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Affordable Care Act in Action

Wednesday, August 14, 2013

The Cancer Support Community recognized the Supreme Court’s decision to uphold the tenets of the Affordable Care Act and, in particular, felt that insurance provisions of the law such as removal of lifetime caps, the removal of pre-existing condition discrimination and the option for dependents to stay on their parents’ health plans until the age of 26 would be of benefit for the cancer community. CSC was quick to point out that the important work would, in fact, be in the details of implementation of the law.

What to do When There’s a Drug Shortage

Wednesday, August 7, 2013

In recent years the number of drugs that are in short supply has been increasing, including drugs used to treat cancer. Most of these shortages are for drugs that are injected, or given intravenously. Some of these shortages are short-term and are caused by problems with shipping and ordering. Sometimes these shortages last longer. This is especially true when the shortage is caused by problems in the manufacturing of the drugs. If you have been diagnosed with cancer and are getting chemotherapy as part of your treatment, it is understandable that you would be concerned about a possible drug shortage.

Getting Help Through Uncertain Paths

Wednesday, July 31, 2013

I lost my mother to cancer just a month after I turned 24. Following her diagnosis of stage 4 esophageal cancer, she braved through more than two years of aggressive chemotherapy, radiation and surgery.

Losing people you love to cancer is of course tremendous to bear. Ask anyone who has experienced it—what’s said will likely bring you to tears. Stories of dashed hopes, of unanswered prayers, of lost time could shake your faith to the core. They knell of unavoidable pain as well as of our own fragility.

Making a Decision About Cancer Treatment

Wednesday, July 24, 2013

The good news in recent years is that there are more and more types of treatment for many kinds of cancer. No longer does “one size fit all” when you are making a decision about the type of treatment you’ll receive. More good news is that increasingly people are making these decisions jointly with their health care team as a part of shared decision making.

The challenge is that having to make these complicated treatment decisions can leave people feeling overwhelmed and confused. This is because for many people there is more than one treatment choice, and each of these choices has advantages and disadvantages.

The Lung Cancer Community Speaks Out

Wednesday, July 17, 2013

During a public meeting at the Food and Drug Administration (FDA) last month, a lung cancer survivor shared her experience. When she was diagnosed years ago, the first thing her doctor said to her was, “How should we begin your smoking cessation program?”

The woman had never even been a smoker—just like one out of every five people living with lung cancer.

She then pointed out that even if she had been, 60% of people diagnosed with lung cancer have already quit smoking, and many long-time smokers became addicted when they were just teens—and for many, that was before government warnings and stricter laws on advertising

Giving Back By Sharing Your Voice Through the Cancer Experience Registry

Thursday, July 11, 2013

If sharing your cancer journey could enhance the lives of others, would you help?

I keep hearing that people who have been diagnosed with cancer want to give back. They want to “pay it forward” so that the next person who is diagnosed with their disease will have a better experience than they had. I always think to myself – how selfless! We want to give back to you, too.

There seems to be so much survey research these days. An organization asks you to answer a questionnaire and then you never hear about it again. We wanted the Cancer Experience Registry to be so much more than a survey, so we created something we call Explore Responses where you can do just that – explore the responses of other people who have been diagnosed with cancer.

Tan Expectations

Wednesday, July 10, 2013

Today the threat of skin cancer does not usually cross young peoples’ minds when they grab their towels and skip the sunscreen to lie out in the sun to get bronze skin. It is normal and very common to bring up in conversation one’s tan, and it is a compliment to hear, “Wow, you look so dark!” As a college student, I know that a nice tan is an expectation of young people during the summer months.

The media and pop culture often glamorize tan skin, encouraging young people to attain a luminous glow. However, skin cancer is a very real danger to my generation. The most aggressive form of skin cancer is melanoma. It develops when skin cells are damaged and mutate, which causes rapid skin cell growth. It is usually pigmented (typically brown or black) and can be seen on the skin. It is estimated that in 2013, 76,690 new cases of invasive melanoma will be diagnosed. Melanoma is also the most common form of cancer in young adults ages 25-29.

A focused fact finding mission: The Cancer Experience Registry

Saturday, July 6, 2013

The launch of the Cancer Support Community’s Multiple Myeloma Cancer Experience Registry is a huge step forward for all of us that have been afflicted with MM.

Thank you! Thank you! CSC and the entire team that has spent months of time developing this registry on our behalf!

Young Leaders Host Comedy Night to Benefit CS

Wednesday, June 26, 2013

We seem to have a history of hosting Comedy Night on the rainiest day of the summer. Yet again, on Thursday, June 13, 2013, it was a torrential downpour outside as the Young Leadership Council’s friends and family made their way to Greenwich Village Comedy Club. Fortunately, no amount of rain could stop this crowd. In fact, our friends were looking for tickets to the event up until show time, a true testament to the importance of our mission and the inescapable passion of the YLC. As the lights dimmed and we settled in to enjoy a night of laughs (and a surprise visit by Judah Friedlander!), Gilda Radner crossed all of our minds.

The Cancer Support Launches its Cancer Policy Institute

Wednesday, June 19, 2013

Today was a very special day for the Cancer Support Community as we launched the Cancer Policy Institute, an initiative that furthers our organization’s mission to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action and sustained by community.

We are excited to take this next step by advocating on behalf of all people impacted by cancer so that the voices of 13.7 million cancer survivors and their families are heard on Capitol Hill and in state and local legislatures across the country. The Cancer Policy Institute will work to move the agenda that comprehensive, quality cancer care integrates medical care and social and emotional care.

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