Linda House, RN, BSN, MSM
Linda House has a long-standing history with the Cancer Support Community. First she served as a local, affiliate volunteer and now, as President of the headquarters office. In her current role, Linda oversees several areas of CSC including the Research and Training Institute, the Cancer Policy Institute, strategic growth and development and marketing and communications while maintaining high engagement with CSC’s affiliates and service delivery functions. Linda joined CSC after many years working in the cancer care environment, including over a decade of direct patient care in the acute oncology and hospice care setting.
Immediately prior to joining CSC, Linda served as Executive Director of St. Vincent Cancer Care in Indianapolis where she led a team of individuals to provide care across the full cancer continuum. Prior to that, Linda was Senior Director of Advocacy and Professional Relations for Lilly Oncology working with patient and professional organizations on programs and broad issues related to cancer care.
Linda serves in a variety of advisory roles in the national cancer community and is also an active volunteer with a number of organizations in her local community.
Elizabeth Franklin, LGSW, ACSW
Executive Director, Cancer Policy Institute
Elizabeth Franklin, LGSW, ACSW, is Executive Director of the Cancer Policy Institute (CPI) at the Cancer Support Community (CSC). CSC is the largest provider of social and emotional support services for cancer patients and their loved ones in the United States. The CPI brings together patient advocates and policy experts to ensure that the voices of cancer patients and their loved ones play a central role in federal and state legislative, regulatory, and executive policy making. The CPI works in partnership with patient advocates, the CSC affiliate network, and numerous allied health care and oncology organizations to work towards a future where 15.5 million cancer survivors have access to comprehensive, high-quality, timely, and affordable medical, social, and emotional care. Elizabeth is responsible for all aspects of the CPI including legislative, regulatory, policy, and research priorities as well as operations, fundraising, and management. Elizabeth was previously Senior Director of Policy and Advocacy at CSC.
Elizabeth was formerly Director of Policy and Engagement at the George Washington University Cancer Institute where she worked at both the macro level, developing and implementing the Institute’s policy agenda, and at the micro level, working with the patient-centered care team to ensure that all patients had access to high-quality, timely cancer care. Previously, Elizabeth was Senior Director of Policy and Advocacy with the Prevent Cancer Foundation as well as Special Assistant to the Chief Executive Officer at the headquarters of the National Association of Social Workers.
Elizabeth is a recognized author and speaker. Her articles have appeared in publications such as the Journal of Cancer Education, Health and Social Work, and Conquer Cancer Magazine. She has co-authored two books on non-profit leadership and co-edited two social work texts. In addition, she is a member of various organizations and coalitions, including the National Association of Social Workers (where she serves as President of the DC Chapter), Association of Oncology Social Work (where she serves on the advocacy committee), Academy of Oncology Nurse and Patient Navigators (where she serves on the leadership council and as Chair of the Policy and Advocacy Committee), Alliance for Quality Psychosocial Cancer Care, and Society for Social Work and Research.
Currently a doctoral candidate at the University of Maryland School of Social Work, Elizabeth is focusing her dissertation on the ways in which patients define value in the cancer care system and how those definitions can be incorporated into public policy and clinical practice. Elizabeth obtained her Masters Degree in Social Work from the University of Illinois at Chicago and her Bachelors Degree in Social Work from the University of Kentucky. She is a Licensed Graduate Social Worker in the District of Columbia and a member of the Academy of Certified Social Workers.
Kim Czubaruk, JD
Senior Director of Policy and Advocacy
Kim Czubaruk is the Senior Director of Policy and Advocacy with the Cancer Support Community’s Cancer Policy Institute. Kim is an attorney with a background in civil litigation and disability law who focuses on health policy and advocacy to improve the lives of patients and their families. Prior to joining the Cancer Support Community, Kim served as policy manager with the American Academy of Nursing and legal consultant with the Food Allergy and Anaphylaxis Network. While with the Academy, Kim developed and led multiple national initiatives, built cross-sector collaborative partnerships, and worked with Academy fellows to advance health policy. Through her advocacy on behalf of children and adults with food-induced anaphylaxis, Kim improved the education, prevention, emergency response, and legal protections for severely food allergic individuals. Her achievements earned her the Muriel C. Furlong Award for Making a Difference.
Kim earned her Juris Doctor degree, with honors, from George Washington University Law School in Washington, DC and is licensed to practice law in Maryland and the District of Columbia. She obtained her Bachelor of Arts degree, magna cum laude, in political science from Union College in Schenectady, NY where she was inducted into the Phi Beta Kappa Society and the Pi Sigma Alpha national political science honor society.
Kim and her three children are avid travelers who also enjoy hiking and skiing.
Manager, Policy & Advocacy
Shelby Berger joined the Cancer Support Community in May 2017 as the Policy and Advocacy Manager. She works with the policy team to develop and implement CSC’s regulatory and legislative agenda while focusing on grassroots and state-level advocacy. Shelby graduated with a bachelor’s degree from The Ohio State University in 2016, where she studied Communication with a focus in Public Policy and Advocacy. Before joining CSC, Shelby worked as a Legislative Aide in the Ohio House of Representatives, where she worked on a wide variety of issues from Medicaid to Workers Compensation.
Founder & Principal, Cary Collaborative Strategies
Zina is an independent consultant, with more than two decades of experience impacting public policy, and leading issue campaigns, at the state and federal levels to increase access to critical health care services including cancer clinical trials, innovative therapies, Medicaid, Medicare Part D, and a host of others. She has held leadership positions with the International Myeloma Foundation (IMF), the Leukemia & Lymphoma Society (LLS), the National Health Council (NHC), and served as a legislative analyst for Assemblyman Richard N. Gottfried, Chair of the New York State Assembly Health Committee in Albany, NY. Zina has had the privilege of working with the Cancer Support Community’s public policy & advocacy team, to help shape their state legislative priorities and grassroots efforts, since 2015.
In her free time, she can be found on the nearest trail with her sweet pup, Sadie.
President, Mullin Strategies
Libby Mullin graduated from Lawrence University in 1990 with a B.A. in political science. After eight years of legislative experience on Capitol Hill, Libby opened her own health care consulting practice in 1999.
Prior to Mullin Strategies, Libby worked as a health policy advisor, legislative director and Chief of Staff for several members of the U.S. House of Representatives who served on the House Energy and Commerce Committee. Libby is the recipient of the National Children’s Hospital Award for Advocacy, the President Award for Leadership in Women’s Health from the Interstitial Cystitis Association and a policy leader of the year from the Cancer Support Community’s Policy Institute.
Over the last 20 years, Libby has consulted with health care organizations to help build and advance their policy and programmatic objectives. Libby works closely with clients to identify and commit to realistic policy priorities, form new partnerships, strengthen existing relationships and strategically advance a policy agenda consistent with the organization’s mission. Libby has extensive experience leading policy and advocacy workshops, running disease specific coalitions, organizing Congressional briefings and orchestrating visits with elected officials and regulators on behalf of clients. Most importantly, Libby helps organizations leverage their policy work strategically, in a manner that not only advances organizational goals but also attracts funder support. Highlights of Libby’s legislative successes include drafting and negotiating the inclusion of multiple provisions in a range of major health care laws the Affordable Care Act, the Children’s Health Insurance Program and multiple FDA reauthorization bills. Libby also works closely with her clients to navigate an increasing complex regulatory system to ensure appropriate input, oversight and communications with the agencies are consistent with the organization’s interests.
A native Washingtonian, Libby lives with her husband and three children in Chevy Chase, Md. Libby is a competitive triathlete, serves on the advisory board of the U.S. Soccer Foundation and coaches soccer at the Washington School for Girls.
Helen Nichols, MSW
Research Fellow, Cancer Policy Institute
Helen Nichols, MSW, is a PhD Candidate at the University of Maryland School of Social Work. As a social worker, she has developed clinical expertise providing psychotherapy to adults with co-occurring disorders, having worked in outpatient mental health clinics and correctional facilities. Helen also has experience leading local service organizations, where she successfully secured grant funding to award college scholarships to local high school students. Prior to her career in social work, Helen had a successful practice in the financial services industry, where she was responsible for personal financial planning and investment management.
Helen researches patient-provider communication and associated outcomes, such as patient satisfaction, trust, and overall health. She is particularly interested in the delivery of patient-centered cancer care and healthcare value and quality. She has extensive expertise in advanced quantitative and qualitative analyses, research design, and survey development. Helen has published in multiple peer-reviewed healthcare journals, including Patient Education & Counseling, Journal of Hospital Administration, Health Care Manager, Annals of Global Health, Journal of Psychosocial Oncology, and Journal of Cancer Education. Helen received her Bachelor of Arts degree from Penn State University and her Master of Social Work degree from Salisbury University.