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CSC on Capitol Hill

Wednesday, October 8, 2014

Cancer Support Community participated in the September 30th briefings on Capitol Hill to discuss the importance of the protected classes for Medicare beneficiaries facing cancer diagnoses.

Shining the Light on MPNs

Wednesday, September 10, 2014

Each year, about 14,500 people are diagnosed with myeloproliferative neoplasms (MPNs), a group of rare blood cancers originating in bone marrow. Tomorrow, September 11, 2014 is recognized as MPN Awareness Day. Living with a rare cancer like an MPN comes with a unique set of challenges that make raising awareness, tomorrow and every day, crucial—so that no one faces cancer alone.

Americans Left Behind by Health Reform

Wednesday, March 12, 2014

Approximately 5-8 million people in these states will fall into the coverage gap because their incomes are too high to qualify for their state’s Medicaid program, but are below the poverty level and therefore do not qualify for subsidies to buy insurance on the marketplaces.

Administration Preserves Patient Access to Certain Medications

Tuesday, March 11, 2014

On March 6, 2014 the Cancer Policy Institute at the Cancer Support Community (CSC) submitted a letter to the Centers for Medicare & Medicaid Services (CMS) raising concerns about how a proposed change in policy could hinder cancer patients’ access to certain types of medication.

Health Insurance Marketplace Opens for Business

Tuesday, October 1, 2013

As we have discussed, today is the day that the Health Insurance Marketplaces open so that consumers can compare plans and shop for affordable insurance coverage. The Marketplaces will make health insurance coverage available to the 48 million Americans who are currently uninsured.

As you have heard in the news, Congress is gridlocked over funding for the government and its activities for the new fiscal year (which also starts today). As a result, the federal government is partially shut down.

Getting Help Through Uncertain Paths

Wednesday, July 31, 2013

I lost my mother to cancer just a month after I turned 24. Following her diagnosis of stage 4 esophageal cancer, she braved through more than two years of aggressive chemotherapy, radiation and surgery.

Losing people you love to cancer is of course tremendous to bear. Ask anyone who has experienced it—what’s said will likely bring you to tears. Stories of dashed hopes, of unanswered prayers, of lost time could shake your faith to the core. They knell of unavoidable pain as well as of our own fragility.

The Lung Cancer Community Speaks Out

Wednesday, July 17, 2013

During a public meeting at the Food and Drug Administration (FDA) last month, a lung cancer survivor shared her experience. When she was diagnosed years ago, the first thing her doctor said to her was, “How should we begin your smoking cessation program?”

The woman had never even been a smoker—just like one out of every five people living with lung cancer.

She then pointed out that even if she had been, 60% of people diagnosed with lung cancer have already quit smoking, and many long-time smokers became addicted when they were just teens—and for many, that was before government warnings and stricter laws on advertising

A focused fact finding mission: The Cancer Experience Registry

Saturday, July 6, 2013

The launch of the Cancer Support Community’s Multiple Myeloma Cancer Experience Registry is a huge step forward for all of us that have been afflicted with MM.

Thank you! Thank you! CSC and the entire team that has spent months of time developing this registry on our behalf!

The Cancer Support Launches its Cancer Policy Institute

Wednesday, June 19, 2013

Today was a very special day for the Cancer Support Community as we launched the Cancer Policy Institute, an initiative that furthers our organization’s mission to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action and sustained by community.

We are excited to take this next step by advocating on behalf of all people impacted by cancer so that the voices of 13.7 million cancer survivors and their families are heard on Capitol Hill and in state and local legislatures across the country. The Cancer Policy Institute will work to move the agenda that comprehensive, quality cancer care integrates medical care and social and emotional care.

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