Frankly Speaking About Cancer Clinical Trials
Dr. Patricia Robinson, an oncologist, explains cancer clinical trials and their benefits to patients.
Glen lives with prostate and Merkel cell cancer. He joined a clinical trial for prostate cancer when he was first diagnosed to give himself a chance at less side effects than the standard treatment.
Wendy joined a clinical trial for her treatment of triple negative breast cancer. She had worked on clinical trial design as a statistician before she was diagnosed.
Elisa moved from Chile to Chicago to participate in an immunotherapy clinical trial for her metastatic breast cancer.
Mary Clare joined a cancer clinical trial when she was done with treatment to give herself a chance at a longer remission.
Dr. Patricia Robinson, an oncologist, explains some of the different kinds of clinical trials and how clinical trial design is changing with targeted therapies.
Dr. Patricia Robinson, an oncologist, explains some of the barriers that keep patients from joining cancer clinical trials.
Dr. Patricia Robinson, an oncologist, explains why minority participation is so important in clinical trials.
In Their Own Words
Doctors, cancer patients and survivors talk about the importance of participating in cancer clinical trials and the benefit to patients.
"What keeps me going is life; there's so much joy to be had."
—Elisa, a metastatic breast cancer survivor, traveled from Chile to Chicago to particpate in a clinical trial.
Check out CSC's Recent Clinical Trials Webinars
The Cancer Support Community recently hosted three webinars on the topic of clinical trials. Click the buttons below to find a description and recording for each webinar.
An Overview of Clinical Trials and the Cancer Moonshot
Clinical Trials for Early-Stage Cancers
Clinical Trials and Immunotherapy
Who Is Missing from Cancer Clinical Trials
Recipient of CPEN's Excellence in Patient Education Award
In 2017, CSC's Frankly Speaking About Cancer Clinical Trials program was recognized by the Cancer Patient Education Network (CPEN) for it's Excellence in Patient Education.
Educational Publications
Frankly Speaking About Cancer Clinical Trials: A Narrative (English)
By joining a clinical trial, patients can help move cancer treatment forward and provide real hope for a better future. This publication features photographs of real patients and caregivers sharing important information about cancer clinical trials.
Winner of the 2016 Digital Health Award, 2017 Silver National Health Information Award for Patient Education Information, 2017 PRSA Bronze Anvil Award for Publications - Books, and 2017 APEX Award for One-of-a-Kind Publications.
Order NowDownload eBookDownload PDF (for printing) Download PDF (for viewing)
Frankly Speaking About Cancer Clinical Trials: A Narrative (Spanish)
By joining a clinical trial, patients can help move cancer treatment forward and provide real hope for a better future. This publication features photographs of real patients and caregivers sharing important information about cancer clinical trials.
Winner of the 2018 Bronze Digital Health Award.
Clinical Trials Booklet (English)
Clinical trials drive progress in cancer treatment and care. If you are considering participating in a clinical trial or want to learn more about how these studies work this guide provides information to help prepare you to talk about clinical trials with your doctor. (7th grade reading level)
Clinical Trials Booklet (Spanish)
Clinical trials drive progress in cancer treatment and care. If you are considering participating in a clinical trial or want to learn more about how these studies work this guide provides information to help prepare you to talk about clinical trials with your doctor. (7th grade reading level)
Understanding Clinical Trials: A Guide for Patients and Caregivers
Clinical trials drive progress in cancer treatment and care. If you are considering participating in a clinical trial or want to learn more about how these studies work this guide provides information to help prepare you to talk about clinical trials with your doctor. (10th grade reading level)
Report: Refreshing the Dialogue on Clinical Trials
Frankly Speaking About Cancer Radio Show
Patient Perspectives: Cancer Clinical Trials
Four patients with four different clinical trial experiences each share their stories of how participating in a clinical trial gave them hope.
Listen NowThe Importance of Clinical Trial Participation
Leading experts discuss barriers to clinical trial enrollment for patients and how to overcome these barriers to advance new cancer treatments.
Listen NowHype or Hope? CIMAvax A Cuban Lung Cancer Vaccine
In the latest installment of our special series “Innovation Happens,” we take a look at CIMAvax, a promising lung cancer vaccine developed in Cuba that is getting a lot of attention here in the United States. It is being studied in an FDA approved clinical trial at Roswell Park Cancer Institute-- the first Cuban therapy to be tested in the US. Our guest is Dr. Mary Reid, the Director of Cancer Screening and Survivorship at Roswell Park and a key member of the team that is collaborating with Cuban scientists on CIMAvax. Dr. Reid shares with us the history of the vaccine and how it could spur a new age of American-Cuban medical collaboration.
Listen NowCAR-T Cell Therapy- A Spark of Hope
CAR-T cell therapy is a revolutionary treatment approach that is bringing new hope to multiple myeloma patients. Results of an early phase study were described by Reuters as “unheard of” and an industry paper called them “jaw-dropping.” On the show to help us find out all about this exciting new approach are Cherie Rineker who has been living with multiple myeloma for over five years and is participating in a clinical trial exploring this new treatment, and Dr. Jesus Berdeja, lead investigator of that study.
Listen NowResources
Preface: A Story of Hope
Preface: A Story of Hope
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Chapter One: A Better Tomato
Chapter One: A Better Tomato
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Chapter Two: We Need to Talk
Chapter Two: We Need to Talk
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Chapter Three: What Now?
Chapter Three: What Now?
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Chapter Four: What Does This Mean?
Chapter Four: What Does This Mean?
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Chapter Five: It's Not What You Think
Chapter Five: It's Not What You Think
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Chapter Six: It's Different Today
Chapter Six: It's Different Today
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Chapter Seven: For Them
Chapter Seven: For Them
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Chapter Eight: The Whole Person
Chapter Eight: The Whole Person
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