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The Importance of Understanding Psychosocial Concerns in Cancer Survivorship

Friday, October 5, 2018

While clear advances have certainly been made in treatment and survival, there remains a critical need to better understand the quality of life implications of survivorship. We applaud the multidisciplinary approach of cancer care, and also advocate strongly for an even more comprehensive view of treating patients, above and beyond the treatment of their disease.

Amplifying the Patient Voice in Cancer Care

Friday, September 28, 2018

In cancer care, goals should be informed by what the patient considers to be most important. This is why our team at the Research and Training Institute is developing a new tool that can be used to measure what really matters to patients- Valued Outcomes in the Cancer Experience (VOICE™).

Share Your Cancer Experience

Wednesday, January 24, 2018

Chef Hans Rueffert, a stomach cancer survivor who has appeared on The Food Network, has recorded a new 90-second video about the Cancer Experience Registry.

The Registry is free, confidential and open to anyone who has been diagnosed with cancer or provides care to someone with cancer.

Insight into the Patient Experience

Friday, July 21, 2017

Earlier this week, the Research and Training Institute at the Cancer Support Community hosted Insight into the Patient Experience, a special program commemorating the release of its second Registry Report based on the findings of the Cancer Experience Registry.

New Research Presented by CSC at ASCO 2017

Thursday, June 8, 2017

The Cancer Support Community was honored to return to ASCO and we did not come empty-handed. Armed with three abstracts and one poster presentation, CSC’s Research and Training Institute (RTI) team was ready to share our research with the oncology community. Through the Cancer Experience Registry®, the RTI has collected data from over 11,000 cancer patients and caregivers—with every type of cancer represented.

Make Our Lung Cancer Community More Visible - Share Your Experience

Wednesday, November 30, 2016

Calling all lung cancer patients/survivors and care partners! The science is finally moving faster, providing more treatment options and hope for the future. Now we also need to help shape what the future looks like in other ways. Here in Lung Cancer Awareness Month, please take a few minutes to register for the Cancer Experience Registry and fill out the questionnaire.

For All The Caregivers

Wednesday, November 16, 2016

In 2015, President Barack Obama proclaimed November National Family Caregivers Month to recognize the hard work and dedication of all the selfless caregivers around the country. At the Cancer Support Community, we understand that caregivers are an essential part of the cancer care team from the start. Caregivers can be spouses, partners, children, relatives or friends who help, care and support those living with cancer.

Act Now: Making a Difference in Cancer Policy

Wednesday, November 9, 2016

This month, we’re continuing our Many Faces of Advocacy campaign by highlighting policy advocacy. Policy advocacy is probably what you first think of when you hear the word “advocacy.” A cancer policy advocate pushes for changes in government that will improve the lives of people affected by cancer. This can come in many forms, from writing a letter to your congressional representatives to spreading the word about important legislation using social media.

Community Advocacy for You

Wednesday, October 26, 2016

Getting involved in your community is one of the most rewarding ways to help people impacted by cancer. That’s why this past month, we’ve been talking about the different possibilities for becoming a community advocate. Let’s recap what we’ve discussed and what we can all do going forward to make sure that no one in our communities faces cancer alone.

Becoming a Community Advocate

Wednesday, October 5, 2016

This month at the Cancer Support Community, we’re highlighting community advocacy as one of the best ways to build relationships, create dialogues and increase understanding for those affected by cancer. You can become a community advocate whether you have had cancer or have been a caregiver or loved one to someone living with cancer.

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