On November 30, 2016, the Cancer Support Community (CSC) hosted an educational event to present the key findings and survey results from CSC’s Access to Care in Cancer 2016: Barriers and Challenges. The goal of this project is to better understand patients’ experiences with accessing care. Patients were asked in a survey about their experience with health care today. Of note, the report shows that:
- Despite the rising cost of care, 78% of patients have not had or don’t recall having cost conversations with their health care team prior to treatment, with 42.6% of people surveyed reporting that in the last 12 months their out-of-pocket costs have been larger than expected.
- As a result, almost 22% of patients surveyed chose not to get recommended health care services (tests, treatment and prescription drugs) because of high out-of-pocket costs.
- Our findings indicate that 25% of participants experienced delays in accessing cancer care, with up to a quarter of patients reporting that they did not feel confident that they receive the care they needed.
- The need for patient education and engagement is high. More than half of respondents (53.3%) reported not receiving social and/or emotional support as a part of their cancer care. More than 70% of those reported that they would have liked to receive social and emotional support services.