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2019 Press Releases

CSC’s Sally Werner to Lead Session on Support Groups at CURE®’s New York Lung Cancers Symposium

October 17, 2019

On Saturday, November 9, Sally Werner, M.S.H.A., B.S.N., RN, Senior Vice President, Affiliate Relations, Cancer Support Community, will lead the “Support Groups” session at CURE®’s Patient Focused Sessions during the Physicians’ Education Resource® 14th Annual New York Lung Cancers Symposium®. Werner will also take part in the “Psychosocial” panel discussion. The Symposium is being held in New York City at the New York Marriott.

Cancer Support Community Leverages FreedomPay’s DecisionPoint Network™ to Drive Donations

October 3, 2019

FreedomPay, the world’s leading consumer-centric commerce platform, has announced that the Cancer Support Community (CSC), the largest professionally led non-profit network of cancer support worldwide, will leverage DecisionPoint Network™ to drive donations at Cedar Fair’s Kings Island Amusement Park in Ohio.

International Organization Recognizes CSC CEO Kim Thiboldeaux

Sept. 26, 2019

At a global conference featuring health experts and thought leaders, the (IPOS) presented Cancer Support Community CEO Kim Thiboldeaux with its President’s Community Award for Distinguished Contributions to IPOS.

New Study to Focus on Unmet Needs of Liver Cancer Patients

Sept. 9, 2019

The Cancer Support Community (CSC), a global nonprofit, is expanding its innovative patient experience work by launching a new research study to capture the patient experience of those diagnosed with liver cancer.

Broadway Cares/Equity Fights AIDS Donates $25,000 to the Cancer Support Community

June 7, 2019

As announced on Broadway.com, the Cancer Support Community (CSC) has been awarded a grant in the amount of $25,000 by Broadway Cares/Equity Fight AIDS in collaboration with the cast of Pretty Woman: The Musical. The gift is in memory of three-time Tony nominee and 2017 American Theatre Hall of Fame Inductee Marin Mazzie and in honor of her husband, Broadway star Jason Danieley, both Cancer Support Community Champions.

Tribal and Health Leaders Mark Major Advancement in Cancer Care for American Indians

May 23, 2019

Leaders of the Navajo Nation, the Tuba City Regional Health Care Corporation (TCRHCC), and the Cancer Support Community (CSC) joined Dr. Jill Biden on the Navajo Nation in marking a milestone moment: the opening of the first full-time cancer care center on an American Indian Reservation.

Cancer Support Community Presents First-Ever Kathryn West Inspiration Award

May 21, 2019

The inaugural Kathryn West Inspiration Award was presented to Andy Tao and Jeanne Beesley at the finish line of the Amgen Tour of California.

Cancer Support Community to Honor Barbara Bradley Baekgaard Family Foundation

April 10, 2019

Celebrated Entrepreneur Barbara Bradley Baekgaard, founder of Vera Bradley and Baekgaard USA, will accept award recognizing ground-breaking expansion of cancer support services.

Cancer Support Community to Honor Incyte’s Commitment to Innovative Ways to Help Patients

April 4, 2019

The Cancer Support Community (CSC) will present Incyte with the Founders Award for Innovation at its signature event slated for Tuesday, April 16 at The Lighthouse on Pier 61, part of the acclaimed Chelsea Piers complex on New York City’s Hudson River waterfront.

Cancer Support Community to Honor Broadway’s Ashley Park with Inaugural Marin Mazzie Award for Empowerment

March 13, 2019

A cancer survivor, Park will receive the honor from Mazzie’s husband, Jason Danieley.

Walgreens launches Feel More Like You, a first-of-its kind service to provide personalized care for people living with cancer

March 4, 2019

Program offers the expertise of more than 15,000 specially trained pharmacists and beauty consultants. Now available at more than 3,000 stores to help patients and caregivers manage the medical and physical changes associated with cancer treatment.

Broadway’s Jason Danieley Teams Up with the Cancer Support Community to Honor Wife’s Legacy as Advocate

February 11, 2019

Danieley’s participation in the 2019 United Airlines NYC Half to pay tribute to Marin Mazzie and raise funds for patients and caregivers.

New Study to Focus on Unique Needs of Acute Myeloid Leukemia Patients

January 30, 2019

The Cancer Support Community (CSC), a global nonprofit, is launching a unique research study focused on individuals diagnosed with Acute Myeloid Leukemia (AML), a cancer of the blood and bone marrow which accounts for approximately 19,520 new cases of cancer each year (American Cancer Society, 2018).

2018 Press Releases

Walgreens Launches “Feel More Like You” Program

November 19, 2018

Company is the first U.S. pharmacy, health and beauty retailer to integrate personalized oncology clinical care from pharmacists with beauty support services from specially trained beauty consultants

Cancer Support Community Welcomes Denver-Based Health Leader to Key Role

November 8, 2018

The Cancer Support Community (CSC), a global nonprofit, announced the addition of Susan Ash-Lee, MSW, LCSW to serve as Senior Director, Clinical Services.

Cancer Support Community Honors Marin Mazzie’s Legacy

September 14, 2018

Powerhouse actress worked to ensure that no one faces cancer alone

New Partnership to Increase Supportive Resources for Colorado Cancer Patients

July 13, 2018

Announcement comes as Lieutenant Governor and advocates mark Cancer Caregivers Day

Cancer Support Community Welcomes Denver Leaders to its National Board of Directors

June 6, 2018

David Hicks and Lizzy Morton’s election to CSC board coincides with the opening of a Digital Hub in Denver.

Three New Members to Join the Cancer Support Community’s Board of Directors

June 6, 2018

The Cancer Support Community’s (CSC) board of directors elected three new members at its recent meeting. The three distinguished individuals—Pankaj Amin, David Hicks, and Elizabeth Morton—come from a variety of professional backgrounds and join nearly two dozen current members.

Cancer Support Community Research Shows Improvements Needed in Patient-Health Care Team Communication

May 31, 2018

Studies include melanoma, gastric cancer, and nutritional needs

Cancer Support Community Welcomes Nationall Recognized Leader in Patient Research

May 7, 2018

Dr. Kevin Stein brings two decades of experience as groundbreaking researcher and thought leader to executive post.

Caregivers for Patients with Cancer Identify Key Challenges 

February 23, 2018

Under 20 Percent of Caregivers in Survey Get Formal Training, Less Than a Third Feel Prepared to Manage Related Stress.

Study Investigates Prostate Cancer Patients’ Views on Clinical Trials

February 8, 2018

Findings Reveal Persistent Misconceptions and Insufficient Dialogue.

In Big Advance for Patients, Cancer Support Community Adds Digital Nonprofit MyLifeLine to Its Network

January 30, 2018

As research shows more consumers are searching online for health information, this union will deliver innovative digital services for cancer patients.

New Study on Immunotherapy: Patients, Caregivers, and Providers Report Gaps in Understanding Treatment and Side Effects

January 25, 2018

Findings underscore need for resources aimed at helping patients and caregivers navigate this treatment.

Janssen and Leading Advocacy Organizations Introduce Cancer.com

January 1, 2018

Cancer.com features content tailored to each user plus a wealth of resources, including My Care Activator, an exclusive digital health coaching tool.

2017 Press Releases

Studies Point to Significant Impact on Quality of Life for Chronic Myeloid Leukemia and Multiple Myeloma Patients

December 11, 2017

The studies examine issues related to symptom burden for Chronic Myeloid Leukemia (CML) and Multiple Myeloma (MM) patients and were selected for poster and abstract presentation, respectively.

New Study Explores How CLL Affects Daily Life, Finances and Relationships

December 9, 2017

Half of Respondents in Chronic Lymphocytic Leukemia Patient Experience Study Say Diagnosis Affects Views on Life Expectancy. Over 20 Percent also Report Experiencing Substantial Levels of Anxiety and Fatigue

New Study Examines the Presence and Severity of Chemotherapy-induced Peripheral Neuropathy (“PN”) for Breast Cancer

December 9, 2017

Significant Percentage of Breast Cancer Survivors Report Experiencing Chemotherapy-Induced Peripheral Neuropathy that Disrupts Daily Living

Cancer Support Community Announces Three New Board Members

November 30, 2018

The Cancer Support Community (CSC) is pleased to announce the addition of three new members to its Headquarters Board of Directors: Bjoern Albrecht, Jing Liang, and Lynne O’Brien. The Board provides leadership and guidance for carrying out CSC’s mission to ensure that no one faces cancer alone.

Cancer Support Community and LIVESTRONG Launch the Next Generation of their Acclaimed Cancer Transitions Program to Help People Live Well Beyond Cancer 

September 28, 2017

The Cancer Support Community (CSC) and the LIVESTRONG Foundation (LIVESTRONG) today announced the launch of the next generation of their highly-regarded resource, Cancer Transitions: Moving Beyond Treatment, a free education program to help cancer survivors make the successful transition from active treatment to post-treatment and the next chapter in their lives.

Brian d'Arcy James Runs Chicago Marathon For CSC

September 14, 2017

Brian d'Arcy James of Netflix’s series 13 Reasons Why, Academy Award-winning film Spotlight, and Tony Award-winning Broadway hit Hamilton is set to take on the 26.2-mile-long challenge of the 2017 Bank of America Chicago Marathon on October 8th and raise money to support cancer patients and their loved ones served by the Cancer Support Community.

Cancer Support Community Connects the Cancer Experience Registry with Online Peer Support

September 13, 2017

CSC today announced a collaboration with Smart Patients, an online peer-to-peer support forum for patients and caregivers to connect CSC’s Cancer Experience Registry with Smart Patients’ Cancer Experience Forum. Patients, caregivers, and their family members can join the online support forum for free to share, connect, and learn from each other in a safe and supportive environment—regardless of their geographic location.

The Cancer Support Community Welcomes New Senior Leaders

September 12, 2017

The Cancer Support Community is pleased to announce the addition of a national public health leader and a former Obama administration official to its leadership team.

The Cancer Support Community Delivers Groundbreaking Immunotherapy Support and Education Program to Patients and Providers 

September 6, 2017

The Cancer Support Community (CSC) today announced the launch of Immunotherapy & Me, an innovative program to support the unique needs of patients receiving immunotherapy treatment, and the clinical staff who care for them. The program aims to identify and implement patient-centered practice solutions across the continuum of immunotherapy care. This is the first-of-its-kind immunotherapy pilot program in partnership with cancer centers in Colorado, Mississippi, New York, Ohio, Tennessee, and Washington.

Groundbreaking Change for Psychosocial Care Included in the Food and Drug Administration Reauthorization Act of 2017

August 30, 2017

The Cancer Support Community (CSC) applauds the passage of the Food and Drug Administration Reauthorization Act (FDARA) of 2017, which includes a key provision to better define the patient experience, that was signed into law by President Donald Trump on August 18, 2017.

Negative Perceptions of Cancer Clinical Trials Persist

August 4, 2017

CSC today announced the results of its study of cancer survivors’ perceptions of clinical trials at the 2017 American Psychological Association Annual Convention. The study shows that negative perceptions of clinical trials and low participation in trials persist—barriers that are elevated among racial and ethnic minorities.

Nearly Half of Cancer Caregivers Experience Substantial Anxiety and Feel Unprepared

August 4, 2017

CSC today announced the results of its study from the Cancer Experience Registry of cancer caregivers at the 2017 American Psychological Association Annual Convention. The study identified the top needs and concerns cancer caregivers are facing. Findings show that among other things, cancer caregivers experienced substantial anxiety (48 percent of respondents) and elevated fatigue (37 percent).

Persisting Gaps in Cancer Care Negatively Impact Patient Outcomes

July 18, 2017

The Cancer Support Community (CSC) today released a research report that found the scarcity of communication between patients and their care team about cost-of-care resulted in financial toxicity for patients living with cancer. In addition, nearly half (47 percent) of patients are identified as at risk for clinically significant levels of depression.

Cancer Moonshot: One Year Later Summit to Celebrate Progress and Identify Gaps in Cancer Care

June 27, 2017

Amid proposed federal government budget cuts, more than 250 cancer researchers, medical professionals, policymakers, patients, caregivers, survivors, and advocates will convene in Washington, D.C. today for Cancer Moonshot: One Year Later.

The Biden Cancer Initiative Names Cancer Support Community CEO Kim Thiboldeaux to Board of Directors 

June 26, 2017

The Biden Cancer Initiative today announced Kim Thiboldeaux, CEO of the Cancer Support Community (CSC), along with other national leaders in the cancer field, has been selected to serve on the Initiative’s Board of Directors.

The Cancer Support Community Voices Opposition to the Senate's Better Care Reconciliation Act (BCRA)

June 23, 2017

CSC announces its opposition to the Senate Better Care Reconciliation Act (BCRA). The legislation, made public after weeks of closed-door discussions, retains the most concerning provisions originally introduced in the House of Representative’s American Health Care Act (AHCA).

High Percentage of Melanoma Survivors Experience Significant Financial Burden

June 3, 2017

The Cancer Support Community (CSC) announced today the results of its study of melanoma patients as part of its Cancer Experience Registry, at the 2017 ASCO (American Society of Clinical Oncology) Annual Meeting.

Significant Percentage of Prostate Cancer Survivors Experience Treatment Regret

June 2, 2017

The Cancer Support Community (CSC) announced today the results of its study of prostate cancer patients as part of its Cancer Experience Registry, at the 2017 American Society of Clinical Oncology (ASCO) Annual Meeting.

Significant Percentage of Gastric Cancer Patients Can Be at Risk for Clinical Depression

June 1, 2017

The Cancer Support Community (CSC) announced today the results of its study of gastric cancer patients as part of its Cancer Experience Registry, at the 2017 ASCO (American Society of Clinical Oncology) Annual Meeting

CSC Supports the "Patient Experience in Research Act of 2017" (H.R. 2244) To Improve Clinical Trials

May 2, 2017

The Cancer Support Community announces its support for the bipartisan legislation, H.R. 2244, introduced by Rep. Leonard Lance (R-NJ) and Rep. Diana DeGette (D-CO) in the U.S. House of Representatives. CSC commends Congressman Lance and Congresswoman DeGette for their continued leadership and advocacy on patient protection and patient-centered legislation.

CSC Honors Vice President Joe Biden at 35th Anniversary Spring Celebration Gala

April 20, 2017

The Cancer Support Community honors Vice President Joe Biden and the former Cancer Moonshot team this evening with the Founders Award for Vision for their tireless efforts to galvanize action and improve the future for those affected by cancer.

Balancing Competing Demands puts Cancer Caregivers at High Risk for Emotional Distress

March 31, 2017

The Cancer Support Community’s Research and Training Institute developed and validated a distress screening program to identify and address social and emotional distress in cancer caregivers.

Study Shows Women, Younger People with Lung Cancer Worry More About Discrimination

March 23, 2017

Cancer Support Community research suggests different experiences with stigma among lung cancer populations.

Cancer Support Community Applauds Nomination of Scott Gottlieb as FDA Commissioner

March 13, 2017

The Cancer Support Community supports Dr. Scott Gottlieb as Commissioner of the U.S. Food and Drug Administration (FDA) and urges the Senate to vote in favor of his confirmation.

Study Shows People with Cancer Face Challenges with Access to Care

March 3, 2017

In a study presented by the Cancer Support Community today at the American Society of Clinical Oncology (ASCO) Quality Care Symposium, 68 percent of patients reported not discussing costs with their health care team prior to treatment, even though 43 percent of patients reported that their out of pocket costs were higher than expected.

Barbara Bradley Baekgaard Family Foundation and Cancer Support Community Announce Partnership to Develop Healing Spaces in Hospitals for Cancer Patients and Caregivers

February 14, 2017

The Barbara Bradley Baekgaard Family Foundation announced today its pledge of more than $500,000 to the Cancer Support Community, a nonprofit focused on the social and emotional impact of cancer, to create welcoming spaces in hospitals where cancer support groups and programs will be put in place.

2016 Press Releases

Cancer Support Community Awarded for Contributions in Oncology

Oct. 24, 2016

The Cancer Support Community was awarded last week the Annual Achievement Award of the Association of Community Cancer Centers (ACCC) for outstanding contributions nationally to cancer care and to patients with cancer.

Cancer Support Community Applauds White House in Release of Cancer Moonshot Task Force Report

Oct. 17, 2016

The Cancer Support Community was pleased to participate today in the White House’s release of the Cancer Moonshot Task Force Report, which outlines a detailed set of findings and recommendations to achieve the goals established for the Cancer Moonshot initiative earlier this year.

New Research Shows Disconnect Between Patients and Policymakers on Definition of 'Value' in Cancer Care

Sept. 29, 2016

New findings presented by the Cancer Support Community suggest that a significant proportion of patients have difficulty conceptualizing value in terms of current cost-benefit models used by policymakers.

Cancer Support Community Endorses Psychosocial Standards of Care For Children with Cancer and their Families

Sept. 8, 2016

The Cancer Support Community, an international cancer nonprofit, has endorsed the Psychosocial Standards of Care for Children with Cancer and their families that were published in a 2015 special issue of Pediatric Blood and Cancer.

Statement Regarding Death of Gene Wilder

Aug. 29, 2016

An honorary board member of the Cancer Support Community, Gene was instrumental in the 1991 founding of Gilda’s Club, named in honor of his late wife, comedienne Gilda Radner.

The Cancer Support Community Launches Program to Help Change Clinical Trial Misperception and Offer Solutions for Addressing Communication and Enrollment Challenges

June 22, 2016

The Cancer Support Community (CSC), an international nonprofit, today announced the launch of the Frankly Speaking About Cancer Clinical Trials program, a landmark cancer education series devoted to building awareness among patients and caregivers about the importance of clinical trials as a viable treatment option.

Concerns Around Pain, Treatment Decision-Making, 'Finding Meaning" Linked to Higher Levels of Distress Among Patients At Risk for Depression

March 31, 2016

Among patients who are at risk for depression, those who indicated high concerns around pain, making a treatment decision, and ‘finding meaning’ were significantly more likely to be experiencing higher levels of distress than those who were still at risk for depression but were experiencing lower levels of distress, according to research presented today by the Cancer Support Community, an international nonprofit, at the annual meeting of the National Comprehensive Cancer Network.

Cancer Support Community Launches New Website

Feb. 12, 2016

The Cancer Support Community, an international nonprofit, has launched its new website, www.CancerSupportCommunity.org, a destination for information, tools and support to manage the full impact of cancer.

New Registry to Examine Full Impact of Stomach Cancer

Feb. 2, 2016

The Cancer Support Community (CSC) and Debbie’s Dream Foundation: Curing Stomach Cancer (DDF) launched today the Cancer Experience Registry: Stomach Cancer, an addition to the Cancer Experience Registry that will focus on people living with stomach cancer, including gastroesophageal junction (GEJ) adenocarcinoma and other cancers of the gastric tract.