Welcome to the 2020 Cancer Experience Registry Report
What is the Cancer Experience Registry®?
The Cancer Experience Registry is an opportunity for any adult touched by cancer to share their experience so that others may learn. This online survey captures several parts of the patient and caregiver experience including physical, emotional, social, practical, and financial aspects of cancer. Doctors, nurses, researchers, policymakers, and others in the health care field use the findings in this report to help improve the cancer care journey.
LEARN MORE OR TAKE THE SURVEY


What is the 2020 Cancer Experience Registry Report?
The 2020 Cancer Experience Registry Report describes general findings among patients with any cancer type, findings among patients living with specific cancers, and findings among caregivers. Below are some key highlights.
This is what people in the report tell us about living with cancer:
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SIDE EFFECT AND SYMPTOMS 4 out of 10 4 out of 10 1 out of 3 |
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TREATMENT DECISION-MAKING 9 out of 10 |
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COST OF CARE 1 out of 10 |
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PRACTICAL CONCERNS 41% were moderately to very seriously concerned about changes or disruptions in work, school, or home life |
This is what people who were caregivers tell us:
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CAREGIVER ROLES 89% were quite a bit/very much involved in providing emotional support |
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CAREGIVER NEEDS 3 out of 4 More than 1 out of 2 |
Do you have questions about the findings or the report?
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Together we can improve cancer care.