CSC Press Releases
2018 Press Releases
Caregivers for Patients with Cancer Identify Key Challenges
February 23, 2018
Under 20 Percent of Caregivers in Survey Get Formal Training, Less Than a Third Feel Prepared to Manage Related Stress.
Study Investigates Prostate Cancer Patients’ Views on Clinical Trials
February 8, 2018
Findings Reveal Persistent Misconceptions and Insufficient Dialogue.
January 30, 2018
As research shows more consumers are searching online for health information, this union will deliver innovative digital services for cancer patients.
January 25, 2018
Findings underscore need for resources aimed at helping patients and caregivers navigate this treatment.
2017 Press Releases
December 11, 2017
The studies examine issues related to symptom burden for Chronic Myeloid Leukemia (CML) and Multiple Myeloma (MM) patients and were selected for poster and abstract presentation, respectively.
New Study Explores How CLL Affects Daily Life, Finances and Relationships
December 9, 2017
Half of Respondents in Chronic Lymphocytic Leukemia Patient Experience Study Say Diagnosis Affects Views on Life Expectancy. Over 20 Percent also Report Experiencing Substantial Levels of Anxiety and Fatigue
December 9, 2017
Significant Percentage of Breast Cancer Survivors Report Experiencing Chemotherapy-Induced Peripheral Neuropathy that Disrupts Daily Living
Cancer Support Community Announces Three New Board Members
November 30, 2018
The Cancer Support Community (CSC) is pleased to announce the addition of three new members to its Headquarters Board of Directors: Bjoern Albrecht, Jing Liang, and Lynne O’Brien. The Board provides leadership and guidance for carrying out CSC’s mission to ensure that no one faces cancer alone.
September 28, 2017
The Cancer Support Community (CSC) and the LIVESTRONG Foundation (LIVESTRONG) today announced the launch of the next generation of their highly-regarded resource, Cancer Transitions: Moving Beyond Treatment, a free education program to help cancer survivors make the successful transition from active treatment to post-treatment and the next chapter in their lives.
Brian d'Arcy James Runs Chicago Marathon For CSC
September 14, 2017
Brian d'Arcy James of Netflix’s series 13 Reasons Why, Academy Award-winning film Spotlight, and Tony Award-winning Broadway hit Hamilton is set to take on the 26.2-mile-long challenge of the 2017 Bank of America Chicago Marathon on October 8th and raise money to support cancer patients and their loved ones served by the Cancer Support Community.
Cancer Support Community Connects the Cancer Experience Registry with Online Peer Support
September 13, 2017
CSC today announced a collaboration with Smart Patients, an online peer-to-peer support forum for patients and caregivers to connect CSC’s Cancer Experience Registry with Smart Patients’ Cancer Experience Forum. Patients, caregivers, and their family members can join the online support forum for free to share, connect, and learn from each other in a safe and supportive environment—regardless of their geographic location.
The Cancer Support Community Welcomes New Senior Leaders
September 12, 2017
The Cancer Support Community is pleased to announce the addition of a national public health leader and a former Obama administration official to its leadership team.
September 6, 2017
The Cancer Support Community (CSC) today announced the launch of Immunotherapy & Me, an innovative program to support the unique needs of patients receiving immunotherapy treatment, and the clinical staff who care for them. The program aims to identify and implement patient-centered practice solutions across the continuum of immunotherapy care. This is the first-of-its-kind immunotherapy pilot program in partnership with cancer centers in Colorado, Mississippi, New York, Ohio, Tennessee, and Washington.
August 30, 2017
The Cancer Support Community (CSC) applauds the passage of the Food and Drug Administration Reauthorization Act (FDARA) of 2017, which includes a key provision to better define the patient experience, that was signed into law by President Donald Trump on August 18, 2017.
Negative Perceptions of Cancer Clinical Trials Persist
August 4, 2017
CSC today announced the results of its study of cancer survivors’ perceptions of clinical trials at the 2017 American Psychological Association Annual Convention. The study shows that negative perceptions of clinical trials and low participation in trials persist—barriers that are elevated among racial and ethnic minorities.
Nearly Half of Cancer Caregivers Experience Substantial Anxiety and Feel Unprepared
August 4, 2017
CSC today announced the results of its study from the Cancer Experience Registry of cancer caregivers at the 2017 American Psychological Association Annual Convention. The study identified the top needs and concerns cancer caregivers are facing. Findings show that among other things, cancer caregivers experienced substantial anxiety (48 percent of respondents) and elevated fatigue (37 percent).
Persisting Gaps in Cancer Care Negatively Impact Patient Outcomes
July 18, 2017
The Cancer Support Community (CSC) today released a research report that found the scarcity of communication between patients and their care team about cost-of-care resulted in financial toxicity for patients living with cancer. In addition, nearly half (47 percent) of patients are identified as at risk for clinically significant levels of depression.
Cancer Moonshot: One Year Later Summit to Celebrate Progress and Identify Gaps in Cancer Care
June 27, 2017
Amid proposed federal government budget cuts, more than 250 cancer researchers, medical professionals, policymakers, patients, caregivers, survivors, and advocates will convene in Washington, D.C. today for Cancer Moonshot: One Year Later.
The Biden Cancer Initiative Names Cancer Support Community CEO Kim Thiboldeaux to Board of Directors
June 26, 2017
The Biden Cancer Initiative today announced Kim Thiboldeaux, CEO of the Cancer Support Community (CSC), along with other national leaders in the cancer field, has been selected to serve on the Initiative’s Board of Directors.
The Cancer Support Community Voices Opposition to the Senate's Better Care Reconciliation Act (BCRA)
June 23, 2017
CSC announces its opposition to the Senate Better Care Reconciliation Act (BCRA). The legislation, made public after weeks of closed-door discussions, retains the most concerning provisions originally introduced in the House of Representative’s American Health Care Act (AHCA).
High Percentage of Melanoma Survivors Experience Significant Financial Burden
June 3, 2017
The Cancer Support Community (CSC) announced today the results of its study of melanoma patients as part of its Cancer Experience Registry, at the 2017 ASCO (American Society of Clinical Oncology) Annual Meeting.
Significant Percentage of Prostate Cancer Survivors Experience Treatment Regret
June 2, 2017
The Cancer Support Community (CSC) announced today the results of its study of prostate cancer patients as part of its Cancer Experience Registry, at the 2017 American Society of Clinical Oncology (ASCO) Annual Meeting.
Significant Percentage of Gastric Cancer Patients Can Be at Risk for Clinical Depression
June 1, 2017
The Cancer Support Community (CSC) announced today the results of its study of gastric cancer patients as part of its Cancer Experience Registry, at the 2017 ASCO (American Society of Clinical Oncology) Annual Meeting
CSC Supports the "Patient Experience in Research Act of 2017" (H.R. 2244) To Improve Clinical Trials
May 2, 2017
The Cancer Support Community announces its support for the bipartisan legislation, H.R. 2244, introduced by Rep. Leonard Lance (R-NJ) and Rep. Diana DeGette (D-CO) in the U.S. House of Representatives. CSC commends Congressman Lance and Congresswoman DeGette for their continued leadership and advocacy on patient protection and patient-centered legislation.
CSC Honors Vice President Joe Biden at 35th Anniversary Spring Celebration Gala
April 20, 2017
The Cancer Support Community honors Vice President Joe Biden and the former Cancer Moonshot team this evening with the Founders Award for Vision for their tireless efforts to galvanize action and improve the future for those affected by cancer.
Balancing Competing Demands puts Cancer Caregivers at High Risk for Emotional Distress
March 31, 2017
The Cancer Support Community’s Research and Training Institute developed and validated a distress screening program to identify and address social and emotional distress in cancer caregivers.
Study Shows Women, Younger People with Lung Cancer Worry More About Discrimination
March 23, 2017
Cancer Support Community research suggests different experiences with stigma among lung cancer populations.
Cancer Support Community Applauds Nomination of Scott Gottlieb as FDA Commissioner
March 13, 2017
The Cancer Support Community supports Dr. Scott Gottlieb as Commissioner of the U.S. Food and Drug Administration (FDA) and urges the Senate to vote in favor of his confirmation.
Study Shows People with Cancer Face Challenges with Access to Care
March 3, 2017
In a study presented by the Cancer Support Community today at the American Society of Clinical Oncology (ASCO) Quality Care Symposium, 68 percent of patients reported not discussing costs with their health care team prior to treatment, even though 43 percent of patients reported that their out of pocket costs were higher than expected.
February 14, 2017
The Barbara Bradley Baekgaard Family Foundation announced today its pledge of more than $500,000 to the Cancer Support Community, a nonprofit focused on the social and emotional impact of cancer, to create welcoming spaces in hospitals where cancer support groups and programs will be put in place.
2016 Press Releases
Cancer Support Community Awarded for Contributions in Oncology
Oct. 24, 2016
The Cancer Support Community was awarded last week the Annual Achievement Award of the Association of Community Cancer Centers (ACCC) for outstanding contributions nationally to cancer care and to patients with cancer.
Cancer Support Community Applauds White House in Release of Cancer Moonshot Task Force Report
Oct. 17, 2016
The Cancer Support Community was pleased to participate today in the White House’s release of the Cancer Moonshot Task Force Report, which outlines a detailed set of findings and recommendations to achieve the goals established for the Cancer Moonshot initiative earlier this year.
Sept. 29, 2016
New findings presented by the Cancer Support Community suggest that a significant proportion of patients have difficulty conceptualizing value in terms of current cost-benefit models used by policymakers.
Sept. 8, 2016
The Cancer Support Community, an international cancer nonprofit, has endorsed the Psychosocial Standards of Care for Children with Cancer and their families that were published in a 2015 special issue of Pediatric Blood and Cancer.
Statement Regarding Death of Gene Wilder
Aug. 29, 2016
An honorary board member of the Cancer Support Community, Gene was instrumental in the 1991 founding of Gilda’s Club, named in honor of his late wife, comedienne Gilda Radner.
June 22, 2016
The Cancer Support Community (CSC), an international nonprofit, today announced the launch of the Frankly Speaking About Cancer Clinical Trials program, a landmark cancer education series devoted to building awareness among patients and caregivers about the importance of clinical trials as a viable treatment option.
March 31, 2016
Among patients who are at risk for depression, those who indicated high concerns around pain, making a treatment decision, and ‘finding meaning’ were significantly more likely to be experiencing higher levels of distress than those who were still at risk for depression but were experiencing lower levels of distress, according to research presented today by the Cancer Support Community, an international nonprofit, at the annual meeting of the National Comprehensive Cancer Network.
Cancer Support Community Launches New Website
Feb. 12, 2016
The Cancer Support Community, an international nonprofit, has launched its new website, www.CancerSupportCommunity.org, a destination for information, tools and support to manage the full impact of cancer.
New Registry to Examine Full Impact of Stomach Cancer
Feb. 2, 2016
The Cancer Support Community (CSC) and Debbie’s Dream Foundation: Curing Stomach Cancer (DDF) launched today the Cancer Experience Registry: Stomach Cancer, an addition to the Cancer Experience Registry that will focus on people living with stomach cancer, including gastroesophageal junction (GEJ) adenocarcinoma and other cancers of the gastric tract.
2015 Press Releases
12/7/15
People with multiple myeloma who are experiencing financial burdens due to their cancer situation are almost two and a half times more likely to be at risk for depression than those without financial burdens, according to data presented December 7th at the annual meeting of the American Society of Hematology (ASH) by the Cancer Support Community (CSC), an international nonprofit organization.
Prostate Cancer Experience not Fully Understood
8/18/15
The Cancer Support Community Announces new Registry detailing prostate cancer experience.
Large Majority of Patients Delegate Treatment Decisions to Physicians
7/31/15
Data released by the Cancer Support Community (CSC) at the World Congress of the International Psycho-Oncology Society (IPOS) and the American Psychosocial Oncology Society (APOS) examined the factors that are most influential when choosing a particular treatment option.
Mitch Golant Granted Position of Distinction at APOS
7/31/15
For his decades of service to the psychosocial and oncology communities, Mitch Golant, PhD, Senior Consultant of Strategic Initiatives at the Cancer Support Community (CSC), has been elected as a Fellow of the American Psychosocial Oncology Society (APOS).
Patient Experience with Chronic Lymphocytic Leukemia Not Widely Discussed
5/26/15
The Cancer Support Community tackles the CLL experience in new cancer experience registry.
Study Finds Discrepancy in "Value" Definition in Cancer Care
5/4/15
Data released today by the Cancer Support Community at the 5th Annual Conference of the Association for value-based cancer care explored the question: When considering your cancer experience, how do you define value?
Out-of-Pocket Costs for Health Care Remain Top Concern for Many, Despite Advances in Reform
3/19/15
A report released today by the Cancer Support Community found that despite advances in health care reform, out-of-pocket costs for health care remain a top concern for many people living with cancer.
3/12/15
The Cancer Support Community (CSC) and the American Psychosocial Oncology Society (APOS) announce a new partnership that expands CSC’s Cancer Support Helpline services and broadens the reach of APOS’ 12-year-old nationwide cancer counseling referral service.
Social and Emotional Needs of People with Melanoma Remain Largely Unknown
2/26/15
According to the National Cancer Institute, the number of people diagnosed with melanoma has been increasing for at least 30 years. To meet the needs of this growing population of people, the Cancer Support Community launched today a new registry for people impacted by melanoma to study the social, emotional and financial impact of this diagnosis.
Social and Emotional Needs of People Impacted by Lung Cancer Masked by Stigma
2/24/15
This project will measure the social, emotional and financial impact on people with this diagnosis, which, according to the National Cancer Institute, accounts for 13.5 percent of all cancer diagnoses in the United States.
The Impact of a Multiple Myeloma Diagnosis on Caregivers is not Understood
2/12/15
The Cancer Experience Registry expands to include registry for caregivers of people living with multiple myeloma.
Understanding the Impact of Cancer on Caregivers
2/10/15
The project, Cancer Experience Registry: Caregivers, is an expansion of CSC's Cancer Experience Registry, which, since its launch, has collected over a million data points on more than 7,500 people who have had cancer. Similar to this patient registry, the new Cancer Experience Registry: Caregivers will ask caregivers a series of questions about their experience and will connect them to a network of support.
2014 Press Releases
Patients with Cancer Feel Unprepared to Make Treatment Decisions, Study Finds
12/11/14
Data presented at the San Antonio Breast Cancer Symposium reveals gaps in treatment decision support for patients with metastatic breast cancer.
Barriers of Entry into Clinical Trials Continue, Study Finds
12/11/14
Data presented at the San Antonio Breast Cancer Symposium reveals low enrollment rates for metastatic breast cancer trials despite increased efforts.
Study Finds Significant Financial Burden in Patients with Metastatic Breast Cancer
12/11/14
Data presented at the San Antonio Breast Cancer Symposium identifies patient challenges.
Non-adherence to Medication Doubles when Patients have Depression Risk and Financial Burden
12/7/14
Poster at the American Society of Hematology Annual Meeting reveals correlation between finances, distress and treatment adherence.
Patients with Multiple Myeloma Feel Unprepared to Make Treatment Decisions
12/7/14
Data presented at the American Society of Hematology Annual Meeting reveals gaps in treatment decision support.
Integrated Distress Screening Shown to Decrease Distress in Patients with Multiple Myeloma
12/6/14
Poster at American Society of Hematology Annual Meeting Highlights results of proactive patient assessment.
11/12/2014
The Cancer Support Community and Partnering Organizations launch newly updated tool to help patients navigate health insurance marketplaces.
The Costs of Cancer Remain High, Yet Patients Are Not Prepared to Discuss Treatment Options
10/22/14
The Cancer Experience Registry identifies needs of people living with cancer.
10/1/14
The Houston-based brand Elaine Turner® will launch its breast cancer awareness campaign, October 1, with a capsule collection donating a percentage of proceeds for each item sold to benefit CSC during the month of October.
New Campaign Aims to “Shine the Light” on Rare Cancers
8/25/14
The Cancer Support Community to raise awareness of Myeloproliferative Neoplasms with September events.
Leveraging the Immune System to Control Cancer
8/13/14
The Cancer Support Community launches Frankly Speaking About Cancer: Your Immune System and Cancer Treatment.
5/30/14
The Cancer Support Community presents findings from a community-based distress screening program at annual meeting of American Society of Clinical Oncology (ASCO).
Transforming the Cancer Patient Experience: A Key Priority
5/28/14
Long-time friend and supporter of CSC, Raj Mantena, has agreed to match gifts from individual donors to transform the experience of patients and families as they move through the cancer journey.
3/13/14
The Cancer Support Community delivers enhanced CancerSupportSourceSM distress screening program; presents findings at annual meeting of the National Comprehensive Cancer Network (NCCN).
1/30/14
Guía de Cobertura Médica para Personas con Cáncer ahora disponible en Español.
1/30/14
Cancer Insurance Checklist released in Spanish.
1/23/14
The Cancer Support Community introduces Patient Planning Services, Inc. to meet the growing demand for patient-centered care.
1/14/14
The Cancer Support Community announces new partnership to deliver evidence-based social and emotional support services to thousands in Florida touched by cancer.
2013 Press Releases
Sara Goldberger, Cancer Support Community's Senior Director of Program, Recognized as MPN Hero
12/9/13
CURE magazine recognized the Cancer Support Community’s Sara Goldberger, LCSW-R, as an MPN Hero at an event prior to the American Society of Hematology’s annual meeting in New Orleans.
Chronic Myeloid Leukemia: Patient Experience Not Well Understood
10/24/13
The Cancer Support Community's Research and Training Institute and The Leukemia & Lymphoma Society (LLS) have joined forces to launch the Cancer Experience Registry: Chronic Myeloid Leukemia.
Shared Online Calendar Helps Communities Organize Meals for Families Coping with Breast Cancer
10/1/13
Eisai, CancerCare®, and Cancer Support Community Launch meal Trains sponsored by Magnolia™ During Breast Cancer Awareness Month; Campaign Aims to Drive 1,000 New meal Trains in October.
9/25/13
The Cancer Support Community and a group of 18 partnering cancer and patient advocacy organizations launched today the Cancer Insurance Checklist, a new resource to help people with cancer, a history of cancer or a risk of cancer choose insurance plans in the new state-based Health Insurance Marketplaces opening on October 1.
Half of All Patients with Multiple Myeloma Do Not Understand the Disease at Diagnosis
9/13/2013
The Cancer Support Community announced today the launch of Frankly Speaking About Cancer: Multiple Myeloma to address the educational needs of patients diagnosed and living with this rare form of blood cancer, as well as their caregivers.
Magnolia Meals at Home™ Expands in New Jersey
7/8/2013
The Eisai Women’s Oncology Program - MagnoliaTM, CancerCare®, Cancer Support CommunitySM and Meals On Wheels Association of AmericaTM are working together to help ease the stress of those living with breast cancer in New Jersey.
Expanded Experience Registry Created for People Living With Multiple Myeloma
6/27/2013
The Cancer Support Community’s Research and Training Institute has added a focus on people living with multiple myeloma to its nationwide Registry. According to the National Cancer Institute, there will be 22,350 new cases of multiple myeloma diagnosed in the U.S. this year. This type of blood cancer occurs most frequently in men and the risk of developing it increases with age. Also, multiple myeloma impacts African-Americans twice as much as other populations. The combinations of these demographics make it much more challenging to understand the entire physical, social and emotional spectrum of this disease.
Keeping the Promise - Cancer Care for the Whole Patient
6/19/2013
The Cancer Support Community to launch Cancer Policy Institute today. This inaugural event, held at the Newseum, will feature a keynote address by Ezekiel Emanuel, MD, PhD, recognition of Congress members who have made a significant impact on cancer issues, and the voice of patients and families currently engaged in the cancer journey.
Cancer Support Helpline Expands to Live Chat
6/10/2013
The Cancer Support Community announced today an expansion of its signature toll-free Cancer Support Helpline services to include an online live chat feature.
CSC Builds Executive Leadership Team
5/28/2013
Gwen Darien joined The Cancer Support Community in May 2013 as Executive Vice President of Programs and Services where she oversees research, programs, education, and patient and family services. Gwen brings nearly 20 years of experience with extensive communications, education and policy experience.
CSC Launches Toolkit to Help Navigate Cancer Cost
4/2/2013
A recent survey conducted by the Cancer Support Community® (CSC) revealed a majority (72.8%) of cancer patients experienced some degree of emotional distress from managing the cost associated with their cancer care. Additionally, 64.8% reported having no discussion with their health care team about the financial aspects of care. To help meet the needs of the growing population of people impacted by the financial burden of cancer care, the Cancer Support Community released the fourth edition of its highly acclaimed Frankly Speaking About Cancer®: Coping with the Cost of Care. Frankly Speaking About Cancer: Coping with the Cost of Care is presented in partnership with the Association of Oncology Social Work, Cancer and Careers, Cancer Legal Resource Center, LIVESTRONG, National Coalition for Cancer Survivorship, Patient Access Network, Patient Advocate Foundation and Survivorship A – Z.
Cancer Research Movement to Identify Social and Emotional Needs
3/21/2013
The Cancer Support Community’s Research and Training Institute launched a nationwide registry today that will help researchers better understand the impact of cancer on people who have or have had this disease.
CSC Data Shows Positive Results Following for Cancer-Related Distress
3/15/2013
The Research and Training Institute of the Cancer Support CommunitySM (CSC) released data today showing a significant decrease in emotional distress for people living with cancer who are screened with CSC's distress screening program, CancerSupportSourceSM, and are linked to personalized resources.
CSC Launches FSAC Lung Cancer 6th Edition
1/22/2013
More people in the United States die from lung cancer than any other type of cancer. To ensure people with lung cancer, their caregivers and loved ones are equipped with the most up-to-date information on treatment options and available resources, the Cancer Support Community has released its sixth edition of Frankly Speaking About Cancer: Lung Cancer®.
