NETs Overview Fact sheet

This fact sheet explains neuroendocrine cancer in clear, simple language for patients and their loved ones. Neuroendocrine cancer is a rare type of cancer that starts in cells that help control hormones and body functions. Because symptoms can look like other common health problems—or may not appear at all—it can take time to get a diagnosis.

The resource covers what neuroendocrine cancer is, where it can develop in the body, and how it is diagnosed. It also explains key terms your care team may use, such as tumor type, grade, and whether the cancer makes hormones. You will learn about common symptoms, testing, and different treatment options, including surgery, medications, and newer therapies.

In addition, this fact sheet shares ways to manage side effects, support your mental health, and find help for both patients and caregivers. Many people with neuroendocrine cancer live long, full lives, and having the right information and support can make a big difference.

Key Takeaways

• Neuroendocrine cancer is rare and can be hard to diagnose because symptoms may be mild, unclear, or mistaken for other conditions.
• Managing side effects and staying connected with your care team can help improve quality of life.
• Support is available for both patients and caregivers, including counseling, support groups, and trusted organizations.

Authors/Reviewers Dr. Xavier Keutgen, MD, Patient perspective: Ann and Starr

Sponsors and Partners: Exelixis, Neuroendocrine Tumor Research Foundation