Healthcare nonprofits, federal organizations, and clinical centers nationwide are gathering together between August 13 to the 19—National Health Centers Week—to share health for and by the people. Though our healthcare system has a whirlwind of improvements to be made, one thing is for sure: the increase in health technology and innovation is surpassing what was available from previous years. From small organizations to large organizations, the drive for high-quality, cost-effective, and accessible care is at its peak. An increase in more communicative physician-to-patient relationships is critical now more than ever.
Primarily sponsored by the National Association of Community Health Workers for over 30 years, National Health Center’s week celebrates America’s health centers and the drive for cultivating healthier communities. This week is dedicated to making a difference in healthcare by thinking differently and catalyzing perspectives of patients, physicians, families, and friends to further elevate the patient voice.
As one of the largest professionally led health nonprofits in the world, the Cancer Support Community (CSC) is a leading health center in cancer support with over 40 local affiliates throughout the nation and internationally. CSC provides emotional support, psychosocial care, and educational resources for individuals touched by cancer. From the Cancer Support Helpline to the Cancer Experience Registry; the Frankly Speaking About Cancer educational resources to the Cancer Policy Institute; right down to CSC’s radio show and Research & Training Institute – CSC provides resources that work to further expand services “so that no one faces cancer alone”.
At CSC, professional and reliable support is a must – and thus, the Cancer Support Helpline was born. With licensed counselors ready to provide guidance, resources, and address any of the overall needs of the individual touched by cancer, the Helpline is able to provide support through a means of guidance, giving, and more importantly – listening.
Some of the helpline’s resources includes:
- Information on support groups (local or national)
- Short-term cancer counseling and emotional assistance
- Treatment decision-planning
- Financial counseling regarding the costs of cancer and its treatments
- Specialized information on pediatric oncology, finances, and clinical trials
- Access to an online distress screening program, CancerSupportSource®
- General information about the Cancer Support Community
If you or someone you know may benefit from contacting the Cancer Support Helpline counselors, please feel free to contact them toll-free at 1-888-793-9355; or via live chat, Monday through Friday from 9:00 a.m. – 9:00 p.m. Eastern Standard Time (EST).
The Cancer Experience Registry is a movement that seeks to enhance an understanding of social and emotional needs of people living with cancer. It is a unique platform for anyone affected by cancer (patient, family, and friends) to learn from others; identify issues that impact your life; take surveys; and access resources.
As a free, confidential, and collaborative community that makes a difference in cancer diagnosis, treatment, and care, the Registry is changing the way in which patients and their caregivers interact with each other. The Registry is a unique experience that elevates the patient voice, providing an opportunity for patients, their families, and friends to share their story with cancer and therefore make a difference in doing so. Ultimately, the movement cultivates a fresh and diverse method of resource delivery that only enhances the ways in which health communication is made.
Frankly Speaking About Cancer® (FSAC) is the Cancer Support Community’s landmark cancer education series that provides trusted information on a variety of topics important to people affected by cancer. FSAC provides innovative health education through print and digital publications, eLearning courses, online materials, webinars, in-person workshops, and a weekly radio show. These resources meet patients and caregivers need for comprehensive and easy to understand information on a variety of cancer types and topics. Topics include clinical trials, cancer treatments and side effects, and how to talk to children about cancer.
In celebrating health center, CSC would also like to celebrate the Cancer Policy Institute (CPI) grassroots network in their initiative to enhance a more patient-centered movement in cancer care. Through the network, patient advocacy is at the forefront to ensure people with cancer have access to high quality, affordable, and comprehensive care.
Working on federal and state level legislation, CSC’s Cancer Policy Institute works with our local affiliates to expand and develop their grassroots network for patient advocacy. In working with advocates, the patient’s voice is placed at the forefront of legislation discussion— a place where regulation and policy affect the patient most. By engaging the local communities, the grassroots network seeks to be that critical bridge between those impacted with cancer and legislators.
The Cancer Support Community (CSC) has more than 150 locations across the U.S. and internationally, including 42 licensed affiliates and 8 hospital partnerships. At the affiliates, anyone impacted by cancer can attend support groups, educational sessions and health and wellness programs to find support, hope and community. These programs are free of charge to anyone touched by cancer, including patients, caregivers, friends, family and children. If a Cancer Support Community or Gilda’s Club affiliate is not located in your area, please call CSC’s TOLL-FREE Helpline at 1-866-793-9355.