Blog

Our blog covers a wide range of topics to help support, inspire, and inform members of our community, including those who have been personally impacted by cancer. Use the search filters below to find blog posts on topics that are important to you, from wellness tips, advocacy & policy news, and cancer research findings to stories and insights shared by patients, survivors, and caregivers.

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Read January 10, 2020

Parenting My Grieving Children

Grief comes in waves, in ebbs and flows, even for three-year old toddlers. That first year without Brett was a pendulum of conversation, reasoning, and tears. But there’s nothing easy or linear about parenting, let alone parenting grieving children. I learned not to expect too much from myself or from them.
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Read January 3, 2020

The Reality of Grief

When at last Brett died, I expected peace, not chaos all over again. I'd buried him prematurely in my dreams throughout his illness, bracing myself, I suppose, for the inevitable. Now that he was truly gone though, I was unprepared for the tidal wave of grief within me. The first few months after Brett died were a blur.
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Read December 13, 2019

A Beautiful Death

The toll of Brett's cancer on his body made home hospice no longer a viable option. After his most recent seizure, he was admitted into hospice. Going into hospice was almost a relief. I lived with premature anticipatory grief for years knowing Brett's cancer was incurable.
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Read December 6, 2019

Caregiver's Perspective: Shifting Moments

Being Brett’s wife and caregiver was a complicated role, and it strained my nerves. It was hard to simply rest my head on his shoulder the way I used to, or to express my own need for emotional intimacy and comfort when the gravity of his illness loomed large. I bounced back quickly from hurt feelings because there was no choice but to be present when we our time together as a family was diminishing. Every moment mattered.
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Read December 3, 2019

Utilization Management: What Patients Need to Know

One of the major themes dominating health care discussions today is the fact that healthcare costs in the United States are proving unsustainable. Practices known as utilization management (UM) are one of the major ways the high cost of health care has been addressed. The Cancer Policy Institute at the CSC will be releasing a series of blogs aimed at educating patients about different UM practices and techniques. The upcoming blogs will contain information that patients need to know, including how that particular technique impacts access to care, as well as advocacy opportunities to address those barriers to care. Read this first blog in the series to learn more about UM, the different practices and techniques, and how CSC is fostering conversations about UM.
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Read November 22, 2019

Out of Options

Six years into her husband's cancer diagnosis, Nancy Sharp felt cancer's toll on their marriage and children. Like many caregivers, she learned to cope and adapt, even as Brett's brain tumor progressed and treatment options failed.
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Read November 15, 2019

Caregiver’s Remorse

Nancy Sharp was a new mother wanting to go on her first family vacation with her husband and twins, but even that isn't so simple when you're a cancer caregiver.