration to consider a variety of recommendations and guiding principles in order to advance innovation, collaboration, and urgency in the fight against cancer, and protect and promote access to affordable and comprehensive health and cancer care.
Read September 17, 2020

New Medicare Drug Rule Potential Impact on Cancer Patients

The White House recently released the Executive Order on Lowering Drug Prices by Putting America First. This Executive Order would create demonstration projects across the country through the Centers for Medicare and Medicaid Innovation at the Department of Health and Human Services to test a requirement that Medicare pay the same price for prescription drugs as other countries. This includes all drugs, both Medicare Part B and Part D. CSC strongly supports, and has long advocated for, policies that improve access and affordability for cancer patients. Patients should have the right to determine the most appropriate therapies by engaging in a shared decision-making process with their providers.
Smiling family
Read August 19, 2020

2019 Annual Report

At the Cancer Support Community, we strive to provide the gold standard in patient care, and that priority comes with a commitment to innovation. As...
Downey family smiling
Read August 17, 2020

Advocate Spotlight: Kara Downey, MSW

Each month, the Cancer Policy Institute profiles advocates who have been engaged in health advocacy. Read on to learn more about Kara Downey, CSC’s new Program Manager, and her passion for addressing health disparities. If you are interested in learning more about policy, advocacy, and ways to get involved, sign up to be a part of the Grassroots Network.
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Read June 12, 2020

Advocate Spotlight: Rachel Gerstenfeld

Each month, the Cancer Policy Institute profiles advocates who have been engaged in cancer advocacy. Read on to learn more about Rachel, a graduate student at the University of Maryland getting a Master of Public Health degree with a concentration in Health Policy. If you are interested in learning more about policy, advocacy, and ways to get involved, sign up to be a part of the Grassroots Network!
Read June 4, 2020

Statement of Affirmation in Support of Inclusion and Equality

At the Cancer Support Community, we recognize that we are facing extremely challenging times in our country due to the many layers of crisis and strife affecting our families, our communities and our nation. Both COVID-19 and the tragic deaths of George Floyd, Ahmaud Arbery, and Breonna Taylor lay bare the racial inequities in our society and magnify very real systemic and institutional injustices.
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Read June 3, 2020

CSC Counters COVID-19

Thanks to the generous support of individuals and corporate partners, the Cancer Support Community (CSC) has taken swift action to adapt and increase the availability of its free patient-focused support and navigation services during this unprecedented global public health challenge.
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Read May 14, 2020

Helpline Hero Spotlight: Terri Bauer

This special series introduces you to our Helpline counselors and specialists, our frontline workers who are tirelessly assisting cancer patients and caregivers. They provide emotional support and navigation on finances, nutrition, referrals as well as challenges presented by COVID-19, including relief grants for financially distressed patients. In this entry meet Cancer Support Helpline Counselor Terri Bauer, MSW, LCSW, OSW-C.
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Read May 11, 2020

Advocate Spotlight: Courtney Lozano

Each month, the Cancer Policy Institute profiles advocates who have been engaged in cancer advocacy. Read on to learn more about Courtney and her advice for people impacted by cancer during this anxiety provoking time. If you are interested in learning more about policy, advocacy, and ways to get involved, sign up to be a part of the Grassroots Network!
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Read April 22, 2020

CSC’s Distress Screening Tool Shown to Benefit Patients and Caregivers

CSC’s Distress Screening Tool Shown to Benefit Patients and Caregivers The Cancer Support Community (CSC) recently spoke with Dr. William Dahut, Scientific Director for Clinical Research at the National Cancer Institute’s Center for Cancer Research, during our weekly radio show Frankly Speaking About Cancer. During the discussion, Dr. Dahut said, “Even though a lot of our time is focused on this horrible pandemic, I think it’s important that your listeners understand that we are still doing everything we can to improve the outcome for cancer patients.” We at CSC agree wholeheartedly with this statement and are likewise committed. Our team at The Research and Training Institute (RTI) recently presented findings on the benefits of using two versions of our CancerSupportSource®(CSS®) distress screening tool—one for caregivers and one for patients—at two major conferences to further this effort.
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Read April 13, 2020

Advocate Spotlight: Avery Smith

Each month, the Cancer Policy Institute profiles advocates who have been engaged in cancer advocacy. Read on to learn more about Avery and her advice for others who are interested in becoming an advocate. If you are interested in learning more about policy, advocacy, and ways to get involved, sign up to be a part of the Grassroots Network!
Read March 27, 2020

An Inspirational Message from Dr. Jill Biden

In response to the COVID-19 outbreak, we have have taken swift action to ensure patients and caregivers have access to our support and navigation services through digital channels and our toll-free Helpline. We are also fortunate to have many friends in the entertainment, sports, and advocacy sectors who have graciously agreed to send messages of hope to people affected by cancer. We are honored that Dr. Jill Biden, a longtime friend of our organization and passionate advocate for patients and families, delivered the first in what will be a series of messages, songs, and other expressions of inspiration.
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Read March 26, 2020

How to Stay Socially Active While Social Distancing

The spread of the Novel Coronavirus has brought the strategy of social distancing to prevent disease transmission to forefront of the world’s spotlight. To those facing cancer however, the idea of social distancing has always been an important aspect of cancer care, as many patients experience weakened immune systems as a result of their cancer treatment. While it’s vitally important to practice safe social distancing to prevent the spread of COVID-19, it’s also important that we continue to take care of our own physical and mental health during these trying times. An essential part of maintaining a healthy lifestyle is to practice healthy social and emotional interaction. With all the technology available to us today, safe social distancing doesn’t mean we have to stay socially isolated.
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Read March 11, 2020

Advocate Spotlight: Lauren Barnes

Each month, the Cancer Policy Institute profiles advocates who have been engaged in cancer advocacy. Read on to learn more about Lauren and her passion for ensuring that patients are able to afford and easily get the best treatment for their disease. If you are interested in learning more about policy, advocacy, and ways to get involved, sign up to be a part of the Grassroots Network!
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Read March 3, 2020

Speaking up on Advocacy Day 2020: Meet Ben White

Advocacy Day will bring together passionate and determined advocates from across the country to speak out on behalf of all people living with a cancer diagnosis on March 4th. One of those advocates is Ben White, an early onset colorectal cancer survivor. He moved all the way from northern California to Washington DC to pursue a career in advocacy and now serves as Coordinator-Development at the Cancer Support Community’s DC headquarters. The day of action provides an opportunity for individuals to meet with their elected officials and staff on Capitol Hill to help ensure that the patient remains as the center of all policies and regulations related to healthcare.
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Read March 3, 2020

Speaking up on Advocacy Day 2020: Meet Kelly Hendershot

On March 4th, 2020, the Cancer Support Community will bring together a group of dedicated and passionate advocates from around the country to meet with their elected officials and staff on Capitol Hill for Advocacy Day. One advocate is Kelly Hendershot a caregiver to her husband who died of brain cancer at the age of 30 and the Program Director of Gilda’s Club Quad Cities. She is traveling all the way from Iowa to be part of this day of action to help ensure that the patient remains at the center of all policies and regulations related to health care. We had the chance to catch up with Kelly before she started her journey to Washington, DC
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Read January 15, 2020

Advocate Spotlight: Ben White

Each month, the Cancer Policy Institute profiles advocates who have been engaged in cancer advocacy. Read on to learn more about Ben, and how his cancer diagnosis led him to pursue a career in cancer advocacy. If you are interested in learning more about policy, advocacy, and ways to get involved, sign up to be a part of the Grassroots Network!
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Read January 15, 2020

A Conversation with Patrick Dempsey on Cancer Care

CSC President Linda Bohannon sat down with actor and racecar driver Patrick Dempsey to discuss his work in cancer care, including The Dempsey Center, the importance of patient empowerment and more.
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Read December 20, 2019

The Research and Training Institute’s 2019 Year in Review

To cap off a productive 2019, the RTI looks back at highlights from the past year. Many exciting things happened for the RTI in 2019 including the addition of new staff members to our wonderful team and settling into our new permanent home in Old City, Philadelphia. The team also remains committed to conducting psychosocial and behavioral research through survey development, scale validation, and patient-centered market research projects so that we can continue to inform the services and support that the Cancer Support Community provides to cancer patients, caregivers, and their families. Read on to see some of the milestones and highlights from the past year!
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Read December 17, 2019

CSC’s Patient Resources Earn Record Number of Awards

In a remarkable week of award announcements, the Cancer Support Community received multiple accolades. MyLifeLine, its digital platform, and our publications, social media, and radio show were recognized for their outstanding quality.
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Read November 15, 2019

Advocate Spotlight Update: Miranda Johnson

Each month, the Cancer Policy Institute profiles advocates who have been engaged in cancer advocacy. This month we caught up with Miranda Johnson, one of the very first CPI Advocate Spotlights and a longtime CSC advocate!
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Read September 16, 2019

Wall Street Journal Story on Cancer Survivors Features CSC Patient’s Story

Today’s Wall Street Journal includes an in-depth story from Laura Landro examining the unique challenges facing cancer survivors. The article’s subheadline sums it up in one clear sentence: “As more patients are treated successfully, doctors and researchers are focusing more on helping people navigate the difficult, often lonely years after treatment.”
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Read July 30, 2019

What Is the Link Between Obesity and Colorectal Cancer?

The adverse effects of obesity include conditions like type II diabetes, hypertension, and cardiovascular disease. However, obesity has also been linked to the development of certain types of cancer, including colorectal cancer.
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Read May 7, 2019

Thank you for supporting Jockeys, Juleps & Jazz

On May 4 in Denver, Colorado, the Cancer Support Community hosted 250 guests at our Kentucky Derby “Jockeys, Juleps & Jazz” event, an annual celebration at the Four Seasons Hotel to raise funds for our digital community platform, MyLifeLine. The festivities included a live jazz band, free-flowing mint juleps, silent & live auctions and live streaming of the fastest 2 minutes in sports on the big screens.
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Read April 17, 2019

Thank you for serving as our Anchors of Hope

Last night in New York City, a beautiful evening at the Lighthouse in Chelsea Piers served as the backdrop of a moving and memorable Spring Celebration. The inspiring program brought to life our theme: Anchor of Hope. The anchor symbolizes the hope and safe harbor supporters like you enable us to offer patients and their loved ones at every stage of their cancer experience.
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Read May 3, 2018

How Northwest Medical Specialties Helps Ensure No One Faces Cancer Alone

In January, with the generous financial support of the Barbara Bradley Baekgaard Family Foundation, Northwest Medical Specialties became a CSC health care partner. With six locations in Washington State, Northwest Medical Specialties is committed to providing world-class, holistic care to everyone who walks through their doors. The CSC Program Director at Northwest Medical Specialties is a social worker named Abra Kelson. We asked Abra a few questions about her experiences launching the CSC at Northwest Medical Specialties and how her programming will impact patients and caregivers in her community.
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Read April 25, 2018

How Costly is Depression for Cancer Patients?

A recent study conducted by Mausbach et al. entitled “Healthcare Costs of Depression in Patients Diagnosed with Cancer” found that cancer patients with depression had total annual health care charges that were 113 percent higher than non-depressed cancer patients. For example, patients with depression had estimated average charges of $235,337 in comparison to the average charges of non-depressed patients, which totaled to $110,650.
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Read April 2, 2018

The Support You Still Need: AYA Survivorship

April 1-7 marks Young Adult Cancer Awareness Week. Adolescents and Young Adults with cancer (AYAs) face a whole new set of fears after they’ve finished treatment. Check out our blog from a young adult cancer survivor to learn more about this population.
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Read June 12, 2017

A Night with Marin Mazzie and Jason Danieley

On May 31st, I had the absolute pleasure of watching Marin Mazzie sing these words during “Broadway & Beyond,” a night of powerhouse musical performances by Mazzie and her husband Jason Danieley.
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Read March 1, 2017

This Moment in Cancer: How Researchers Are Putting The Body's Own Army To Work To Fight Cancer

This week we are excited to present an excerpt from This Moment in Cancer, a health blog at 90.9 WBUR—Boston’s NPR News Station. In the post by Karen Weintraub, “How Researchers Are Putting The Body's Own Army To Work To Fight Cancer,” chemotherapy as a cancer treatment option is discussed: Radiation, chemotherapy and surgery are great at shrinking or cutting out tumors. But these approaches can miss cancer cells that then seed new tumors. That’s why researchers are increasingly pinning their hopes on a new treatment strategy
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Read February 8, 2017

The Treatment Options of Today

One of the most exciting developing treatment options for cancer patients is immunotherapy. Because cancer cells are generated from our own cells, our immune system often has trouble discerning them from healthy cells. Immuno-oncology addresses this problem head-on, either by boosting the immune system generally to help it fight off cancer cells or by enabling the immune system to better distinguish cancer cells from healthy cells.
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Read February 1, 2017

National Cancer Prevention Month

There are many factors which can cause cancer, not all of which are fully understood. Despite this uncertainty, we are aware of some ways to decrease the risk of developing certain types of cancer. This February, as we recognize National Cancer Prevention Month, we’d like to share this knowledge about how to decrease the number of people diagnosed with cancer each year.
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Read December 7, 2016

Serving Our Veterans

On this December 7th, we at the Cancer Support Community join with all Americans in thanking World War II veterans and all veterans for their service to our country as we renew our commitment to ensure that no one faces cancer alone.
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Read December 21, 2016

Cousins for Carol

At the Cancer Support Community, we interact with many people who are looking to get involved but don’t know how. Volunteering with our affiliates is a great option and our most common answer, but there are a multitude of ways to help. This week, we’re highlighting Cousins for Carol, an organization founded to help people in the Philadelphia area who are affected by cancer. We asked Maria, one of Cousins for Carol’s founders, to tell us their story.
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Read November 23, 2016

The Season of Giving

This Tuesday, November 29, as we transition from Thanksgiving break into the holiday season, we are celebrating another holiday: Giving Tuesday. Created in 2012 by the United Nations Foundation, Giving Tuesday is a new tradition that focuses on the ways we can all give back. At the Cancer Support Community, we’d like to take the opportunity created by Giving Tuesday to highlight some of the ways you can help us provide the best services possible to people affected by cancer.
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Read November 9, 2016

Act Now: Making a Difference in Cancer Policy

This month, we’re continuing our Many Faces of Advocacy campaign by highlighting policy advocacy. Policy advocacy is probably what you first think of when you hear the word “advocacy.” A cancer policy advocate pushes for changes in government that will improve the lives of people affected by cancer. This can come in many forms, from writing a letter to your congressional representatives to spreading the word about important legislation using social media.
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Read October 26, 2016

Community Advocacy for You

Getting involved in your community is one of the most rewarding ways to help people impacted by cancer. That’s why this past month, we’ve been talking about the different possibilities for becoming a community advocate. Let’s recap what we’ve discussed and what we can all do going forward to make sure that no one in our communities faces cancer alone.
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Read November 2, 2016

Where the Candidates Stand on Cancer

With Election Day coming in less than a week, we’re taking the opportunity here at the Cancer Support Community to highlight where the presidential candidates stand on the cancer and health issues that matter to us. This is not meant to imply an endorsement or preference for any candidate but instead is an inexhaustive compilation of the candidates’ own words and actions on a topic which affects all Americans. We hope this stimulates discussion about the nonpartisan goal of improving cancer and health care policies nationally as well as at the local level.
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Read September 28, 2016

The Art of Decision-Making

Over the last few weeks, we’ve been using our blog to help explain how to gather information and communicate effectively as a self-advocate. The culmination of this journey comes today as we explore how a self-advocate makes decisions.
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Read September 14, 2016

The Power of Information: Self-Advocacy for Cancer Patients

We’re continuing our month-long spotlight on self-advocacy this week with a look at the most potent tool at a cancer patient’s disposal: information. No matter where you are in your cancer journey, self-advocating begins with seeking information and harnessing as much knowledge as you can.
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Read August 31, 2016

The Many Faces of Advocacy

Each year, as summer turns into fall, the cancer community begins a period of awareness, as many cancer awareness months and observances occur in September, October and November. Here at the Cancer Support Community, we wanted to use this opportunity to bring awareness to the importance of advocacy for everyone touched by cancer. That’s why we’re launching our Many Faces of Advocacy campaign. Over the next three months, we will try to demystify advocacy and explain all the different ways anyone can be a cancer advocate.
CSC Frankly Speaking About Cancer: Clinical Trials
Read July 20, 2016

Cancer Clinical Trials: The Search for Hope

This week's blog post features the story of two patients, Elisa and Bill. Elisa and Bill represent the people facing cancer who actively seek information about the treatments available for their cancer, who work as partners with their doctors and health care teams to make the best decisions about their care. They both made choices that involved dislocation, uncertainty and loss. They made these choices because the clinical trial represented something more important. They chose hope--hope for longer, better lives.
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Read July 11, 2016

Who Gets to Define Value?

Today's blog post is by Kim Thiboldeaux, CEO of the Cancer Support Community. This blog post was also featured this month in the Huffington Post here, and you can read more of Kim’s Huffington Post blog posts here.
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Read July 6, 2016

CSC at the Cancer Moonshot Summit

Last Wednesday, Vice President Joe Biden hosted summits across the country and in Washington, D.C. to share progress about the Cancer Moonshot Initiative. Of the 100 summits hosted across the United States, 30 of them were hosted by Cancer Support Community Affiliate locations. To see photos from their Moonshot Summits, check out our Facebook album. At the summit in Washington, D.C., our own Kim Thiboldeaux had the honor of speaking just after Vice President Biden. In case you missed it, below is a portion of Kim's speech.
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Read June 29, 2016

A Q&A with Award-Winning Photographer Rick Guidotti

This week’s blog post is a Q&A with award-winning photographer Rick Guidotti of Positive Exposure. He recently partnered with Baxalta (now part of Shire) to launch an exhibit featuring the perspectives of people impacted by various types of rare cancer including those who have been diagnosed, their family and friends, advocacy organizations, and healthcare providers.
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Read June 22, 2016

Cancer Clinical Trials: Getting Beyond the Myths

Right now, we are in an era of remarkable progress in understanding why and how cancers start and grow. Researchers are developing many new ways to treat cancers. In the last 10 years, targeted therapies and immunotherapy have opened the doors to real hope for longer, better lives--even cures--for people whose cancers could not be treated successfully.
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Read June 15, 2016

Cancer and Aging: The Connection Between Two Life-Changing Events

This week's blog post is an excerpt from last month's Cancer Experience Registry newsletter. This excerpt is from an interview with Jimmie Holland, MD, Wayne E. Chapmen Chair of Psychiatric Oncology at Memorial Sloan Kettering Cancer Center, and Dayle Friedman, Rabbi, Spiritual Consultant and Trainer at Growing Older: Wisdom + Spirit Beyond Midlife. This newsletter focused on the topic of cancer and aging.
The Atlantic: The Search for Answers: Fighting Rare Cancers
Read June 9, 2016

Highlights from the 2016 Annual ASCO Meeting

Every year, more than 30,000 oncology professionals from all over the world, including Cancer Support Community leaders come together at the annual meeting of the American Society of Clinical Oncology (ASCO) in Chicago to discuss new innovations and confront current challenges in the field of oncology. A highlight of this year's meeting was a panel discussion featuring CSC CEO Kim Thiboldeaux.
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Read May 11, 2016

Hope: What Motivates Us to Go Forward

"By definition," Lillie Shockney says, "hope is something in the future, something that motivates us to go forward in some manner. When someone is facing cancer, it's important from the outset to learn what that person's life goals and hopes are and to think about whether these hopes can be fulfilled. Are they realistic? Sometimes, you have to step back and take a different path."
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Read April 20, 2016

Be Here Now: A Q&A with Director Lilibet Foster

This week's blog post is a Q&A with Academy Award nominee Lilibet Foster. Lilibet is the director of the documentary film Be Here Now (The Andy Whitfield Story), released this Spring. Be Here Now follows the story of actor Andy Whitfield, his wife Vashti and their family as they embrace life rather than fear after Andy is diagnosed with cancer. Watch the trailer here, and learn more about how you can screen the film in your community here.
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Read March 30, 2016

Exploring Health Disparities in Cancer-Related Distress

Anyone who faces a cancer diagnosis is at risk for experiencing an elevated risk of distress. A study by the Cancer Experience Registry of the Cancer Support Community provides convincing evidence that culture can have a powerful impact on the type and degree of that distress.
Donna Kearney
Read March 3, 2016

The Caregiver's Perspective

This week’s blog post is from the Cancer Experience Registry February newsletter. This newsletter focused on the cancer experience from the caregiver’s perspective.
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Read December 16, 2015

10 Things You Should Do If You are Diagnosed with Cancer

This week’s blog post is by Kim Thiboldeaux, CEO of the Cancer Support Community. This blog post also appears this month in the Huffington Post, and you can read more of Kim’s Huffington Post blog posts here.
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Read January 6, 2016

When it’s Time for a Second Opinion

Hearing you have cancer can be shocking. And it’s perfectly reasonable to want to take action and begin treatment right away. However, taking your time can have several advantages, including having the opportunity to evaluate options and seek other opinions.