Skip to main content
 

Caregiver’s Remorse

Friday, November 15, 2019

Nancy Sharp was a new mother wanting to go on her first family vacation with her husband and twins, but even that isn't so simple when you're a cancer caregiver.

Advocate Spotlight Update: Miranda Johnson

Friday, November 15, 2019

Each month, the Cancer Policy Institute profiles advocates who have been engaged in cancer advocacy. This month we caught up with Miranda Johnson, one of the very first CPI Advocate Spotlights and a longtime CSC advocate!

Advocating for Liver Cancer Patients

Monday, November 11, 2019

The Cancer Support Community wants to hear directly from liver cancer patients about their specific and unique cancer experiences so that we can enhance our educational programming, advocacy initiatives, and other patient support initiatives to aid those people living with liver cancer.

For Cancer Caregivers, Even Nanoseconds Count

Friday, November 8, 2019

For cancer caregivers, life is lived even down to the nanosecond. Time for me has become less a measurement of the day than the minutes.

5 Things You Need to Know About 2020 Open Enrollment

Monday, November 4, 2019

The open enrollment period to purchase health insurance coverage for 2020 is here! Now is the time to make sure that you and your loved ones have access to comprehensive, quality, and affordable coverage through the Health Insurance Marketplace.

Holding Joy and Pain Together

Friday, November 1, 2019

Cancer caregivers must learn to embrace the gray of life.

Living with Cautious Optimism

Friday, October 25, 2019

When your loved on is diagnosed with cancer, and life seems to throw you one bad turn after the next, hope can seem elusive.Cautious optimism taught me how to hope again and to navigate the bumps of life which are always more jarring after a cancer diagnosis.

Caregivers: Don't Go it Alone

Friday, October 18, 2019

When a loved one is diagnosed with cancer, how do caregivers live? Seeking that elusive answer nearly leveled Nancy Sharp in the early months of her husband Brett’s brain tumor diagnosis.

The Belmont Report: What is it and how Does it Relate to Today’s Clinical Trials?

Thursday, October 17, 2019

The quest to discover effective treatments and cures for diseases and conditions is a worthwhile and compelling goal. Scientific research is responsible for innovative breakthroughs that improve quality of life, extend survival, and even prove life-saving. But alongside the potential benefits of scientific research are the potential risks to the people who participate in the journey that makes breakthroughs possible. The Belmont Report identifies basic ethical principles for conducting research that involve human subjects and sets forth guidelines to assure these principles are followed throughout the research process. The Belmont Report is the result of over four years of meetings that began in 1976 and were conducted by the National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research (Commission). With the Food and Drug Reauthorization Act of 2017’s recent amendment of the term patient experience data to now include both “physical and psychosocial impacts of a disease or condition, or related therapy or clinical investigation,” it is a particularly relevant and important time to revisit the ethical principles established in the Belmont Report.

Advocate Spotlight: Rachel Solomon

Monday, October 14, 2019

Each month, the Cancer Policy Institute profiles advocates who have been engaged in cancer advocacy. Read on to learn more about Rachel, and how her cancer diagnosis led her to pursue a career in cancer advocacy.

If you are interested in learning more about policy, advocacy, and ways to get involved, sign up to be a part of the Grassroots Network!

Pages

Authors