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A Step Toward Increasing Patients’ Voices in Clinical Trials

Wednesday, July 8, 2020

The Cancer Support Community welcomes the FDA’s new pilot program, Patient Project Voice, as a thoughtful first step toward the development of a comprehensive and consistent method of sharing patient experience data (PED) collected in clinical trials with patients and providers to help inform treatment decisions. For years, the CSC has been in conversations with the FDA on the importance of collecting PED and specifically, in incentivizing manufacturers to examine PED through a pilot program. We are very encouraged to see the agency pursue this opportunity and are eager to work with interested stakeholders to make the project a success.

The New Year Brings Important Policy Changes That Benefit Patients

Monday, January 13, 2020

As we start a new year, the Cancer Support Community (CSC) is pleased to report on two exciting policy changes that promote the delivery of psychosocial care for cancer patients.

Cancer Clinical Trials: The Search for Hope

Wednesday, July 20, 2016

This week's blog post features the story of two patients, Elisa and Bill. Elisa and Bill represent the people facing cancer who actively seek information about the treatments available for their cancer, who work as partners with their doctors and health care teams to make the best decisions about their care. They both made choices that involved dislocation, uncertainty and loss. They made these choices because the clinical trial represented something more important. They chose hope--hope for longer, better lives.

Creating Hope Through Clinical Trials: A Q&A with Dr. Patricia Robinson

Wednesday, July 13, 2016

This week's blog post is an excerpt from last month's Cancer Experience Registry newsletter. This excerpt is from a Q&A with Dr. Patricia Robinson, Associate Professor of Hematology/Oncology at Loyola University Hospital, on the importance of cancer clinical trials.

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