Publications & Presentations
The Cancer Support Community is a leader in research on the patient, survivor, and caregiver experience. Our work appears in posters and presentations shared at professional conferences, published articles in preeminent peer-reviewed journals, educational materials for patients and caregivers, and comprehensive research reports to help inform cancer care and patient advocacy.
Use the search filters below to discover our research findings on diverse topics related to patient and caregiver quality of life, including:
- Psychosocial well-being and symptom management
- Patient-provider communication
- Treatment options
- Patient advocacy
- Financial toxicity and other barriers to health equity
- Experiences and perspectives on precision medicine
Meaningful Change in the Ability to Do Activities With Cancer & Cachexia
A research team, including Cancer Support Community, surveyed 181 adults with cancer and cachexia to learn what changes in activity would be meaningful. These findings highlight how researchers can measure patient-centered changes and guide the development of new treatments.
This study examined how cancer-related concerns are linked to anxiety and depression in older adults with cancer and whether support from different providers affects these relationships.
This study assessed the experiences and perspectives of Latinos living with cancer when accessing psychosocial support among a sample of Mexican-born, Spanish-speaking patients and survivors residing in the U.S.
This program overcomes barriers to access, including practical, financial, and emotional support needs. Patients and caregivers also received assistance preparing for treatment and coping with symptom burden. For patients who had not yet been approved for therapy, navigators helped find necessary resources and connected them with the treatment team to provide continuity and an extra layer of support. During treatment, navigators checked in on caregivers and assessed additional support needs.
CancerSupportSource (CSS) is a distress screening tool used to identify unmet needs among people with cancer. We developed and validated a version of CSS for caregivers of people with cancer, CancerSupportSource-Caregiver, which identifies concerns among caregivers, related to their own needs and the needs of those for whom they provide care.
This study assessed the reasons behind low participation rates and evaluated how LGBTQ+ specific experiences differ from the general population can help develop resources and programs that address the disparities in CCT participation, advancing LGBTQ+ health equity.
Sleep disturbance and fatigue are prevalent among ovarian cancer patients and are associated with poor mental health and Health-related quality of life (HRQoL) outcomes. This study assessed the factors that may contribute, what cancer patients perceive as contributing to their issues, and how they describe and manage these issues across their treatment trajectory.
CSC recognized that patients and caregivers undergoing CAR T-Cell Therapy benefit from specialized 1:1 support throughout their treatment course. The Cancer Support Helpline customized the already established navigation framework to support this specific population.
While many nutrition-related resources and guidelines focus on physical health outcomes, support around nutrition and eating behaviors can have critical implications for mental health and quality of life outcomes among breast cancer patients and survivors.
AML can have a considerable impact on social well-being, including personal and work domains. In this study, we aimed to determine the feasibility of creating a composite score for social toxicity and examine its prevalence of individuals diagnosed with AML.
MDS is a complex diagnosis that can pose challenges for shared decision-making between providers and patients. In this study, we aimed to identify informational gaps of individuals with an MDS diagnosis.