Publications & Presentations

This poster presents findings a study conducted by CSC to explore the experiences of symptom burden, distress, and quality of life (QoL) among individuals with metastatic and non-metastatic NSCLC.

This program aims to assess the acceptability and effectiveness of the Peer Clinical Trials Support Program in increasing clinical trial knowledge, patient-provider communication about clinical trials self-efficacy in care decision-making the likelihood of enrolling in a clinical trial.

This exploratory qualitative study examined patient and caregiver experiences accessing CAR T, with a focus on logistical and financial barriers. Interviews with providers, navigators, and policy experts plus a focus group with CAR T patients/caregivers explored care coordination, travel burden, and psychosocial impacts. 
 

This study analyzes barriers to mental health care among distressed cancer patients in the Cancer Experience Registry. Attitudinal beliefs and accessibility barriers were key predictors of unmet need, while stigma and financial barriers were not significant. Findings support interventions that normalize and integrate mental health care within oncology services. 

This retrospective, longitudinal study of medical and pharmacy claims showed how common it was for patients' treatment with 5 oral cancer drugs to be rejected or delayed due to prior authorization (PA) including step therapy (ST) health plan practices.  Delays were associated with higher healthcare costs, outpacing any savings payers gained from outright rejection of coverage to a small group of patients.

Patients and caregivers face significant challenges accessing CAR T, including travel and lodging costs, care team coordination, caregiving requirements, and perceived risk of side effects. Having to travel long distances to academic cancer centers away from patients’ primary care sites for CAR T compounded the financial and time toxicity associated with receiving treatment for patients, caregivers, and their families. Given the potential community-wide burden of receiving CAR T therapy, treatment should be made available at more care sites, including community-based sites, to reduce the financial, logistic, and psychosocial burden of CAR T. 

The objective of this study is to explore the experiences of patients who have taken both oral and intramuscular endocrine therapy for metastatic breast cancer, by evaluating treatment burdens, benefits, and preference for mode of administration.

This study assessed the nature and extent of symptom burden among patients with metastatic and non-metastatic NSCLC and the factors associated with poor QoL to identify unmet needs and inform psychosocial interventions.

Individuals with non-small cell lung cancer (NSCLC) are susceptible to distress across multiple life domains. 
This study aims to describe how individuals living with metastatic or non-metastatic NSCLC characterize cancer-related distress, and to identify socio-demographic and clinical factors predicting distress.

Healthcare providers’ ability to successfully engage in patient-centered communication (PCC) and shared decision-making (SDM) is critical for prioritizing patient values and needs given the diversity of cancer treatment options available.  This study aims to examine the impact of PCC and SDM on urologic cancer patients’ perceived knowledge and preparedness in treatment decision-making.