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The Cancer Support Community is continually working on new research in various topics areas that are important to people impacted by cancer. Below please find access to reports, posters and presentations of our research, categorized by topic area. Many of these posters and presentations have been presented at prominent cancer focused conferences and meetings, including the American Society of Clinical Oncology (ASCO) annual meeting and the National Comprehensive Cancer Network Annual Conference.

Latest Publications and Presentations

Access to Care in Cancer 2016: Barriers and Challenges (Cancer Support Community, 2016)

How Patient and Caregiver Informational and Psychosocial Needs are Being Met in Practice: Results From a National Melanoma Survey (Annual Conference of the Academy of Oncology Nurse and Patient Navigators - AONN, 2016)

Older Adults Seeking Cancer Information and Support Online: Results From a National Sample of Program Attendees (2016 Gerontological Society of America Annual Scientific Meeting)

Psychosocial Service Utilization Among Older Adults With Cancer:Results From Psychoeducation Program Attendees (2016 Gerontological Society of America Annual Scientific Meeting)

Treatment Decision Making Priorities and Satisfaction Among Older Prostate Cancer Survivors (Cancer Support Community, Research and Training Institute, Philadelphia PA)

Caregiver Participation in a Psychoeducational Cancer Support Program: Results From A National Sample  (International Cancer Education Conference, 2016)

Meeting the Educational Needs of Older Adults with Cancer: Results From a National Sample of Program Attendees (International Cancer Education Conference, 2016)

Response To Psychoeducational Programs In Long-Term Cancer Survivors: Results From A National Sample (International Cancer Education Conference, 2016)

Definitions of value among a diverse sample of cancer survivors: Differences according to sociodemographics (Association for Value-Based Cancer Care, 2016)

Definitions of value among multiple myeloma patients in a cancer registry (Association for Value-Based Cancer Care, 2016)

Cancer-Related Distress and Unmet Needs Among Newly Diagnosed and Longer-Term Cancer Survivors from a Community-Based Distress Screening Program (ASCO Cancer Survivorship Symposium: Advancing Care and Research, 2016)

Informing and Empowering Cancer Patients About Immunotherapy (American Psychosocial Oncology Society Conference, 2016)

Psychosocial Health Disparity Among Diverse Racial-ethnic Groups: Implications for the Use of a Patient-Powered Registry (American Psychosocial Oncology Society, 2016)

Innovation in Developing Evidence-Based Programs that Identify and Address the Social and Emotional Needs of Cancer Caregivers: Distress Screening and Referral for Caregivers (APOS, 2016)

Integrative Models of Reducing Caregiver Burden in Underserved Communities (APOS, 2016)

Discriminatory Power of A 15-item Distress Screening Tool Among Those at Risk for Depression: Implications for Triage Post Distress Screening (National Comprehensive Cancer Network Annual Conference, 2016)

Cancer-related Distress Among Different Racial-ethnic Groups from a Community-based Distress Screening Program (Society of Behavioral Medicine, 37th Annual Meeting and Scientific Sessions, 2016)

Cancer Patient Experience with Financial Counseling among Participants of an Online Registry (American Society of Clinical Oncology, 2016)

Definitions of Value among Patients with Breast Cancer ( American Society of Clinical Oncology, 2016)

Psychosocial Health Disparity Among Diverse Racial-ethnic Groups: Implications for the Use of a Patient-Powered Registry (American Psychosocial Oncology Society, 2016)

Cancer Patients' Priorities When Considering a Treatment Decision (8th Biennial Cancer Survivorship Research Conference, 2016)

Access to Care

Breast Reconstruction

Cancer Management

Treatment-Adherence Beliefs and Behaviors in Patients with Chronic Myeloid Leukemia (American Society of Clinical Oncology Annual Meeting, 2015)

Evolving Strategies for the Management of Multiple Myeloma (The American Journal of Managed Care, 2014)

Caregivers' Needs

Clinical Trials: Patient Perception and Participation

Distress Screening and Referral

Cancer-related Distress Among Different Racial-ethnic Groups from a Community-based Distress Screening Program (Society of Behavioral Medicine, 37th Annual Meeting and Scientific Sessions, 2016)

Discriminatory Power of A 15-item Distress Screening Tool Among Those at Risk for Depression: Implications for Triage Post Distress Screening (National Comprehensive Cancer Network Annual Conference, 2016)

Cancer-Related Distress and Unmet Needs Among Newly Diagnosed and Longer-Term Cancer Survivors from a Community-Based Distress Screening Program (ASCO Cancer Survivorship Symposium: Advancing Care and Research, 2016)

Measuring the Value of Telephone Distress Screening and Referral on Resource Utilization and Distress in Patients with Multiple Myeloma (Association of Value-Based Cancer Care Meeting, 2015)

CancerSupportSource (CSS): Validating a 13-Item Web-Based Distress Screening Tool in the Community - Abstract Version (National Comprehensive Cancer Network Annual Conference, 2014)

CancerSupportSource (CSS): Validating a 13-Item Web-based Distress Screening Tool in the Community - Poster Version (National Comprehensive Cancer Network Annual Conference, 2014)

CancerSupportSource (CSS): Validating a 15-Item Spanish Web-Based Screening Tool in the Community - Abstract Version (National Comprehensive Cancer Network Annual Conference, 2014)

CancerSupportSource (CSS): Validating a 15-Item Spanish Web-Based Screening Tool in the Community - Poster Version (National Comprehensive Cancer Network Annual Conference, 2014)

CancerSupportSource: Validating a 25-Item Spanish Web-Based Distress Screening Tool in the Community (Society of Behavioral Medicine Annual Meeting & Scientific Sessions, 2014)

Discriminatory Power of a 25-Item Distress Screening Tool: A Cross-sectional Survey of 251 Cancer Survivors (Quality of Life Research, 2014)

CancerSupportSource Implementation Poster (National Comprehensive Cancer Network Annual Conference, 2013)

CancerSupportSource: Validating a Web-Based Distress Screening Tool in the Community (National Comprehensive Cancer Network 18th Annual Conference, 2013)

Discriminatory Power of Distress Screening Poster (American Society of Clinical Oncology Annual Meeting, 2013)

Discriminatory Power of a 25-Item Distress Screening Tool CancerSupportSource: A Cross-Sectional Study of 251 Cancer Survivors (American Society of Clinical Oncology Annual Meeting, 2013)

CancerSupportSource (CSS) Validation: Psychometric Properties of a 25-item Distress Screening Tool in a Community Sample of 251 Cancer Survivors (Biennial Cancer Survivorship Research Conference, 2012)

Community-Based Distress Screening: Findings from an Online Registry (Society of Behavioral Medicine Annual Meeting and Scientific Sessions, 2012)

From Distress Guidelines to Developing Models of Psychosocial Care (Journal of Psychosocial Oncology, 2012)

Implementing Community-Based Distress Screening (Society of Behavioral Medicine Symposium, 2012)

Creating an Integrative Biopsychosocial Screening Model (American Psychosocial Oncology Society Annual Conference, 2011)

Developing a Community-Based Screening Instrument (American Society of Clinical Oncology Annual Meeting, 2011)

Validation of a Problem-Based Biopsychosocial Screening Instrument (Society of Behavioral Medicine Annual Meeting and Scientific Sessions, 2011)

Education and Empowerment

Caregiver Participation in a Psychoeducational Cancer Support Program: Results From A National Sample  (International Cancer Education Conference, 2016)

Meeting the Educational Needs of Older Adults with Cancer: Results From a National Sample of Program Attendees (International Cancer Education Conference, 2016)

Response To Psychoeducational Programs In Long-Term Cancer Survivors: Results From A National Sample (International Cancer Education Conference, 2016)

Informing and Empowering Cancer Patients About Immunotherapy (American Psychosocial Oncology Society Conference, 2016)

Informational and Emotional Support Utilization and Needs of Lung Cancer Patients and Caregivers: Results from a National Education Program (International Cancer Education Conference, 2014)

Empowering Patients and Caregivers through a National Patient Education Program (International Cancer Education Conference, 2013)

The Value of a Lung Cancer Education Program for Patients and Caregivers (International Cancer Education Conference, 2012)

Closing the Gap: Meeting the Needs of Liver Cancer Patients through Education (International Cancer Education Conference, 2012)

A Five Year Review of an Educational Program Focused on Meeting the Needs of Advanced Breast Cancer Patients (ASCO Breast Cancer Symposium, 2012)

A Decade of Successful Outreach and Cancer Patient Education: Frankly Speaking About Cancer (International Cancer Education Conference, 2011)

Frankly Speaking About Cancer: A National Model of Success for Cancer Education and Patient Empowerment (American Public Health Association Annual Meeting and Exposition, 2011)

SCOPED Question-Listing among Hematological Cancer Patients (American Public Health Association Annual Meeting and Exposition, 2011)

Encouraging 'Patient Active' in the Treatment of Advanced Breast Cancer: Results from the Frankly Speaking About Advanced Breast Cancer Psychoeducational Program (ASCO Breast Cancer Symposium, 2010)

Frankly Speaking About Cancer: A Model of Patient Education (International Cancer Education Conference, 2010)

Financial Impact

Cancer Patient Experience with Financial Counseling among Participants of an Online Registry (American Society of Clinical Oncology, 2016)

Multiple Myeloma Patient Experience with Financial Toxicity (American Society of Hematology, 2015)

The Financial Costs of Metastatic Breast Cancer and the Decisions Patients Make to Cope with Costs: Findings from the Cancer Experience Registry (San Antonio Breast Cancer Symposium, 2014)

The Financial Costs of Chronic Myeloid Leukemia and Implications for Quality of Life and Adherence (American Society for Hematology, 2014)

A Four Year Review of the Financial Burden of Cancer Care: Results from a National Education Program (American Public Health Association Annual Meeting and Exposition, 2013)

Provider-Patient Communication About Cost of Care: Results from a National Patient Education Program (American Society of Clinical Oncology Annual Meeting, 2013)

Breast Care Patient Distress Associated with Difficulties Navigating the Costs Associated with Care: Results from a National Education Program (San Antonio Breast Cancer Symposium, 2011)

Patient Distress Due to Difficulties Navigating the Costs Associated with Cancer Care: Results from a National Education Program (International Cancer Education Conference, 2011)

Cancer Support Community's 'Coping with the Cost of Care' Program: An Indication of the Need for More Education and Support (International Cancer Education Conference, 2010)

The Hidden Costs of Cancer: Barriers to Accessing Financial Assistance (Society of Behavioral Medicine Annual Meeting and Scientific Sessions, 2010)

The Hidden Costs of Cancer: Barriers to Accessing Financial Assistance (Biennial Cancer Survivorship Research Conference, 2010)

The Hidden Costs of Cancer: Barriers to Accessing Financial Assistance (International Congress of Behavioral Medicine, 2010)

Mental Health and Psychosocial Support

Older Adults Seeking Cancer Information and Support Online: Results From a National Sample of Program Attendees (2016 Gerontological Society of America Annual Scientific Meeting)

Psychosocial Service Utilization Among Older Adults With Cancer:Results From Psychoeducation Program Attendees (2016 Gerontological Society of America Annual Scientific Meeting)

Physical, Mental and Social Health among Multiple Myeloma Patients and Perceived Control over the Course of Cancer (Society of Behavioral Medicine Annual Meeting and Scientific Sessions, 2015)

Psychological Distress and Financial Burden Impact Adherence to CML Treatment (American Health & Drug Benefits, 2015)

The Alliance for Quality Psychosocial Cancer Care: An Innovative Model for Disseminating and Improving Implementation of National Quality Care Recommendations (Journal of the National Comprehensive Cancer Network, 2014)

Cancer-Related Distress and Unmet Needs among Members of a Metastatic Breast Cancer Registry (ASCO Breast Cancer Symposium, 2014)

Impact of a Patient Access Program with Integrated Distress Screening on Resource Utilization and Psychosocial Distress Levels in Patients with Multiple Myeloma (American Society of Hematology Annual Meeting, 2014)

The Impact of Question-Listing on Distress, Anxiety, and Question Self-Efficacy among Cancer Patients (American Society of Clinical Oncology Annual Meeting, 2014)

Lower Income Is Associated with Greater Likelihood to Seek Social and Emotional Support: Findings from a Community-Based Distress Screening Program (American Society of Clinical Oncology Annual Meeting, 2014)

The Impact of Age on Cancer Survivors' Psycho-Social Distress (Annual GSA Conference, 2012)

Assessing the Educational and Psychosocial Needs of Women with Ovarian Cancer (International Cancer Education Conference, 2012)

Developing a Comprehensive Program to Address Psychosocial Concerns of Young Women with Metastatic Breast Cancer (International Cancer Education Conference, 2012)

Patient Experience and Needs

How Patient and Caregiver Informational and Psychosocial Needs are Being Met in Practice: Results from a National Melanoma Survey (Annual Conference of the Academy of Oncology Nurse and Patient Navigators - AONN, 2016)

Cancer Patient Experience with Financial Counseling among Participants of an Online Registry (American Society of Clinical Oncology, 2016)

Definitions of Value among Patients with Breast Cancer ( American Society of Clinical Oncology, 2016)

Psychosocial Health Disparity Among Diverse Racial-ethnic Groups: Implications for the Use of a Patient-Powered Registry (American Psychosocial Oncology Society, 2016)

Symptom Burden and Palliative Care for Multiple Myeloma Patients: Cancer Experience Registry Findings (American Society of Hematology, 2015)

Cancer Experience Registry Cancer Experience Days and the Critical Role of Affiliates in Outreach (Affiliate Leadership Conference, Cancer Support Community, 2014)

Difference in the Cancer Patient Experience across Patient Settings (American Public Health Association Annual Meeting and Exposition, 2014)

Elevating the Patient Voice: Cancer Experience Registry Index Report 2013 - 2014 (Cancer Support Community Report, 2014)

Elevating the Patient Voice: Overview of the Cancer Experience Registry Index Report 2013 - 2014 (Affiliate Leadership Conference, Cancer Support Community, 2014)

Understanding the Experience of Living with Non–Small Cell Lung Cancer (NSCLC): A Qualitative Study (The Journal of Community and Supportive Oncology, 2014)

Do I Have Cancer? Understanding the Needs of Myelofibrosis Patients (International Cancer Education Conference, 2013)

Understanding the Experience of Living with Non-Small Cell Lung Cancer (American Society of Clinical Oncology Annual Meeting, 2013)

Understanding the Multiple Myeloma Experience: Results from an Online Survey (International Cancer Education Conference, 2013)

Patient Provider Communication

Patient Value

Definitions of value among a diverse sample of cancer survivors: Differences accounting to sociodemographics (Association for Value-Based Cancer Care, 2016)

Definitions of value among multiple myeloma patients in a cancer registry (Association for Value-Based Cancer Care, 2016)

Definitions of Value Among Patients with Breast Cancer (American Society of Clinical Oncology, 2016)

Cancer Patients' Priorities When Considering a Treatment Decision (8th Biennial Cancer Survivorship Research Conference, 2016)

Defining Value in Oncology: Perspectives from Patients with Metastatic Breast Cancer  (Association for Value-Based Cancer Care, 5th Annual Conference, 2015)

Program Development, Implementation and Quality

Teens' Needs

Group Loop: A Website for Teens Impacted by Cancer (LIVESTRONG Young Adult Alliance, 2011)

What About US: Children and Teen Living with Cancer in the Family (Association of Oncology Social Work, 2011)

Sexual Health

Sexual Morbidity and Unmet Needs among Members of a Metastatic Breast Cancer Registry (American Society of Clinical Oncology Annual Meeting, 2015)

Distress Associated with Problems with Sexual Function among Breast Cancer Survivors (American Psychosocial Oncology Society Annual Conference, 2012)

Survivorship

Patient Experience with Survivorship Care Plans: Findings from the Cancer Experience Registry® (Biennial Cancer Survivorship Conference, 2014)

Evaluation of the Efficacy and Usability of NCI’s Facing Forward Booklet in the Cancer Community Setting (Journal of Cancer Survivorship, 2013)

Assessing Patient Experiences with Survivorship Care Plans: Breast Cancer Survivors (Society of Behavioral Medicine Annual Meeting & Scientific Sessions, 2012)

Breast Cancer Survivors’ Beliefs about Environmental Risk Factors: Results from a National Cancer Survivor Registry (Biennial Cancer Survivorship Research Conference, 2012)

Partnering to Improve Health Outcomes of Post Treatment Cancer Survivors (American Public Health Association Annual Meeting and Exposition, 2012)

Problem-Related Distress and Quality of Life in Cancer Survivors (American Psychosocial Oncology Society Annual Conference, 2012)

Patient Experience with Survivorship Care Plans: Online Experience of Breast Cancer Survivors (American Society of Clinical Oncology Annual Meeting, 2011)

Treatment Decision-Making

Treatment Decision Making Priorities and Satisfaction Among Older Prostate Cancer Survivors (Cancer Support Community, Research and Training Institute, Philadelphia PA)

Cancer Patients' Priorities When Considering a Treatment Decision (8th Biennial Cancer Survivorship Research Conference, 2016)

The Need for Decision and Communication Aids: A Survey of Breast Cancer Survivors (The Journal of Community and Supportive Oncology, 2015)

Factors Influencing Treatment Decisions among Cancer Patients: Results from National Patient Education Workshops (World Congress of Pyscho-Oncology, 2015)

Characterizing the Metastatic Breast Cancer Patient Experience Around Preparing for a Treatment Decision (San Antonio Breast Cancer Symposium, 2014)

Treatment Decision-Making Factors Among Individuals with Lung Cancer: Results from a National Education Program (International Cancer Education Conference, 2014)

Evaluation of question-listing at the Cancer Support Community (Cancer Support Community, 2013)

Improving Patient-Provider Communication and Shared Decision Making in Metastatic Breast Cancer (International Cancer Education Conference, 2013)

National Findings on How Cancer Patients Make Treatment Decisions  (International Cancer Education Conference, 2012)

Assessing Breast Cancer Survivor Needs for Treatment Decision Support (Society of Behavioral Medicine Annual Meeting & Scientific Sessions, 2011)

Predictors of Change Following a Treatment Decision Support Program (American Psychosocial Oncology Society Annual Conference, 2011)

Work Impact

2016

Access to Care in Cancer 2016: Barriers and Challenges (Cancer Support Community, 2016)

How Patient and Caregiver Informational and Psychosocial Needs are Being Met in Practice: Results from a National Melanoma Survey (Annual Conference of the Academy of Oncology Nurse and Patient Navigators - AONN, 2016)

Older Adults Seeking Cancer Information and Support Online: Results From a National Sample of Program Attendees (2016 Gerontological Society of America Annual Scientific Meeting)

Psychosocial Service Utilization Among Older Adults With Cancer:Results From Psychoeducation Program Attendees (2016 Gerontological Society of America Annual Scientific Meeting)

Treatment Decision Making Priorities and Satisfaction Among Older Prostate Cancer Survivors (Cancer Support Community, Research and Training Institute, Philadelphia PA)

Definitions of value among a diverse sample of cancer survivors: Differences according to sociodemographics (Association for Value-Based Cancer Care, 2016)

Definitions of value among multiple myeloma patients in a cancer registry (Association for Value-Based Cancer Care, 2016)

Cancer-Related Distress and Unmet Needs Among Newly Diagnosed and Longer-Term Cancer Survivors from a Community-Based Distress Screening Program (ASCO Cancer Survivorship Symposium: Advancing Care and Research, 2016)

Informing and Empowering Cancer Patients About Immunotherapy (American Psychosocial Oncology Society Conference, 2016)

Psychosocial Health Disparity Among Diverse Racial-ethnic Groups: Implications for the Use of a Patient-Powered Registry (American Psychosocial Oncology Society, 2016)

Innovation in Developing Evidence-Based Programs that Identify and Address the Social and Emotional Needs of Cancer Caregivers: Distress Screening and Referral for Caregivers (APOS, 2016)

Integrative Models of Reducing Caregiver Burden in Underserved Communities (APOS, 2016)

Discriminatory Power of A 15-item Distress Screening Tool Among Those at Risk for Depression: Implications for Triage Post Distress Screening (National Comprehensive Cancer Network Annual Conference, 2016)

Cancer-related Distress Among Different Racial-ethnic Groups from a Community-based Distress Screening Program (Society of Behavioral Medicine, 37th Annual Meeting and Scientific Sessions, 2016)

Cancer Patient Experience with Financial Counseling among Participants of an Online Registry (American Society of Clinical Oncology, 2016)

Definitions of Value among Patients with Breast Cancer ( American Society of Clinical Oncology, 2016)

Psychosocial Health Disparity Among Diverse Racial-ethnic Groups: Implications for the Use of a Patient-Powered Registry (American Psychosocial Oncology Society, 2016)

Cancer Patients' Priorities When Considering a Treatment Decision (8th Biennial Cancer Survivorship Research Conference, 2016)

Caregiver Participation in a Psychoeducational Cancer Support Program: Results From A National Sample (International Cancer Education Conference, 2016)

Meeting the Educational Needs of Older Adults with Cancer: Results From a National Sample of Program Attendees (International Cancer Education Conference, 2016)

Response To Psychoeducational Programs In Long-Term Cancer Survivors: Results From A National Sample (International Cancer Education Conference, 2016)

2015

An Insight into Patient Access to Care in Cancer (Cancer Support Community Report, 2015)

Defining Value in Oncology: Perspectives from Patients with Metastatic Breast Cancer (Association for Value-Based Cancer Care, 5th Annual Conference, 2015)

Treatment-Adherence Beliefs and Behaviors in Patients with Chronic Myeloid Leukemia (American Society of Clinical Oncology Annual Meeting, 2015)

Information and Emotional Support Utilization among Cancer Caregivers: Results from a National Sample of Education Program Attendees (World Congress of Pyscho-Oncology, 2015)

Innovation in Developing Evidence-Based Programs that Identify and Address the Social and Emotional Needs of Cancer Caregivers (World Congress of Pyscho-Oncology, 2015)

Patient Interest In Clinical Trials: Results from a National Sample of Cancer Psychoeducational Program Attendees (World Congress of Pyscho-Oncology, 2015)

Measuring the Value of Telephone Distress Screening and Referral on Resource Utilization and Distress in Patients with Multiple Myeloma (Association of Value-Based Cancer Care Meeting, 2015)

Multiple Myeloma Patient Experience with Financial Toxicity (American Society of Hematology, 2015)

Physical, Mental and Social Health among Multiple Myeloma Patients and Perceived Control over the Course of Cancer (Society of Behavioral Medicine Annual Meeting and Scientific Sessions, 2015)

Psychological Distress and Financial Burden Impact Adherence to CML Treatment (American Health & Drug Benefits, 2015)

Symptom Burden and Palliative Care for Multiple Myeloma Patients: Cancer Experience Registry Findings (American Society of Hematology, 2015)

Sexual Morbidity and Unmet Needs among Members of a Metastatic Breast Cancer Registry (American Society of Clinical Oncology Annual Meeting, 2015)

The Need for Decision and Communication Aids: A Survey of Breast Cancer Survivors (The Journal of Community and Supportive Oncology, 2015)

Factors Influencing Treatment Decisions among Cancer Patients: Results from National Patient Education Workshops (World Congress of Pyscho-Oncology, 2015)

Work-Related Impact of Metastatic Breast Cancer: Results from the Cancer Experience Registry® (Biennial Cancer Survivorship Conference, 2015)

2014

The Financial Costs of Chronic Myeloid Leukemia and Implications for Quality of Life and Adherence (American Society for Hematology, 2014)

Linking Multiple Myeloma Patients and Families with Telephone Support: A Unique Pathway for Caller Referral (Association of Oncology Social Work Annual Conference, 2014)

Evolving Strategies for the Management of Multiple Myeloma (The American Journal of Managed Care, 2014)

 Attitudinal Barriers to Participation in Oncology Clinical Trials: Factor Analysis and Correlates of Barriers (European Journal of Cancer Care, 2014)

Perceptions about Cancer Clinical Trials among Metastatic Breast Cancer Patients: Findings from a Patient Powered Registry (San Antonio Breast Cancer Symposium, 2014)

CancerSupportSource (CSS): Validating a 13-Item Web-Based Distress Screening Tool in the Community - Abstract Version (National Comprehensive Cancer Network Annual Conference, 2014)

CancerSupportSource (CSS): Validating a 13-Item Web-based Distress Screening Tool in the Community - Poster Version (National Comprehensive Cancer Network Annual Conference, 2014)

CancerSupportSource (CSS): Validating a 15-Item Spanish Web-Based Screening Tool in the Community - Abstract Version (National Comprehensive Cancer Network Annual Conference, 2014)

CancerSupportSource (CSS): Validating a 15-Item Spanish Web-Based Screening Tool in the Community - Poster Version (National Comprehensive Cancer Network Annual Conference, 2014)

CancerSupportSource: Validating a 25-Item Spanish Web-Based Distress Screening Tool in the Community (Society of Behavioral Medicine Annual Meeting & Scientific Sessions, 2014)

Discriminatory Power of a 25-Item Distress Screening Tool: A Cross-sectional Survey of 251 Cancer Survivors (Quality of Life Research, 2014)

Informational and Emotional Support Utilization and Needs of Lung Cancer Patients and Caregivers: Results from a National Education Program (International Cancer Education Conference, 2014)

The Financial Costs of Metastatic Breast Cancer and the Decisions Patients Make to Cope with Costs: Findings from the Cancer Experience Registry (San Antonio Breast Cancer Symposium, 2014)

The Financial Costs of Chronic Myeloid Leukemia and Implications for Quality of Life and Adherence (American Society for Hematology, 2014)

The Alliance for Quality Psychosocial Cancer Care: An Innovative Model for Disseminating and Improving Implementation of National Quality Care Recommendations (Journal of the National Comprehensive Cancer Network, 2014)

Cancer-Related Distress and Unmet Needs among Members of a Metastatic Breast Cancer Registry (ASCO Breast Cancer Symposium, 2014)

Impact of a Patient Access Program with Integrated Distress Screening on Resource Utilization and Psychosocial Distress Levels in Patients with Multiple Myeloma (American Society of Hematology Annual Meeting, 2014)

The Impact of Question-Listing on Distress, Anxiety, and Question Self-Efficacy among Cancer Patients (American Society of Clinical Oncology Annual Meeting, 2014)

Lower Income Is Associated with Greater Likelihood to Seek Social and Emotional Support: Findings from a Community-Based Distress Screening Program (American Society of Clinical Oncology Annual Meeting, 2014)

Cancer Experience Registry Cancer Experience Days and the Critical Role of Affiliates in Outreach (Affiliate Leadership Conference, Cancer Support Community, 2014)

Difference in the Cancer Patient Experience across Patient Settings (American Public Health Association Annual Meeting and Exposition, 2014)

Elevating the Patient Voice: Cancer Experience Registry Index Report 2013 - 2014 (Cancer Support Community Report, 2014)

Elevating the Patient Voice: Overview of the Cancer Experience Registry Index Report 2013 - 2014 (Affiliate Leadership Conference, Cancer Support Community, 2014)

Understanding the Experience of Living with Non–Small Cell Lung Cancer (NSCLC): A Qualitative Study (The Journal of Community and Supportive Oncology, 2014)

Multiple Myeloma Patient Experience with Communication about Treatment Decision (American Society for Hematology Annual Meeting, 2014)

Patient-Reported Outcomes are Changing the Landscape in Oncology Care: Challenges and Opportunities for Payer (American Health & Drug Benefits, 2014)

Readiness to Implement Continuum of Care Standards by Commission on Cancer Accredited Programs (American Psychosocial Oncology Society Annual Conference, 2014)

Patient Experience with Survivorship Care Plans: Findings from the Cancer Experience Registry® (Biennial Cancer Survivorship Conference, 2014)

Characterizing the Metastatic Breast Cancer Patient Experience Around Preparing for a Treatment Decision (San Antonio Breast Cancer Symposium, 2014)

Treatment Decision-Making Factors Among Individuals with Lung Cancer: Results from a National Education Program (International Cancer Education Conference, 2014)

2013

Evaluation of question-listing at the Cancer Support Community (Cancer Support Community, 2013)

Identification of Gaps in Resources and Support for Brain Tumor Patients and Caregivers: Results from an Online Survey (International Cancer Education Conference, 2013)

Decisional Factors Influencing Breast Reconstruction Post-Mastectomy (Society of Behavioral Medicine Annual Meeting & Scientific Sessions, 2013)

CancerSupportSource Implementation Poster (National Comprehensive Cancer Network Annual Conference, 2013)

CancerSupportSource: Validating a Web-Based Distress Screening Tool in the Community (National Comprehensive Cancer Network 18th Annual Conference, 2013)

Discriminatory Power of Distress Screening Poster (American Society of Clinical Oncology Annual Meeting, 2013)

Discriminatory Power of a 25-Item Distress Screening Tool CancerSupportSource: A Cross-Sectional Study of 251 Cancer Survivors (American Society of Clinical Oncology Annual Meeting, 2013)

Empowering Patients and Caregivers through a National Patient Education Program (International Cancer Education Conference, 2013)

A Four Year Review of the Financial Burden of Cancer Care: Results from a National Education Program (American Public Health Association Annual Meeting and Exposition, 2013)

Provider-Patient Communication About Cost of Care: Results from a National Patient Education Program (American Society of Clinical Oncology Annual Meeting, 2013)

Do I Have Cancer? Understanding the Needs of Myelofibrosis Patients (International Cancer Education Conference, 2013)

Understanding the Experience of Living with Non-Small Cell Lung Cancer (American Society of Clinical Oncology Annual Meeting, 2013)

Understanding the Multiple Myeloma Experience: Results from an Online Survey (International Cancer Education Conference, 2013)

Evaluation of Question-Listing at the Cancer Support Community (Translational Behavioral Medicine, 2013)

Provider-Patient Communication About Cost of Care: Results from a National Patient Education Program (American Society of Clinical Oncology Annual Meeting, 2013)

Evaluation of the Efficacy and Usability of NCI’s Facing Forward Booklet in the Cancer Community Setting (Journal of Cancer Survivorship, 2013)

Improving Patient-Provider Communication and Shared Decision Making in Metastatic Breast Cancer (International Cancer Education Conference, 2013)

2012

Perceptions of Marginalization in Those Affected by Advanced Breast Cancer (San Antonio Breast Cancer Symposium, 2012)

Empowering Women with Breast Cancer during the Decision-Making Process About Breast Reconstruction Options: Results from Nationwide Patient Education Workshops (American Public Health Association Annual Meeting and Exposition, 2012)

Informational Needs among Women Considering Breast Reconstruction Post-Mastectomy (San Antonio Breast Cancer Symposium, 2012)

Patient Informational Needs about Breast Reconstruction Post Mastectomy (ASCO Breast Cancer Symposium, 2012)

CancerSupportSource (CSS) Validation: Psychometric Properties of a 25-item Distress Screening Tool in a Community Sample of 251 Cancer Survivors (Biennial Cancer Survivorship Research Conference, 2012)

Community-Based Distress Screening: Findings from an Online Registry (Society of Behavioral Medicine Annual Meeting and Scientific Sessions, 2012)

From Distress Guidelines to Developing Models of Psychosocial Care (Journal of Psychosocial Oncology, 2012)

Implementing Community-Based Distress Screening (Society of Behavioral Medicine Symposium, 2012)

The Value of a Lung Cancer Education Program for Patients and Caregivers (International Cancer Education Conference, 2012)

Closing the Gap: Meeting the Needs of Liver Cancer Patients through Education (International Cancer Education Conference, 2012)

A Five Year Review of an Educational Program Focused on Meeting the Needs of Advanced Breast Cancer Patients (ASCO Breast Cancer Symposium, 2012)

The Impact of Age on Cancer Survivors' Psycho-Social Distress (Annual GSA Conference, 2012)

Assessing the Educational and Psychosocial Needs of Women with Ovarian Cancer (International Cancer Education Conference, 2012)

Developing a Comprehensive Program to Address Psychosocial Concerns of Young Women with Metastatic Breast Cancer (International Cancer Education Conference, 2012)

Distress Associated with Problems with Sexual Function among Breast Cancer Survivors (American Psychosocial Oncology Society Annual Conference, 2012)

Assessing Patient Experiences with Survivorship Care Plans: Breast Cancer Survivors (Society of Behavioral Medicine Annual Meeting & Scientific Sessions, 2012)

Breast Cancer Survivors’ Beliefs about Environmental Risk Factors: Results from a National Cancer Survivor Registry (Biennial Cancer Survivorship Research Conference, 2012)

Partnering to Improve Health Outcomes of Post Treatment Cancer Survivors (American Public Health Association Annual Meeting and Exposition, 2012)

Problem-Related Distress and Quality of Life in Cancer Survivors (American Psychosocial Oncology Society Annual Conference, 2012)

National Findings on How Cancer Patients Make Treatment Decisions  (International Cancer Education Conference, 2012)

2011

Closing the Gap: Results from a National Survey of Breast Cancer Survivors Regarding Breast Reconstruction Options and Health Education Resources(American Public Health Association Annual Meeting and Exposition, 2011)

Decisional Factors Influencing Breast Reconstruction Post-Mastectomy: Results from a National Survey (American Psychosocial Oncology Society Annual Conference, 2011)

Novel Programming to Meet Unmet Needs - Frankly Speaking About Cancer: Spotlight on Breast Reconstruction (International Cancer Education Conference, 2011)

Patient-Provider Communication and Patient Informational Needs for Breast Reconstruction Post-Mastectomy: Results from a National Survey (San Antonio Breast Cancer Symposium, 2011)

Creating an Integrative Biopsychosocial Screening Model (American Psychosocial Oncology Society Annual Conference, 2011)

Developing a Community-Based Screening Instrument (American Society of Clinical Oncology Annual Meeting, 2011)

Validation of a Problem-Based Biopsychosocial Screening Instrument (Society of Behavioral Medicine Annual Meeting and Scientific Sessions, 2011)

A Decade of Successful Outreach and Cancer Patient Education: Frankly Speaking About Cancer (International Cancer Education Conference, 2011)

Frankly Speaking About Cancer: A National Model of Success for Cancer Education and Patient Empowerment (American Public Health Association Annual Meeting and Exposition, 2011)

SCOPED Question-Listing among Hematological Cancer Patients (American Public Health Association Annual Meeting and Exposition, 2011)

Breast Care Patient Distress Associated with Difficulties Navigating the Costs Associated with Care: Results from a National Education Program (San Antonio Breast Cancer Symposium, 2011)

Patient Distress Due to Difficulties Navigating the Costs Associated with Cancer Care: Results from a National Education Program (International Cancer Education Conference, 2011)

Weathering the Storm Is Not Enough: Oncology Social Work as a Lifeline for Quality Cancer Care (Association of Oncology Social Work, Quality of Life Award, 2011)

Group Loop: A Website for Teens Impacted by Cancer (LIVESTRONG Young Adult Alliance, 2011)

What About US: Children and Teen Living with Cancer in the Family (Association of Oncology Social Work, 2011)

Patient Experience with Survivorship Care Plans: Online Experience of Breast Cancer Survivors (American Society of Clinical Oncology Annual Meeting, 2011)

Assessing Breast Cancer Survivor Needs for Treatment Decision Support (Society of Behavioral Medicine Annual Meeting & Scientific Sessions, 2011)

Predictors of Change Following a Treatment Decision Support Program (American Psychosocial Oncology Society Annual Conference, 2011)

2010

Academy of Oncology Nurse and Patient Navigators Annual Conference

How Patient and Caregiver Informational and Psychosocial Needs are Being Met in Practice: Results from a National Melanoma Survey (Annual Conference of the Academy of Oncology Nurse and Patient Navigators - AONN, 2016)

Affiliate Leadership Conference, Cancer Support Community

American Health & Drug Benefits

The American Journal of Managed Care

Evolving Strategies for the Management of Multiple Myeloma (The American Journal of Managed Care, 2014)

American Psychosocial Oncology Society Annual Conference

Psychosocial Health Disparity Among Diverse Racial-ethnic Groups: Implications for the Use of a Patient-Powered Registry (American Psychosocial Oncology Society, 2016)

Readiness to Implement Continuum of Care Standards by Commission on Cancer Accredited Programs (American Psychosocial Oncology Society Annual Conference, 2014)

Distress Associated with Problems with Sexual Function among Breast Cancer Survivors (American Psychosocial Oncology Society Annual Conference, 2012)

Problem-Related Distress and Quality of Life in Cancer Survivors (American Psychosocial Oncology Society Annual Conference, 2012)

Creating an Integrative Biopsychosocial Screening Model (American Psychosocial Oncology Society Annual Conference, 2011)

Decisional Factors Influencing Breast Reconstruction Post-Mastectomy: Results from a National Survey (American Psychosocial Oncology Society Annual Conference, 2011)

Predictors of Change Following a Treatment Decision Support Program (American Psychosocial Oncology Society Annual Conference, 2011)

American Psychosocial Oncology Society Conference

Informing and Empowering Cancer Patients About Immunotherapy (American Psychosocial Oncology Society Conference, 2016)

American Public Health Association Annual Meeting and Exposition

Difference in the Cancer Patient Experience across Patient Settings (American Public Health Association Annual Meeting and Exposition, 2014)

A Four Year Review of the Financial Burden of Cancer Care: Results from a National Education Program (American Public Health Association Annual Meeting and Exposition, 2013)

Empowering Women with Breast Cancer during the Decision-Making Process About Breast Reconstruction Options: Results from Nationwide Patient Education Workshops (American Public Health Association Annual Meeting and Exposition, 2012)

Partnering to Improve Health Outcomes of Post Treatment Cancer Survivors (American Public Health Association Annual Meeting and Exposition, 2012)

Closing the Gap: Results from a National Survey of Breast Cancer Survivors Regarding Breast Reconstruction Options and Health Education Resources (American Public Health Association Annual Meeting and Exposition, 2011)

Frankly Speaking About Cancer: A National Model of Success for Cancer Education and Patient Empowerment (American Public Health Association Annual Meeting and Exposition, 2011)

SCOPED Question-Listing among Hematological Cancer Patients (American Public Health Association Annual Meeting and Exposition, 2011)

Frankly Speaking About Advanced Breast Cancer: Development, Implementation, Evaluation, and New Directions (American Public Health Association Annual Meeting and Exposition, 2010)

American Society of Clinical Oncology

Definitions of Value among Patients with Breast Cancer ( American Society of Clinical Oncology, 2016)

Cancer Patient Experience with Financial Counseling among Participants of an Online Registry (American Society of Clinical Oncology, 2016)

Treatment-Adherence Beliefs and Behaviors in Patients with Chronic Myeloid Leukemia (American Society of Clinical Oncology Annual Meeting, 2015)

Sexual Morbidity and Unmet Needs among Members of a Metastatic Breast Cancer Registry (American Society of Clinical Oncology Annual Meeting, 2015)

The Impact of Question-Listing on Distress, Anxiety, and Question Self-Efficacy among Cancer Patients (American Society of Clinical Oncology Annual Meeting, 2014)

Lower Income Is Associated with Greater Likelihood to Seek Social and Emotional Support: Findings from a Community-Based Distress Screening Program (American Society of Clinical Oncology Annual Meeting, 2014)

Provider-Patient Communication About Cost of Care: Results from a National Patient Education Program (American Society of Clinical Oncology Annual Meeting, 2013)

Understanding the Experience of Living with Non-Small Cell Lung Cancer (American Society of Clinical Oncology Annual Meeting, 2013)

Discriminatory Power of a 25-Item Distress Screening Tool CancerSupportSource: A Cross-Sectional Study of 251 Cancer Survivors (American Society of Clinical Oncology Annual Meeting, 2013)

Discriminatory Power of Distress Screening Poster (American Society of Clinical Oncology Annual Meeting, 2013)

Developing a Community-Based Screening Instrument (American Society of Clinical Oncology Annual Meeting, 2011)

Patient Experience with Survivorship Care Plans: Online Experience of Breast Cancer Survivors (American Society of Clinical Oncology Annual Meeting, 2011)

American Society of Hematology

Annual GSA Conference

APOS

ASCO Breast Cancer Symposium

ASCO Cancer Survivorship Symposium: Advancing Care and Research

Association for Value-Based Cancer Care

Association of Oncology Social Work

Biennial Cancer Survivorship Research Conference

Cancer Support Community Report

Access to Care in Cancer 2016: Barriers and Challenges (Cancer Support Community, 2016)

Treatment Decision Making Priorities and Satisfaction Among Older Prostate Cancer Survivors (Cancer Support Community, Research and Training Institute, Philadelphia PA)

An Insight into Patient Access to Care in Cancer (Cancer Support Community Report, 2015)

Elevating the Patient Voice: Cancer Experience Registry Index Report 2013 - 2014 (Cancer Support Community Report, 2014)

European Journal of Cancer Care

Gerontological Society of America Annual Scientific Meeting

International Cancer Education Conference

Meeting the Educational Needs of Older Adults with Cancer: Results From a National Sample of Program Attendees (International Cancer Education Conference, 2016)

Caregiver Participation in a Psychoeducational Cancer Support Program: Results From A National Sample  (International Cancer Education Conference, 2016)

Response To Psychoeducational Programs In Long-Term Cancer Survivors: Results From A National Sample(International Cancer Education Conference, 2016)

Informational and Emotional Support Utilization and Needs of Lung Cancer Patients and Caregivers: Results from a National Education Program (International Cancer Education Conference, 2014)

Treatment Decision-Making Factors Among Individuals with Lung Cancer: Results from a National Education Program (International Cancer Education Conference, 2014)

Empowering Patients and Caregivers through a National Patient Education Program (International Cancer Education Conference, 2013)

Identification of Gaps in Resources and Support for Brain Tumor Patients and Caregivers: Results from an Online Survey (International Cancer Education Conference, 2013)

Improving Patient-Provider Communication and Shared Decision Making in Metastatic Breast Cancer (International Cancer Education Conference, 2013)

Do I Have Cancer? Understanding the Needs of Myelofibrosis Patients (International Cancer Education Conference, 2013)

Understanding the Multiple Myeloma Experience: Results from an Online Survey (International Cancer Education Conference, 2013)

Assessing the Educational and Psychosocial Needs of Women with Ovarian Cancer (International Cancer Education Conference, 2012)

Closing the Gap: Meeting the Needs of Liver Cancer Patients through Education (International Cancer Education Conference, 2012)

Developing a Comprehensive Program to Address Psychosocial Concerns of Young Women with Metastatic Breast Cancer (International Cancer Education Conference, 2012)

National Findings on How Cancer Patients Make Treatment Decisions (International Cancer Education Conference, 2012)

The Value of a Lung Cancer Education Program for Patients and Caregivers (International Cancer Education Conference, 2012)

Novel Programming to Meet Unmet Needs - Frankly Speaking About Cancer: Spotlight on Breast Reconstruction (International Cancer Education Conference, 2011)

Patient Distress Due to Difficulties Navigating the Costs Associated with Cancer Care: Results from a National Education Program (International Cancer Education Conference, 2011)

A Decade of Successful Outreach and Cancer Patient Education: Frankly Speaking About Cancer (International Cancer Education Conference, 2011)

Frankly Speaking About Cancer: A Model of Patient Education (International Cancer Education Conference, 2010)

Cancer Support Community's 'Coping with the Cost of Care' Program: An Indication of the Need for More Education and Support (International Cancer Education Conference, 2010)

International Congress of Behavioral Medicine

The Hidden Costs of Cancer: Barriers to Accessing Financial Assistance (International Congress of Behavioral Medicine, 2010

Journal of Cancer Survivorship

The Journal of Community and Supportive Oncology

The Need for Decision and Communication Aids: A Survey of Breast Cancer Survivors (The Journal of Community and Supportive Oncology, 2015)

Understanding the Experience of Living with Non–Small Cell Lung Cancer (NSCLC): A Qualitative Study (The Journal of Community and Supportive Oncology, 2014)

Journal of the National Comprehensive Cancer Network

Journal of Psychosocial Oncology

LIVESTRONG Young Adult Alliance

Group Loop: A Website for Teens Impacted by Cancer (LIVESTRONG Young Adult Alliance, 2011)

National Comprehensive Cancer Network Annual Conference

Quality of Life Research

San Antonio Breast Cancer Symposium

Society of Behavioral Medicine Annual Meeting & Scientific Sessions

Cancer-related Distress Among Different Racial-ethnic Groups from a Community-based Distress Screening Program (Society of Behavioral Medicine, 37th Annual Meeting and Scientific Sessions, 2016)

Physical, Mental and Social Health among Multiple Myeloma Patients and Perceived Control over the Course of Cancer (Society of Behavioral Medicine Annual Meeting and Scientific Sessions, 2015)

CancerSupportSource: Validating a 25-Item Spanish Web-Based Distress Screening Tool in the Community (Society of Behavioral Medicine Annual Meeting & Scientific Sessions, 2014)

Decisional Factors Influencing Breast Reconstruction Post-Mastectomy (Society of Behavioral Medicine Annual Meeting & Scientific Sessions, 2013)

Assessing Patient Experiences with Survivorship Care Plans: Breast Cancer Survivors (Society of Behavioral Medicine Annual Meeting & Scientific Sessions, 2012)

Community-Based Distress Screening: Findings from an Online Registry (Society of Behavioral Medicine Annual Meeting and Scientific Sessions, 2012)

Assessing Breast Cancer Survivor Needs for Treatment Decision Support (Society of Behavioral Medicine Annual Meeting & Scientific Sessions, 2011)

Validation of a Problem-Based Biopsychosocial Screening Instrument (Society of Behavioral Medicine Annual Meeting and Scientific Sessions, 2011)

The Hidden Costs of Cancer: Barriers to Accessing Financial Assistance (Society of Behavioral Medicine Annual Meeting and Scientific Sessions, 2010)

Society of Behavioral Medicine Symposium

Implementing Community-Based Distress Screening (Society of Behavioral Medicine Symposium, 2012)

Translational Behavioral Medicine

World Congress of Pyscho-Oncology