People's faces around the world

Publications & Presentations

The Cancer Support Community is a leader in research on the patient, survivor, and caregiver experience. Our work appears in posters and presentations shared at professional conferences, published articles in preeminent peer-reviewed journals, educational materials for patients and caregivers, and comprehensive research reports to help inform cancer care and patient advocacy.

Use the search filters below to discover our research findings on diverse topics related to patient and caregiver quality of life, including:

  • Psychosocial well-being and symptom management
  • Patient-provider communication
  • Treatment options
  • Patient advocacy
  • Financial toxicity and other barriers to health equity
  • Experiences and perspectives on precision medicine

CER Infographic

The interplay of financial toxicity, healthcare team communication, and psychosocial well-being among rural cancer patients and survivors

Financial toxicity is a term that refers to the out-of-pocket costs, lost wages, and debt faced by cancer patients as well as the distress caused by financial strain. New research from Cancer Support Community’s Cancer Experience Registry examines the role of financial toxicity among cancer patients in rural settings and suggests that healthcare team communication may play a key role in helping patients manage the financial impacts of cancer on mental and social health.

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Head & Neck Cancer (HNC) survivors experience significant long-term side effects of their treatment, and health-related quality-of-life assessments of HNC survivors are still early in development.  This survey captured long-term nutrition impact symptoms, eating problems, psychosocial impact, and barriers to accessing health care of HNC survivors.

American Society of Clinical Oncology
2024

The Inflation Reduction Act (IRA) changes how Medicare pays for some prescription drugs. For the first time, the Centers for Medicare & Medicaid Services (CMS) can ask drug companies for lower prices. What is important to patients should be included in a drug’s value. CMS should use data about what patients value when defining a drug’s “clinical benefit.” CMS should also create an ongoing process to include voices of patients and providers in valuing drugs.

2024

CancerSupportSource (CSS), a distress screening and referral program, identifies unmet needs of people with cancer and links them to resources and support. We developed and validated a Spanish-language version (CSS-Spanish) to better serve Hispanic and Latino communities and promote health equity.

2024

The purpose of this study was to describe the type and prevalence of survivorship concerns reported by individuals with metastatic cancer, and their associations with cancer diagnosis, treatment, and socio-demographic variables.

Journal of Cancer Survivorship
2024

This study describes financial toxicity (FT) reported by people with metastatic cancer, characteristics associated with FT, and associations between FT and compensatory strategies to offset costs.

Supportive Care in Cancer
2024

This study assessed the experiences and perspectives of Latinos living with cancer when accessing psychosocial support among a sample of Mexican-born, Spanish-speaking patients and survivors residing in the U.S.

Advancing the Science of Cancer in Latinos
2024

This study assessed the reasons behind low participation rates and evaluated how LGBTQ+ specific experiences differ from the general population can help develop resources and programs that address the disparities in CCT participation, advancing LGBTQ+ health equity.

Journal of Clinical Oncology
2023

Sleep disturbance and fatigue are prevalent among ovarian cancer patients and are associated with poor mental health and Health-related quality of life (HRQoL) outcomes. This study assessed  the factors that may contribute, what cancer patients perceive as contributing to their issues, and how they describe and manage these issues across their treatment trajectory.

Journal of Clinical Oncology
2023