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Take Action Now! Help Us Improve the Lives of Those Impacted by Cancer!

Your voice is important to help policymakers know what is important to people living with and beyond cancer and their loved ones. Together, we can help ensure that people touched by cancer have access to quality, comprehensive cancer care that includes social and emotional support. Check out some of our current efforts, and take a moment to take action!

Ask Your Members of Congress to Support PERA!

The Cancer Support Community (CSC) has joined with almost 20 organizations in support of the Patient Experience in Research Act (PERA; H.R. 2244) which was introduced by Reps. Diana DeGette (D-CO) and Leonard Lance (R-NJ) in the U.S. House of Representatives in May, 2017. This legislation will create a pilot study in which three clinical trials will incorporate a distress screening measure to evaluate, document, and follow-up on the social and emotional factors experienced by cancer patients. The overall goal of PERA is to measure the impact of the full patient experience in clinical trials.

The Institute of Medicine concluded in 2008 that comprehensive cancer care must include psychosocial care. In 2016, the American College of Surgeons Commission on Cancer adopted a standard that states that patients must undergo distress screening so that patients have their full range of needs addressed. Patients enrolled in clinical trials deserve the same level of care. Integrating distress screening and follow-up care in the clinical trial process can help identify early potential causes for trial abandonment, improve patient outcomes, leverage efficiency of clinical trials resources, and enhance trial completion timeline and compliance.

Take action today and send a letter to your Members of Congress explaining the important of PERA and asking them to co-sponsor it. It is important that we support the comprehensive range of needs facing cancer patients in all stages of treatment, including clinical trials.

Share Your Story About the High Cost of Oral Anti-Cancer Medications

The high cost of anti-cancer medications creates a significant barrier to most patients ability to access the medications that they need. One such issue is the way that health insurers currently charge patients for chemotherapy that is taken in pill form (otherwise known as oral chemotherapy) vs. chemotherapy that is injected in a clinic setting (otherwise known as intravenous chemotherapy). It can be much more expensive to take a cancer drug in pill form rather than through an IV. The Cancer Support Community, along with many other organizations who are working for equality in access to health care, is working to support legislation to ensure that patients can access their chemotherapy in pill form for the same cost as that of the IV form.

Are you concerned with the high cost of orally administered anti-cancer drugs? If you or a loved one have health insurance that includes a prescription drug plan, are currently taking a cancer drug that comes in pill form, and are paying more than $100 per month to fill the prescription, we need your help!

We are looking for stories of patients whose monthly out-of-pocket expense for oral cancer drugs is creating financial barriers to receiving those treatments. We’d like to hear from providers as well as patients—oncologists, oncology nurses and others—who are on the front lines with patients and working with insurance companies to gain access to life-saving therapies.