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On November 30, 2016, the Cancer Support Community (CSC) hosted an educational event to present the key findings and survey results from CSC’s Access to Care in Cancer 2016: Barriers and Challenges. The goal of this project is to better understand patients’ experiences with accessing care. Patients were asked in a survey about their experience with health care today. Of note, the report shows that:

  • Despite the rising cost of care, 78% of patients have not had or don’t recall having cost conversations with their health care team prior to treatment, with 42.6% of people surveyed reporting that in the last 12 months their out-of-pocket costs have been larger than expected.
  • As a result, almost 22% of patients surveyed chose not to get recommended health care services (tests, treatment and prescription drugs) because of high out-of-pocket costs.
  • Our findings indicate that 25% of participants experienced delays in accessing cancer care, with up to a quarter of patients reporting that they did not feel confident that they receive the care they needed.
  • The need for patient education and engagement is high. More than half of respondents (53.3%) reported not receiving social and/or emotional support as a part of their cancer care. More than 70% of those reported that they would have liked to receive social and emotional support services.

Access to Care in Cancer 2016: Barriers and Challenges

Event Videos

Resources

Greg Simon: How to Understand the "Patients Journey" and the difference between Patients and Consumers (Complete Presentation)

Greg Simon: How to Understand the "Patients Journey" and the difference between Patients and Consumers (Complete Presentation)

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Greg Simon: Part 1 How to Understand the "Patients Journey" and the difference between Patients and Consumers

Greg Simon: Part 1 How to Understand the "Patients Journey" and the difference between Patients and Consumers

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Greg Simon: Part 2 How to Understand the "Patients Journey" and the difference between Patients and Consumers

Greg Simon: Part 2 How to Understand the "Patients Journey" and the difference between Patients and Consumers

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Greg Simon: Part 3 How to Understand the "Patients Journey" and the difference between Patients and Consumers

Greg Simon: Part 3 How to Understand the "Patients Journey" and the difference between Patients and Consumers

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Greg Simon: Part 4 How to Understand the "Patients Journey" and the difference between Patients and Consumers

Greg Simon: Part 4 How to Understand the "Patients Journey" and the difference between Patients and Consumers

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Greg Simon: Q&A How to Understand the "Patients Journey" and the difference between Patients and Consumers

Greg Simon: Q&A How to Understand the "Patients Journey" and the difference between Patients and Consumers

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Patient Perspective - VJ Sleight: Health Insurance and the Rising Costs of Cancer Treatment - Complete Presentation

Patient Perspective - VJ Sleight: Health Insurance and the Rising Costs of Cancer Treatment - Complete Presentation

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Patient Perspective - VJ Sleight: Part 1 of Health Insurance and the Rising Costs of Cancer Treatment

Patient Perspective - VJ Sleight: Part 1 of Health Insurance and the Rising Costs of Cancer Treatment

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Patient Perspective - VJ Sleight: Part 2 Health Insurance and the Rising Costs of Cancer Treatment

Patient Perspective - VJ Sleight: Part 2 Health Insurance and the Rising Costs of Cancer Treatment

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Patient Perspective - VJ Sleight: Part 3 Health Insurance and the Rising Costs of Cancer Treatment

Patient Perspective - VJ Sleight: Part 3 Health Insurance and the Rising Costs of Cancer Treatment

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Kristen Santiago: Study Findings from the Survey on Patient Access to Care in Cancer (Complete Presentation)

Kristen Santiago: Study Findings from the Survey on Patient Access to Care in Cancer (Complete Presentation)

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Kristen Santiago: Part 1 Study Findings from the Survey on Patient Access to Care in Cancer

Kristen Santiago: Part 1 Study Findings from the Survey on Patient Access to Care in Cancer

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Kristen Santiago: Part 2 Study Findings from the Survey on Patient Access to Care in Cancer

Kristen Santiago: Part 2 Study Findings from the Survey on Patient Access to Care in Cancer

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Kristen Santiago: Part 3 Study Findings from the Survey on Patient Access to Care in Cancer

Kristen Santiago: Part 3 Study Findings from the Survey on Patient Access to Care in Cancer

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Kristen Santiago: Part 4 Study Findings from the Survey on Patient Access to Care in Cancer

Kristen Santiago: Part 4 Study Findings from the Survey on Patient Access to Care in Cancer

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Panel Discussion (Complete): Access to Care in Cancer 2016: Barriers & Challenges

Panel Discussion (Complete): Access to Care in Cancer 2016: Barriers & Challenges

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Panel Discussion: Part 1 Access to Care in Cancer 2016: Barriers & Challenges

Panel Discussion: Part 1 Access to Care in Cancer 2016: Barriers & Challenges

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Panel Discussion: Part 2 Access to Care in Cancer 2016: Barriers & Challenges

Panel Discussion: Part 2 Access to Care in Cancer 2016: Barriers & Challenges

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Panel Discussion: Part 3 Access to Care in Cancer 2016: Barriers & Challenges

Panel Discussion: Part 3 Access to Care in Cancer 2016: Barriers & Challenges

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Panel Discussion: Part 4 Access to Care in Cancer 2016: Barriers & Challenges

Panel Discussion: Part 4 Access to Care in Cancer 2016: Barriers & Challenges

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Panel Discussion: Part 5 Access to Care in Cancer 2016: Barriers & Challenges

Panel Discussion: Part 5 Access to Care in Cancer 2016: Barriers & Challenges

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