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The Cancer Support Community is continually working on new research in various topics areas that are important to people impacted by cancer. Below please find access to reports, posters and presentations of our research, categorized by topic area. Many of these posters and presentations have been presented at prominent cancer focused conferences and meetings, including the American Society of Clinical Oncology (ASCO) annual meeting and the National Comprehensive Cancer Network Annual Conference.

Access to Care

Cancer Management

Treatment-Adherence Beliefs and Behaviors in Patients with Chronic Myeloid Leukemia (American Society of Clinical Oncology Annual Meeting, 2015)

Evolving Strategies for the Management of Multiple Myeloma (The American Journal of Managed Care, 2014)

Breast Reconstruction

Caregivers’ Needs

Clinical Trials: Patient Perception and Participation

Distress Screening and Referral

Cancer-related Distress Among Different Racial-ethnic Groups from a Community-based Distress Screening Program (Society of Behavioral Medicine, 37th Annual Meeting and Scientific Sessions, 2016)

Discriminatory Power of A 15-item Distress Screening Tool Among Those at Risk for Depression: Implications for Triage Post Distress Screening (National Comprehensive Cancer Network Annual Conference, 2016)

Cancer-Related Distress and Unmet Needs Among Newly Diagnosed and Longer-Term Cancer Survivors from a Community-Based Distress Screening Program (ASCO Cancer Survivorship Symposium: Advancing Care and Research, 2016)

Measuring the Value of Telephone Distress Screening and Referral on Resource Utilization and Distress in Patients with Multiple Myeloma (Association of Value-Based Cancer Care Meeting, 2015)

CancerSupportSource (CSS): Validating a 13-Item Web-Based Distress Screening Tool in the Community - Abstract Version (National Comprehensive Cancer Network Annual Conference, 2014)

CancerSupportSource (CSS): Validating a 13-Item Web-based Distress Screening Tool in the Community - Poster Version (National Comprehensive Cancer Network Annual Conference, 2014)

CancerSupportSource (CSS): Validating a 15-Item Spanish Web-Based Screening Tool in the Community - Abstract Version (National Comprehensive Cancer Network Annual Conference, 2014)

CancerSupportSource (CSS): Validating a 15-Item Spanish Web-Based Screening Tool in the Community - Poster Version (National Comprehensive Cancer Network Annual Conference, 2014)

CancerSupportSource: Validating a 25-Item Spanish Web-Based Distress Screening Tool in the Community (Society of Behavioral Medicine Annual Meeting & Scientific Sessions, 2014)

Discriminatory Power of a 25-Item Distress Screening Tool: A Cross-sectional Survey of 251 Cancer Survivors (Quality of Life Research, 2014)

CancerSupportSource Implementation Poster (National Comprehensive Cancer Network Annual Conference, 2013)

CancerSupportSource: Validating a Web-Based Distress Screening Tool in the Community (National Comprehensive Cancer Network 18th Annual Conference, 2013)

Discriminatory Power of Distress Screening Poster (American Society of Clinical Oncology Annual Meeting, 2013)

Discriminatory Power of a 25-Item Distress Screening Tool CancerSupportSource: A Cross-Sectional Study of 251 Cancer Survivors (American Society of Clinical Oncology Annual Meeting, 2013)

CancerSupportSource (CSS) Validation: Psychometric Properties of a 25-item Distress Screening Tool in a Community Sample of 251 Cancer Survivors (Biennial Cancer Survivorship Research Conference, 2012)

Community-Based Distress Screening: Findings from an Online Registry (Society of Behavioral Medicine Annual Meeting and Scientific Sessions, 2012)

From Distress Guidelines to Developing Models of Psychosocial Care (Journal of Psychosocial Oncology, 2012)

Implementing Community-Based Distress Screening (Society of Behavioral Medicine Symposium, 2012)

Creating an Integrative Biopsychosocial Screening Model (American Psychosocial Oncology Society Annual Conference, 2011)

Developing a Community-Based Screening Instrument (American Society of Clinical Oncology Annual Meeting, 2011)

Validation of a Problem-Based Biopsychosocial Screening Instrument (Society of Behavioral Medicine Annual Meeting and Scientific Sessions, 2011)

Education and Empowerment

Informing and Empowering Cancer Patients About Immunotherapy (American Psychosocial Oncology Society Conference, 2016)

Informational and Emotional Support Utilization and Needs of Lung Cancer Patients and Caregivers: Results from a National Education Program (International Cancer Education Conference, 2014)

Empowering Patients and Caregivers through a National Patient Education Program (International Cancer Education Conference, 2013)

The Value of a Lung Cancer Education Program for Patients and Caregivers (International Cancer Education Conference, 2012)

Closing the Gap: Meeting the Needs of Liver Cancer Patients through Education (International Cancer Education Conference, 2012)

A Five Year Review of an Educational Program Focused on Meeting the Needs of Advanced Breast Cancer Patients (ASCO Breast Cancer Symposium, 2012)

A Decade of Successful Outreach and Cancer Patient Education: Frankly Speaking About Cancer (International Cancer Education Conference, 2011)

Frankly Speaking About Cancer: A National Model of Success for Cancer Education and Patient Empowerment (American Public Health Association Annual Meeting and Exposition, 2011)

SCOPED Question-Listing among Hematological Cancer Patients (American Public Health Association Annual Meeting and Exposition, 2011)

Encouraging 'Patient Active' in the Treatment of Advanced Breast Cancer: Results from the Frankly Speaking About Advanced Breast Cancer Psychoeducational Program (ASCO Breast Cancer Symposium, 2010)

Frankly Speaking About Cancer: A Model of Patient Education (International Cancer Education Conference, 2010)

Financial Impact

Cancer Patient Experience with Financial Counseling among Participants of an Online Registry (American Society of Clinical Oncology, 2016)

Multiple Myeloma Patient Experience with Financial Toxicity (American Society of Hematology, 2015)

The Financial Costs of Metastatic Breast Cancer and the Decisions Patients Make to Cope with Costs: Findings from the Cancer Experience Registry (San Antonio Breast Cancer Symposium, 2014)

The Financial Costs of Chronic Myeloid Leukemia and Implications for Quality of Life and Adherence (American Society for Hematology, 2014)

A Four Year Review of the Financial Burden of Cancer Care: Results from a National Education Program (American Public Health Association Annual Meeting and Exposition, 2013)

Provider-Patient Communication About Cost of Care: Results from a National Patient Education Program (American Society of Clinical Oncology Annual Meeting, 2013)

Breast Care Patient Distress Associated with Difficulties Navigating the Costs Associated with Care: Results from a National Education Program (San Antonio Breast Cancer Symposium, 2011)

Patient Distress Due to Difficulties Navigating the Costs Associated with Cancer Care: Results from a National Education Program (International Cancer Education Conference, 2011)

Cancer Support Community's 'Coping with the Cost of Care' Program: An Indication of the Need for More Education and Support (International Cancer Education Conference, 2010)

The Hidden Costs of Cancer: Barriers to Accessing Financial Assistance (Society of Behavioral Medicine Annual Meeting and Scientific Sessions, 2010)

The Hidden Costs of Cancer: Barriers to Accessing Financial Assistance (Biennial Cancer Survivorship Research Conference, 2010)

The Hidden Costs of Cancer: Barriers to Accessing Financial Assistance (International Congress of Behavioral Medicine, 2010)

Mental Health and Psychosocial Support

Physical, Mental and Social Health among Multiple Myeloma Patients and Perceived Control over the Course of Cancer (Society of Behavioral Medicine Annual Meeting and Scientific Sessions, 2015)

Psychological Distress and Financial Burden Impact Adherence to CML Treatment (American Health & Drug Benefits, 2015)

The Alliance for Quality Psychosocial Cancer Care: An Innovative Model for Disseminating and Improving Implementation of National Quality Care Recommendations (Journal of the National Comprehensive Cancer Network, 2014)

Cancer-Related Distress and Unmet Needs among Members of a Metastatic Breast Cancer Registry (ASCO Breast Cancer Symposium, 2014)

Impact of a Patient Access Program with Integrated Distress Screening on Resource Utilization and Psychosocial Distress Levels in Patients with Multiple Myeloma (American Society of Hematology Annual Meeting, 2014)

The Impact of Question-Listing on Distress, Anxiety, and Question Self-Efficacy among Cancer Patients (American Society of Clinical Oncology Annual Meeting, 2014)

Lower Income Is Associated with Greater Likelihood to Seek Social and Emotional Support: Findings from a Community-Based Distress Screening Program (American Society of Clinical Oncology Annual Meeting, 2014)

The Impact of Age on Cancer Survivors' Psycho-Social Distress (Annual GSA Conference, 2012)

Assessing the Educational and Psychosocial Needs of Women with Ovarian Cancer (International Cancer Education Conference, 2012)

Developing a Comprehensive Program to Address Psychosocial Concerns of Young Women with Metastatic Breast Cancer (International Cancer Education Conference, 2012)

Patient Experience and Needs

Cancer Patient Experience with Financial Counseling among Participants of an Online Registry (American Society of Clinical Oncology, 2016)

Definitions of Value among Patients with Breast Cancer ( American Society of Clinical Oncology, 2016)

Psychosocial Health Disparity Among Diverse Racial-ethnic Groups: Implications for the Use of a Patient-Powered Registry (American Psychosocial Oncology Society, 2016)

Symptom Burden and Palliative Care for Multiple Myeloma Patients: Cancer Experience Registry Findings (American Society of Hematology, 2015)

Cancer Experience Registry Cancer Experience Days and the Critical Role of Affiliates in Outreach (Affiliate Leadership Conference, Cancer Support Community, 2014)

Difference in the Cancer Patient Experience across Patient Settings (American Public Health Association Annual Meeting and Exposition, 2014)

Elevating the Patient Voice: Cancer Experience Registry Index Report 2013 - 2014 (Cancer Support Community Report, 2014)

Elevating the Patient Voice: Overview of the Cancer Experience Registry Index Report 2013 - 2014 (Affiliate Leadership Conference, Cancer Support Community, 2014)

Understanding the Experience of Living with Non–Small Cell Lung Cancer (NSCLC): A Qualitative Study (The Journal of Community and Supportive Oncology, 2014)

Do I Have Cancer? Understanding the Needs of Myelofibrosis Patients (International Cancer Education Conference, 2013)

Understanding the Experience of Living with Non-Small Cell Lung Cancer (American Society of Clinical Oncology Annual Meeting, 2013)

Understanding the Multiple Myeloma Experience: Results from an Online Survey (International Cancer Education Conference, 2013)

Patient Provider Communication

Patient Value

Cancer Patients' Priorities When Considering a Treatment Decision  (Biennial Cancer Survivorship Conference, 2016) 

Definitions of Value among Patients with Breast Cancer ( American Society of Clinical Oncology, 2016)

Defining Value in Oncology: Perspectives from Patients with Metastatic Breast Cancer (Association for Value-Based Cancer Care, 5th Annual Conference, 2015)

Program Development, Implementation and Quality

Teens’ Needs

Group Loop: A Website for Teens Impacted by Cancer (LIVESTRONG Young Adult Alliance, 2011)

What About US: Children and Teen Living with Cancer in the Family (Association of Oncology Social Work, 2011)

Sexual Health

Sexual Morbidity and Unmet Needs among Members of a Metastatic Breast Cancer Registry (American Society of Clinical Oncology Annual Meeting, 2015)

Distress Associated with Problems with Sexual Function among Breast Cancer Survivors (American Psychosocial Oncology Society Annual Conference, 2012)

Survivorship

Patient Experience with Survivorship Care Plans: Findings from the Cancer Experience Registry® (Biennial Cancer Survivorship Conference, 2014)

Evaluation of the Efficacy and Usability of NCI’s Facing Forward Booklet in the Cancer Community Setting (Journal of Cancer Survivorship, 2013)

Assessing Patient Experiences with Survivorship Care Plans: Breast Cancer Survivors (Society of Behavioral Medicine Annual Meeting & Scientific Sessions, 2012)

Breast Cancer Survivors’ Beliefs about Environmental Risk Factors: Results from a National Cancer Survivor Registry (Biennial Cancer Survivorship Research Conference, 2012)

Partnering to Improve Health Outcomes of Post Treatment Cancer Survivors (American Public Health Association Annual Meeting and Exposition, 2012)

Problem-Related Distress and Quality of Life in Cancer Survivors (American Psychosocial Oncology Society Annual Conference, 2012)

Patient Experience with Survivorship Care Plans: Online Experience of Breast Cancer Survivors (American Society of Clinical Oncology Annual Meeting, 2011)

Treatment Decision-Making

Work Impact