MPN Awareness Activities and Resources

CSC recognizes all patients and their loved ones who are living with MPNs on MPN Awareness Day, September 12, 2013 and throughout the month of September, Blood Cancer Awareness Month.
 
Below is a list of activities presented by the MPN Coalition in recognition of MPN Awareness Day and Blood Cancer Awareness Month.

September 4, 2013
NORD
Event: Social Media Awareness
www.rarediseases.org

September 10, 2013 4PM ET
Cancer Support Community
Event: Living with Myeloproliferative Neoplasms
www.cancersupportcommunity.org

September 11, 2013 from 1:30-2:30pm ET
CancerCare
Event: Connect Education Workshops: Part I of Living with Myelofibrosis
www.cancercare.org

September 12, 2013
MPN Advocacy & Education International
Event: MPN Educational Symposium
www.Mpnadvocacy.com

September 15, 2013
MPN Education Foundation
Event: Patient education presentation
www.MPDinfo.com

September 17, 2013 7PM ET
MPN Research Foundation
Event: MPNChat on Twitter!
www.mpnresearchfoundation.org

September 30, 2013
MPN Research Foundation
Event: Chicago September Support Group Meeting
www.mpnresearchfoundation.org

October 9, 2013
Cancer Care
Event: Connect Education Workshops: Part II of Living With Myelofibrosis
www.cancercare.org

October 13, 2013
MPN Education Foundation
Event: Patient/Doctor Meeting
www.mpdinfo.com

November 13, 2013 from 3:00pm – 4:00PM ET
Cancer Support Community
Event: Living with a MPN Webinar

Information and Education Resources

NORD
Social Media Awareness: Twitter
Social Media Awareness: Facebook
Quick fact cards and feature patient stories

Leukemia and Lymphoma Society
Fact sheet: Essential Thrombocythemia
Fact sheet: Myelofibrosis
Fact sheet: Polycythemia Vera
Webinar: Advances in Blood Cancers: Update on Treatment for Myelofibrosis

MPN Education Foundation
http://www.mpdinfo.org/
 

MPN Research Foundation
http://www.mpnresearchfoundation.org/


Cancer Support Community
Webinar :Frankly Speaking about Cancer: Myelofibrosis

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