On July 18, 2017, the Cancer Support Community hosted an educational event to present the key findings and survey results from the Cancer Experience Registry. The goal of this project is to better understand patients’ cancer experiences by providing a forum for people to share their voices about issues that matter to them, connect with each other. Findings from this report will be communicated to the broader cancer community with the goal of making a difference in how people move through their cancer journey. The Registry documents insights from cancer patients across the cancer experience spectrum, illuminates key areas that impact patients’ lives and, informs stakeholders looking for data-driven care solutions and broad system change.
This report, the second since the Registry’s inception, presents analysis of survey responses from a subset of Prostate Registry participants in the following areas of focus:
- Demographics and background
- Cancer-related distress
- Quality of life
- Treatment decision-making and planning
- Side effects and symptom management
- Clinical trials
- Sexual Function and Intimacy
- Spousal Relationships/Support
- Patient-Provider Communication
To date, more than 12,000 participants—survivors, cancer patients, and caregivers—representing over 45 cancer types have joined the Registry, and the Cancer Support Community is committed to continue its efforts in expanding that number in 2017 and beyond.
Information on Clinical Trials
Cancer clinical trials provide patients with access to new therapies; the next generation of treatment. By joining a trial, you can help move cancer treatment forward and provide real hope for a better future.