Publications & Presentations
The Cancer Support Community is a leader in research on the patient, survivor, and caregiver experience. Our work appears in posters and presentations shared at professional conferences, published articles in preeminent peer-reviewed journals, educational materials for patients and caregivers, and comprehensive research reports to help inform cancer care and patient advocacy.
Use the search filters below to discover our research findings on diverse topics related to patient and caregiver quality of life, including:
- Psychosocial well-being and symptom management
- Patient-provider communication
- Treatment options
- Patient advocacy
- Financial toxicity and other barriers to health equity
- Experiences and perspectives on precision medicine
Meaningful Change in the Ability to Do Activities With Cancer & Cachexia
A research team, including Cancer Support Community, surveyed 181 adults with cancer and cachexia to learn what changes in activity would be meaningful. These findings highlight how researchers can measure patient-centered changes and guide the development of new treatments.
The aim of this study was to characterize the variation in CAR T authorized treatment centers’ (ATCs) policies regarding symptom monitoring, CAR T delivery, and caregiver requirements.
This study characterized the variation in ATCs policies and procedures around caregiving to improve navigation and support for patients and caregivers.
This study explores the relationship between loneliness, depression, and other psychosocial factors among older adults with cancer, highlighting potential areas for psychological support and intervention.
This presentation presents the results of a secondary survey analysis which aimed to assess the influence of age and time since diagnosis on cancer survivors’ definition and prioritization of tolerability-related concepts.
This presentation examines how travel time to cancer care is associated with barriers and delays to care, transportation-related distress, and financial toxicity.
This presentation illustrates cancer survivors’ experiences with professional nutrition care since diagnosis, including sources of care, met and unmet needs, timing of need, and priority nutrition concerns, and how these experiences vary by sociodemographic and clinical characteristics.
Patient-centered research study examining how sleep problems and fatigue impact quality of life in people with ovarian cancer.
This poster explores how Cancer Support Community incorporated patient and caregiver perspectives into Medicare drug price negotiation policy discussions.
This poster presents findings assessing the psychosocial well-being and patient-reported barriers to endometrial cancer care using data from the Cancer Experience Registry.
Findings from the Cancer Experience Registry exploring patients’ perceptions of AI integration in healthcare, with a focus on age-related differences, presented during the APOS 2026 symposia “Considerations and Innovations in Aging-Friendly Cancer Care: Updates From the APOS Cancer and Aging SIG.