MPN Awareness Activities and Resources

CSC recognizes all patients and their loved ones who are living with MPNs on MPN Awareness Day, September 11, 2014 and throughout the month of September, Blood Cancer Awareness Month.

The Cancer Support Community has created a comprehensive toolkit for anyone wishing to host an MPN Awareness event at any time of the year. Download the Toolkit here.

For tips on implementing a program, download our guide here.

Join our community on social media and help us raise awareness by sharing a photo of you and your MPN experience with the hashtag #MPNAware2014. Follow and “tag” the Cancer Support Community on Twitter with @CancerSupportCm and post on our Facebook Page.

Several CSC local sites will be hosting 2014 awareness events: Shining the Light on MPN during the month of September.

Here are the sites with the dates and contact information:

Gilda’s Club New York City
195 West Houston
New York, NY 10014
Phone: 212-647-9700
Tuesday, Sept 8
6:00 p.m. – 8:00 p.m.

Cancer Support Community Atlanta
5775 Peachtree Dunwoody Road, Suite C-225
Atlanta, GA 30342
Phone: 404-843-1880
Wednesday, Sept 9
5:30 p.m. – 8:30 p.m.

Gilda’s Club Metro Detroit
3517 Rochester Road
Royal Oak, MI 48073
Phone: 248-577-0800
Saturday Sept 13
11:30 a.m. – 3:00 p.m.

Cancer Support Community Santa Monica
1990 S. Bundy Drive, #100
Los Angeles, CA 90025
Phone: 310-314-2555
Saturday, Sept 20
11:00 a.m. – 3:00 p.m.

Cancer Support Community Greater Cincinnati Northern Kentucky
4918 Cooper Road
Cincinnati, OH 45242
Phone: 513-791-4060
Saturday, Sept 27
1:00 p.m. - 3:00 p.m.

Gilda’s Club Chicago
537 North Wells Street
Chicago, IL 60610
Phone: 312-464-9900
Tuesday, Sept 30
5:00 p.m. - 8:00 p.m.

This year's activities presented by the MPN Coalition in recognition of MPN Awareness Day and Blood Cancer Awareness Month will be listed soon. Please check back!

Information and Education Resources

Social Media Awareness: Twitter
Social Media Awareness: Facebook
Quick fact cards and feature patient stories

Leukemia and Lymphoma Society
Fact sheet: Essential Thrombocythemia
Fact sheet: Myelofibrosis
Fact sheet: Polycythemia Vera
Webinar: Advances in Blood Cancers: Update on Treatment for Myelofibrosis

MPN Education Foundation

MPN Research Foundation

Cancer Support Community
Webinar: Frankly Speaking about Cancer: Myelofibrosis

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