Publications & Presentations

The Cancer Support Community is continually working on new research in various topics areas that are important to people impacted by cancer. Below please find access to reports, posters and presentations of our research. Many of these publications and presentations have been presented at prominent cancer focused conferences and meetings, including the American Society of Clinical Oncology (ASCO) annual meeting and the National Comprehensive Cancer Network Annual Conference.

Latest Publications and Presentations

Experience of Financial Burden and Distress Among People with Ovarian Cancer (American Society of Clinical Oncology, 2020)

Results from a Pilot Study Examining the Impact of Distress Screening and Referral on Health Care Cost and Utilization Among Breast Cancer Patients (National Comprehensive Cancer Network Annual Conference, 2020)

Health Care Team and Treatment Decision-Making Experiences Among Prostate Cancer Patients (ASCO Genitourinary Cancer Symposium, 2020)

Assessing the Psychosocial Needs of Immunotherapy Patients: An Exploratory Study of Findings From Immunotherapy & Me (ASCO-SITC Clinical Immuno-Oncology Symposium, 2020)

Organized By Topic

Access to Care

Access to Care in Cancer: Barriers and Challenges (ASCO Quality Symposium, 2017)

Access to Care in Cancer 2016: Barriers and Challenges (Cancer Support Community, 2016)

An Insight into Patient Access to Care in Cancer (Cancer Support Community Report, 2015)

Defining Value in Oncology: Perspectives from Patients with Metastatic Breast Cancer (Association for Value-Based Cancer Care, 5th Annual Conference, 2015)

Linking Multiple Myeloma Patients and Families with Telephone Support: A Unique Pathway for Caller Referral (Association of Oncology Social Work Annual Conference, 2014)

Identification of Gaps in Resources and Support for Brain Tumor Patients and Caregivers: Results from an Online Survey (International Cancer Education Conference, 2013)

Perceptions of Marginalization in Those Affected by Advanced Breast Cancer (San Antonio Breast Cancer Symposium, 2012)

Breast Reconstruction

Decisional Factors Influencing Breast Reconstruction Post-Mastectomy (Society of Behavioral Medicine Annual Meeting & Scientific Sessions, 2013)

Empowering Women with Breast Cancer during the Decision-Making Process About Breast Reconstruction Options: Results from Nationwide Patient Education Workshops (American Public Health Association Annual Meeting and Exposition, 2012)

Informational Needs among Women Considering Breast Reconstruction Post-Mastectomy (San Antonio Breast Cancer Symposium, 2012)

Patient Informational Needs about Breast Reconstruction Post Mastectomy (ASCO Breast Cancer Symposium, 2012)

Closing the Gap: Results from a National Survey of Breast Cancer Survivors Regarding Breast Reconstruction Options and Health Education Resources (American Public Health Association Annual Meeting and Exposition, 2011)

Decisional Factors Influencing Breast Reconstruction Post-Mastectomy: Results from a National Survey (American Psychosocial Oncology Society Annual Conference, 2011)

Novel Programming to Meet Unmet Needs - Frankly Speaking About Cancer: Spotlight on Breast Reconstruction (International Cancer Education Conference, 2011)

Patient-Provider Communication and Patient Informational Needs for Breast Reconstruction Post-Mastectomy: Results from a National Survey (San Antonio Breast Cancer Symposium, 2011)

Cancer Management

Prostate Cancer-Related Quality of Life and Risk for Anxiety and Depression (ASCO Genitourinary Cancer Symposium, 2019)

Predictors of Distress Among Individuals with Gastric CancerPredictors of Distress Among Individuals with Gastric Cancer (American Society of Clinical Oncology's Gastrointestinal Cancers Symposium, 2019)

Sleep Disturbance among Individuals with Multiple Myeloma: The Interplay between Physical and Psychosocial Symptoms (American Society of Hematology Annual Meeting, 2018)

Sleep Disturbance and Quality of Life Among Breast Cancer Survivors (San Antonio Breast Cancer Symposium, 2018)

Multiple Myeloma Symptom Burden, Perceived Control, and Quality of Life: Findings from the Cancer Experience Registry (American Society of Hematology, 2017)

Perceptions and Consequences of Cancer-Related Weight Loss Among Individuals with Cancer and Caregivers (ASCO Survivorship Sympsium 2017)

Treatment-Adherence Beliefs and Behaviors in Patients with Chronic Myeloid Leukemia (American Society of Clinical Oncology Annual Meeting, 2015)

Evolving Strategies for the Management of Multiple Myeloma (The American Journal of Managed Care, 2014)

Caregivers' Needs

Cancer Caregiver Perceptions of Patients’ Unintentional Weight Loss: Practical and Psychosocial Considerations (AICR Research Conference, 2019)

Preparedness for Care and Formal Training of Family Cancer Caregivers (American Psychosocial Oncology Society Annual Conference, 2018)

Insight Into the Patient Experience: Caregivers Specialty Registry Report 2017 (Cancer Support Community, 2017)

How Patient and Caregiver Informational and Psychosocial Needs are Being Met in Practice: Results from a National Melanoma Survey (Annual Conference of the Academy of Oncology Nurse and Patient Navigators - AONN, 2016)

Innovation in Developing Evidence-Based Programs that Identify and Address the Social and Emotional Needs of Cancer Caregivers: Distress Screening and Referral for Caregivers (APOS, 2016)

Integrative Models of Reducing Caregiver Burden in Underserved Communities (APOS, 2016)

Information and Emotional Support Utilization among Cancer Caregivers: Results from a National Sample of Education Program Attendees (World Congress of Pyscho-Oncology, 2015)

Innovation in Developing Evidence-Based Programs that Identify and Address the Social and Emotional Needs of Cancer Caregivers (World Congress of Pyscho-Oncology, 2015)

Clinical Trials: Patient Perception and Participation

Perceptions About Cancer Clinical Trials Among Prostate Cancer Survivors (2018 Genitourinary (GU) Cancers Symposium, 2018)

Cancer Clinical Trials Education: Insights from Patient Experiences and Preferences (Journal of Clinical Oncology - ASCO, 2017)

Perceptions of Cancer Clinical Trials Among Racial and Ethnic Minority Cancer Survivors (APA, 2017)

Breast Cancer Clinical Trials: Patient Experiences, Preferences, and Insights Into Increasing Participation (San Antonio Breast Cancer Symposium, 2016)

Patient Interest In Clinical Trials: Results from a National Sample of Cancer Psychoeducational Program Attendees (World Congress of Pyscho-Oncology, 2015)

Attitudinal Barriers to Participation in Oncology Clinical Trials: Factor Analysis and Correlates of Barriers (European Journal of Cancer Care, 2014)

Perceptions about Cancer Clinical Trials among Metastatic Breast Cancer Patients: Findings from a Patient Powered Registry (San Antonio Breast Cancer Symposium, 2014)

Distress Screening and Referral

Results from a Pilot Study Examining the Impact of Distress Screening and Referral on Health Care Cost and Utilization Among Breast Cancer Patients (National Comprehensive Cancer Network Annual Conference, 2020)

CancerSupportSource®: Validation of a Revised Multi-dimensional Distress Screening Program for Cancer Patients and Survivors (Supportive Care in Cancer, 2020, 28(1), 55-64)

CancerSupportSource®-15: Development and Evaluation of a Short Form of a Distress Screening Program for Cancer Survivors (National Comprehensive Cancer Network Annual Conference, 2019)

Psychometric Properties of a 4-item Depression and Anxiety Risk Screening Tool for Cancer Survivors (National Comprehensive Cancer Network Annual Conference, 2018)

Factor Structure and Validity of CancerSupportSource®: A Revised 25-item Distress Screening Tool For Cancer Survivors (National Comprehensive Cancer Network Annual Conference, 2018)

Psychometric Properties of a 47-item Distress Screening Tool for Caregivers of Cancer Patients in a Community-Based Sample (Society of Behavioral Medicine, 2017)

Refining a Validated Distress Screening Tool of Caregivers of Cancer Patients in a Community-Based Sample (NCCN, 2017)

Psychometric Properties of a 47-item Distress Screening Tool for Older Caregivers of Cancer Patients (American Psychological Oncology Society, 2017)

Cancer-related Distress Among Different Racial-ethnic Groups from a Community-based Distress Screening Program (Society of Behavioral Medicine, 37th Annual Meeting and Scientific Sessions, 2016)

Discriminatory Power of A 15-item Distress Screening Tool Among Those at Risk for Depression: Implications for Triage Post Distress Screening (National Comprehensive Cancer Network Annual Conference, 2016)

Cancer-Related Distress and Unmet Needs Among Newly Diagnosed and Longer-Term Cancer Survivors from a Community-Based Distress Screening Program (ASCO Cancer Survivorship Symposium: Advancing Care and Research, 2016)

Measuring the Value of Telephone Distress Screening and Referral on Resource Utilization and Distress in Patients with Multiple Myeloma (Association of Value-Based Cancer Care Meeting, 2015)

CancerSupportSource (CSS): Validating a 13-Item Web-Based Distress Screening Tool in the Community - Abstract Version (National Comprehensive Cancer Network Annual Conference, 2014)

CancerSupportSource (CSS): Validating a 13-Item Web-based Distress Screening Tool in the Community - Poster Version (National Comprehensive Cancer Network Annual Conference, 2014)

CancerSupportSource (CSS): Validating a 15-Item Spanish Web-Based Screening Tool in the Community - Abstract Version (National Comprehensive Cancer Network Annual Conference, 2014)

CancerSupportSource (CSS): Validating a 15-Item Spanish Web-Based Screening Tool in the Community - Poster Version (National Comprehensive Cancer Network Annual Conference, 2014)

CancerSupportSource: Validating a 25-Item Spanish Web-Based Distress Screening Tool in the Community (Society of Behavioral Medicine Annual Meeting & Scientific Sessions, 2014)

Discriminatory Power of a 25-Item Distress Screening Tool: A Cross-sectional Survey of 251 Cancer Survivors (Quality of Life Research, 2014)

CancerSupportSource Implementation Poster (National Comprehensive Cancer Network Annual Conference, 2013)

CancerSupportSource: Validating a Web-Based Distress Screening Tool in the Community (National Comprehensive Cancer Network 18th Annual Conference, 2013)

Discriminatory Power of Distress Screening Poster (American Society of Clinical Oncology Annual Meeting, 2013)

Discriminatory Power of a 25-Item Distress Screening Tool CancerSupportSource: A Cross-Sectional Study of 251 Cancer Survivors (American Society of Clinical Oncology Annual Meeting, 2013)

CancerSupportSource (CSS) Validation: Psychometric Properties of a 25-item Distress Screening Tool in a Community Sample of 251 Cancer Survivors (Biennial Cancer Survivorship Research Conference, 2012)

Community-Based Distress Screening: Findings from an Online Registry (Society of Behavioral Medicine Annual Meeting and Scientific Sessions, 2012)

From Distress Guidelines to Developing Models of Psychosocial Care (Journal of Psychosocial Oncology, 2012)

Implementing Community-Based Distress Screening (Society of Behavioral Medicine Symposium, 2012)

Creating an Integrative Biopsychosocial Screening Model (American Psychosocial Oncology Society Annual Conference, 2011)

Developing a Community-Based Screening Instrument (American Society of Clinical Oncology Annual Meeting, 2011)

Validation of a Problem-Based Biopsychosocial Screening Instrument (Society of Behavioral Medicine Annual Meeting and Scientific Sessions, 2011)

Distress Screening and Referral

Results from a Pilot Study Examining the Impact of Distress Screening and Referral on Health Care Cost and Utilization Among Breast Cancer Patients (National Comprehensive Cancer Network Annual Conference, 2020)

CancerSupportSource®: Validation of a Revised Multi-dimensional Distress Screening Program for Cancer Patients and Survivors (Supportive Care in Cancer, 2020, 28(1), 55-64)

CancerSupportSource®-15: Development and Evaluation of a Short Form of a Distress Screening Program for Cancer Survivors (National Comprehensive Cancer Network Annual Conference, 2019)

Psychometric Properties of a 4-item Depression and Anxiety Risk Screening Tool for Cancer Survivors (National Comprehensive Cancer Network Annual Conference, 2018)

Factor Structure and Validity of CancerSupportSource®: A Revised 25-item Distress Screening Tool For Cancer Survivors (National Comprehensive Cancer Network Annual Conference, 2018)

Psychometric Properties of a 47-item Distress Screening Tool for Caregivers of Cancer Patients in a Community-Based Sample (Society of Behavioral Medicine, 2017)

Refining a Validated Distress Screening Tool of Caregivers of Cancer Patients in a Community-Based Sample (NCCN, 2017)

Psychometric Properties of a 47-item Distress Screening Tool for Older Caregivers of Cancer Patients (American Psychological Oncology Society, 2017)

Cancer-related Distress Among Different Racial-ethnic Groups from a Community-based Distress Screening Program (Society of Behavioral Medicine, 37th Annual Meeting and Scientific Sessions, 2016)

Discriminatory Power of A 15-item Distress Screening Tool Among Those at Risk for Depression: Implications for Triage Post Distress Screening (National Comprehensive Cancer Network Annual Conference, 2016)

Cancer-Related Distress and Unmet Needs Among Newly Diagnosed and Longer-Term Cancer Survivors from a Community-Based Distress Screening Program (ASCO Cancer Survivorship Symposium: Advancing Care and Research, 2016)

Measuring the Value of Telephone Distress Screening and Referral on Resource Utilization and Distress in Patients with Multiple Myeloma (Association of Value-Based Cancer Care Meeting, 2015)

CancerSupportSource (CSS): Validating a 13-Item Web-Based Distress Screening Tool in the Community - Abstract Version (National Comprehensive Cancer Network Annual Conference, 2014)

CancerSupportSource (CSS): Validating a 13-Item Web-based Distress Screening Tool in the Community - Poster Version (National Comprehensive Cancer Network Annual Conference, 2014)

CancerSupportSource (CSS): Validating a 15-Item Spanish Web-Based Screening Tool in the Community - Abstract Version (National Comprehensive Cancer Network Annual Conference, 2014)

CancerSupportSource (CSS): Validating a 15-Item Spanish Web-Based Screening Tool in the Community - Poster Version (National Comprehensive Cancer Network Annual Conference, 2014)

CancerSupportSource: Validating a 25-Item Spanish Web-Based Distress Screening Tool in the Community (Society of Behavioral Medicine Annual Meeting & Scientific Sessions, 2014)

Discriminatory Power of a 25-Item Distress Screening Tool: A Cross-sectional Survey of 251 Cancer Survivors (Quality of Life Research, 2014)

CancerSupportSource Implementation Poster (National Comprehensive Cancer Network Annual Conference, 2013)

CancerSupportSource: Validating a Web-Based Distress Screening Tool in the Community (National Comprehensive Cancer Network 18th Annual Conference, 2013)

Discriminatory Power of Distress Screening Poster (American Society of Clinical Oncology Annual Meeting, 2013)

Discriminatory Power of a 25-Item Distress Screening Tool CancerSupportSource: A Cross-Sectional Study of 251 Cancer Survivors (American Society of Clinical Oncology Annual Meeting, 2013)

CancerSupportSource (CSS) Validation: Psychometric Properties of a 25-item Distress Screening Tool in a Community Sample of 251 Cancer Survivors (Biennial Cancer Survivorship Research Conference, 2012)

Community-Based Distress Screening: Findings from an Online Registry (Society of Behavioral Medicine Annual Meeting and Scientific Sessions, 2012)

From Distress Guidelines to Developing Models of Psychosocial Care (Journal of Psychosocial Oncology, 2012)

Implementing Community-Based Distress Screening (Society of Behavioral Medicine Symposium, 2012)

Creating an Integrative Biopsychosocial Screening Model (American Psychosocial Oncology Society Annual Conference, 2011)

Developing a Community-Based Screening Instrument (American Society of Clinical Oncology Annual Meeting, 2011)

Validation of a Problem-Based Biopsychosocial Screening Instrument (Society of Behavioral Medicine Annual Meeting and Scientific Sessions, 2011)

Education and Empowerment

Revising Frankly Speaking About Cancer: Metastatic Breast Cancer Book (San Antonio Breast Cancer Symposium, 2019)

Impact of educational workshops on patient-provider communication: Results from the Frankly Speaking About Cancer: Metastatic Breast Cancer evidence-based educational workshops (San Antonio Breast Cancer Symposium, 2018)

Making Cancer Clinical Trials Education Accessible to Hispanics (AONN+ Ninth Annual Navigation & Survivorship Conference, 2018)

Addressing Immunotherapy Educational Needs: Results from an Educational Program on Immunotherapy for Cancer Patients and Caregivers  (Society for Immunotherapy of Cancer (SITC), 2018)

Coping with the Cost of Cancer Care: Findings from a National Evidence-Based Educational Program (International Cancer Education Conference, 2018)

Addressing Cancer-Related Knowledge and Communication Skills: Eight Years of Outcome Data from Psychoeducational Cancer Workshop Attendees (International Cancer Education Conference, 2017)

Supporting Cancer Treatment Side Effect Management: Results from a National Sample of Cancer Psychoeducation Program Attendees (American Public Health Association Annual Meeting and Exposition, 2017)

Informing and Empowering Cancer Patients About Immunotherapy: A Psychoeducational Workshop Addressing Needs in an Emerging Field (American Psychosocial Oncology Society Annual Conference, 2016)

Caregiver Participation in a Psychoeducational Cancer Support Program: Results From A National Sample  (International Cancer Education Conference, 2016)

Meeting the Educational Needs of Older Adults with Cancer: Results From a National Sample of Program Attendees (International Cancer Education Conference, 2016)

Response To Psychoeducational Programs In Long-Term Cancer Survivors: Results From A National Sample (International Cancer Education Conference, 2016)

Informational and Emotional Support Utilization and Needs of Lung Cancer Patients and Caregivers: Results from a National Education Program (International Cancer Education Conference, 2014)

Empowering Patients and Caregivers through a National Patient Education Program (International Cancer Education Conference, 2013)

The Value of a Lung Cancer Education Program for Patients and Caregivers (International Cancer Education Conference, 2012)

Closing the Gap: Meeting the Needs of Liver Cancer Patients through Education (International Cancer Education Conference, 2012)

A Five Year Review of an Educational Program Focused on Meeting the Needs of Advanced Breast Cancer Patients (ASCO Breast Cancer Symposium, 2012)

A Decade of Successful Outreach and Cancer Patient Education: Frankly Speaking About Cancer (International Cancer Education Conference, 2011)

Frankly Speaking About Cancer: A National Model of Success for Cancer Education and Patient Empowerment (American Public Health Association Annual Meeting and Exposition, 2011)

SCOPED Question-Listing among Hematological Cancer Patients (American Public Health Association Annual Meeting and Exposition, 2011)

Encouraging 'Patient Active' in the Treatment of Advanced Breast Cancer: Results from the Frankly Speaking About Advanced Breast Cancer Psychoeducational Program (ASCO Breast Cancer Symposium, 2010)

Frankly Speaking About Cancer: A Model of Patient Education (International Cancer Education Conference, 2010)

Financial Impact

Experience of Financial Burden and Distress Among People with Ovarian Cancer (American Society of Clinical Oncology, 2020)

Cancer-Related Distress and Cost of Care ConcernsCancer-Related Distress and Cost of Care Concerns (International Psycho-Oncology Society- The 21st World Congress of Psycho-Oncology, 2019)

Financial Toxicity and Cancer-Related Distress Among Melanoma Survivors (American Society of Clinical Oncology ASCO, 2017)

Cancer-Related Distress and Cost of Care Concerns Among Gastric Cancer Patients (American Society of Clinical Oncology ASCO, 2017)

Medication Adherence Among Patients with Chronic Myeloid Leukemia: The Impact of Financial Burden and Psychosocial Distress (Journal of Oncology Navigation & Survivorship, 2017)

Cancer Patient Experience with Financial Counseling among Participants of an Online Registry (American Society of Clinical Oncology, 2016)

Multiple Myeloma Patient Experience with Financial Toxicity (American Society of Hematology, 2015)

The Financial Costs of Metastatic Breast Cancer and the Decisions Patients Make to Cope with Costs: Findings from the Cancer Experience Registry (San Antonio Breast Cancer Symposium, 2014)

The Financial Costs of Chronic Myeloid Leukemia and Implications for Quality of Life and Adherence (American Society for Hematology, 2014)

A Four Year Review of the Financial Burden of Cancer Care: Results from a National Education Program (American Public Health Association Annual Meeting and Exposition, 2013)

Provider-Patient Communication About Cost of Care: Results from a National Patient Education Program (American Society of Clinical Oncology Annual Meeting, 2013)

Breast Care Patient Distress Associated with Difficulties Navigating the Costs Associated with Care: Results from a National Education Program (San Antonio Breast Cancer Symposium, 2011)

Patient Distress Due to Difficulties Navigating the Costs Associated with Cancer Care: Results from a National Education Program (International Cancer Education Conference, 2011)

Cancer Support Community's 'Coping with the Cost of Care' Program: An Indication of the Need for More Education and Support (International Cancer Education Conference, 2010)

The Hidden Costs of Cancer: Barriers to Accessing Financial Assistance (Society of Behavioral Medicine Annual Meeting and Scientific Sessions, 2010)

The Hidden Costs of Cancer: Barriers to Accessing Financial Assistance (Biennial Cancer Survivorship Research Conference, 2010)

The Hidden Costs of Cancer: Barriers to Accessing Financial Assistance (International Congress of Behavioral Medicine, 2010)

Immunotherapy

Assessing the Psychosocial Needs of Immunotherapy Patients: An Exploratory Study of Findings From Immunotherapy & Me (ASCO-SITC Clinical Immuno-Oncology Symposium, 2020)

Psychosocial Distress and Access to Resources: Preliminary Findings from Immunotherapy & Me (ASCO-SITC Clinical Immuno-Oncology Symposium, 2019)

Survey Analysis: Assessing the Needs of Immunotherapy Patients, Caregivers, and Health Care Providers (ASCO-SITC Clinical Immuno-Oncology Symposium, 2018)

Educating Cancer Patients about Immunotherapy: Gains from Attending a National Educational Immunotherapy Workshop (Society for Immunotherapy of Cancer, 2017)

Mental Health and Psychosocial Support

Cancer-Related Distress and Unmet Needs Among Acute Myeloid Leukemia (AML) Survivors (American Society of Hematology, 2019)

Predictors Of Social Function and Feelings of Isolation Among Metastatic Breast Cancer Survivors (San Antonio Breast Cancer Symposium, 2019)

Predictors of Anxiety and Depression Risk Among Individuals with Lung Cancer (American Society of Clinical Oncology, 2019)

Risk for Anxiety and Depression Among Individuals with Ovarian Cancer: The Interplay Between Age and Distress (Society of Gynecologic Oncology 50th Annual Meeting on Women’s Cancer, 2019)

The Psychosocial Impact of Melanoma-Related Stigma: Findings from the Cancer Experience Registry (Society of Behavioral Medicine 40th Annual Meeting, 2019)

Chronic Lymphocytic Leukemia Patient Reported Outcomes and Quality of Life: Findings from the Cancer Experience Registry (American Society of Hematology, 2017)

Older Adults Seeking Cancer Information and Support Online: Results From a National Sample of Program Attendees (2016 Gerontological Society of America Annual Scientific Meeting)

Psychosocial Service Utilization Among Older Adults With Cancer:Results From Psychoeducation Program Attendees (2016 Gerontological Society of America Annual Scientific Meeting)

Physical, Mental and Social Health among Multiple Myeloma Patients and Perceived Control over the Course of Cancer (Society of Behavioral Medicine Annual Meeting and Scientific Sessions, 2015)

Psychological Distress and Financial Burden Impact Adherence to CML Treatment (American Health & Drug Benefits, 2015)

The Alliance for Quality Psychosocial Cancer Care: An Innovative Model for Disseminating and Improving Implementation of National Quality Care Recommendations (Journal of the National Comprehensive Cancer Network, 2014)

Cancer-Related Distress and Unmet Needs among Members of a Metastatic Breast Cancer Registry (ASCO Breast Cancer Symposium, 2014)

Impact of a Patient Access Program with Integrated Distress Screening on Resource Utilization and Psychosocial Distress Levels in Patients with Multiple Myeloma (American Society of Hematology Annual Meeting, 2014)

The Impact of Question-Listing on Distress, Anxiety, and Question Self-Efficacy among Cancer Patients (American Society of Clinical Oncology Annual Meeting, 2014)

Lower Income Is Associated with Greater Likelihood to Seek Social and Emotional Support: Findings from a Community-Based Distress Screening Program (American Society of Clinical Oncology Annual Meeting, 2014)

The Impact of Age on Cancer Survivors' Psycho-Social Distress (Annual GSA Conference, 2012)

Assessing the Educational and Psychosocial Needs of Women with Ovarian Cancer (International Cancer Education Conference, 2012)

Developing a Comprehensive Program to Address Psychosocial Concerns of Young Women with Metastatic Breast Cancer (International Cancer Education Conference, 2012)

Patient Experience and Needs

Unintentional Weight Loss, Its Associated Burden, and Perceived Weight Status in People with Cancer (Supportive Care in Cancer, 2019)

Lung Cancer Symptom Burden and Quality of Life Findings from the Cancer Experience Registry (World Conference on Lung Cancer, 2018)

Insight Into the Patient Experience: Stomach Cancer Specialty Registry Report 2017 (Cancer Support Community, 2017)

Insight Into the Patient Experience: Prostate Cancer Specialty Registry Report 2017 (Cancer Support Community, 2017)

Insight Into the Patient Experience: Multiple Myeloma Specialty Registry Report 2017 (Cancer Support Community, 2017)

Insight Into the Patient Experience: Metastatic Breast Cancer Specialty Registry Report 2017 (Cancer Support Community, 2017)

Insight Into the Patient Experience: Melanoma Specialty Registry Report 2017(Cancer Support Community, 2017)

Insight Into the Patient Experience: Lung Cancer Specialty Registry Report 2017 (Cancer Support Community, 2017)

Insight Into the Patient Experience: Chronic Myeloid Leukemia (CML) Specialty Registry Report 2017 (Cancer Support Community, 2017)

Insight Into the Patient Experience: Chronic Lymphocytic Leukemia (CLL) Specialty Registry Report 2017 (Cancer Support Community, 2017)

Insight Into the Patient Experience: Breast Cancer Specialty Registry Report 2017 (Cancer Support Community, 2017)

Insight Into the Patient Experience: Cancer Experience Registry Report 2017 (Cancer Support Community, 2017)

The Psychosocial impact of Lung Cancer-Related Stigma: Findings from the Cancer Experience Registry (NCCN, 2017)

Helping Cancer Patients and Caregivers Navigate Immunotherapy Treatment (The American Journal of Manage Care - Evidence Based Oncology, 2017)

How Patient and Caregiver Informational and Psychosocial Needs are Being Met in Practice: Results from a National Melanoma Survey (Annual Conference of the Academy of Oncology Nurse and Patient Navigators - AONN, 2016)

Cancer Patient Experience with Financial Counseling among Participants of an Online Registry (American Society of Clinical Oncology, 2016)

Definitions of Value among Patients with Breast Cancer ( American Society of Clinical Oncology, 2016)

Psychosocial Health Disparity Among Diverse Racial-ethnic Groups: Implications for the Use of a Patient-Powered Registry (American Psychosocial Oncology Society, 2016)

Symptom Burden and Palliative Care for Multiple Myeloma Patients: Cancer Experience Registry Findings (American Society of Hematology, 2015)

Cancer Experience Registry Cancer Experience Days and the Critical Role of Affiliates in Outreach (Affiliate Leadership Conference, Cancer Support Community, 2014)

Difference in the Cancer Patient Experience across Patient Settings (American Public Health Association Annual Meeting and Exposition, 2014)

Elevating the Patient Voice: Cancer Experience Registry Index Report 2013 - 2014 (Cancer Support Community Report, 2014)

Elevating the Patient Voice: Overview of the Cancer Experience Registry Index Report 2013 - 2014 (Affiliate Leadership Conference, Cancer Support Community, 2014)

Understanding the Experience of Living with Non–Small Cell Lung Cancer (NSCLC): A Qualitative Study (The Journal of Community and Supportive Oncology, 2014)

Do I Have Cancer? Understanding the Needs of Myelofibrosis Patients (International Cancer Education Conference, 2013)

Understanding the Experience of Living with Non-Small Cell Lung Cancer (American Society of Clinical Oncology Annual Meeting, 2013)

Understanding the Multiple Myeloma Experience: Results from an Online Survey (International Cancer Education Conference, 2013)

Patient Provider Communication

Enhancing CSC’s Patient/Provider Discussion Tool for Metastatic Breast Cancer

Treatment Decision Making and Treatment Satisfaction among Individuals Living with Chronic Myeloid Leukemia (American Society of Hematology Annual Meeting, 2018)

Predictors of Patient-Reported Communication with Their Health Care Team about New Treatment Options for Chronic Lymphocytic Leukemia (American Society of Hematology Annual Meeting, 2018)

A Patient/Provider Discussion Tool for Chronic Myeloid Leukemia (Academy of Oncology Nurse and Patient Navigators - AONN, 2017)

Multiple Myeloma Patient Experience with Communication about Treatment Decision (American Society for Hematology Annual Meeting, 2014)

Evaluation of Question-Listing at the Cancer Support Community (Translational Behavioral Medicine, 2013)

Provider-Patient Communication About Cost of Care: Results from a National Patient Education Program (American Society of Clinical Oncology Annual Meeting, 2013)

Patient Value

Valued Outcomes in the Cancer Experience(VOICE™): Scale Development and Initial Validation (National Comprehensive Cancer Network Annual Conference, 2019)

Valued Outcomes in the Cancer Experience Patient Priorities and Control (American Society of Clinical Oncology Quality Care Symposium, 2018)

Definitions of value among a diverse sample of cancer survivors: Differences accounting to sociodemographics (Association for Value-Based Cancer Care, 2016)

Definitions of value among multiple myeloma patients in a cancer registry (Association for Value-Based Cancer Care, 2016)

Definitions of Value Among Patients with Breast Cancer (American Society of Clinical Oncology, 2016)

Cancer Patients' Priorities When Considering a Treatment Decision (8th Biennial Cancer Survivorship Research Conference, 2016)

Defining Value in Oncology: Perspectives from Patients with Metastatic Breast Cancer  (Association for Value-Based Cancer Care, 5th Annual Conference, 2015)

Program Development, Implementation and Quality

Educating Cancer Patients about Immunotherapy: Gains from Attending a National Educational Immunotherapy Workshop (Society for Immunotherapy of Cancer, 2017)

Patient-Reported Outcomes are Changing the Landscape in Oncology Care: Challenges and Opportunities for Payer (American Health & Drug Benefits, 2014)

Readiness to Implement Continuum of Care Standards by Commission on Cancer Accredited Programs (American Psychosocial Oncology Society Annual Conference, 2014)

Evaluation of Question-listing at the Cancer Support Community (Translational Behavioral Medicine, June 2013)

Weathering the Storm Is Not Enough: Oncology Social Work as a Lifeline for Quality Cancer Care (Association of Oncology Social Work, Quality of Life Award, 2011)

Frankly Speaking About Advanced Breast Cancer: Development, Implementation, Evaluation, and New Directions (American Public Health Association Annual Meeting and Exposition, 2010)

Teens' Needs

Group Loop: A Website for Teens Impacted by Cancer (LIVESTRONG Young Adult Alliance, 2011)

What About US: Children and Teen Living with Cancer in the Family (Association of Oncology Social Work, 2011)

Sexual Health

Sexual Morbidity and Unmet Needs among Members of a Metastatic Breast Cancer Registry (American Society of Clinical Oncology Annual Meeting, 2015)

Distress Associated with Problems with Sexual Function among Breast Cancer Survivors (American Psychosocial Oncology Society Annual Conference, 2012)

Survivorship

Patient-clinician communication about nutrition, weight, fitness, and fatigue in cancer care (American Society of Clinical Oncology ASCO, 2018)

Perceptions of Unintentional Weight Loss Among Cancer Survivors (2018 ASCO Cancer Survivorship Symposium: Advancing Care and Research)

Symptom Burden, Palliative Care Needs, and Patient-Provider Communication Among Chronic Myeloid Leukemia Survivors (American Society of Hematology, 2017)

Chemotherapy-Induced Peripheral Neuropathy and Quality of Life Among Breast Cancer Survivors (San Antonio Breast Cancer Symposium, 2017)

Perceptions and Consequences of Cancer-Related Weight Loss Among Individuals with Cancer and Caregivers (ASCO Survivorship Sympsium 2017)

Patient Experience with Survivorship Care Plans: Findings from the Cancer Experience Registry® (Biennial Cancer Survivorship Conference, 2014)

Evaluation of the Efficacy and Usability of NCI’s Facing Forward Booklet in the Cancer Community Setting (Journal of Cancer Survivorship, 2013)

Assessing Patient Experiences with Survivorship Care Plans: Breast Cancer Survivors (Society of Behavioral Medicine Annual Meeting & Scientific Sessions, 2012)

Breast Cancer Survivors’ Beliefs about Environmental Risk Factors: Results from a National Cancer Survivor Registry (Biennial Cancer Survivorship Research Conference, 2012)

Partnering to Improve Health Outcomes of Post Treatment Cancer Survivors (American Public Health Association Annual Meeting and Exposition, 2012)

Problem-Related Distress and Quality of Life in Cancer Survivors (American Psychosocial Oncology Society Annual Conference, 2012)

Patient Experience with Survivorship Care Plans: Online Experience of Breast Cancer Survivors (American Society of Clinical Oncology Annual Meeting, 2011)

Treatment Decision-Making

Health Care Team and Treatment Decision-Making Experiences Among Prostate Cancer Patients (ASCO Genitourinary Cancer Symposium, 2020)

Treatment Decision Priorities and Decisional Support Experiences of Gastric Cancer Survivors (American Society of Clinical Oncology ASCO, 2018)

Treatment Decision-Making Priorities and Satisfaction Among Melanoma Survivors (American Society of Clinical Oncology ASCO, 2018)

Non-metastatic and Metastatic Breast Cancer Patients' Priorities When Considering a Treatment Decision (San Antonio Breast Cancer Symposium, 2016)

Treatment Decision Making Priorities and Satisfaction Among Older Prostate Cancer Survivors (Gerontological Society of America Annual Scientific Meeting, 2016)

Treatment Decision Making Priorities and Satisfaction Among Older Prostate Cancer Survivors (Cancer Support Community, Research and Training Institute, Philadelphia PA)

Cancer Patients' Priorities When Considering a Treatment Decision (8th Biennial Cancer Survivorship Research Conference, 2016)

The Need for Decision and Communication Aids: A Survey of Breast Cancer Survivors (The Journal of Community and Supportive Oncology, 2015)

Factors Influencing Treatment Decisions among Cancer Patients: Results from National Patient Education Workshops (World Congress of Pyscho-Oncology, 2015)

Characterizing the Metastatic Breast Cancer Patient Experience Around Preparing for a Treatment Decision (San Antonio Breast Cancer Symposium, 2014)

Treatment Decision-Making Factors Among Individuals with Lung Cancer: Results from a National Education Program (International Cancer Education Conference, 2014)

Evaluation of question-listing at the Cancer Support Community (Cancer Support Community, 2013)

Improving Patient-Provider Communication and Shared Decision Making in Metastatic Breast Cancer (International Cancer Education Conference, 2013)

National Findings on How Cancer Patients Make Treatment Decisions  (International Cancer Education Conference, 2012)

Assessing Breast Cancer Survivor Needs for Treatment Decision Support (Society of Behavioral Medicine Annual Meeting & Scientific Sessions, 2011)

Predictors of Change Following a Treatment Decision Support Program (American Psychosocial Oncology Society Annual Conference, 2011)

Work Impact

Work-Related Impact of Metastatic Breast Cancer: Results from the Cancer Experience Registry® (Biennial Cancer Survivorship Conference, 2015)

Conferences

Academy of Oncology Nurse and Patient Navigators Annual Conference

Making Cancer Clinical Trials Education Accessible to Hispanics (AONN+ Ninth Annual Navigation & Survivorship Conference, 2018)

A Patient/Provider Discussion Tool for Chronic Myeloid Leukemia (Annual Conference of the Academy of Oncology Nurse and Patient Navigators - AONN, 2017)

How Patient and Caregiver Informational and Psychosocial Needs are Being Met in Practice: Results from a National Melanoma Survey (Annual Conference of the Academy of Oncology Nurse and Patient Navigators - AONN, 2016)

Affiliate Leadership Conference, Cancer Support Community

Cancer Experience Registry Cancer Experience Days and the Critical Role of Affiliates in Outreach (Affiliate Leadership Conference, Cancer Support Community, 2014)

Elevating the Patient Voice: Overview of the Cancer Experience Registry Index Report 2013 - 2014 (Affiliate Leadership Conference, Cancer Support Community, 2014)

2019 ALC Psychosocial Preconference (CEUs Available) (Affiliate Leadership Conference, Cancer Support Community, 2019)

AICR Research Conference

Cancer Caregiver Perceptions of Patients’ Unintentional Weight Loss: Practical and Psychosocial Considerations (AICR Research Conference, 2019)

American Health & Drug Benefits

Psychological Distress and Financial Burden Impact Adherence to CML Treatment  (American Health & Drug Benefits, 2015)

Patient-Reported Outcomes are Changing the Landscape in Oncology Care: Challenges and Opportunities for Payer  (American Health & Drug Benefits, 2014)

The American Journal of Managed Care

Helping Cancer Patients and Caregivers Navigate Immunotherapy Treatment (The American Journal of Manage Care - Evidence Based Oncology, 2017)

Evolving Strategies for the Management of Multiple Myeloma (The American Journal of Managed Care, 2014)

American Psychosocial Oncology Society Annual Conference

Preparedness for Care and Formal Training of Family Cancer Caregivers (American Psychosocial Oncology Society, 2018)

Psychometric Properties of a 47-item Distress Screening Tool for Older Caregivers of Cancer Patients (American Psychological Oncology Society, 2017)

Informing and Empowering Cancer Patients About Immunotherapy: A Psychoeducational Workshop Addressing Needs in an Emerging Field (American Psychosocial Oncology Society Annual Conference, 2016)

Psychosocial Health Disparity Among Diverse Racial-ethnic Groups: Implications for the Use of a Patient-Powered Registry (American Psychosocial Oncology Society, 2016)

Readiness to Implement Continuum of Care Standards by Commission on Cancer Accredited Programs (American Psychosocial Oncology Society Annual Conference, 2014)

Distress Associated with Problems with Sexual Function among Breast Cancer Survivors (American Psychosocial Oncology Society Annual Conference, 2012)

Problem-Related Distress and Quality of Life in Cancer Survivors (American Psychosocial Oncology Society Annual Conference, 2012)

Creating an Integrative Biopsychosocial Screening Model (American Psychosocial Oncology Society Annual Conference, 2011)

Decisional Factors Influencing Breast Reconstruction Post-Mastectomy: Results from a National Survey (American Psychosocial Oncology Society Annual Conference, 2011)

Predictors of Change Following a Treatment Decision Support Program (American Psychosocial Oncology Society Annual Conference, 2011)

American Public Health Association Annual Meeting and Exposition

Supporting Cancer Treatment Side Effect Management: Results from a National Sample of Cancer Psychoeducation Program Attendees (American Public Health Association Annual Meeting and Exposition, 2017)

Difference in the Cancer Patient Experience across Patient Settings (American Public Health Association Annual Meeting and Exposition, 2014)

A Four Year Review of the Financial Burden of Cancer Care: Results from a National Education Program (American Public Health Association Annual Meeting and Exposition, 2013)

Empowering Women with Breast Cancer during the Decision-Making Process About Breast Reconstruction Options: Results from Nationwide Patient Education Workshops (American Public Health Association Annual Meeting and Exposition, 2012)

Partnering to Improve Health Outcomes of Post Treatment Cancer Survivors (American Public Health Association Annual Meeting and Exposition, 2012)

Closing the Gap: Results from a National Survey of Breast Cancer Survivors Regarding Breast Reconstruction Options and Health Education Resources (American Public Health Association Annual Meeting and Exposition, 2011)

Frankly Speaking About Cancer: A National Model of Success for Cancer Education and Patient Empowerment (American Public Health Association Annual Meeting and Exposition, 2011)

SCOPED Question-Listing among Hematological Cancer Patients (American Public Health Association Annual Meeting and Exposition, 2011)

Frankly Speaking About Advanced Breast Cancer: Development, Implementation, Evaluation, and New Directions (American Public Health Association Annual Meeting and Exposition, 2010)

American Society of Clinical Oncology

Experience of Financial Burden and Distress Among People with Ovarian Cancer (American Society of Clinical Oncology, 2020)

Predictors of Anxiety and Depression Risk Among Individuals with Lung Cancer (American Society of Clinical Oncology, 2019)

Patient-clinician communication about nutrition, weight, fitness, and fatigue in cancer care (American Society of Clinical Oncology ASCO, 2018)

Treatment Decision Priorities and Decisional Support Experiences of Gastric Cancer Survivors (American Society of Clinical Oncology ASCO, 2018)

Treatment Decision-Making Priorities and Satisfaction Among Melanoma Survivors (American Society of Clinical Oncology ASCO, 2018)

Financial Toxicity and Cancer-Related Distress Among Melanoma Survivors (American Society of Clinical Oncology ASCO, 2017)

Sexual Function, Quality of Life, and Cancer-Related Distress Among Prostate Cancer Survivors (American Society of Clinical Oncology ASCO, 2017)

Cancer-Related Distress and Cost of Care Concerns Among Gastric Cancer Patients (American Society of Clinical Oncology ASCO, 2017)

Definitions of Value among Patients with Breast Cancer ( American Society of Clinical Oncology, 2016)

Cancer Patient Experience with Financial Counseling among Participants of an Online Registry (American Society of Clinical Oncology, 2016)

Treatment-Adherence Beliefs and Behaviors in Patients with Chronic Myeloid Leukemia (American Society of Clinical Oncology Annual Meeting, 2015)

Sexual Morbidity and Unmet Needs among Members of a Metastatic Breast Cancer Registry (American Society of Clinical Oncology Annual Meeting, 2015)

The Impact of Question-Listing on Distress, Anxiety, and Question Self-Efficacy among Cancer Patients (American Society of Clinical Oncology Annual Meeting, 2014)

Lower Income Is Associated with Greater Likelihood to Seek Social and Emotional Support: Findings from a Community-Based Distress Screening Program (American Society of Clinical Oncology Annual Meeting, 2014)

Provider-Patient Communication About Cost of Care: Results from a National Patient Education Program (American Society of Clinical Oncology Annual Meeting, 2013)

Understanding the Experience of Living with Non-Small Cell Lung Cancer (American Society of Clinical Oncology Annual Meeting, 2013)

Discriminatory Power of a 25-Item Distress Screening Tool CancerSupportSource: A Cross-Sectional Study of 251 Cancer Survivors (American Society of Clinical Oncology Annual Meeting, 2013)

Discriminatory Power of Distress Screening Poster (American Society of Clinical Oncology Annual Meeting, 2013)

Developing a Community-Based Screening Instrument (American Society of Clinical Oncology Annual Meeting, 2011)

Patient Experience with Survivorship Care Plans: Online Experience of Breast Cancer Survivors (American Society of Clinical Oncology Annual Meeting, 2011)

American Society of Hematology

Cancer-Related Distress and Unmet Needs Among Acute Myeloid Leukemia (AML) Survivors (American Society of Hematology, 2019)

Treatment Decision Making and Treatment Satisfaction among Individuals Living with Chronic Myeloid Leukemia (American Society of Hematology Annual Meeting, 2018)

Predictors of Patient-Reported Communication with Their Health Care Team about New Treatment Options for Chronic Lymphocytic Leukemia (American Society of Hematology Annual Meeting, 2018)

Sleep Disturbance among Individuals with Multiple Myeloma: The Interplay between Physical and Psychosocial Symptoms (American Society of Hematology Annual Meeting, 2018)

Multiple Myeloma Symptom Burden, Perceived Control, and Quality of Life: Findings from the Cancer Experience Registry (American Society of Hematology, 2017)

Symptom Burden, Palliative Care Needs, and Patient-Provider Communication Among Chronic Myeloid Leukemia Survivors (American Society of Hematology, 2017)

Chronic Lymphocytic Leukemia Patient Reported Outcomes and Quality of Life: Findings from the Cancer Experience Registry (American Society of Hematology, 2017)

Multiple Myeloma Patient Experience with Financial Toxicity (American Society of Hematology, 2015)

Symptom Burden and Palliative Care for Multiple Myeloma Patients: Cancer Experience Registry Findings (American Society of Hematology, 2015)

The Financial Costs of Chronic Myeloid Leukemia and Implications for Quality of Life and Adherence (American Society for Hematology, 2014)

Multiple Myeloma Patient Experience with Communication about Treatment Decision (American Society of Hematology Annual Meeting, 2014)

The Financial Costs of Chronic Myeloid Leukemia and Implications for Quality of Life and Adherence (American Society of Hematology, 2014)

Impact of a Patient Access Program with Integrated Distress Screening on Resource Utilization and Psychosocial Distress Levels in Patients with Multiple Myeloma (American Society of Hematology Annual Meeting, 2014)

Annual GSA Conference

The Impact of Age on Cancer Survivors' Psycho-Social Distress (Annual GSA Conference, 2012)

APOS

Innovation in Developing Evidence-Based Programs that Identify and Address the Social and Emotional Needs of Cancer Caregivers: Distress Screening and Referral for Caregivers (APOS, 2016)

Integrative Models of Reducing Caregiver Burden in Underserved Communities (APOS, 2016)

ASCO Breast Cancer Symposium

Cancer-Related Distress and Unmet Needs among Members of a Metastatic Breast Cancer Registry (ASCO Breast Cancer Symposium, 2014)

A Five Year Review of an Educational Program Focused on Meeting the Needs of Advanced Breast Cancer Patients (ASCO Breast Cancer Symposium, 2012)

Patient Informational Needs about Breast Reconstruction Post Mastectomy (ASCO Breast Cancer Symposium, 2012)

Encouraging 'Patient Active' in the Treatment of Advanced Breast Cancer: Results from the Frankly Speaking About Advanced Breast Cancer Psychoeducational Program (ASCO Breast Cancer Symposium, 2010)

ASCO Cancer Survivorship Symposium: Advancing Care and Research

Perceptions of Unintentional Weight Loss Among Cancer Survivors (2018 ASCO Cancer Survivorship Symposium: Advancing Care and Research)

Perceptions and Consequences of Cancer-Related Weight Loss Among Individuals with Cancer and Caregivers (ASCO Survivorship Sympsium 2017)

Cancer-Related Distress and Unmet Needs Among Newly Diagnosed and Longer-Term Cancer Survivors from a Community-Based Distress Screening Program (ASCO Cancer Survivorship Symposium: Advancing Care and Research, 2016)

ASCO Genitourinary Cancer Symposium

Health Care Team and Treatment Decision-Making Experiences Among Prostate Cancer Patients (ASCO Genitourinary Cancer Symposium, 2020)

Prostate Cancer-Related Quality of Life and Risk for Anxiety and Depression (ASCO Genitourinary Cancer Symposium, 2019)

Perceptions About Cancer Clinical Trials Among Prostate Cancer Survivors (2018 Genitourinary (GU) Cancers Symposium, 2018)

ASCO Quality Symposium

Valued Outcomes in the Cancer Experience Patient Priorities and Control (American Society of Clinical Oncology Quality Care Symposium, 2018)

Access to Care in Cancer: Barriers and Challenges (ASCO Quality Symposium, 2017)

ASCO-SITC Clinical Immuno-Oncology Symposium

Assessing the Psychosocial Needs of Immunotherapy Patients: An Exploratory Study of Findings From Immunotherapy & Me (ASCO-SITC Clinical Immuno-Oncology Symposium, 2020)

Psychosocial Distress and Access to Resources: Preliminary Findings from Immunotherapy & Me (ASCO-SITC Clinical Immuno-Oncology Symposium, 2019)

Survey Analysis: Assessing the Needs of Immunotherapy Patients, Caregivers, and Health Care Providers (ASCO-SITC Clinical Immuno-Oncology Symposium, 2018)

Association for Value-Based Cancer Care

Definitions of value among a diverse sample of cancer survivors: Differences according to sociodemographics (Association for Value-Based Cancer Care, 6th Annual Conference, 2016)

Definitions of value among multiple myeloma patients in cancer registry (Association for Value-Based Cancer Care, 6th Annual Conference, 2016)

Defining Value in Oncology: Perspectives from Patients with Metastatic Breast Cancer (Association for Value-Based Cancer Care, 5th Annual Conference, 2015)

Measuring the Value of Telephone Distress Screening and Referral on Resource Utilization and Distress in Patients with Multiple Myeloma (Association of Value-Based Cancer Care Meeting, 2015)

Association of Oncology Social Work

Linking Multiple Myeloma Patients and Families with Telephone Support: A Unique Pathway for Caller Referral (Association of Oncology Social Work Annual Conference, 2014)

What About US: Children and Teen Living with Cancer in the Family (Association of Oncology Social Work, 2011)

Weathering the Storm Is Not Enough: Oncology Social Work as a Lifeline for Quality Cancer Care (Association of Oncology Social Work, Quality of Life Award, 2011)

Biennial Cancer Survivorship Research Conference

Cancer Patients' Priorities When Considering a Treatment Decision (8th Biennial Cancer Survivorship Research Conference, 2016)

Work-Related Impact of Metastatic Breast Cancer: Results from the Cancer Experience Registry® (Biennial Cancer Survivorship Conference, 2015)

Patient Experience with Survivorship Care Plans: Findings from the Cancer Experience Registry® (Biennial Cancer Survivorship Conference, 2014)

Breast Cancer Survivors’ Beliefs about Environmental Risk Factors: Results from a National Cancer Survivor Registry (Biennial Cancer Survivorship Research Conference, 2012)

CancerSupportSource (CSS) Validation: Psychometric Properties of a 25-item Distress Screening Tool in a Community Sample of 251 Cancer Survivors (Biennial Cancer Survivorship Research Conference, 2012)

The Hidden Costs of Cancer: Barriers to Accessing Financial Assistance (Biennial Cancer Survivorship Research Conference, 2010)

Cancer Support Community Report

Access to Care in Cancer 2016: Barriers and Challenges (Cancer Support Community, 2016)

Treatment Decision Making Priorities and Satisfaction Among Older Prostate Cancer Survivors (Cancer Support Community, Research and Training Institute, Philadelphia PA)

An Insight into Patient Access to Care in Cancer (Cancer Support Community Report, 2015)

Elevating the Patient Voice: Cancer Experience Registry Index Report 2013 - 2014 (Cancer Support Community Report, 2014)

European Journal of Cancer Care

Attitudinal Barriers to Participation in Oncology Clinical Trials: Factor Analysis and Correlates of Barriers (European Journal of Cancer Care, 2014)

Gerontological Society of America Annual Scientific Meeting

Treatment Decision Making Priorities and Satisfaction Among Older Prostate Cancer Survivors (Gerontological Society of America Annual Scientific Meeting, 2016)

Older Adults Seeking Cancer Information and Support Online: Results From a National Sample of Program Attendees (2016 Gerontological Society of America Annual Scientific Meeting)

Psychosocial Service Utilization Among Older Adults With Cancer:Results From Psychoeducation Program Attendees (2016 Gerontological Society of America Annual Scientific Meeting)

International Cancer Education Conference

Coping with the Cost of Cancer Care: Findings from a National Evidence-Based Educational Program (International Cancer Education Conference, 2018)

Addressing Cancer-Related Knowledge and Communication Skills: Eight Years of Outcome Data from Psychoeducational Cancer Workshop Attendee (International Cancer Education Conference, 2017)

Meeting the Educational Needs of Older Adults with Cancer: Results From a National Sample of Program Attendees (International Cancer Education Conference, 2016)

Caregiver Participation in a Psychoeducational Cancer Support Program: Results From A National Sample  (International Cancer Education Conference, 2016)

Response To Psychoeducational Programs In Long-Term Cancer Survivors: Results From A National Sample(International Cancer Education Conference, 2016)

Informational and Emotional Support Utilization and Needs of Lung Cancer Patients and Caregivers: Results from a National Education Program (International Cancer Education Conference, 2014)

Treatment Decision-Making Factors Among Individuals with Lung Cancer: Results from a National Education Program (International Cancer Education Conference, 2014)

Empowering Patients and Caregivers through a National Patient Education Program (International Cancer Education Conference, 2013)

Identification of Gaps in Resources and Support for Brain Tumor Patients and Caregivers: Results from an Online Survey (International Cancer Education Conference, 2013)

Improving Patient-Provider Communication and Shared Decision Making in Metastatic Breast Cancer (International Cancer Education Conference, 2013)

Do I Have Cancer? Understanding the Needs of Myelofibrosis Patients (International Cancer Education Conference, 2013)

Understanding the Multiple Myeloma Experience: Results from an Online Survey (International Cancer Education Conference, 2013)

Assessing the Educational and Psychosocial Needs of Women with Ovarian Cancer (International Cancer Education Conference, 2012)

Closing the Gap: Meeting the Needs of Liver Cancer Patients through Education (International Cancer Education Conference, 2012)

Developing a Comprehensive Program to Address Psychosocial Concerns of Young Women with Metastatic Breast Cancer (International Cancer Education Conference, 2012)

National Findings on How Cancer Patients Make Treatment Decisions (International Cancer Education Conference, 2012)

The Value of a Lung Cancer Education Program for Patients and Caregivers (International Cancer Education Conference, 2012)

Novel Programming to Meet Unmet Needs - Frankly Speaking About Cancer: Spotlight on Breast Reconstruction (International Cancer Education Conference, 2011)

Patient Distress Due to Difficulties Navigating the Costs Associated with Cancer Care: Results from a National Education Program (International Cancer Education Conference, 2011)

A Decade of Successful Outreach and Cancer Patient Education: Frankly Speaking About Cancer (International Cancer Education Conference, 2011)

Frankly Speaking About Cancer: A Model of Patient Education (International Cancer Education Conference, 2010)

Cancer Support Community's 'Coping with the Cost of Care' Program: An Indication of the Need for More Education and Support (International Cancer Education Conference, 2010)

International Congress of Behavioral Medicine

The Hidden Costs of Cancer: Barriers to Accessing Financial Assistance (International Congress of Behavioral Medicine, 2010)

Journal of Cancer Survivorship

Evaluation of the Efficacy and Usability of NCI’s Facing Forward Booklet in the Cancer Community Setting (Journal of Cancer Survivorship, 2013)

The Journal of Community and Supportive Oncology

The Need for Decision and Communication Aids: A Survey of Breast Cancer Survivors (The Journal of Community and Supportive Oncology, 2015)

Understanding the Experience of Living with Non–Small Cell Lung Cancer (NSCLC): A Qualitative Study (The Journal of Community and Supportive Oncology, 2014)

Journal of the National Comprehensive Cancer Network

The Alliance for Quality Psychosocial Cancer Care: An Innovative Model for Disseminating and Improving Implementation of National Quality Care Recommendations (Journal of the National Comprehensive Cancer Network, 2014)

Journal of Psychosocial Oncology

From Distress Guidelines to Developing Models of Psychosocial Care (Journal of Psychosocial Oncology, 2012)

LIVESTRONG Young Adult Alliance

Group Loop: A Website for Teens Impacted by Cancer (LIVESTRONG Young Adult Alliance, 2011)

National Comprehensive Cancer Network Annual Conference

Results from a Pilot Study Examining the Impact of Distress Screening and Referral on Health Care Cost and Utilization Among Breast Cancer Patients (National Comprehensive Cancer Network Annual Conference, 2020)

CancerSupportSource®-15: Development and Evaluation of a Short Form of a Distress Screening Program for Cancer Survivors (National Comprehensive Cancer Network Annual Conference, 2019)

Valued Outcomes in the Cancer Experience(VOICE™): Scale Development and Initial Validation (National Comprehensive Cancer Network Annual Conference, 2019)

Psychometric Properties of a 4-item Depression and Anxiety Risk Screening Tool for Cancer Survivors (National Comprehensive Cancer Network Annual Conference, 2018)

Factor Structure and Validity of CancerSupportSource®: A Revised 25-item Distress Screening Tool For Cancer Survivors (National Comprehensive Cancer Network Annual Conference, 2018)

The Psychosocial impact of Lung Cancer-Related Stigma: Findings from the Cancer Experience Registry (National Comprehensive Cancer Network Annual Conference, 2017)

Refining a Validated Distress Screening Tool of Caregivers of Cancer Patients in a Community-Based Sample (National Comprehensive Cancer Network Annual Conference, 2017)

Discriminatory Power of A 15-item Distress Screening Tool Among Those at Risk for Depression: Implications for Triage Post Distress Screening (National Comprehensive Cancer Network Annual Conference, 2016)

CancerSupportSource (CSS): Validating a 13-Item Web-Based Distress Screening Tool in the Community - Abstract Version (National Comprehensive Cancer Network Annual Conference, 2014)

CancerSupportSource (CSS): Validating a 13-Item Web-based Distress Screening Tool in the Community - Poster Version (National Comprehensive Cancer Network Annual Conference, 2014)

CancerSupportSource (CSS): Validating a 15-Item Spanish Web-Based Screening Tool in the Community - Abstract Version (National Comprehensive Cancer Network Annual Conference, 2014)

CancerSupportSource (CSS): Validating a 15-Item Spanish Web-Based Screening Tool in the Community - Poster Version (National Comprehensive Cancer Network Annual Conference, 2014)

CancerSupportSource Implementation Poster (National Comprehensive Cancer Network Annual Conference, 2013)

CancerSupportSource: Validating a Web-Based Distress Screening Tool in the Community (National Comprehensive Cancer Network 18th Annual Conference, 2013)

Quality of Life Research

Discriminatory Power of a 25-Item Distress Screening Tool: A Cross-sectional Survey of 251 Cancer Survivors (Quality of Life Research, 2014)

San Antonio Breast Cancer Symposium

Predictors Of Social Function and Feelings of Isolation Among Metastatic Breast Cancer Survivors (San Antonio Breast Cancer Symposium, 2019)

Enhancing CSC’s Patient/Provider Discussion Tool for Metastatic Breast Cancer

Revising Frankly Speaking About Cancer: Metastatic Breast Cancer Book (San Antonio Breast Cancer Symposium, 2019)

Sleep Disturbance and Quality of Life Among Breast Cancer Survivors (San Antonio Breast Cancer Symposium, 2018)

Impact of educational workshops on patient-provider communication: Results from the Frankly Speaking About Cancer: Metastatic Breast Cancer evidence-based educational workshops (San Antonio Breast Cancer Symposium, 2018)

Chemotherapy-Induced Peripheral Neuropathy and Quality of Life Among Breast Cancer Survivors (San Antonio Breast Cancer Symposium, 2017)

Non-metastatic and Metastatic Breast Cancer Patients' Priorities When Considering a Treatment Decision (San Antonio Breast Cancer Symposium, 2016)

Breast Cancer Clincial Trials: Patient Experiences, Preferences, and Insights Into Increasing Participation (San Antonio Breast Cancer Symposium, 2016)

The Financial Costs of Metastatic Breast Cancer and the Decisions Patients Make to Cope with Costs: Findings from the Cancer Experience Registry (San Antonio Breast Cancer Symposium, 2014)

Characterizing the Metastatic Breast Cancer Patient Experience Around Preparing for a Treatment Decision (San Antonio Breast Cancer Symposium, 2014)

Perceptions about Cancer Clinical Trials among Metastatic Breast Cancer Patients: Findings from a Patient Powered Registry (San Antonio Breast Cancer Symposium, 2014)

Informational Needs among Women Considering Breast Reconstruction Post-Mastectomy (San Antonio Breast Cancer Symposium, 2012)

Perceptions of Marginalization in Those Affected by Advanced Breast Cancer (San Antonio Breast Cancer Symposium, 2012)

Breast Care Patient Distress Associated with Difficulties Navigating the Costs Associated with Care: Results from a National Education Program (San Antonio Breast Cancer Symposium, 2011)

Patient-Provider Communication and Patient Informational Needs for Breast Reconstruction Post-Mastectomy: Results from a National Survey (San Antonio Breast Cancer Symposium, 2011)

Society for Immunotherapy of Cancer

Addressing Immunotherapy Educational Needs: Results from an Educational Program on Immunotherapy for Cancer Patients and Caregivers (Society for Immunotherapy of Cancer (SITC), 2018)

Educating Cancer Patients about Immunotherapy: Gains from Attending a National Educational Immunotherapy Workshop (Society for Immunotherapy of Cancer, 2017)

Society of Behavioral Medicine Annual Meeting & Scientific Sessions

The Psychosocial Impact of Melanoma-Related Stigma: Findings from the Cancer Experience Registry (Society of Behavioral Medicine 40th Annual Meeting, 2019)

Psychometric Properties of a 47-item Distress Screening Tool for Caregivers of Cancer Patients in a Community-Based Sample (Society of Behavioral Medicine, 2017)

Cancer-related Distress Among Different Racial-ethnic Groups from a Community-based Distress Screening Program (Society of Behavioral Medicine, 37th Annual Meeting and Scientific Sessions, 2016)

Physical, Mental and Social Health among Multiple Myeloma Patients and Perceived Control over the Course of Cancer (Society of Behavioral Medicine Annual Meeting and Scientific Sessions, 2015)

CancerSupportSource: Validating a 25-Item Spanish Web-Based Distress Screening Tool in the Community (Society of Behavioral Medicine Annual Meeting & Scientific Sessions, 2014)

Decisional Factors Influencing Breast Reconstruction Post-Mastectomy (Society of Behavioral Medicine Annual Meeting & Scientific Sessions, 2013)

Assessing Patient Experiences with Survivorship Care Plans: Breast Cancer Survivors (Society of Behavioral Medicine Annual Meeting & Scientific Sessions, 2012)

Community-Based Distress Screening: Findings from an Online Registry (Society of Behavioral Medicine Annual Meeting and Scientific Sessions, 2012)

Assessing Breast Cancer Survivor Needs for Treatment Decision Support (Society of Behavioral Medicine Annual Meeting & Scientific Sessions, 2011)

Validation of a Problem-Based Biopsychosocial Screening Instrument (Society of Behavioral Medicine Annual Meeting and Scientific Sessions, 2011)

The Hidden Costs of Cancer: Barriers to Accessing Financial Assistance (Society of Behavioral Medicine Annual Meeting and Scientific Sessions, 2010)

Society of Behavioral Medicine Symposium

Implementing Community-Based Distress Screening (Society of Behavioral Medicine Symposium, 2012)

Society of Gynecologic Oncology

Risk for Anxiety and Depression Among Individuals with Ovarian Cancer: The Interplay Between Age and Distress (Society of Gynecologic Oncology 50th Annual Meeting on Women’s Cancer, 2019)

Translational Behavioral Medicine

Evaluation of Question-Listing at the Cancer Support Community (Translational Behavioral Medicine, 2013)

World Conference on Lung Cancer

Lung Cancer Symptom Burden and Quality of Life Findings from the Cancer Experience Registry (World Conference on Lung Cancer, 2018)

World Congress of Pyscho-Oncology

Cancer-Related Distress and Cost of Care ConcernsCancer-Related Distress and Cost of Care Concerns (International Psycho-Oncology Society- The 21st World Congress of Psycho-Oncology, 2019)

Factors Influencing Treatment Decisions among Cancer Patients: Results from National Patient Education Workshops (World Congress of Pyscho-Oncology, 2015)

Information and Emotional Support Utilization among Cancer Caregivers: Results from a National Sample of Education Program Attendees (World Congress of Pyscho-Oncology, 2015)

Innovation in Developing Evidence-Based Programs that Identify and Address the Social and Emotional Needs of Cancer Caregivers (World Congress of Pyscho-Oncology, 2015)

Patient Interest In Clinical Trials: Results from a National Sample of Cancer Psychoeducational Program Attendees (World Congress of Pyscho-Oncology, 2015)